Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Hi Joan, my name is Elly and I've had Stills since 1992.I am now 63!A couple of years ago I flew to England with one of my son's and a daughter-in-law.I really didn't have much pain either,but I did feel very tired.So much so that I passed up seeing many sights in favor of going to my Aunt and cousins and just visiting.I tend to believe like you that flying does something to our legs,I just don't know what I'd call it.I do have trouble sleeping at home,but I could've fallen asleep on a fence while I was there! I want to welcome you to our " family " and I hope you will feel right at home here.Tell us about yourself,such as meds you're on,where you have the most pain and don't worry about your doctor thinking something is all in your head,that statement is heard a lot when they don't have the answer!I personally think if you don't have this disease,no matter how well you explain it,noone will really understand. Love Elly Quote Link to comment Share on other sites More sharing options...
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