Re: Dr Phil Show - help!

[Guest guest]

Yes, let us Angelenos know if we can help!

Gergans

[Guest guest]

We can all speak our minds to him by emailing the show. Go to www.drphil.com and send them the message.

Someone needs to go on the show and tell Mr. Psycobabble that this is not something that you can just suck up and get over with will power or by just dealing with some unresolved issue from ones childhood.

The little I have seen of Dr. Phil leads me to conclude that he just likes to tell people what they need to do to fix the problem ( Typical male!).

Until someone comes up with a real cure, all we can do is find workable coping mechanisms and hope that, through public, and private awareness, people will be tolerant and understanding of our suffering.

Mike

To: Soundsensitivity Sent: Thursday, October 13, 2011 6:34 AMSubject: Re: Re: Dr Phil Show - help!

If Dr. Phil has completely dismissed the problem and basically told people with this problem that it isn't real and instead we have another problem (anxiety), what good would it do to go through it all again?

---------------------------------------------------------

♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmae

In in LA, if you need someone to step in!

[Guest guest]

I agree. And as Heidi said, he had a chance to look at our disorder but he

laughed it off and told the woman to just relax. Remember: he is a psychologist

and misophonia is not a psychological disorder. THE ONLY REASON TO BARE YOUR

SOUL to him and be possibly subjected to patronizing BS is to take advantage of

the diagnostic place he sends people to. Someplace in TX where they can do

thousands of $$ worth of tests. If you can get them to agree to the testing

before you go . . . Hey - I know at least 2 of us who are in so cal!!!!!

> >

> >

> >

> > I wrote a letter a while ago about just learning about my condition with

> > Misophonia. At the time I had just learned that it was an actual disorder

> > and was asking for help. Since I have written the letter all of the

> > information has come out nationally and in this group.

> >

> > Well, tonight I received a call from someone from the show. The woman asked

> > me a bunch of questions about the disorder and about my life dealing with

> > it. She proceeds to tell me that they are taping a show next week about

> > unusual disorders and would like me to come for a taping. She said that it

> > would be talking to Dr Phil about coping and hopefully resources he can

> > provide for me.

> >

> > I am so torn on whether or not to do this! She wants my husband to come

> > with me because he is the one who lives with me and he is also my biggest

> > fear of losing from this disorder. The problem is also that my husband is a

> > contractor with his job and if he doesn't work, he doesn't get paid. We

> > would need to fly to CA for three days (We live in PA). We also have three

> > small children and would have to find someone to watch them while we are

> > gone. My mother offered to go with me but I don't know if I can spend three

> > days that far away with her. I love her but she is a huge trigger for me!

> > Plus the anxiety of flying on a plane but I'm not even going to get into

> > that right now.

> >

> > Any advise?

> >

> >

> >

> >

>

[Guest guest]

I agree with Mike that Dr. Phil has no clue what he's talking about.

He may not be a bad person, but he's a showman rather than a doctor: helping us

is not his first priority. I think we should stick with qualified practitioners

and not give Dr. Phil the chance to say something stupid about misophonia on TV

again.

-Kate K.

>

>  

> >In in LA, if you need someone to step in!

> >

> >

> >

> >

>

[Guest guest]

It's also possible he's been made aware of the recent growing awareness of

misophonia. Though I personally would make sure to understand his position

before agreeing to be on the show.

> > > >

> > > >

> > > >

> > > > I wrote a letter a while ago about just learning about my condition with

> > > > Misophonia. At the time I had just learned that it was an actual

disorder

> > > > and was asking for help. Since I have written the letter all of the

> > > > information has come out nationally and in this group.

> > > >

> > > > Well, tonight I received a call from someone from the show. The woman

asked

> > > > me a bunch of questions about the disorder and about my life dealing

with

> > > > it. She proceeds to tell me that they are taping a show next week about

> > > > unusual disorders and would like me to come for a taping. She said that

it

> > > > would be talking to Dr Phil about coping and hopefully resources he can

> > > > provide for me.

