Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 Hi - just to reassure you - you're in good company. There are many of us here who are just " winging it " . That is to say we found a doctor who was not experienced in AP but who was willing to write the prescriptions for us. There's certainly enough information on the website and through this forum to guide you along. Judy (deejay) son, Wa scleroderma 10+ years AP 2 yrs+2 mo. ---------- > From: arjay <arjay@...> > rheumaticonelist > Subject: rheumatic Dr's in E WA > Date: Saturday, February 06, 1999 8:30 PM > > From: arjay <arjay@...> > > Hi > Thanks Ethel for letting me know how to post. I was diagnosed with RA > mid Nov 98. The GP who diagnosed me started me on mtx shots every two > weeks by the second shot I had found and read the Arthritis Breakthrough > the Dr gave me a prescription for 500mg tetracycline--a little large. I > took it it MWF until I got the physicians protocol then I switched to > 100 mg minocin twice aday MWF then went down to once aday to ease the H > effect. Now I'm back to twice aday MWF and 900mg Cleocin Tuesday. My > GP didn't read the protocol and isn't interested in the antibiotic > treatment, but figures it won't hurt me. This means I'm doing it by > reading the book and all of the Interrupted Journeys and checking > treatments. I just started the Cleocin this week. I hope to find a Dr > who is familiar with the protocol in eastern WA, I live 60 miles north > of Spokane if anyone knows of a Dr in my area please let me know I'm > still trying to get the list from rheumatic.org. I'd also appreciate > suggestions on the protocol since I'm just winging it.. > Thanks, > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left.. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 Hi arjay, Fifteen months ago my doc and I just " winged it too " . I did not take the metho tho. Your doing good. Just keep tuned to this site and you will learn all the rest. Last year my hubby and I found this web site and they were having problems with people fighting and we never came back till this fall. I wish we would have stayed and not got scared away. I had no one to ask questions and we really muddled a lot. Stick with the AP and stick with this web site. Cooky arjay wrote: > > From: arjay <arjay@...> > > Hi > Thanks Ethel for letting me know how to post. I was diagnosed with RA > mid Nov 98. The GP who diagnosed me started me on mtx shots every two > weeks by the second shot I had found and read the Arthritis Breakthrough > the Dr gave me a prescription for 500mg tetracycline--a little large. I > took it it MWF until I got the physicians protocol then I switched to > 100 mg minocin twice aday MWF then went down to once aday to ease the H > effect. Now I'm back to twice aday MWF and 900mg Cleocin Tuesday. My > GP didn't read the protocol and isn't interested in the antibiotic > treatment, but figures it won't hurt me. This means I'm doing it by > reading the book and all of the Interrupted Journeys and checking > treatments. I just started the Cleocin this week. I hope to find a Dr > who is familiar with the protocol in eastern WA, I live 60 miles north > of Spokane if anyone knows of a Dr in my area please let me know I'm > still trying to get the list from rheumatic.org. I'd also appreciate > suggestions on the protocol since I'm just winging it. > Thanks, > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 1999 Report Share Posted February 8, 1999 Hi Cooky - we don't " Really " fight - just have some heated discussions....and they don't last very long and then we agree to disagree, everyone kisses and makes up and we're off to new and better things. Unless you are talking about the ongoing battle with the lady doc rheumatologist......funny thing...she was such a thorn in the side and right now I can't even think of her name . I guess that lethologica for you!!!!! Anyway, cooky, we're glad you came back. Judy ---------- > From: stonk1 <stonk1@...> > arjay <arjay@...> > Cc: rheumaticonelist > Subject: rheumatic Re: Dr's in E WA > Date: Sunday, February 07, 1999 1:52 PM > > From: stonk1 <stonk1@...> > > Hi arjay, > > Fifteen months ago my doc and I just " winged it too " . I did not take the > metho tho. Your doing good. Just keep tuned to this site and you will > learn all the rest. Last year my hubby and I found this web site and > they were having problems with people fighting and we never came back > till this fall. I wish we would have stayed and not got scared away. I > had no one to ask questions and we really muddled a lot. Stick with the > AP and stick with this web site.. > > Cooky > > arjay wrote: > > > > From: arjay <arjay@...