Re: [CRPS]rsd Living in the here and now

[Guest guest]

Hi Guys,

It sounds like you are living just fine in the here and now Jo!

I guess some of us have a higher threshold for pain than others. You must

have a very high threshold.

I would have a hard time with it.

The mentality that I have adopted lately is not good and I know it. I listen

to you saying your going to do it, and I am sitting here thinking

" I couldn't even sign the papers to get in the walk! "

I was always the " Just do it " mentality. It is weird. I save myself for my

good three hours a day that I usually have. Good meaning I am not in my chair

or using my cane.

I am grateful for them, but want more, and definitely could never consider

walking in a mile walk, let alone a 10k!

I have to appreciate that I can do other things than you. I am trying to

think of what! lol

No it is not funny. You are able to work. I know you must, but even if I had

to I couldn't. I am not even a workman's comp case, I was on MY WAY to

working at a new job when the truck hit me. So I can't even collect!

Of course.

What is the story with this rsd? I am now really bad in my back and right

arm! It is not secluded to just my foot and leg.

The days I CAN get the 3-4 hr. of good I do not overdo anymore and it doesn't

make a difference.

I hear that it makes us worse to do physical work, so I have not been doing

the house cleaning!

I hear it is good to work out for my bones, but I can't.

I have to remember what I was like last summer, and hope I get that way again

this summer. The lidocaine IV is good for a couple of weeks only.

I am on my third almost forth week that is why I sound this way.

I guess to live in the here and now is doing what you can, and not wishing

your life away.

I need to appreciate that I am raising 2 awesome children and I always get a

nice dinner on the table for my husband.

Boy, I never thought that would be enough for someone like me because I was

never much of a Mrs. Cleaver, but it has to be.

Hugs,

Deb

List Owner

CRPS/RSD

Onelist.com

[Guest guest]

Deb,

How are you today? Sounds as if the Spring Depression has hit! LOL I

always go through a deep depression when summer is looming because I

think of all the things I " should " be able to do. Of course, I could

only do those things if I did not have RSD, hence the depression. This

year I am trying to focus on things I can do in spite of the RSD and am

planning on enjoying every warm sunshine filled day.

About the Epsom salts and why they help from what I understand is they

promote circulation thereby rejuvenating tired, achey muscles. They make

me feel better for about an hour after I get out of the tub so I don't

use them often as I am a shower person. Hot tubs really help more for me

and the warmer the better. At PT the foot tub would often get up to 107

degrees, which is too hot according to my therapist, but it felt great to

me.

I hope the warmer weather is bringing pain relief with it for you. I

love to soak up the sunshine while lying on the beach. That is my

favorite place to be. An operating table kind of resembles the beach

doesn't it? Lying with hardly anything on under the bright lights, like

the sun?! LOL Only the operating table is my least favorite place to

be. I have one surgery down and three more possible ones looming in the

future. At least I have many sun filled days to look forward to in the

coming months. Hang in there, Deb. Do something you want to do even if

it hurts. Take care,

DJ/Debbie

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[Guest guest]

Hi Tracey!

I knew something was wrong, you've been so quiet lately.

It is very difficult to look at all of the positives when sometimes, all you

can see are negatives. I know it's easy to say that, I say it all the time.

I don't always practice what I preach though. There are times that I cry,

times that I get angry, frustrated, feel sorry for myself, which I think is

only natural. I am a Leo, though, and, a perfectionist as well. That means

that for now at least, I am refusing to let this thing beat me. It may knock

me down occasionally, but it won't keep me down. Every day a new part of me

hurts or burns. This sucks, really really sucks. But, it's what we've been

dealt. What's the alternative? There isn't one. At least not an acceptable

one.

This monster may change you physically, but you need to try to remember that

you're still Tracey. I know how kind-hearted and thoughtful you are

(evidenced by chocolate!!), and I'm sure, from our conversations, that you

are a great Mom and even better fiancee to Herb. I am sure that Herb means

it when he says you're all that he needs. Who could ask for someone more

kind and loving than you? As important as the physical side of a

relationship is, there are more sides to it. And, remember, where there's a

will, there's a way.

I know it's very difficult to think about having this for the rest of our

lives. I don't. I keep hoping for a cure. That makes it more bearable for

me. I try to just keep doing. Sometimes I suffer for it, but I figure I'll

be suffering anyway. As someone said, I may have a higher pain tolerance, I

believe that may be true. I'm an Irish fighter, maybe that has something to

do with it. But as long as I have breath in this body, I'm going to continue

living. Maybe not totally my way, but as much as possible.

Keep in touch, Tracey. I miss talking with you.

Hugs to you!

Jo

List Owner

CRPS/RSD

Onelist.com

[Guest guest]

In a message dated 4/10/00 6:55:39 PM Eastern Daylight Time,

tnhkrieg@... writes:

<< Sorry. >>

Hi Tracey,

Hey now, I didn't even say that! One point against you! Remember the rules.

Lol

I am glad we both got it out today.

I know I feel much better already. I wanted to tell my mood today but

forgot what I felt! So I brought him to the computer and showed him. He said

that I have not been myself lately but he does see an improvement of late. I

think my post was the ens of my " tantrum. " We all need to have them once and

a while.