> > > >

> > > > I am so torn on whether or not to do this! She wants my husband to come

> > > > with me because he is the one who lives with me and he is also my

biggest

> > > > fear of losing from this disorder. The problem is also that my husband

is a

> > > > contractor with his job and if he doesn't work, he doesn't get paid. We

> > > > would need to fly to CA for three days (We live in PA). We also have

three

> > > > small children and would have to find someone to watch them while we are

> > > > gone. My mother offered to go with me but I don't know if I can spend

three

> > > > days that far away with her. I love her but she is a huge trigger for

me!

> > > > Plus the anxiety of flying on a plane but I'm not even going to get into

> > > > that right now.

> > > >

> > > > Any advise?

> > > >

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

So Phil puts a teen on the show, before she has been checked for other medical causation's like he mentioned she should be, and then proceeds to diagnose her anyway, that basically she is making bad choices about "deciding" to focus on the sounds. arrg. And I seriously doubt he did a follow up on her with the heavy patient load he has with his daily show..Truth is, it is hard to get most people to take this seriously and understand it, even Doctors and Psychologists. So we can't blame him too much for blowing it off before. It's not like Phil's doctoring and self thought up theories, are exceptionally insightful or brilliant, and at times are downright nonsense. (just my views) He is an entertainer first and foremost, but at least he does have a large audience and very deep

pockets.It might be good for someone to go on the show, if indeed it is a show about unusual conditions and there is a guarantee like Heidi mentioned that the term misophonia will be said on air. I am sure there would be people watching who would be very grateful to at least then finally have a name for their strange sound sensitivity. And the more we can increase our numbers, the better.Might also be worth it for whoever personally does the show, if one could get free sound generators out

of it or like adah mentioned better yet an fMRI scan. But if his treatment suggestions are

the same as the last show, that the exposure therapy could fix it maybe

even in 8 to 10 hours, that would be very disappointing. imo Dr. J should be able to talk to the producers first, so that they really have their facts strait before some brave soul(s) subject themselves to being on stage with Phil especially with all that vile lip smacking he does when he speaks. I am afraid I might punch him in his big mouth if he started giving me that "who do you think you are questioning MY advice" attitude, so I won't be volunteering myself. :-D Phil has missed the boat on this one a couple times now, someone else from this group had also been on a show on etiquette a while back, and he told her she should be more relaxed about other people's eating manners and gave her a relaxation cd. And that was that.But who knows maybe one on his staff saw the Today Show and did their darnedest to get Phil to finally "see the light" or maybe I

should say "see the zebra" on this one. :-) Anything is possible.To: Soundsensitivity Sent: Thursday, October 13, 2011 10:07 PMSubject: Re: Dr Phil Show - help!

Link to Dr. Phil's response to his previous misophonia guest.

http://drphil.com/slideshows/slideshow/5518/?id=5518 & slide=1 & showID=1374 & preview= & versionID#VideoPlayer

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

[Guest guest]

I just watched, and after reading your responses, I was shocked to see that he didn't blow her off at all.He acknowledged that she's having a physical reaction to these sounds that then PRODUCE anxiety, and he talked about a type of therapy (that is wayyyyy different than pure exposure therapy) to try to retrain those circuits that lead to an inability to cope with the sounds.

I'm not on the 'good doctor's' side at all, as he totally botched an opportunity to raise an awareness about the drug Tramadol, but I also think that GIVEN what little information there was about this out there at the time, he did not dismiss her.  I think that this is why she does not appear to get angry or frustrated - what he says is not a bad idea, especially for someone (a teen) who has no idea how else to cope with this.

