Re: Best MD/ Marty/ Stanford

[Guest guest]

;

 ya know I see ya every now and then and have been wondering how ya be.  yya I

was inpressed with Stanford my self two days there with all my records and the

head Dr HAris had me DX. never will forget what he told his interwho was the

one who exsamed me . on the second viset the both came in and Dr Haris asked

hiim what the thhought and he said I do not know maybe we should run more test .

well Haris said this man has had about every test there is and we would only be

redoing them so listen and learn as this may be the only time you will ever see

some one with this  he has STILLS! then he explaned it and how he came to that

DX based on the test and labs I had with me and that they ran from my blood work

the day before. well for the next week I was there every day helpping that Dr

teach others about stills and being a test tube teaching tool LOL but hey in the

end it ended up paying for my whole trip and all my standfor bills so that was

cool. but

what a dec I never want to repeat it . I was so scared I did not know what

stills was and what I was also learning did not help it scared me big time. and

to top it off it was my first time back in calif after my grandmother and father

inlaw had both passed away. one in October and one in November as I sat in ICU

and now this then I flew home on Dec 24th talk about a better sweet christmas

and then as it truned out it was also my last one with my kids and in Idaho as

the next one I was single with a bitch for an ex wo had tried to have me killed

by useing the cops and o well no reson to go there but ya know if some one

really trys to have you killed and trys to pull it more then once it is very

hard to forgive them in ways

I do have to say it is great to hear your doing better and yes we still

want to move to Mo only it may be longer now then we wanted as right now we can

not aford the move and is still trying to find a job so the cash is

getting even slimmer

you and yours take care and hugs

 

the redneck

Marty G.

To learn about Stills Disease http://www.stillsdisease.org/stills_info

Experience: that most brutal of teachers. But you learn, my God do you learn.---

C.S.

 

________________________________

To: Stillsdisease

Sent: Mon, March 15, 2010 4:21:42 AM

Subject: Best MD/ Marty/ Stanford

 

I went to Stanford here in Calif. others have gone to the Mayo's and others to

other places. I will tell you I have so many doctors in Idaho that I do not have

as many fingers and only one was not for me going to Stanford when I did in fact

the rest it was there idea to go and not mine to start with!

 

Hey Redneck!

 

Marty....I've been lurking for a while.  Forgive me friend.  I just happened

to read this and wanted to add that even my Rheumy and the pathology guy at my

hospital here in S.W. MO sent my entire file to Stanford to confirm that I had

stills.  The head of pathology had never heard of the disease and

wanted someone else to take a look at my case.  Needless to say they

confirmed it and here I am, nearly 12 years later.  I have had at least a

dozen surgeries for either joints or infections from the biologics.  I have a

Rituxan infusion tomorrow.  We have changed my intervals on that drug to

every 4 months I get 2 infusions. I dropped the Arava completely after

becoming 'colonized' with MRSA last year.  I still have to take 10mg of Pred

per day, but I'm pretty stable on that.

 

Anyway, didn't mean to get all long-winded here, but I guess

Stanford's Rheumatol ogy dept. in particular is pretty highly regarded...

 

Stay Healthy