I now resolve to return to the old Deb, and be more up. I will not fake it

though. I am determined to, so I will.

Hugs,

Deb

[Guest guest]

Deb,

I understand what you are feeling. I haven't been too well myself lately.

I feel kind of useless here and pretty down on myself. I have been so

tired and actually wasted the afternoon yesterday sleeping on the couch. I

never do that but I guess my body needed it. I, too, only get a few " good "

hours in the morning. I still try to be " SuperMom " and get the house clean

and laundry done. Then I pay for it all afternoon. I just feel the need

to accomplish something for my family. I truly hate being this way. I

have to depend on Herb to drive me everywhere and then push me in the

wheelchair. I miss not being able to go to the store on my own. Summer's

coming and I know I won't be able to take my long walks anymore which I

miss terribly already. I want to sit out in the sun and get a tan but

doubt I'll be able to due to the RSD. My arm and hand are much worse. I

find my hand curls inwards and gets stiff. Herb keeps telling me to look

at what I can do and not what I can't do. He is so supportive of me and so

loving. I know I couldn't do it without him. I don't feel I am woman

enough for him but he tells me I am wrong that I am all he needs. I know I

need to look more at my blessings; my children and Herb and the wonderful

friends I have made through these groups. And I do. But, I still get

lonely, depressed, and miss the old me. I don't want to be like this

anymore but there's nothing I can do about it. The RSD is part of my life

now and I need to accept it. I just don't know how.

Well, I guess you have gathered by now that I am not myself today. Sorry.

I try to be so positive for everyone and supportive but I'm just not

feeling positive about myself today.

Hugs, Tracey

> [Original Message]

>

> To: <CRPSonelist>

> Date: 04/10/2000 5:51:59 AM

> Subject: Re: rsd Living in the here and now

>

> Hi Guys,

>

> It sounds like you are living just fine in the here and now Jo!

> I guess some of us have a higher threshold for pain than others. You must

> have a very high threshold.

> I would have a hard time with it.

> The mentality that I have adopted lately is not good and I know it. I

listen

> to you saying your going to do it, and I am sitting here thinking

> " I couldn't even sign the papers to get in the walk! "

>

> I was always the " Just do it " mentality. It is weird. I save myself for my

> good three hours a day that I usually have. Good meaning I am not in my

chair

> or using my cane.

> I am grateful for them, but want more, and definitely could never

consider

> walking in a mile walk, let alone a 10k!

>

> I have to appreciate that I can do other things than you. I am trying to

> think of what! lol

> No it is not funny. You are able to work. I know you must, but even if I

had

> to I couldn't. I am not even a workman's comp case, I was on MY WAY to

> working at a new job when the truck hit me. So I can't even collect!

> Of course.

>

>

> What is the story with this rsd? I am now really bad in my back and right

> arm! It is not secluded to just my foot and leg.

> The days I CAN get the 3-4 hr. of good I do not overdo anymore and it

doesn't

> make a difference.

> I hear that it makes us worse to do physical work, so I have not been

doing

> the house cleaning!

> I hear it is good to work out for my bones, but I can't.

> I have to remember what I was like last summer, and hope I get that way

again

> this summer. The lidocaine IV is good for a couple of weeks only.

> I am on my third almost forth week that is why I sound this way.

> I guess to live in the here and now is doing what you can, and not

wishing

> your life away.

> I need to appreciate that I am raising 2 awesome children and I always

get a

> nice dinner on the table for my husband.

> Boy, I never thought that would be enough for someone like me because I

was

> never much of a Mrs. Cleaver, but it has to be.

>

>

> Hugs,

> Deb

> List Owner

> CRPS/RSD

> Onelist.com

>

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>

[Guest guest]

I wish I could take a bath. It's been years. I had a Jacuzzi tub at my last

house and could only look at it. My knee just doesn't bend enough to get

into the tub and my back is to bad to support the weight of trying to get in

without bending it.

Now I have moved into a new home with a very big bath tub and I think of how

nice it would be to soak in it with one of those portable whirlpools attached.

I can dream.

Felice

[Guest guest]

Hi Felice,

Would you maybe be able to get in the bath with someone helping? Sounds

like it would

be so good for you. It's only the last 6 months

or so that I've rediscovered how wonderful baths are (yes, I did

shower). I used to just soak my foot in one of those portable foot spas

but the water doesn't go high enough, though

it's better than nothing. Next on my list is one

of those portable whirlpools for the bath.

I hope you can find a way to get back in that tub. It really relaxes

the muscles.

Take care,

Judy

[Guest guest]

Hi Deb,

I was just reading your letter and it occurred to me that if you didn't

have the new job, you wouldn't have been where you were doing what you

were and you would not have had the accident. Sounds like it is work

related to me, not that it would be any easier to fight for your rights

but it does seem you do have some worker's rights here. Have you checked

with an attorney about this? Comp is no picnic but the compensation is

usually higher than it is from Social Security or Unemployment or any

other government program, at least for me it is. Just a

thought......take care,

DJ/Debbie

________________________________________________________________

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