Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Hello Jodi welcome to the group. I have had my MS since Aug of 99 and am on disability because of it. I have a great wife named Judy and we have 2 boy's. My MS took away my balance and I also have bladder trouble. I use a walker to move around and I have a wheelchair I keep in my truck when I go places. I am also a type 1 diabetic so I take 2 insulin shots a day. I am on Copaxone and like using it. I like the Copaxone because I have never had any side effects from using it like some MS meds cause. Copaxone also has a good web page for more info. http://www.copaxone.com/index.asp They have good support for those who use Copaxone called MSWatch. I haven't had any trouble with my MS since April of 2003 so I hope the Copaxone is doing its thing. When I first had my MS for about 6 months or so I had the pins and needles feeling also mainly up and down my legs, thank goodness that went away. I also notice during that time my legs seemed very warm all the time. I guess it is from the swelling the MS caused to my legs. Do you have any trouble walking? Heat is my biggest enemy which I hate because I love getting out on a warm day. We live in Indiana Welcome to the group and I hope you make some new friends. Bill my intro Hi my name is Jodi and I am very happy to be here. I will give you aquick play by play I am a stay at home mom to my son who is 4 and isovercoming speech and dev. delays, who gives me a run for my money. ThenI have an almost 7 year old daughter who is the princess.Well about 8 years ago I started to have pins and needles that wereacross my entire body and developed double vision the same day. Well Iwent through the usual testing but my neuro was a flake and let me gowith MS written on an insurance form. Well that's when I hurried thingsalong and had my kids. For 8 years I have been pretty well until the middle of April when ideveloped optic neuritis. I now have a great neuro who is an MSspecialist and we are finishing testing and discussing Copaxone. I havemy evoked potentials scheduled for June 14.I look forward to getting to know everyone!Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Welcome to the Group Jodi..I hope you enjoy it here! This is a great bunch! Hugs,Psalm 22:1-6Remember that SMiling knocks MS back!!!!http://andcoverageforall.info http://andcoverageforall.bravehost.com/ Both links above take you the same place!!!Owner/Founder And Coverage For All 2 Yahoo Grouphttp://health.groups.yahoo.com/group/ACFA2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi Sharon and thank you for the welcome. I have been seeing this new neurologist since April he was referred by the opthamologist. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi Bill thank you for your story and your feelings on Copaxone. I appreciate it. I have a slight jello feeling that happens to my legs but for the most part there is no trouble walking. I hope with copaxone I can keep this in check because my kids rely on me and I wouldn't have it any other way. Have a great day Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Thanks for all of the welcomes this group seems warm supportive and wonderful! hugs Jodi Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.