[Guest guest]

Hi My psychiatrist calls my misophonia a different word, "tonophobia" which he says is something that people who are prone to anxiety can have. I am on medications for anxiety which help some with the reaction to the sounds and keeps my overall anxiety down which helps the misophonia as well. but I am really bothered by my inability to concentrate because I can not habituate to the sounds (not notice them) to keep them in the background. I do agree that the kind of therapy and relaxation training, Phil was speaking is helpful for anxiety (not the flooding) ~ I was venting, which I probably shouldn't do. Many of us have being trying the kind of things he was talking about. I have years of CBT for social anxiety which has been very helpful for the social anxiety and general anxiety and depression. But

the misophonia itself seems to be very resistant to traditional therapies from what I have tried and heard from others, and is going to be a challenging thing to accomplish as far as the "initial" reaction to the sound and visuals in my case, imo, not that I am saying it can't be done, we just need better ways to do it. My doctor thinks it is something I am going to have to find ways to "manage" Interestingly, I just saw my Dr and he wants me to try a small amount of an opioid medication as a test, which he uses sometimes for highly resistant depression. Because I told him the only person I had ever heard of really noticing a huge difference with medication, was someone who had taken oxycodone after dental surgery, not that that is what he prescribed me. I haven't had a chance to try the medication yet, but will report back if I have any interesting results.You are right, Phil was preety nice to , he can be a really bully at times.

I think my and any others strong reactions of being "blown off" stems more from years of trying to get others to take this seriously, family, friends, doctors, therapists, bosses. It's a common kind of venting around here. We do talk about methods of therapy, trying to get effective therapy results for the misophonia has been frustrating, perhaps because of the possible neurological glitch.I am happy that you have joined the group, thanks for taking the time to write your very knowledgeable explanations and ideas.To: Soundsensitivity Sent: Friday, October 14, 2011 10:27 AMSubject: Re: Re: Dr Phil Show - help!

I just watched, and after reading your responses, I was shocked to see that he didn't blow her off at all.He acknowledged that she's having a physical reaction to these sounds that then PRODUCE anxiety, and he talked about a type of therapy (that is wayyyyy different than pure exposure therapy) to try to retrain those circuits that lead to an inability to cope with the sounds.

I'm not on the 'good doctor's' side at all, as he totally botched an opportunity to raise an awareness about the drug Tramadol, but I also think that GIVEN what little information there was about this out there at the time, he did not dismiss her. I think that this is why she does not appear to get angry or frustrated - what he says is not a bad idea, especially for someone (a teen) who has no idea how else to cope with this.

[Guest guest]

Years ago dr phil had a show with a woman who had misophonia. i wrote to the show about the topic and received no reply and he had no helpful advice.

[Guest guest]

I just tried to google "tonophobia" and can't find it. But regardless, "phobia" indicates a fear of. There is another word that means "fear of sound". But I don't think what we suffer from is a FEAR of the noises that bother us. We are not "afraid" of the noises, rather the noises themselves incite such a negative reaction in us that we try to avoid them because it hurts our ears or whatever and incites anxiety. I have found that psychiatrists/psychologists try to wrap up all our symptoms into one neat little package by giving an all encompassing diagnosis when there really isn't one to include everything. They aren't happy without a fairly quick diagnosis. And many symptoms overlap different conditions. For instance Aspergers and a form of schizophrenia have overlapping

symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Friday, October 14, 2011 4:40 PMSubject: Re: Re: Dr Phil Show - help!

Hi My psychiatrist calls my misophonia a different word, "tonophobia" which he says is something that people who are prone to anxiety can have. I am on medications for anxiety which help some with the reaction to the sounds and keeps my overall anxiety down which helps the misophonia as well. but I am really bothered by my inability to concentrate because I can not habituate to the sounds (not notice them) to keep them in the background. I do agree that the kind of therapy and relaxation training, Phil was speaking is helpful for anxiety (not the flooding) ~ I was venting, which I probably shouldn't do. Many of us have being trying the kind of things he was talking about. I have years of CBT for social anxiety which has been very helpful for the social anxiety and general

anxiety and depression. But

the misophonia itself seems to be very resistant to traditional therapies from what I have tried and heard from others, and is going to be a challenging thing to accomplish as far as the "initial" reaction to the sound and visuals in my case, imo, not that I am saying it can't be done, we just need better ways to do it. My doctor thinks it is something I am going to have to find ways to "manage" Interestingly, I just saw my Dr and he wants me to try a small amount of an opioid medication as a test, which he uses sometimes for highly resistant depression. Because I told him the only person I had ever heard of really noticing a huge difference with medication, was someone who had taken oxycodone after dental surgery, not that that is what he prescribed me. I haven't had a chance to try the medication yet, but will report back if I have any interesting results.You are right, Phil was preety nice to , he can be a really bully at times.

