Guest guest Posted October 7, 2011 Report Share Posted October 7, 2011 Hi there everyone, wow it's such a relief to know that there are other people out there like me. Misophonia has alwAys affected my life and all I've wanted is to get rid of it, so bad! The only person who has somewhat understood it is my Mom because she has it too but not to the extent that I do. I definetly feel like a Crazy person a lot, dealing with this and now it is affecting my current relationship. Anyone have suggestions on how to get my bf to understand. I've tried to explain and he just think I need to " control my emotions more " . When he says that it just drives me nuts and sometimes all I can do is just cry. I hate that I have this and feel like it's only getting worse. Just sitting right now next to my sister just drives me nuts! Every noise she makes, or even just moving her mouth and feet just make we want to yell shut up!! Stop moving!! I wish there was a pill we could take to feel normal. Wow to have a day to not stress for one moment about a sound or anticipation of a sounds would just be amazing!! That's all for now! Good luck everyone! Sent from a cloud Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2011 Report Share Posted October 7, 2011 Sorry, that link actually didn't contain the Times piece. Here it is: http://well.blogs.nytimes.com/2011/09/05/when-normal-sounds-are-excruciating/ Jay > > Hi there everyone, wow it's such a relief to know that there are other people out there like me. Misophonia has alwAys affected my life and all I've wanted is to get rid of it, so bad! The only person who has somewhat understood it is my > Mom because she has it too but not to the extent that I do. I definetly feel like a Crazy person a lot, dealing with this and now it is affecting my current relationship. Anyone have suggestions on how to get my bf to understand. I've tried to explain and he just think I need to " control my emotions more " . When he says that it just drives me nuts and sometimes all I can do is just cry. I hate that I have this and feel like it's only getting worse. Just sitting right now next to my sister just drives me nuts! Every noise she makes, or even just moving her mouth and feet just make we want to yell shut up!! Stop moving!! I wish there was a pill we could take to feel normal. Wow to have a day to not stress for one moment about a sound or anticipation of a sounds would just be amazing!! > That's all for now! Good luck everyone! > > Sent from a cloud > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2011 Report Share Posted October 7, 2011 Im not in a relationship at the moment. I was though and I remember how hard it is. If I were in your shoes I would Get some of this info in writing, print it out. Maybe print a few of our personal stories of what we deal with as well. This will show him you are not alone. Possibly find a dr. who really believes in it and take him with you to an appointment. Tell him that your relationship is very important to you and your willing do what it takes to make it work, but hes got to be on board as well. I think the trick is getting people to understand the rage we feel. Again, this is way more then a pet peeve. I hope it all waorks out!!! > > Hi there everyone, wow it's such a relief to know that there are other people out there like me. Misophonia has alwAys affected my life and all I've wanted is to get rid of it, so bad! The only person who has somewhat understood it is my > Mom because she has it too but not to the extent that I do. I definetly feel like a Crazy person a lot, dealing with this and now it is affecting my current relationship. Anyone have suggestions on how to get my bf to understand. I've tried to explain and he just think I need to " control my emotions more " . When he says that it just drives me nuts and sometimes all I can do is just cry. I hate that I have this and feel like it's only getting worse. Just sitting right now next to my sister just drives me nuts! Every noise she makes, or even just moving her mouth and feet just make we want to yell shut up!! Stop moving!! I wish there was a pill we could take to feel normal. Wow to have a day to not stress for one moment about a sound or anticipation of a sounds would just be amazing!! > That's all for now! Good luck everyone! > > Sent from a cloud > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2011 Report Share Posted October 7, 2011 My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife – the focus of my affliction – has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony – ia”, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 I have learned to be as diplomatic and polite as possible towards my wife if she makes any noises that bother me. It is really hard to not bite her head off for it, but I just politely say " Honey, could you try and not do X? It is really bothering me right now. I'm sorry that it is affecting me like that. " Try and emphasize that it isn't that you are mad at your BF for the noise, but you are mad at the noise itself. > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife †" the focus of my affliction †" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony †" iaâ€, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 I have learned to be as diplomatic and polite as possible towards my wife if she makes any noises that bother me. It is really hard to not bite her head off for it, but I just politely say " Honey, could you try and not do X? It is really bothering me right now. I'm sorry that it is affecting me like that. " Try and emphasize that it isn't that you are mad at your BF for the noise, but you are mad at the noise