Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 My Dr. Has just put me on Xyrem for the sleeping disorder that comes with Fibromyalgia. I have been taking it for about 2 weeks and so far I have had about 3 good days and 2 ok days. I do notice that this is a drug that needs to be tweeked and also I am having to learn how to use it. I redose in the middle of the night. I do know that some of this group has the same problems so I am posting a link to a trial that is reqruiting. Conny http://www.clinicaltrials.gov/ct/gui/show/NCT00087555?order=4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 Hi all, I react so strangely to 'meds' (meaning your standard pharmeceutical fare)that I really DO try to stick with the herbals as much as I can (and can afford to; Medicare and Medicaid do not cover such things and the US is somewhat notorious for trying to BAN such things). I've had the same luck with the teas which Bryon has named here. AND you've reminded me of ONE of the herbs which was in good old Buzz's Cold and Flu Cure; Hibiscus. I know that there are a number of varieties of that one around coming from different parts of the country and having different significance in terms of using in medicinal forms. Of course they also give me pills (prescription) to KO me at night (<grin!> the shrink is always shocked a bit by what will NOT knock me out. (Amusing to me). I dislike taking that sort of thing anyway. I do take clonopin (sp?)in it's lowest dosage and only a half pill at a time 3 times a day for anxiety. (Live in a high crime area; tend to get panic attacks anyway). I have to be VERY careful with this stuff and never go over what dosage I do take. I used to take xanex but switched; xanex tends to be in the system and clears out quick... OR on ME it did. One thing I've also noticed? I can drink an expresso drink should I so choose and fall asleep hust FINE right after if I am tired! (This during the day, of course, most often). That three hour nap thing and then the old difficult to sleep that night if not impossible and throws off most of my damn week... I am also one of those freaks who is dreadful with getting up and out in the morning. I will wake up, get up, have some tea, then after an hour or two need to go right back to sleep... The hound is used to this; fine by him long a I FEED him very soon after getting my tea! Then I fall asleep and wake with my pit-boxer curled in a ball around my upper torso, or in the bend of my lower legs... Jane, the one with the hound NYC > >To give you some suggestion outside of the medical field. I was able > >to achieve 2 hours of sleep at a time with a OTC cocktail of 2 good > >grade valerian root capsules 2 benadryls and 2 tylenols generic. It > >seems like alot of drugs, but I was desperate and it worked. Every 2 > >hours, like clockwork, I would retake it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 I think that she meant 0.5mg my xanax is 0.25mg tabs. not familiar with 5 mg xanax tabs?? Quote Link to comment Share on other sites More sharing options...
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