I think my and any others strong reactions of being "blown off" stems more from years of trying to get others to take this seriously, family, friends, doctors, therapists, bosses. It's a common kind of venting around here. We do talk about methods of therapy, trying to get effective therapy results for the misophonia has been frustrating, perhaps because of the possible neurological glitch.I am happy that you have joined the group, thanks for taking the time to write your very knowledgeable explanations and ideas.To: Soundsensitivity Sent: Friday, October 14, 2011 10:27 AMSubject: Re: Re: Dr Phil Show - help!

I just watched, and after reading your responses, I was shocked to see that he didn't blow her off at all.He acknowledged that she's having a physical reaction to these sounds that then PRODUCE anxiety, and he talked about a type of therapy (that is wayyyyy different than pure exposure therapy) to try to retrain those circuits that lead to an inability to cope with the sounds.

I'm not on the 'good doctor's' side at all, as he totally botched an opportunity to raise an awareness about the drug Tramadol, but I also think that GIVEN what little information there was about this out there at the time, he did not dismiss her. I think that this is why she does not appear to get angry or frustrated - what he says is not a bad idea, especially for someone (a teen) who has no idea how else to cope with this.

[Guest guest]

I just tried to google "tonophobia" and can't find it. But regardless, "phobia" indicates a fear of. There is another word that means "fear of sound". But I don't think what we suffer from is a FEAR of the noises that bother us. We are not "afraid" of the noises, rather the noises themselves incite such a negative reaction in us that we try to avoid them because it hurts our ears or whatever and incites anxiety. I have found that psychiatrists/psychologists try to wrap up all our symptoms into one neat little package by giving an all encompassing diagnosis when there really isn't one to include everything. They aren't happy without a fairly quick diagnosis. And many symptoms overlap different conditions. For instance Aspergers and a form of schizophrenia have overlapping

symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Friday, October 14, 2011 4:40 PMSubject: Re: Re: Dr Phil Show - help!

Hi My psychiatrist calls my misophonia a different word, "tonophobia" which he says is something that people who are prone to anxiety can have. I am on medications for anxiety which help some with the reaction to the sounds and keeps my overall anxiety down which helps the misophonia as well. but I am really bothered by my inability to concentrate because I can not habituate to the sounds (not notice them) to keep them in the background. I do agree that the kind of therapy and relaxation training, Phil was speaking is helpful for anxiety (not the flooding) ~ I was venting, which I probably shouldn't do. Many of us have being trying the kind of things he was talking about. I have years of CBT for social anxiety which has been very helpful for the social anxiety and general

anxiety and depression. But

the misophonia itself seems to be very resistant to traditional therapies from what I have tried and heard from others, and is going to be a challenging thing to accomplish as far as the "initial" reaction to the sound and visuals in my case, imo, not that I am saying it can't be done, we just need better ways to do it. My doctor thinks it is something I am going to have to find ways to "manage" Interestingly, I just saw my Dr and he wants me to try a small amount of an opioid medication as a test, which he uses sometimes for highly resistant depression. Because I told him the only person I had ever heard of really noticing a huge difference with medication, was someone who had taken oxycodone after dental surgery, not that that is what he prescribed me. I haven't had a chance to try the medication yet, but will report back if I have any interesting results.You are right, Phil was preety nice to , he can be a really bully at times.

I think my and any others strong reactions of being "blown off" stems more from years of trying to get others to take this seriously, family, friends, doctors, therapists, bosses. It's a common kind of venting around here. We do talk about methods of therapy, trying to get effective therapy results for the misophonia has been frustrating, perhaps because of the possible neurological glitch.I am happy that you have joined the group, thanks for taking the time to write your very knowledgeable explanations and ideas.To: Soundsensitivity Sent: Friday, October 14, 2011 10:27 AMSubject: Re: Re: Dr Phil Show - help!