itself. > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife †" the focus of my affliction †" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony †" iaâ€, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 @ " " -- I hear you on the name. I pronounce it " miss-oh-phonya " > > > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife †" the focus of my affliction †" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony †" iaâ€, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 How about pronouncing it "Me-so-phony, yah". Aw, just kidding.. @"" -- I hear you on the name. I pronounce it "miss-oh-phonya" > > > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife â€" the focus of my affliction â€" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony â€" iaâ€Â, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2011 Report Share Posted October 11, 2011 That’s how I’ve always pronounced it too. I was confused when I was watching the Today show and they said   “Me-so-phonia.†From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of adah_123Sent: Monday, October 10, 2011 2:33 PMTo: Soundsensitivity Subject: Re: Misunderstood @ " " -- I hear you on the name. I pronounce it " miss-oh-phonya " > > > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife †" the focus of my affliction †" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony †" iaâ€Â, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation.> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Me, too. I believe " MEES-o-phonia " is a mispronunciation. Hey, it's not uncommon to hear radio and television announcers say things wrong, and to most people, this is a new and unfamiliar word. But we don't say " MEES-understood " or " MEES-guided, " do we? It really should be pronounced miss-o-phonya, and that is how I'm saying it. Also, , at the dinner table, my father used to crack chicken bones with his teeth and then suck out the marrow. I couldn't hide my disgust or dismay, which didn't improve our relationship, unfortunately. I hate to say this, because my father is unwell now, but it was like eating dinner with an animal! I feel your very special pain on that one. Jay > > > > > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife †" the focus of my affliction †" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony †" iaâ€, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 I prefer your pronunciation, adah and Jay, I will take that route. I have been thinking about everyone’s stories and they have helped me a lot. My parents died when I was a teenager, and I don’t remember the triggers much that I experienced  from them – mainly from my Dad who survived a few more years, and he actively annoyed me. I remember thinking that my ideal job would be as a forest ranger – working in a fire tower in the middle of nowhere. As I re-examine my life path, I realize how much I was coping with something I was ignoring. It is like getting to know myself all over again. Thom From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Jay Sent: Wednesday, October 12, 2011 2:21 AM To: Soundsensitivity Subject: Re: Misunderstood Me, too. I believe " MEES-o-phonia " is a mispronunciation. Hey, it's not uncommon to hear radio and television announcers say things wrong, and to most people, this is a new and unfamiliar word. But we don't say " MEES-understood " or " MEES-guided, " do we? It really should be pronounced miss-o-phonya, and that is how I'm saying it. Also, , at the dinner table, my father used to crack chicken bones with his teeth and then suck out the marrow. I couldn't hide my disgust or dismay, which didn't improve our relationship, unfortunately. I hate to say this, because my father is unwell now, but it was like eating dinner with an animal! I feel your very special pain on that one. Jay > > > > > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife †" the focus of my affliction †" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony †" iaâ€Â, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 But 'miso' is mees-o.. and to me the word looks like parts of two words--miso and phoniaI say mees-o --------------------------------------------------------- ♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥ http://www.caringbridge.org/visit/sarahmae  Me, too. I believe " MEES-o-phonia " is a mispronunciation. Hey, it's not uncommon to hear radio and television announcers say things wrong, and to most people, this is a new and unfamiliar word. But we don't say " MEES-understood " or " MEES-guided, " do we? It really should be pronounced miss-o-phonya, and that is how I'm saying it. Also, , at the dinner table, my father used to crack chicken bones with his teeth and then suck out the marrow. I couldn't hide my disgust or dismay, which didn't improve our relationship, unfortunately. I hate to say this, because my father is unwell now, but it was like eating dinner with an animal! I feel your very special pain on that one. Jay > > > > > > > My first post. I have lived with this for 50 years. My Dad used to ridicule me when I would squirm when he would whistle or crunch on a chicken leg. (He would chew through the bones to get to the marrow). At least that is what he said. I found out about this disorder yesterday. Up until then, I thought it was just me. My wonderful wife †" the focus of my affliction †" has been so great and took it in stride as just one more weirdness of me. Looking back, I have dissolved relationships and avoided same, and have otherwise re-arranged my life to avoid the pain. I am smart, but relatively uneducated because I couldn’t handle studying. If I could focus on studies like I focus on somebody tapping a keyboard, or talking on the phone incessantly, I would probably have a PHD. Ironically, I think the damage I have done to my eardrums from loud digital music has actually helped me cope. I used to think I was weird when I would watch a TV program about someone who was deaf and I would somehow envy them. How weird. But, over the years I have shoved all that back into my subconscious. I never heard of anyone with the same issue and never even thought to do a web-search on it. No, my wife and I are discussing it and talking about discussing it with our kids in case they have it, too. I wish there was a different name for I, though. I sounds too much like “Me So Phony †" ia†, that the name will be a magnet for jokes about a serious subject. Thanks for reading. I hope this adds to the conversation. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 It would be useful here to examine the building blocks of the word misophonia. I'm a writer and editor, so words are my stock in trade. The word miso, as in fermented bean paste, is entirely unrelated to our special thing. Let's break it down! " mis " is a prefix (and we all know exactly how to pronounce it). Applied to various parts of speech, it means ill, mistaken, wrong, wrongly, or incorrectly. I don't know what the " o " that follows " mis " designates. " Of " perhaps? " phon " relates to sound. " ia " is a suffix designating a noun. And there you have it. Misophonia is a noun: a condition (I won't characterize it as a disease) whose sufferer is caused profound emotional distress as a result of hearing certain sounds. Clearly, MEES-o-phonia is not the correct pronunciation. We are only having this discussion because someone with a microphone mispronounced it that way. It's mis-o-PHON-ya. Jay > > > > > > > > > > > My first post. I have lived with this for 50 years. My Dad used to > > ridicule me when I would squirm when he would whistle or crunch on a chicken > > leg. (He would chew through the bones to get to the marrow). At least that > > is what he said. I found out about this disorder yesterday. Up until then, I > > thought it was just me. My wonderful wife †" the focus of my affliction †" > > has been so great and took it in stride as just one more weirdness of me. > > Looking back, I have dissolved relationships and avoided same, and have > > otherwise re-arranged my life to avoid the pain. I am smart, but relatively > > uneducated because I couldn’t handle studying. If I could focus on studies > > like I focus on somebody tapping a keyboard, or talking on the phone > > incessantly, I would probably have a PHD. Ironically, I think the damage I > > have done to my eardrums from loud digital music has actually helped me > > cope. I used to think I was weird when I would watch a TV program about > > someone who was deaf and I would somehow envy them. How weird. But, over the > > years I have shoved all that back into my subconscious. I never heard of > > anyone with the same issue and never even thought to do a web-search on it. > > No, my wife and I are discussing it and talking about discussing it with our > > kids in case they have it, too. I wish there was a different name for I, > > though. I sounds too much like  " Me So Phony †" ia†, that the name will > > be a magnet for jokes about a serious subject. Thanks for reading. I hope > > this adds to the conversation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 The way I break it down is hatred of sound. There is no modifier limiting the range of sounds.Sent from my iPad It would be useful here to examine the building blocks of the word misophonia. I'm a writer and editor, so words are my stock in trade. The word miso, as in fermented bean paste, is entirely unrelated to our special thing. Let's break it down! "mis" is a prefix (and we all know exactly how to pronounce it). Applied to various parts of speech, it means ill, mistaken, wrong, wrongly, or incorrectly. I don't know what the "o" that follows "mis" designates. "Of" perhaps? "phon" relates to sound. "ia" is a suffix designating a noun. And there you have it. Misophonia is a noun: a condition (I won't characterize it as a disease) whose sufferer is caused profound emotional distress as a result of hearing certain sounds. Clearly, MEES-o-phonia is not the correct pronunciation. We are only having this discussion because someone with a microphone mispronounced it that way. It's mis-o-PHON-ya. Jay > > > > > > > > > > > My first post. I have lived with this for 50 years. My Dad used to > > ridicule me when I would squirm when he would whistle or crunch on a chicken > > leg. (He would chew through the bones to get to the marrow). At least that > > is what he said. I found out about this disorder yesterday. Up until then, I > > thought it was just me. My wonderful wife â€" the focus of my affliction â€" > > has been so great and took it in stride as just one more weirdness of me. > > Looking back, I have dissolved relationships and avoided same, and have > > otherwise re-arranged my life to avoid the pain. I am smart, but relatively > > uneducated because I couldn’t handle studying. If I could focus on studies > > like I focus on somebody tapping a keyboard, or talking on the phone > > incessantly, I would probably have a PHD. Ironically, I think the damage I > > have done to my eardrums from loud digital music has actually helped me > > cope. I used to think I was weird when I would watch a TV program about > > someone who was deaf and I would somehow envy them. How weird. But, over the > > years I have shoved all that back into my subconscious. I never heard of > > anyone with the same issue and never even thought to do a web-search on it. > > No, my wife and I are discussing it and talking about