> > > > > Hi > > Thanks Ethel for letting me know how to post. I was diagnosed with RA > > mid Nov 98. The GP who diagnosed me started me on mtx shots every two > > weeks by the second shot I had found and read the Arthritis Breakthrough > > the Dr gave me a prescription for 500mg tetracycline--a little large. I > > took it it MWF until I got the physicians protocol then I switched to > > 100 mg minocin twice aday MWF then went down to once aday to ease the H > > effect. Now I'm back to twice aday MWF and 900mg Cleocin Tuesday. My > > GP didn't read the protocol and isn't interested in the antibiotic > > treatment, but figures it won't hurt me. This means I'm doing it by > > reading the book and all of the Interrupted Journeys and checking > > treatments. I just started the Cleocin this week. I hope to find a Dr > > who is familiar with the protocol in eastern WA, I live 60 miles north > > of Spokane if anyone knows of a Dr in my area please let me know I'm > > still trying to get the list from rheumatic.org. I'd also appreciate > > suggestions on the protocol since I'm just winging it.. > > Thanks, > > > > ------------------------------------------------------------------------ > > To unsubscribe from this mailing list, or to change your subscription > > to digest, go to the ONElist web site, at and > > select the User Center link from the menu bar on the left.. > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left.. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 1999 Report Share Posted February 8, 1999 Would that be Dr. Hoch who stated on the a.s.a. list that the minocycline study on the eleven scleraderma patients resulted in two of them dying from the minocycline? She never has clarified her inability to read the English language medical abstract? Dr. Chiu called her on it but so far her only response has been, " Sticks and stones will break my bones but names will never harm me. " ROFL rheumatic Re: Dr's in E WA > Date: Sunday, February 07, 1999 1:52 PM > > From: stonk1 <stonk1@...> > > Hi arjay, > > Fifteen months ago my doc and I just " winged it too " . I did not take the > metho tho. Your doing good. Just keep tuned to this site and you will > learn all the rest. Last year my hubby and I found this web site and > they were having problems with people fighting and we never came back > till this fall. I wish we would have stayed and not got scared away. I > had no one to ask questions and we really muddled a lot. Stick with the > AP and stick with this web site.. > > Cooky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 1999 Report Share Posted February 8, 1999 In a message dated 2/7/99 10:12:10 PM Eastern Standard Time, deejay@... writes: << Hi Cooky - we don't " Really " fight - just have some heated discussions....and they don't last very long and then we agree to disagree, everyone kisses and makes up and we're off to new and better things. >> We are truly like a big family, with our discussions, disagreements and arguments, yes, but also with the unconditional love and support that you can only count on from a family! And the love and support always outweighs and outlasts those discussions :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 1999 Report Share Posted February 8, 1999 In a message dated 2/8/99 9:30:52 AM Eastern Standard Time, cadlard@... writes: << Clindamycin is 1200mg in a single dose, once a week, on a day you're not taking the other antibiotic. Clindamycin can't be taken with erythromycin. Chris. >> Anything else to look out for with the oral Clindamycin? Other medications / foods we should not take with it? Empty stomach or with food, avoid calcium, etc.???? Thanks Chris! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 1999 Report Share Posted February 8, 1999 wrote: Would that be Dr. Hoch who stated on the a.s.a. list that the minocycline study on the eleven scleraderma patients resulted in two of them dying from the minocycline? " There are two other Rheumy in that office that when I asked about AP I was told on the way out by the Secretary that Dr xxx Not Ms. Sticks and stones I was requested to find another rheumatologist . Can you believe that!!! I still see red when I think about those Bozos in the office . I also know of 6 people that have come away from that archaic pit either like mad as hell, or crying. Please God send Spokane a compassionate , caring, intelligent rheumatologist as of now there are NONE. In Seattle and Portland where I have lived 30 years between the two, because of the research facilities and population there are good Rheumy. I can also warn you in this part of the country that MD. Kenney a rheumy mis-diagnosed me when I had a double Achilles tendon tear. He told me it was just the indent from my tennis shoes . I was wearing tie up boots for support!!! Now I will always limp on my left foot as the surgeon had to go 1/2 up my calf to retract my tendon and patch it back together. QUACK Yes the duck doctor. so when you go to a rheumy in Spokane you take your life in you hands . I suggest , that there are two MD's and a neurologist here that are good doc's Still seeing red Root Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 1999 Report Share Posted February 9, 1999 > > I thought there were different doses depending on the drug. ie: > Minocycline 100 bid MWF, Doxycycline same Erythromycin is different > again. > Clindamycin once a week in place of IV 1200mg all in one dose. etc. You're right. Minocycline is 100-200mg Mon Wed and Fri, doxycycline is the same as minocycline. Erythromycin is 500-600mg MWF and tetracycline is 250-500mg twice daily MWF. Clindamycin is 1200mg in a single dose, once a week, on a day you're not taking the other antibiotic. Clindamycin can't be taken with erythromycin. Chris. Quote Link to comment Share on other sites More sharing options...
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