I just watched, and after reading your responses, I was shocked to see that he didn't blow her off at all.He acknowledged that she's having a physical reaction to these sounds that then PRODUCE anxiety, and he talked about a type of therapy (that is wayyyyy different than pure exposure therapy) to try to retrain those circuits that lead to an inability to cope with the sounds.

I'm not on the 'good doctor's' side at all, as he totally botched an opportunity to raise an awareness about the drug Tramadol, but I also think that GIVEN what little information there was about this out there at the time, he did not dismiss her. I think that this is why she does not appear to get angry or frustrated - what he says is not a bad idea, especially for someone (a teen) who has no idea how else to cope with this.

[Guest guest]

I think if we are going to organize a letter writing effort, or pursue more exposure, Dr. Phil is not the person to go after for help. there has to be someone who has a talk show that people take more seriously

[Guest guest]

I think if we are going to organize a letter writing effort, or pursue more exposure, Dr. Phil is not the person to go after for help. there has to be someone who has a talk show that people take more seriously

[Guest guest]

I still think we should contact Dr. Sanjay Gupta. He has a serious medical

segment on CNN. My humble opinion is that he is taken more seriously than Dr.

Phil in the medical community because his show is not based on entertainment

value. He also happens to be a neurosurgeon so if misophonia is truly

physiological he may have some interest in doing research or doing a segment

about it on his show. I think he has a lot of credibility and minimal ego. He

should be easy to contact through CNN. Any thoughts about going this route?

Regards

Elaine

>

> I think if we are going to organize a letter writing effort, or pursue more

exposure, Dr. Phil is not the person to go after for help.

>  there has to be someone who has a talk show that people take more seriously 

>

[Guest guest]

I still think we should contact Dr. Sanjay Gupta. He has a serious medical

segment on CNN. My humble opinion is that he is taken more seriously than Dr.

Phil in the medical community because his show is not based on entertainment

value. He also happens to be a neurosurgeon so if misophonia is truly

physiological he may have some interest in doing research or doing a segment

about it on his show. I think he has a lot of credibility and minimal ego. He

should be easy to contact through CNN. Any thoughts about going this route?

Regards

Elaine

>

> I think if we are going to organize a letter writing effort, or pursue more

exposure, Dr. Phil is not the person to go after for help.

>  there has to be someone who has a talk show that people take more seriously 

>

[Guest guest]

I couldn't find it tonophobia the internet either other than fear of Tony Blair in England. But in a medical dictionary I found "tono" when used as a prefix for

medical terminology can refer to "the elastic tension of living

muscles, arteries, ect. that facilitate response to stimili."or also just "tension". For me that would kind of makes sense, since that is what I often feel in response to triggers, extreem tension first often leading then to anxiety or irritability. I've only seen him a few times, and keep forgetting to ask more about it.I think psychiatrists try to get misophonia into an existing disorder so they can have ideas about how to treat it, what neurochemical systems are involved at least that is the experience I have had with my Doctors. Both of whom I think have found the problem interesting. Very often if a person has one psychiatric disorder they have another or additional comorbid psychiatric disorders. Like people with bipolar often have a high incidence of having ocd. as well.To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 10:09 AMSubject: Re: Re: Dr Phil Show - help!

I just tried to google "tonophobia" and can't find it. But regardless, "phobia" indicates a fear of. There is another word that means "fear of sound". But I don't think what we suffer from is a FEAR of the noises that bother us. We are not "afraid" of the noises, rather the noises themselves incite such a negative reaction in us that we try to avoid them because it hurts our ears or whatever and incites anxiety. I have found that psychiatrists/psychologists try to wrap up all our symptoms into one neat little package by giving an all encompassing diagnosis when there really isn't one to include everything. They aren't happy without a fairly quick diagnosis. And many symptoms overlap different conditions. For instance Aspergers and a form of schizophrenia

have overlapping

symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Friday, October 14, 2011 4:40 PMSubject: Re: Re: Dr Phil Show - help!

