Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Hi Jo,Sorry to hear about your father in law but glad he's on the mend! Doing to much always results in a flare up for me & many others. It's all about trying to figure out when it's to much then backing off. Since a lot of of Stills people are A type personalities that can be hard to do. I know there are many risks to these drugs we are on but I guess if the benefits out weigh the risks we have to try so we can have some quality of life. I do know of one Stills person from Canada who got cancer. I think she was on Rituxan but I'm going to confirm that! Anyway the doctor didn't come right out & say that was the cause but he did say it was possible. She had a pretty rough time but is doing good now. The last I heard they are watching her but she is off meds for Stills hasn't had any flare ups since the cancer & treatments. Life is a crapshoot you just never know what your going to get! Do talk to your doctor about all the options & do some research yourself just remember you can't believe everything you read on the internet & our doctors are only human. I'll be awaiting your note letting me know how it goes!Chris From: Stillsdisease <Stillsdisease > Subject: Digest Number 5012 To: Stillsdisease Date: Tuesday, September 22, 2009, 7:26 AM Stills Disease Support Group Messages In This Digest (15 Messages) 1a. Re: Leon-traveling with meds From: cbvvw1@... 2a. 3:00CHAT, 9/21/2009, 12:00 pm From: Stillsdisease 2b. 3:00CHAT, 9/21/2009, 12:00 pm From: Stillsdisease 3. Re: new update today! O.T. From: elly cudney 4. For - Actemra & OT dad Open Heart From: SmoochRN@... 5a. Re: woo-hoo! Finally getting my Kineret!!! From: SmoochRN@... 6. hope everyone is OK From: lizdaly101@... 7. Re: update From: SmoochRN@... 8.1. Re: Hello From: SmoochRN@... 9a. Re: update on Alan From: SmoochRN@... 10. Re: group anne / son From: SmoochRN@... 11a. Anakinra Anyone? From: bethwells93 11b. Re: Anakinra Anyone? From: Gail 11c. Re: Anakinra Anyone? From: tototoo42@... 11d. Re: Anakinra Anyone? From: cbvvw1@... View All Topics | Create New Topic Messages 1a. Re: Leon-traveling with meds Posted by: " cbvvw1@... " cbvvw1@... Mon Sep 21, 2009 8:19 am (PDT) Actually, my daughter never had to show the letter to anyone, she was just told that it wouldn't hurt to have it.? Enjoy your vacation! Leon-traveling with meds Hi Leon,A year ago I flew to England,and I'm pretty sure overseas customs are a bit stricter about what you carry on. (I think it was her) was right. Quote Link to comment Share on other sites More sharing options...
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