Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 I have lupus and RA and I am on minocin.My doc prescribed it for me with a we'll see what happens attitude. Joanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 In a message dated 2/11/99 4:45:18 PM Pacific Standard Time, Davomfs@... writes: << I had a 2 hour appointment with him on my initial visit and he ran many tests, including a blood test for Mycroplasma and took numerous x-rays. He was very kind, compassionate and very professional. I told him at this initial appointment that I had lupus and was interested in starting the AP therapy. He did not tell me at this time that he did not prescribe AP for lupus until I saw him on the follow-up visit. Has anyone else had a similar experience with him? >> Try and go see a Dr. Tim Speigal in Santa Barbara. He is my rheumy and will give you the antibiotics. I do know that Dr. Speigal is a kind and compassionate man. His phone # is 805-682-7570 And he is located at 2419 Castillo Street, Santa Barbara, California 93101 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 I don't think anyone perscribes Minocin for Lupus for fear of causing the dreaded Lupus like reaction to the drug, thus causing even more problems. But....they do use Erythromycin...don't they?? Donna Ottawa, Canada Scleroderma, Raynaud's 4 yrs, AP 15 months (My Story) www.compmore.net/~donray ---------- > From: Davomfs@... > rheumaticonelist > Subject: rheumatic Dr. Franco-NO AP > Date: Thursday, February 11, 1999 7:27 PM > > From: Davomfs@... > > I was wondering if anyone here who has lupus has seen a Dr. Franco in > Riverside, CA. If so, can you please tell me if he prescribed AP for you? I > saw him recently and he told me he does NOT prescribe AP/Minocin for lupus > patients. I am so confused because I went all the way there to see him > because I was under the impression that he did. > I had a 2 hour appointment with him on my initial visit and he ran many tests, > including a blood test for mycoplasma and took numerous x-rays. He was very > kind, compassionate and very professional. I told him at this initial > appointment that I had lupus and was interested in starting the AP therapy. > He did not tell me at this time that he did not prescribe AP for lupus until I > saw him on the follow-up visit. Has anyone else had a similar experience with > him? > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 What medication did Dr. Franco prescribe for you? Ethel Davomfs@... wrote: > > From: Davomfs@... > > I was wondering if anyone here who has lupus has seen a Dr. Franco in > Riverside, CA. If so, can you please tell me if he prescribed AP for you? I > saw him recently and he told me he does NOT prescribe AP/Minocin for lupus > patients. I am so confused because I went all the way there to see him > because I was under the impression that he did. > I had a 2 hour appointment with him on my initial visit and he ran many tests, > including a blood test for mycoplasma and took numerous x-rays. He was very > kind, compassionate and very professional. I told him at this initial > appointment that I had lupus and was interested in starting the AP therapy. > He did not tell me at this time that he did not prescribe AP for lupus until I > saw him on the follow-up visit. Has anyone else had a similar experience with > him? > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 dave,(?) I am assuming this is your name(smile). I also saw Dr. Franco, and agree that he is a very gentle and kind man. I would think that he would like to see the rsults of the mycoplasma tests before prescribing any antibiotic for you. Just my thoughts. (Hugs), Janine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 Hi ?????? Sorry I don't know who you are:-)) In answer to your questions yes, I do have Lupus....all 38 years of it! Hey I've just realised something, we're now into a new year so make that 39 years. Some people are a little slow...HUH?!! <grin> And no, strictly speaking Dr Franco is not my doctor when it comes to the AP, Dr Chiu is:-)) However I was in the States in April this year and took the opportunity to see Dr Franco then. I think there was probably a slight misunderstanding between you and Dr Franco as he does suggest Mino for Lupus patients *when appropriate.* In the first instance, the drug of choice for those with Lupus is either Erythromycin or Doxycycline but I see someone has already mentioned this. I started with Doxy and when it seemed that it was not really that effective, then the suggestion was that I switch to Minocycline. So you see he does prescribe it, as I said above 'when appropriate.' What he is trying to do is give you the drug that is least likely to cause you any problems as far as reaction goes and those of us with Lupus can in some instances react to the Mino. Remember that we are all different but you can rest assured that whatever advice he gives it will be the *right* advice for *you* and you can safely trust his judgement<smile> Lucky you, being able to go and see him, so many of the group have to settle for second best, isn't he an amazing man??!!!! You're in good hands, just go with the flow and all will be well.