Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 I can't help but I wish I could. I have traveling pain now after 15 months on the ap. I find it more curious than painful. Almost as if my body is trying to find someplace to hide the disease where me and Mr. Doxycline can't find it. Donna Ottawa, Canada Scleroderma, Raynaud's 4 yrs, AP 15 months (My Story) www.compmore.net/~donray ---------- > From: Judy Knee <judy@...> > rheumaticonelist > Subject: rheumatic Ethel or Dr. Chiu > Date: Sunday, February 07, 1999 12:36 AM > > From: Judy Knee <judy@...> > > Am in the middle of a flare in the shoulder down the arm and swollen hand > and fingers at the moment and a little grogghy from panadeine forte. > > Just had new x rays done and heres the results: > > Both hands and wrists: minor degenerative changes unaltered since the last > study. No erosive feature present. > > Both feet and ankles: minor degenerative changes and calcaneal spurring. > No erosive disease of significant joint space reduction. > > Both knees: Mild degenerative changes with some medial joint spurring. No > significant changes since the previous study. The patello femoral and > lateral compartments are unremarkable. No erosive change identified. > > Conclusion. Only mild degenerative changes identified. No erosive disease > or destruction of joint cartilage seen. > > My conclusion is that minocycline has held RA at bay as there is no sign of > it attacking the bone or joint carilege. > > I don't understand, though, how the pain can be so severe when the disease > is only described as mild or minor. If I didn't have all this running > parallel and RF was normal and the pain was manageable, I stilll think I > might onlyh have OA. Maybe, that's what I have. How can the pain be so > severe to screaming point (in my case, crying point) when everything else > seems so mild?????????????? And why does it travel? For two days now I've > had it in the right shoulder, unable to write or move the arm out sideways. > But next thing, it'll probably come in the left shoulder or in the knees > or the ankles. Does it happen this way in OA. Do you get the icy cold in > the joints which then turns to the burning in OA? > > Sory this is so long, but i'm feeling very weepy and groggy at the moment. > Just can't understand why all the pain, mind i'm very happy with the xray. > The pain was almost uncontrollable - took 2 panadeine forte, 1000mg > naprosyn, 20mg prednisilone, and now, it's just begining to calm down. > > Love and hugs, > Jude. > please forgive the typso, i'm rh and typing with teh lf. > ______________________________________________________________ > xxxxxx xxxxxx > x x x x > x x x > x Love, Laughter x > x and Friends x > x are always x > x welcome x > x here x > x x > x > Perth, Western Australia > mailto:judy@... > Web site: http://www.iinet.net.au/~judy/jknee2.html > ICQ no #7500461 > Rheumatoid Arthritis 13mths AP 13mths > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 Hi everyone, Just a little update - I see I labelled the subject to Ethel or Dr. Chiu. The pain I had was so severe and I'd taken panadeine forte my head wasn't quite working properly and I panicked (which is quite normal for me - the panic, I mean). The pain in the arm has almost gone now (queer), but a reminder to you all about rice bags. I had asked my hubby to heat mine up in the microwave, which he duly did. However, I forgot to tell him that the timer sometimes doesn't work. Anyway, he brought it through to me and I plonked it on the shoulder. The heat was lovely. This morning when I had my shower, my skin had been burned from the rice bag being overheated. Didn't feel the pain of the burn over the pain in the shoulder. So, please, if you use the rice bags, don't overheat them. I have a lovely sunburn with frills (from my nightie). The other thing is, don't leave it too late to take your extra meds if you feel a flare coming on. Treat it straight away and hopefully it may help to stop it developing into such pain. That's how I see it with me - if I treat it as soon as the pain hits, it doesn't last as long. But maybe, it's because I've only got it mild, I don't know. Thank you to everyone who wrote, I felt so desperate, and it really is a relief to know you're amongst friends who know and understand the pain you go through. I'm most proud of my X-rays though, and I just want you all to know that I've only ever had Minocyclene, (Naprosyn and Prednisilone for flares) and a couple of other meds for tummy, so for me again, the Mino is working and keeping the joint destruction to a minimum which in my case is none. Love and hugs and thanks to you all, Jude. ______________________________________________________________ xxxxxx xxxxxx x x x x x x x x Love, Laughter x x and Friends x x are always x x welcome x x here x x x x Perth, Western Australia mailto:judy@... Web site: http://www.iinet.net.au/~judy/jknee2.html ICQ no #7500461 Rheumatoid Arthritis 13mths AP 13mths Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 When people have these problems I really wish everyone would send their posts to the group too. It would help me if I or anyone else got in the same situation. Your replies are so helpful. Thanks Cooky Judy Knee wrote: > > From: Judy Knee <judy@...