discussing it with our > > kids in case they have it, too. I wish there was a different name for I, > > though. I sounds too much like â€Å"Me So Phony â€" ia†, that the name will > > be a magnet for jokes about a serious subject. Thanks for reading. I hope > > this adds to the conversation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 You've got me grinning. It's a prefix - not a soup!!!! It's " mis " , pronounced " miss " , as in mistake, misappropriation, misfit, misfortune. And the " phonia " is the root for " sound " . I think the " o " is in there to ease it's pronounce-ability. " Misphonia " doesn't roll off the tongue as well. (Sorry for the visual.) > > > > > > > > > > > My first post. I have lived with this for 50 years. My Dad used to > > ridicule me when I would squirm when he would whistle or crunch on a chicken > > leg. (He would chew through the bones to get to the marrow). At least that > > is what he said. I found out about this disorder yesterday. Up until then, I > > thought it was just me. My wonderful wife †" the focus of my affliction †" > > has been so great and took it in stride as just one more weirdness of me. > > Looking back, I have dissolved relationships and avoided same, and have > > otherwise re-arranged my life to avoid the pain. I am smart, but relatively > > uneducated because I couldn’t handle studying. If I could focus on studies > > like I focus on somebody tapping a keyboard, or talking on the phone > > incessantly, I would probably have a PHD. Ironically, I think the damage I > > have done to my eardrums from loud digital music has actually helped me > > cope. I used to think I was weird when I would watch a TV program about > > someone who was deaf and I would somehow envy them. How weird. But, over the > > years I have shoved all that back into my subconscious. I never heard of > > anyone with the same issue and never even thought to do a web-search on it. > > No, my wife and I are discussing it and talking about discussing it with our > > kids in case they have it, too. I wish there was a different name for I, > > though. I sounds too much like  " Me So Phony †" ia†, that the name will > > be a magnet for jokes about a serious subject. Thanks for reading. I hope > > this adds to the conversation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 -shrug- it has always been mees-o in my head and it will probably continue to be... it's stuck now! --------------------------------------------------------- ♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥ http://www.caringbridge.org/visit/sarahmae  You've got me grinning. It's a prefix - not a soup!!!! It's " mis " , pronounced " miss " , as in mistake, misappropriation, misfit, misfortune. And the " phonia " is the root for " sound " . I think the " o " is in there to ease it's pronounce-ability. " Misphonia " doesn't roll off the tongue as well. (Sorry for the visual.) > > > > > > > > > > > My first post. I have lived with this for 50 years. My Dad used to > > ridicule me when I would squirm when he would whistle or crunch on a chicken > > leg. (He would chew through the bones to get to the marrow). At least that > > is what he said. I found out about this disorder yesterday. Up until then, I > > thought it was just me. My wonderful wife †" the focus of my affliction †" > > has been so great and took it in stride as just one more weirdness of me. > > Looking back, I have dissolved relationships and avoided same, and have > > otherwise re-arranged my life to avoid the pain. I am smart, but relatively > > uneducated because I couldn’t handle studying. If I could focus on studies > > like I focus on somebody tapping a keyboard, or talking on the phone > > incessantly, I would probably have a PHD. Ironically, I think the damage I > > have done to my eardrums from loud digital music has actually helped me > > cope. I used to think I was weird when I would watch a TV program about > > someone who was deaf and I would somehow envy them. How weird. But, over the > > years I have shoved all that back into my subconscious. I never heard of > > anyone with the same issue and never even thought to do a web-search on it. > > No, my wife and I are discussing it and talking about discussing it with our > > kids in case they have it, too. I wish there was a different name for I, > > though. I sounds too much like  " Me So Phony †" ia†, that the name will > > be a magnet for jokes about a serious subject. Thanks for reading. I hope > > this adds to the conversation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 I'm thinking that the Greek (original) pronunciation of "miso" is mee-so. As with many words with older roots, it could be Americanized to miss-o. Hey, take your pick. You've got me grinning. It's a prefix - not a soup!!!! It's "mis", pronounced "miss", as in mistake, misappropriation, misfit, misfortune. And the "phonia" is the root for "sound". I think the "o" is in there to ease it's pronounce-ability. "Misphonia" doesn't roll off the tongue as well. (Sorry for the visual.) > > > > > > > > > > > My first post. I have lived with this for 50 years. My Dad used to > > ridicule me when I would squirm when he would whistle or crunch on a chicken > > leg. (He would chew through the bones to get to the marrow). At least that > > is what he said. I found out about this disorder yesterday. Up until then, I > > thought it was just me. My wonderful wife â€" the focus of my affliction â€" > > has been so great and took it in stride as just one more weirdness of me. > > Looking back, I have dissolved relationships and avoided same, and have > > otherwise re-arranged my life to avoid the pain. I am smart, but relatively > > uneducated