Guest guest Posted March 2, 2000 Report Share Posted March 2, 2000 Hi Deb and everyone on the list! My name is Tammy and I am 27. I am married to a wonderful, and supportive man! His name is Bob. We have one child.....our DOG! LOL She is our baby. I have had RSD for 3 years now, but wasn't documented until May of 1999. I was in a car accident in July of 1997 and have been in pain ever since. The RSD started in my left knee, and now taken over my entire leg, hip, and left arm. I have had some hard times with doctors, as I am sure many of you have. I FINALLY found a super doctor, and he is near me!!! How amazing is that! LOL I am going into the hospital on Monday for a five day treatment of Lidocaine. I am getting thru IV which is a lot better and safer then getting it thru a cathader, which was the initial way talked about. Anyway, I have done some research, and I strongly believe this will help stop the RSD in the arm since it is fairly new. My new doctor has given me so much hope which I had run out of due to my other doctor. Every time I would leave my old DR's office, she would remind me that, I will not get better! Well, that would put tears in my eyes every time I would leave. So, anyway, my new doctor says my RSD is bad, but he is willing to work with me to help me feel better!!! That is amazing in it's self. Anyway so that's my story all wrapped up! LOL I hope to meet you soon. I may not be on in the beginning much, just cause I won't be here all next week, but I do hope to get to know all of you! Thank you for the warm welcome Deb! Talk to you soon! Please everyone keep their fingers crossed that next week goes well! (Thanks!) Hugs, Tammy There are no rules. Just follow your heart. -- Robin Never stop believing, cause when you do, that is when the fight is over. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Hi Tammy! Hooray! A glimmer of hope for you! I'm so glad that you have found someone who is really trying to help you. Where do you live, and can we all come live with you and see your Dr??? LOL. I'm very glad that you've joined our list. I'm sure you'll find a very caring, supportive group with us. As I'm sure Deb told you, the list is to use as you need to. If you need to vent, vent. If you aren't on aol, please consider loading aol Instant Messenger. You can add us to your buddy list and see if we're on line, if you need to talk, etc. BY THE WAY, GROUP: If any one prefers NOT to be on buddy lists, please let us know. We don't want to intrude and will respect your request. Welcome, hope to be able to chat with you. Best wishes on your treatment in the hospital. I hope that the treatment is successful for you! Hugs! Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Hi Tammy, Who is this doctor and where does he practice? He sounds like a gem. I've had IV lidocaine reverse the spread of my RSD to new areas, so I think you are on the right track. You may even find that it reverses the spread of some of the leg areas. I certainly wish you luck with that. I've never had the pleasure of lidocaine iv for five days. I'm envious. Welcome to the group! (maybe still the only in the listgroup, which is a new experience for me). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 In a message dated 3/3/00 4:58:14 AM Eastern Standard Time, LivingwRSD@... writes: << I am going into the hospital on Monday for a five day treatment of Lidocaine >> Hi Tammy I did not have my IVs five days in a row, however I am scheduled for my fifth one on the 22nd. I found it to be numbing to my tongue it made me float. I did not like signing the papers because the 10th side effect is death. I then thought about the shots my children get and the papers you have to sign!!Ugh. You are going to be getting all kinds of mail. Negative and hopeful. I made the mistake of looking everything up on the Internet, and it scared me half to death. So, what I am trying to say is I am better, not worse. My treatment plan is to get the pill form of lidocaine called Mexitil and that should afford me to take less medication. If needed I will go in once a month for what the pain clinic calls a booster IV. So IF this works out for me I will be posting on every list and I will be on every talk show to tell all the people who have r.s.d this works. I hope that happens and I am saying it is going to, so it will. Positive thinking is the key, along with humor. Good Luck, and keep me posted. Hugs, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Thanks so much for your email Deb! Yeah, I have read some on the internet, and like you said, it will scare the pants right off of you! For some strange reason, I am really putting my faith in this doctor! For some reason, I just really trust him and I really think he knows what he is doing! I know one thing I really liked is that he is doing research for RSD every day! I just think that is amazing in it's self! He did say he see's people from all over the United States, so if he turns out to be as good as I think, I will tell you all about him!!!!!!!! Right now he is out of Philadelphia PA. Not sure where any of you live, but if it's close, I would be more than happy to share any info I have with you! I never knew the lidocaine came in pill form! That would be so much better I think. How do you feel? I know you said you feel good, but is it good normal, or good OK> do you know what I mean? I just know I have my hopes very high and not too sure if I should. I am going to keep the positive thinking! That is a must! Even this doctor told me, it's almost like a mind over matter thing! He also said if I stay as positive and motivated as I am, that I will do really good! So remember, no one ever stop hoping! Big hugs and thanks again for your input! Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Hi Tammy, My name is Tracey. Welcome to the group. I too have RSD which started in the left knee and has spread through to my arm and hand. Hugs, Tracey Re: rsd welcome > From: LivingwRSD@... > > Hi Deb and everyone on the list! > My name is Tammy and I am 27. I am married to a wonderful, and > supportive man! His name is Bob. We have one child.....our DOG! LOL She is > our baby. > I have had RSD for 3 years now, but wasn't documented until May of 1999. > I was in a car accident in July of 1997 and have been in pain ever since. > The RSD started in my left knee, and now taken over my entire leg, hip, and > left arm. > I have had some hard times with doctors, as I am sure many of you have. > I FINALLY found a super doctor, and he is near me!!! How amazing is that! LOL > I am going into the hospital on Monday for a five day treatment of > Lidocaine. I am getting thru IV which is a lot better and safer then getting > it thru a cathader, which was the initial way talked about. > Anyway, I have done some research, and I strongly believe this will help > stop the RSD in the arm since it is fairly new. My new doctor has given me > so much hope which I had run out of due to my other doctor. Every time I > would leave my old DR's office, she would remind me that, I will not get > better! Well, that would put tears in my eyes every time I would leave. > So, anyway, my new doctor says my RSD is bad, but he is willing to work > with me to help me feel better!!! That is amazing in it's self. > Anyway so that's my story all wrapped up! LOL I hope to meet you soon. I > may not be on in the beginning much, just cause I won't be here all next > week, but I do hope to get to know all of you! > Thank you for the warm welcome Deb! Talk to you soon! Please everyone > keep their fingers crossed that next week goes well! (Thanks!) > Hugs, > Tammy > There are no rules. Just follow your heart. > -- Robin > Never stop believing, cause when you do, that is when the fight is over. > > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click./1/937/0/_/706883/_/952077254/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Tammy & Deb, I am curious as to what this lidocaine is? Hugs, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Hi Tracey, Thank you so much for the welcome! Amazing that we have the same situation going on with the RSd starting in the knee! Hope to chat with you soon! Hugs, Tammy There are no rules. Just follow your heart. -- Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Hi Jean! I also wanted to take a moment and welcome you to our list. I hope you find, as I have, that this is the most caring, compassionate group of people you could hope to find. Please feel free to share with us your story, treatment, etc. and any concerns you may have. If you'd like, you are welcome to email me personally. Again, welcome! Hope to talk with you soon at one of our chats! Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Welcome to the group. I can assure you that you will find a lot of caring and support here. We all care about one another. I'm Tracey and I've had RSD for 2 yrs. It's now in my whole left side. Hugs, Tracey > [Original Message] > > To: <CRPSonelist> > Date: 03/26/2000 2:23:50 PM > Subject: rsd Welcome > > > > Hi Guys, > I just want to welcome to our group. as I have said to all > our new members, this is your list, our list. Say what you want, Jo > and I do not moderate any of the posts. We started this list so > people could vent and say what they feel. > If you would like to write a short note telling us how you got > C.R.P.S. > it is something we have all done, it helps us get to know each other > better. > Jo, and I accept private email and we will try to help if we can > anytime. > Please try to join us at chat through AOL instant messenger. > Again , welcome. > Hugs, > Deb > > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/0/_/706883/_/954109430/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Welcome to the group. I can assure you that you will find a lot of caring and support here. We all care about one another. I'm Tracey and I've had RSD for 2 yrs. It's now in my whole left side. Hugs, Tracey > [Original Message] > > To: <CRPSonelist> > Date: 03/26/2000 2:23:50 PM > Subject: rsd Welcome > > > > Hi Guys, > I just want to welcome to our group. as I have said to all > our new members, this is your list, our list. Say what you want, Jo > and I do not moderate any of the posts. We started this list so > people could vent and say what they feel. > If you would like to write a short note telling us how you got > C.R.P.S. > it is something we have all done, it helps us get to know each other > better. > Jo, and I accept private email and we will try to help if we can > anytime. > Please try to join us at chat through AOL instant messenger. > Again , welcome. > Hugs, > Deb > > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/0/_/706883/_/954109430/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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