Re: Vulvodynia/vestibulitis

[Guest guest]

...you said your problems started after the birth of your first child,

which was by c-section. Has any doctor ever told you that had something to do

with your VV problems? I'm just curious since my children were delivered by

c-section also. Diane

[Guest guest]

...you said your problems started after the birth of your first child,

which was by c-section. Has any doctor ever told you that had something to do

with your VV problems? I'm just curious since my children were delivered by

c-section also. Diane

[Guest guest]

Hi ,

What is perineoplasty?

Thanks, Joanne

[Guest guest]

Hi Joanne,

A perineoplasty consists of removing the affectied tissue ( if you imagine

the vaginal opening in terms of a clock) usually from the 3 - 6 o'clock

area. After this a vaginal advancement is done, simply put, advancing the

vaginal tissue over the excoriated surgical site, then stitched.

A " complete response " to the surgery can sometimes take up to six months.

It's been about 3 for me, and I'm feeling pretty good. As I said in my

post, the next step is to begin the gradual dilators. Some docs use

biofeedback instead of the dilators. I opted for the dilators for now.

Time off from work, etc. varies with each woman. I am an RN an work in the

ICU. Due to the physical demands of the job I stayed out for 10 weeks. I

know several women who returned to work much sooner. It just depends on

you, the nature of your work, and your individual healing ability.

If you have any other questions, please feel free to ask.

----------

>

> To: VulvarDisordersonelist

> Subject: Re: Vulvodynia/vestibulitis

> Date: Thursday, November 19, 1998 5:24 PM

>

> From: joannepd@... (joanne mcnabb)

>

> Hi ,

>

> What is perineoplasty?

>

> Thanks, Joanne

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Hi Joanne,

A perineoplasty consists of removing the affectied tissue ( if you imagine

the vaginal opening in terms of a clock) usually from the 3 - 6 o'clock

area. After this a vaginal advancement is done, simply put, advancing the

vaginal tissue over the excoriated surgical site, then stitched.

A " complete response " to the surgery can sometimes take up to six months.

It's been about 3 for me, and I'm feeling pretty good. As I said in my

post, the next step is to begin the gradual dilators. Some docs use

biofeedback instead of the dilators. I opted for the dilators for now.

Time off from work, etc. varies with each woman. I am an RN an work in the

ICU. Due to the physical demands of the job I stayed out for 10 weeks. I

know several women who returned to work much sooner. It just depends on

you, the nature of your work, and your individual healing ability.

If you have any other questions, please feel free to ask.

----------

>

> To: VulvarDisordersonelist

> Subject: Re: Vulvodynia/vestibulitis

> Date: Thursday, November 19, 1998 5:24 PM

>

> From: joannepd@... (joanne mcnabb)

>

> Hi ,

>

> What is perineoplasty?

>

> Thanks, Joanne

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Hi :

Welcome to the list, although I really wish you didn't have a need to be

here. I think you'll find us a pretty welcoming bunch of women!

> I can't believe through all of my searching that I didn't

> come upon this site before.

I only just created the list on October 28, and my website has only been

around since the beginning of August.

> Anyway, I have suffered with vulvar vestibulitis for 13 years!! It > started

after the birth of my first child. I had a c-section, not a > vaginal birth.

That's really interesting! Do you suspect that it was a hormonal change

that may have caused your VV?

I'm really interested to hear how you do as the months go by after your

surgery. Please keep us updated, okay? Hopefully you'll fall into that

success rate!!

Good luck,

Heidi

[Guest guest]

Hi :

Welcome to the list, although I really wish you didn't have a need to be

here. I think you'll find us a pretty welcoming bunch of women!

> I can't believe through all of my searching that I didn't

> come upon this site before.

I only just created the list on October 28, and my website has only been

around since the beginning of August.

> Anyway, I have suffered with vulvar vestibulitis for 13 years!! It > started

after the birth of my first child. I had a c-section, not a > vaginal birth.

That's really interesting! Do you suspect that it was a hormonal change

that may have caused your VV?

I'm really interested to hear how you do as the months go by after your

surgery. Please keep us updated, okay? Hopefully you'll fall into that

success rate!!

Good luck,

Heidi

[Guest guest]

Diane.... No, that has never been mentioned to me. It seems rather ironic

though that everything started after childbirth. I hear this quite a bit

though, however many of these women have given birth vaginally as well. I

think there are different reasons why women get this. In alot of women it

seems that yeast may be a factor. I myself have not had too much of a

problem with yeast infections. Due to the fact that many different things

seem to trigger this, and that different women respond to different

treatments, it makes it a very difficult disease process to diagnose and

treat.

Have you tried anything that has worked?

----------

> From: DMDi1@...

> To: VulvarDisordersonelist

> Subject: Re: Vulvodynia/vestibulitis

> Date: Thursday, November 19, 1998 5:25 PM

>

> From: DMDi1@...

>

> ...you said your problems started after the birth of your first

child,

> which was by c-section. Has any doctor ever told you that had something

to do

> with your VV problems? I'm just curious since my children were delivered

by

> c-section also. Diane

>

> ------------------------------------------------------------------------

>

[Guest guest]

Diane.... No, that has never been mentioned to me. It seems rather ironic

though that everything started after childbirth. I hear this quite a bit

though, however many of these women have given birth vaginally as well. I

think there are different reasons why women get this. In alot of women it

seems that yeast may be a factor. I myself have not had too much of a

problem with yeast infections. Due to the fact that many different things

seem to trigger this, and that different women respond to different

treatments, it makes it a very difficult disease process to diagnose and

treat.

Have you tried anything that has worked?

----------

> From: DMDi1@...

> To: VulvarDisordersonelist

> Subject: Re: Vulvodynia/vestibulitis

> Date: Thursday, November 19, 1998 5:25 PM

>

> From: DMDi1@...

>

> ...you said your problems started after the birth of your first

child,

> which was by c-section. Has any doctor ever told you that had something

to do

> with your VV problems? I'm just curious since my children were delivered

by

> c-section also. Diane

>

> ------------------------------------------------------------------------

>

[Guest guest]

Dear :

Welcome to the site, though as with everyone else, I'm sorry you have to be

here. After reading your letter I am wondering if there are any patients who

have actually been cured of this dreadful condition. Everyday I read the

mail, letter after letter from women who have suffered endlessly, tried every

cream, pill, etc, with no success. Is there anyone out there who finally got

rid of " the beast " ? Are we foolishly hoping to one day be pain free? I'd

like to hear from someone who is well...what got you to that point? Is there

treatment that truly works?

I feel like banging my head against the wall, trying every stupid thing to get

better and not having any success. In fact, today I'm so darned mad that I

ate bread...chocolate...had a beer...and by golly, I'm going to drink a glass

of wine too. The vestibulitis patient's version of " spitting into the wind " .

I just want to know...am I ever going to have a day when I don't think about

the state of my vagina? Will I ever have sex again? Will I ever be able to

stop packing myself with creams...ointments...popping pills...eating

this...not eating that? I really, truly am sick and tired of this

" thing " ..whatever the heck it is...I want it to go away...leave me alone...bye

bye for good...

Sorry if I'm whining, but I suspect that I am in a very large boat with a lot

of company...

Girls, what are we going to do?

Frustrated...

Barb

[Guest guest]

I hear you Barbara,

I am in the same boat as you! And, just last week I ate cake and drank wine

and ate raspberries and oranges and got this " screw it " attitude for a

couple of days because I figured I am in pain no matter what I do. It is

hard to avoid going into these cycles. It seems so hopeless

sometimes...Ahhhh!!

Just know that I understand.... A