Hi My psychiatrist calls my misophonia a different word, "tonophobia" which he says is something that people who are prone to anxiety can have. I am on medications for anxiety which help some with the reaction to the sounds and keeps my overall anxiety down which helps the misophonia as well. but I am really bothered by my inability to concentrate because I can not habituate to the sounds (not notice them) to keep them in the background. I do agree that the kind of therapy and relaxation training, Phil was speaking is helpful for anxiety (not the flooding) ~ I was venting, which I probably shouldn't do. Many of us have being trying the kind of things he was talking about. I have years of CBT for social anxiety which has been very helpful for the social anxiety and general

anxiety and depression. But

the misophonia itself seems to be very resistant to traditional therapies from what I have tried and heard from others, and is going to be a challenging thing to accomplish as far as the "initial" reaction to the sound and visuals in my case, imo, not that I am saying it can't be done, we just need better ways to do it. My doctor thinks it is something I am going to have to find ways to "manage" Interestingly, I just saw my Dr and he wants me to try a small amount of an opioid medication as a test, which he uses sometimes for highly resistant depression. Because I told him the only person I had ever heard of really noticing a huge difference with medication, was someone who had taken oxycodone after dental surgery, not that that is what he prescribed me. I haven't had a chance to try the medication yet, but will report back if I have any interesting results.You are right, Phil was preety nice to , he can be a really bully at times.

I think my and any others strong reactions of being "blown off" stems more from years of trying to get others to take this seriously, family, friends, doctors, therapists, bosses. It's a common kind of venting around here. We do talk about methods of therapy, trying to get effective therapy results for the misophonia has been frustrating, perhaps because of the possible neurological glitch.I am happy that you have joined the group, thanks for taking the time to write your very knowledgeable explanations and ideas.To: Soundsensitivity Sent: Friday, October 14, 2011 10:27 AMSubject: Re: Re: Dr Phil Show - help!

I just watched, and after reading your responses, I was shocked to see that he didn't blow her off at all.He acknowledged that she's having a physical reaction to these sounds that then PRODUCE anxiety, and he talked about a type of therapy (that is wayyyyy different than pure exposure therapy) to try to retrain those circuits that lead to an inability to cope with the sounds.

I'm not on the 'good doctor's' side at all, as he totally botched an opportunity to raise an awareness about the drug Tramadol, but I also think that GIVEN what little information there was about this out there at the time, he did not dismiss her. I think that this is why she does not appear to get angry or frustrated - what he says is not a bad idea, especially for someone (a teen) who has no idea how else to cope with this.

[Guest guest]

I couldn't find it tonophobia the internet either other than fear of Tony Blair in England. But in a medical dictionary I found "tono" when used as a prefix for

medical terminology can refer to "the elastic tension of living

muscles, arteries, ect. that facilitate response to stimili."or also just "tension". For me that would kind of makes sense, since that is what I often feel in response to triggers, extreem tension first often leading then to anxiety or irritability. I've only seen him a few times, and keep forgetting to ask more about it.I think psychiatrists try to get misophonia into an existing disorder so they can have ideas about how to treat it, what neurochemical systems are involved at least that is the experience I have had with my Doctors. Both of whom I think have found the problem interesting. Very often if a person has one psychiatric disorder they have another or additional comorbid psychiatric disorders. Like people with bipolar often have a high incidence of having ocd. as well.To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 10:09 AMSubject: Re: Re: Dr Phil Show - help!

