Re: Estrace and pain type

[Guest guest]

Carolyn,

I've only been using Estrace for 1-1/2 to 2 weeks, but it's made a

difference. I'm 48 and for approx. 4 years have had chronic vaginal

irritation, including burning, cutting, splinter-type pain, inflammation,

splitting skin. It got gradually worse during that time and eventually led

to inability to have intercourse or insert tampons and immediate POC.

During flares, the skin is bright red. Other times it's either slightly

red or sometimes pasty pink. To me, it doesn't look healthy, but I'm not

sure what that would look like anyway. Sometimes the

irritation/pain/inflammation is primarily on the vestibulum and other times

it extends up through the pubic region and out as far as the crease where

my thighs attach to my torso.

Prior to 4 years ago, I had none of these problems. I always had a healthy

sex life, used tampons, and the worst problem I had vaginally was a very

rare yeast infection.

Hope this information helps answer your questions.

Good luck,

Janis

[Guest guest]

Hi everyone,

This is Kiernan and I have to make a very difficult decision. My doctor

wants me to get a vestibulectomy where they take my vestibular glands out,

and I'm only 19 years old. I don't really want to do this but what else

can I do? I can't figure this thing out. For all of you who have had this

procedure done, did it work? Did it take your pain away 100%? That's what

I am hoping for. Also, when they removed your glands did they do further

testing on them to see what the problem with them was? Before I even make

the decision I want to know what doctors have found to be wrong with the

glands after they have been removed. I want to know if the cause of the

inflammation of the glands is caused by something either fungal, bacterial,

or viral. Another symptom I have is that when I get aroused my glands hurt

even more, alot more, they start to sting and hurt really bad!!! Why is

this I wonder? I really need some help making this decision, if there is

anyone who can shed some light on this procedure or has any further

information on why this procedure is done, I would greatly appreciate it.

Sincerely,

Kiernan

[Guest guest]

Hi everyone, this is Kiernan again. I just wanted to ask is there anyone

who notices that if they rub there vulvar skin like the labia minora, and

labia majora that a whitish yellowish flaky stuff seems to be rubbing off

with it? I noticed this for a while now and I'm wondering if it is yeast or

something else? It's dry and flaky though as if it were skin but I know it

not skin. There is kind of an odor to it too but it 's not really that

bad. Could this be a unknown bacteria or fungus? I also notice that this

is coming from inside the tissues of my skin, not from my vagina. Also

there is this stuff coming out of my clitorus too it's also more sticky and

there's more of it, not exactly on the clitorus but inside it near the

gland of it. I'm not sure what this stuff is but I'm going to go to

another doctor and have them culture it, and I'm going to have them to a

colposcopy of my vulvar skin because it doesn't look right. Maybe whatever

this stuff is it is causing my skin to look the way it does and maybe it is

also what is in my vestibular glands making them very painful and

inflammed. Maybe this could be the key to what is going on down there.

Well my current doctor wants me to get a vestibulectomy because she thinks

it's the only way to go but I don't!!!!! There is definitely something

wrong with my glands and my skin but there has to be a cause to what is

making it hurt and burn so much. My doctor also said that I have this dip

in my tissues right near one of my vestibular glands and she said she

doesn't know what it is or what causes it but that she has seen it in two

other women who got this right after having a c-section. Well I never had

a c-section or was ever pregnant so she doesn't know if that is linked to

it. But she said the two women had there glands removed and now they are

fine. I don't know but I'm going crazy over this!!!!!! should I get a

vestibulectomy or not???? If all this is caused by some unknown bacteria

or fungus then what is surgery gonna do???? My vestibular glands are a

part of me that I cannot get back if they are removed, there has to be

another way around this thing. Isn't there any other way that doctors can

look at the glands without cutting women open, or just taking them out???

I know there is something wrong with my glands because when I get aroused

they hurt and sting alot more, I can actually feel them burning and

stinging way worse when they are supposed to be secreting or doing what

they are supposed to do. I wonder what the reason for that is????? If

anyone can help me I would really appreciate it. All I want for Christmas

is for this mystery to be solved so I can get my life back. I wish

everyone luck.

Sincerely,

Kiernan

[Guest guest]

Kiernan,

Has your Dr. checked out your Bartholin glands at all?

Have you taken Accutane by any chance?

Re: Estrace and pain type

>

>

>Hi everyone, this is Kiernan again. I just wanted to ask is there anyone

>who notices that if they rub there vulvar skin like the labia minora, and

>labia majora that a whitish yellowish flaky stuff seems to be rubbing off

>with it? I noticed this for a while now and I'm wondering if it is yeast or

>something else? It's dry and flaky though as if it were skin but I know it

>not skin. There is kind of an odor to it too but it 's not really that

>bad. Could this be a unknown bacteria or fungus? I also notice that this

>is coming from inside the tissues of my skin, not from my vagina. Also

>there is this stuff coming out of my clitorus too it's also more sticky and

>there's more of it, not exactly on the clitorus but inside it near the

>gland of it. I'm not sure what this stuff is but I'm going to go to

>another doctor and have them culture it, and I'm going to have them to a

>colposcopy of my vulvar skin because it doesn't look right. Maybe whatever

>this stuff is it is causing my skin to look the way it does and maybe it is

>also what is in my vestibular glands making them very painful and

>inflammed. Maybe this could be the key to what is going on down there.

