to Aubrey Re: Re: Losing job? and update

[Guest guest]

As I have said before first good luck in how you going at all of this as it is

not an easy thing as you know and many here do. second just always remeber if a

door is closed to you others are also opend up for you. life is full of chouses

and paths for us to take with each havce new paths to also make chouse about.

the great thing is we never stop living nor moving forward as long as we breath

and have a will to always find a bit of good no matter how hard it may be in

things every day.

today as I sti here typing this I hurt like mad but yet for oncee in many days

the sun is shinning and it's warmth is nice on me old bones coming threw the

window and I found my self smilling with it even fogged by pain a bit of joy and

good was found and for me the day just started

hugs

 

the redneck

Marty G.

[Guest guest]

Hi ! I hope your meeting goes ok tomorrow. I know it's hard. I keep trying

to think that this isn't necessarily forever. That I will feel better at least

to the point where I can go back to work someday. It's hard though. Glad to

hear your LFTs are coming down! Is the Imuran helping you FEEL any better? Any

effect on the fevers, etc? I know you said it can take quite a while for it to

have full effect. Interesting about your thyroid. Was your level always good

before this? I hope that lawyer helps you get LTD. It's crazy that they are

denying you! Good luck with the SSDI too. As for me, I've had a fever every

night for at least the last 5 weeks, and now this past week and a half they are

coming in the morning and again at night. I had them twice a day at my onset

when I was the sickest I have ever been with this. But every flare since then

they have just been at night till now. Now today I have a fever in the afternoon

(2 hours after taking 800 mg Ibuprofen!)and they are getting higher then they

normally are these days too. I'm the worst I have been since 2 years ago. I see

my rheum. Thursday and I feel I am going to have to be pretty firm with him this

time. I can't just accept that he doesn't know what to do with me anymore. I'm

32 years old and my life is disintegrating. I want to at least try a new

medication because right now I'm on nothing and the pain is terrible. I am going

to Dept. of Health & Human Services tomorrow to apply for Mainecare (state

health insurance). I hope I qualify! I'm nervous about having a break in

coverage then this illness becoming a " pre-existing condition " in the future.

Anyway I'll be thinking of you and your meeting! Just try to remember that even

if you do lose your position that it is a temporary setback, not the end of the

world, not forever, even though it does feel like that sometimes. Good luck!

Aubrey

>

> Hey Aubrey and anyone else who will listen:

>

> Just wanted to let you know I may be in the same boat as you. I received a

call from my supervisor yesterday and she and the director of the surgery center

I work at want to speak with me on Monday. I know a lot of our situation has

sounded similar thus far and I wanted to share this with you as well. I am

concerned about this meeting, but I am trying to stay optimistic.

>

> Other updates: liver enzymes back down, still on Imuran. Now thyroid level T3

is 6 something, more than double what it should be. Saw endocrinologist and she

is rechecking the thyroid labs that I had drawn at Duke as she thinks it may

possibly just be lab error. Anyway I read about how the T3 and the liver work

together and that hepatitis can cause this number to go up. So who knows. The

gastro doc thinks I may be having autoimmune hepatitis and some other mix of

autoimmune disease as well.

>

> Hired an attorney last week to help fight for long term disability through my

employer. She said she thought she could help me. Haven't heard anything about

SSDI yet.

>

> Hope you are OK Aubrey and all Stilligan's. This whole thing just seems to get

harder and more complicated, but I am determined to do my best to stay positive.

>

> Thanks

>

>

>