I just tried to google "tonophobia" and can't find it. But regardless, "phobia" indicates a fear of. There is another word that means "fear of sound". But I don't think what we suffer from is a FEAR of the noises that bother us. We are not "afraid" of the noises, rather the noises themselves incite such a negative reaction in us that we try to avoid them because it hurts our ears or whatever and incites anxiety. I have found that psychiatrists/psychologists try to wrap up all our symptoms into one neat little package by giving an all encompassing diagnosis when there really isn't one to include everything. They aren't happy without a fairly quick diagnosis. And many symptoms overlap different conditions. For instance Aspergers and a form of schizophrenia

have overlapping

symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Friday, October 14, 2011 4:40 PMSubject: Re: Re: Dr Phil Show - help!

Hi My psychiatrist calls my misophonia a different word, "tonophobia" which he says is something that people who are prone to anxiety can have. I am on medications for anxiety which help some with the reaction to the sounds and keeps my overall anxiety down which helps the misophonia as well. but I am really bothered by my inability to concentrate because I can not habituate to the sounds (not notice them) to keep them in the background. I do agree that the kind of therapy and relaxation training, Phil was speaking is helpful for anxiety (not the flooding) ~ I was venting, which I probably shouldn't do. Many of us have being trying the kind of things he was talking about. I have years of CBT for social anxiety which has been very helpful for the social anxiety and general

anxiety and depression. But

the misophonia itself seems to be very resistant to traditional therapies from what I have tried and heard from others, and is going to be a challenging thing to accomplish as far as the "initial" reaction to the sound and visuals in my case, imo, not that I am saying it can't be done, we just need better ways to do it. My doctor thinks it is something I am going to have to find ways to "manage" Interestingly, I just saw my Dr and he wants me to try a small amount of an opioid medication as a test, which he uses sometimes for highly resistant depression. Because I told him the only person I had ever heard of really noticing a huge difference with medication, was someone who had taken oxycodone after dental surgery, not that that is what he prescribed me. I haven't had a chance to try the medication yet, but will report back if I have any interesting results.You are right, Phil was preety nice to , he can be a really bully at times.

I think my and any others strong reactions of being "blown off" stems more from years of trying to get others to take this seriously, family, friends, doctors, therapists, bosses. It's a common kind of venting around here. We do talk about methods of therapy, trying to get effective therapy results for the misophonia has been frustrating, perhaps because of the possible neurological glitch.I am happy that you have joined the group, thanks for taking the time to write your very knowledgeable explanations and ideas.To: Soundsensitivity Sent: Friday, October 14, 2011 10:27 AMSubject: Re: Re: Dr Phil Show - help!

I just watched, and after reading your responses, I was shocked to see that he didn't blow her off at all.He acknowledged that she's having a physical reaction to these sounds that then PRODUCE anxiety, and he talked about a type of therapy (that is wayyyyy different than pure exposure therapy) to try to retrain those circuits that lead to an inability to cope with the sounds.

I'm not on the 'good doctor's' side at all, as he totally botched an opportunity to raise an awareness about the drug Tramadol, but I also think that GIVEN what little information there was about this out there at the time, he did not dismiss her. I think that this is why she does not appear to get angry or frustrated - what he says is not a bad idea, especially for someone (a teen) who has no idea how else to cope with this.

[Guest guest]

That's sounds like a good idea Elaine.

He may not have a large and audience, but he would be taken more seriously. Not so much like Dr. Phil who seems to me to be Jerry Springer of TV doctors.

This is not something to be trivialized or sensationalized as a strange novelty disease.

I liked Ann Curry's compassionate serious tone and attitude.

Mike

To: Soundsensitivity Sent: Sunday, October 16, 2011 11:14 AMSubject: Re: Dr Phil Show - help!

I still think we should contact Dr. Sanjay Gupta. He has a serious medical segment on CNN. My humble opinion is that he is taken more seriously than Dr. Phil in the medical community because his show is not based on entertainment value. He also happens to be a neurosurgeon so if misophonia is truly physiological he may have some interest in doing research or doing a segment about it on his show. I think he has a lot of credibility and minimal ego. He should be easy to contact through CNN. Any thoughts about going this route?RegardsElaine>> I think if we are going to organize a letter writing effort, or pursue more exposure, Dr. Phil is not the person to go after for help.> there has to

be someone who has a talk show that people take more seriously >