<warm hug> hugs, lisbeth >Lisbeth- >I Dr. Franco YOUR doctor? Do you have lupus?? Did he give you AP????? >Please read my letter below: > rheumatic Dr. Franco-NO AP >From: Davomfs@... > >I was wondering if anyone here who has lupus has seen a Dr. Franco in >Riverside, CA. If so, can you please tell me if he prescribed AP for you? I >saw him recently and he told me he does NOT prescribe AP/Minocin for lupus >patients. I am so confused because I went all the way there to see him >because I was under the impression that he did. >I had a 2 hour appointment with him on my initial visit and he ran many tests, >including a blood test for mycoplasma and took numerous x-rays. He was very >kind, compassionate and very professional. I told him at this initial >appointment that I had lupus and was interested in starting the AP therapy. >He did not tell me at this time that he did not prescribe AP for lupus until I >saw him on the follow-up visit. Has anyone else had a similar experience with >him? > >------------------------------------------------------------------------ >To unsubscribe from this mailing list, or to change your subscription >to digest, go to the ONElist web site, at and >select the User Center link from the menu bar on the left. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 Isn't this why we use Doxycycline instead of minocin? I have Lupus and doxy is what I take, based on the info in Dr. Brown's book. ---------- > From: Donna and Ray <donray@...> > Davomfs@... > Cc: AP - AP Support Group New <rheumaticonelist> > Subject: rheumatic Re: Dr. Franco-NO AP > Date: Thursday, February 11, 1999 8:39 PM > > From: " Donna and Ray " <donray@...> > > I don't think anyone perscribes Minocin for Lupus for fear of causing the > dreaded Lupus like reaction to the drug, thus causing even more problems. > > But....they do use Erythromycin...don't they?? > > Donna > Ottawa, Canada > Scleroderma, Raynaud's 4 yrs, AP 15 months > (My Story) www.compmore.net/~donray > > ---------- > > From: Davomfs@... > > rheumaticonelist > > Subject: rheumatic Dr. Franco-NO AP > > Date: Thursday, February 11, 1999 7:27 PM > > > > From: Davomfs@... > > > > I was wondering if anyone here who has lupus has seen a Dr. Franco in > > Riverside, CA. If so, can you please tell me if he prescribed AP for > you? I > > saw him recently and he told me he does NOT prescribe AP/Minocin for > lupus > > patients. I am so confused because I went all the way there to see him > > because I was under the impression that he did. > > I had a 2 hour appointment with him on my initial visit and he ran many > tests, > > including a blood test for mycoplasma and took numerous x-rays. He was > very > > kind, compassionate and very professional. I told him at this initial > > appointment that I had lupus and was interested in starting the AP > therapy. > > He did not tell me at this time that he did not prescribe AP for lupus > until I > > saw him on the follow-up visit. Has anyone else had a similar experience > with > > him? > > > > ------------------------------------------------------------------------ > > To unsubscribe from this mailing list, or to change your subscription > > to digest, go to the ONElist web site, at and > > select the User Center link from the menu bar on the left. > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 This is from the " FAQ, freqently asked questions " on the website. =============== Exacerbation of systemic lupus erythematosis has been reported in patients taking minocycline, as has transient lupus-like symptoms. However, while some physicians report they have not had a problem at the low doses used in this protocol, other physicians avoid the risk by prescribing erythromycin for their lupus patients - 333 mg. twice a day Monday, Wednesday and Friday - taken with food. For those patients with sensitive stomachs, Ery-Tabs may be prescribed. Erythromycin and clindamycin should not be taken together. NOTE: An association has been shown between Mycoplasma hominus and lupus. (Cassell GH, Clough W, Septic Arthritis and Bacteremia Due to Mycoplasma Resistant to Antimicrobial Therapy in a Patient with Systemic Lupus Erythematosus, Clin Infec Dis, 1992; 15:402-407). M. hominus is resistant to erythromycin. For children under twelve with juvenile rheumatoid arthritis, EryPed (erythromycin Donna Ottawa, Canada Scleroderma, Raynaud's 01/95, AP 10/97 (My Story) www.compmore.net/~donray Re: rheumatic Re: Dr. Franco-NO AP >What is the dreaded lupus like reaction? Please elaborate. > Quote Link to comment Share on other sites More sharing options...
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