because I couldn’t handle studying. If I could focus on studies > > like I focus on somebody tapping a keyboard, or talking on the phone > > incessantly, I would probably have a PHD. Ironically, I think the damage I > > have done to my eardrums from loud digital music has actually helped me > > cope. I used to think I was weird when I would watch a TV program about > > someone who was deaf and I would somehow envy them. How weird. But, over the > > years I have shoved all that back into my subconscious. I never heard of > > anyone with the same issue and never even thought to do a web-search on it. > > No, my wife and I are discussing it and talking about discussing it with our > > kids in case they have it, too. I wish there was a different name for I, > > though. I sounds too much like â€Å"Me So Phony â€" ia†, that the name will > > be a magnet for jokes about a serious subject. Thanks for reading. I hope > > this adds to the conversation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Let's do away with both and pronounce it like " mysophonia " ! Sounds more exotic that way... and if I'm going to have this issue to deal with on a daily basis, it might as well sound exotic!! > > > > > > > > > > > > > > > My first post. I have lived with this for 50 years. My Dad used to > > > > ridicule me when I would squirm when he would whistle or crunch on a chicken > > > > leg. (He would chew through the bones to get to the marrow). At least that > > > > is what he said. I found out about this disorder yesterday. Up until then, I > > > > thought it was just me. My wonderful wife †" the focus of my affliction †" > > > > has been so great and took it in stride as just one more weirdness of me. > > > > Looking back, I have dissolved relationships and avoided same, and have > > > > otherwise re-arranged my life to avoid the pain. I am smart, but relatively > > > > uneducated because I couldn’t handle studying. If I could focus on studies > > > > like I focus on somebody tapping a keyboard, or talking on the phone > > > > incessantly, I would probably have a PHD. Ironically, I think the damage I > > > > have done to my eardrums from loud digital music has actually helped me > > > > cope. I used to think I was weird when I would watch a TV program about > > > > someone who was deaf and I would somehow envy them. How weird. But, over the > > > > years I have shoved all that back into my subconscious. I never heard of > > > > anyone with the same issue and never even thought to do a web-search on it. > > > > No, my wife and I are discussing it and talking about discussing it with our > > > > kids in case they have it, too. I wish there was a different name for I, > > > > though. I sounds too much like  " Me So Phony †" ia†, that the name will > > > > be a magnet for jokes about a serious subject. Thanks for reading. I hope > > > > this adds to the conversation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Just to clear up the etymology ... " mis- " in " mislead " and " mistake " and many other words, where it means " wrong " , is an Anglo-Saxon prefix. It appears before many old English words (like " lead " and " take " ) as well as quite a few other words (like " misappropriate " ). That is NOT the " mis- " in misophonia. There is an entirely separate prefix " mis- " or " miso- " which comes from Greek. In Greek, " misia " means " hatred " , and so we have words like " misogyny " , which means " hatred of women " , and " misanthropy " , which means " hatred of mankind " . So the etymology of " misophonia " means " hatred of sound " , although it is actually used to mean " hatred of certain specific sounds " . Neither prefix has anything whatsoever to do with miso soup. Because English has borrowed freely from many different languages, it sometimes picks up similar (or identical) sounding words and prefixes from more than one language. That does not mean that the words or prefixes have the same meaning. > > > > > > > > > > > > > My first post. I have lived with this for 50 years. My Dad used to > > > ridicule me when I would squirm when he would whistle or crunch on a chicken > > > leg. (He would chew through the bones to get to the marrow). At least that > > > is what he said. I found out about this disorder yesterday. Up until then, I > > > thought it was just me. My wonderful wife †" the focus of my affliction †" > > > has been so great and took it in stride as just one more weirdness of me. > > > Looking back, I have dissolved relationships and avoided same, and have > > > otherwise re-arranged my life to avoid the pain. I am smart, but relatively > > > uneducated because I couldn’t handle studying. If I could focus on studies > > > like I focus on somebody tapping a keyboard, or talking on the phone > > > incessantly, I would probably have a PHD. Ironically, I think the damage I > > > have done to my eardrums from loud digital music has actually helped me > > > cope. I used to think I was weird when I would watch a TV program about > > > someone who was deaf and I would somehow envy them. How weird. But, over the > > > years I have shoved all that back into my subconscious. I never heard of > > > anyone with the same issue and never even thought to do a web-search on it. > > > No, my wife and I are discussing it and talking about discussing it with our > > > kids in case they have it, too. I wish there was a different name for I, > > > though. I sounds too much like  " Me So Phony †" ia†, that the name will > > > be a magnet for jokes about a serious subject. Thanks for reading. I hope > > > this adds to the conversation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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