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My Dr. Has just put me on Xyrem for the sleeping disorder that comes

with Fibromyalgia. I have been taking it for about 2 weeks and so

far I have had about 3 good days and 2 ok days. I do notice that

this is a drug that needs to be tweeked and also I am having to

learn how to use it. I redose in the middle of the night.

I do know that some of this group has the same problems so I am

posting a link to a trial that is reqruiting.

Conny

http://www.clinicaltrials.gov/ct/gui/show/NCT00087555?order=4

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  • 7 years later...

Hi all,

I react so strangely to 'meds' (meaning your standard pharmeceutical fare)that I

really DO try to stick with the herbals as much as I can (and can afford to;

Medicare and Medicaid do not cover such things and the US is somewhat notorious

for trying to BAN such things). I've had the same luck with the teas which Bryon

has named here. AND you've reminded me of ONE of the herbs which was in good old

Buzz's Cold and Flu Cure; Hibiscus. I know that there are a number of varieties

of that one around coming from different parts of the country and having

different significance in terms of using in medicinal forms. Of course they also

give me pills (prescription) to KO me at night (<grin!> the shrink is always

shocked a bit by what will NOT knock me out. (Amusing to me). I dislike taking

that sort of thing anyway. I do take clonopin (sp?)in it's lowest dosage and

only a half pill at a time 3 times a day for anxiety. (Live in a high crime

area; tend to get panic attacks anyway). I have to be VERY careful with this

stuff and never go over what dosage I do take. I used to take xanex but

switched; xanex tends to be in the system and clears out quick... OR on ME it

did. One thing I've also noticed? I can drink an expresso drink should I so

choose and fall asleep hust FINE right after if I am tired! (This during the

day, of course, most often). That three hour nap thing and then the old

difficult to sleep that night if not impossible and throws off most of my damn

week...

I am also one of those freaks who is dreadful with getting up and out in the

morning. I will wake up, get up, have some tea, then after an hour or two need

to go right back to sleep...

The hound is used to this; fine by him long a I FEED him very soon after getting

my tea! Then I fall asleep and wake with my pit-boxer curled in a ball around my

upper torso, or in the bend of my lower legs...

Jane, the one with the hound

NYC

> >To give you some suggestion outside of the medical field. I was able

> >to achieve 2 hours of sleep at a time with a OTC cocktail of 2 good

> >grade valerian root capsules 2 benadryls and 2 tylenols generic. It

> >seems like alot of drugs, but I was desperate and it worked. Every 2

> >hours, like clockwork, I would retake it.

>

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