>Well my current doctor wants me to get a vestibulectomy because she thinks

>it's the only way to go but I don't!!!!! There is definitely something

>wrong with my glands and my skin but there has to be a cause to what is

>making it hurt and burn so much. My doctor also said that I have this dip

>in my tissues right near one of my vestibular glands and she said she

>doesn't know what it is or what causes it but that she has seen it in two

>other women who got this right after having a c-section. Well I never had

>a c-section or was ever pregnant so she doesn't know if that is linked to

>it. But she said the two women had there glands removed and now they are

>fine. I don't know but I'm going crazy over this!!!!!! should I get a

>vestibulectomy or not???? If all this is caused by some unknown bacteria

>or fungus then what is surgery gonna do???? My vestibular glands are a

>part of me that I cannot get back if they are removed, there has to be

>another way around this thing. Isn't there any other way that doctors can

>look at the glands without cutting women open, or just taking them out???

>I know there is something wrong with my glands because when I get aroused

>they hurt and sting alot more, I can actually feel them burning and

>stinging way worse when they are supposed to be secreting or doing what

>they are supposed to do. I wonder what the reason for that is????? If

>anyone can help me I would really appreciate it. All I want for Christmas

>is for this mystery to be solved so I can get my life back. I wish

>everyone luck.

>

> Sincerely,

> Kiernan

>

>------------------------------------------------------------------------

>

[Guest guest]

Kiernan,

I had a vestibulectomy two weeks ago. My doc says it will be a few months

until we can tell if it worked or not, so sorry I can't give you more info

that way. Like you, I had a VERY difficult time making the decision to

have surgery. I was an emotional wreck, and was finally actually kind of

relieved just to have it so I could deal with it instead of just worrying.

One thing that helped me make the decision (besides a very supportive

husband and a doctor I trust 100%) was the realization that I'd put a year

into trying the treatments (creams, no soap, yeast meds, etc) that

supposedly work for only about 10% of women, and the surgery is said to

have a success rate of 80-90%. I know it's still super scary, and I'd

never want to talk you into something that I felt was right for me

personally, but I just wanted to let you know that I understand completely

the frustration and scariness of what you're going through.

Although I can't tell you the outcome yet, let me know if you want more

info about the procedure itself or the initial recovery (I researched it

extensively, and I have first hand experience now too!), or if you just

need to talk about your situation. I know that the time where I was

deciding was very emotionally draining (still is, waiting to know if I'm

stuck with this forever), so if you need to talk, it might do us both good!

Good luck; I'm thinking of you.

At 11:57 AM 12/5/98 -0500, you wrote:

>

>

>Hi everyone,

>

>This is Kiernan and I have to make a very difficult decision. My doctor

>wants me to get a vestibulectomy where they take my vestibular glands out,

>and I'm only 19 years old. I don't really want to do this but what else

>can I do? I can't figure this thing out. For all of you who have had this

>procedure done, did it work? Did it take your pain away 100%? That's what

>I am hoping for. Also, when they removed your glands did they do further

>testing on them to see what the problem with them was? Before I even make

>the decision I want to know what doctors have found to be wrong with the

>glands after they have been removed. I want to know if the cause of the

>inflammation of the glands is caused by something either fungal, bacterial,

>or viral. Another symptom I have is that when I get aroused my glands hurt

>even more, alot more, they start to sting and hurt really bad!!! Why is

>this I wonder? I really need some help making this decision, if there is

>anyone who can shed some light on this procedure or has any further

>information on why this procedure is done, I would greatly appreciate it.

> Sincerely,

> Kiernan

>

>------------------------------------------------------------------------

>

[Guest guest]

,

This is Kiernan, I would love to know more about the procedure itself and

recovery. If you can I would love for you to tell me everything from the

day of your surgery up until now. Also, did you just have pain on contact

or burning all the time??? Please get back to me as soon as you can.

Sincerely,

Kiernan

[Guest guest]

,

This is Kiernan, I would love to know more about the procedure itself and

recovery. If you can I would love for you to tell me everything from the

day of your surgery up until now. Also, did you just have pain on contact

or burning all the time??? Please get back to me as soon as you can.

Sincerely,

Kiernan

[Guest guest]

,

This is Kiernan, I would love to know more about the procedure itself and

recovery. If you can I would love for you to tell me everything from the

day of your surgery up until now. Also, did you just have pain on contact

or burning all the time??? Please get back to me as soon as you can.

Sincerely,

Kiernan