> > > Hi everyone, > > Just a little update - I see I labelled the subject to Ethel or Dr. Chiu. > The pain I had was so severe and I'd taken panadeine forte my head wasn't > quite working properly and I panicked (which is quite normal for me - the > panic, I mean). > > The pain in the arm has almost gone now (queer), but a reminder to you all > about rice bags. > > I had asked my hubby to heat mine up in the microwave, which he duly did. > However, I forgot to tell him that the timer sometimes doesn't work. > Anyway, he brought it through to me and I plonked it on the shoulder. The > heat was lovely. This morning when I had my shower, my skin had been > burned from the rice bag being overheated. Didn't feel the pain of the > burn over the pain in the shoulder. So, please, if you use the rice bags, > don't overheat them. I have a lovely sunburn with frills (from my nightie). > > The other thing is, don't leave it too late to take your extra meds if you > feel a flare coming on. Treat it straight away and hopefully it may help > to stop it developing into such pain. That's how I see it with me - if I > treat it as soon as the pain hits, it doesn't last as long. But maybe, > it's because I've only got it mild, I don't know. > > Thank you to everyone who wrote, I felt so desperate, and it really is a > relief to know you're amongst friends who know and understand the pain you > go through. > > I'm most proud of my X-rays though, and I just want you all to know that > I've only ever had Minocyclene, (Naprosyn and Prednisilone for flares) and > a couple of other meds for tummy, so for me again, the Mino is working and > keeping the joint destruction to a minimum which in my case is none. > > Love and hugs and thanks to you all, > Jude. > ______________________________________________________________ > xxxxxx xxxxxx > x x x x > x x x > x Love, Laughter x > x and Friends x > x are always x > x welcome x > x here x > x x > x > Perth, Western Australia > mailto:judy@... > Web site: http://www.iinet.net.au/~judy/jknee2.html > ICQ no #7500461 > Rheumatoid Arthritis 13mths AP 13mths > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 1999 Report Share Posted February 9, 1999 wrote: >Do you have Osteoarthritis also? I have read that with osteoarthritis, some >people with a lot of damage seem to have little pain and some with not much >damage have severe pain. Not understood why. > > Hi , Yes, I do have OA as well as RA. I don't know whether you can get a flare with osteo - both my mum and dad have osteo but they've never had flares or pain like this. They ache and get pain if they do too much and it goes away when they rest up. Dad has had a THR and never had bouts of pain that come and go and then crop up somewhere else. Just prior to his hip replacement, he would get in a lot of severe pain if he walked or carried anything, but if he just rested up, he could cope with it pretty well. He never had the travelling pain, and mine travels. I'm half expecting for it to go over to the other shoulder in the next week and then down to the ankles. Though, today it was in my neck, not the sharp pain, just a bit of dull stuff, but it will come again in the other joints. It's almost as if this pain is a devil testing out the places it can cause the most upset in, and when it comes again, I shall remember what wrote " God don't give you nothing you can't cope with " . She is one wise lady. Take care, Love and hugs, Jude. ______________________________________________________________ xxxxxx xxxxxx x x x x x x x x Love, Laughter x x and Friends x x are always x x welcome x x here x x x x Perth, Western Australia mailto:judy@... Web site: http://www.iinet.net.au/~judy/jknee2.html ICQ no #7500461 Rheumatoid Arthritis 13mths AP 13mths Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 1999 Report Share Posted February 9, 1999 Hi Donna, Thank you so much for your support. The travelling pain is curious - sort of like an ache and slight pain. Most of it I've just sort of accepted as part of life and don't pay much attention to. But when the severe pain hits, it seemed as if it wanted to just take over! Never mind, it's under control now and banished (hopefully Take care, your letter has helped to lift me up - funny - I had to get over the pain to reply to all you wonderful people who wrote to me. I think that our support group just gives so much more than support. I've had many a laugh here, so much support that a private medical team couldn't have done any better, made so many friends, gained so much knowledge, and not in the least knowing that if I have trouble, help is not at the local docs or the end of a telephone line, it is at the tip of my fingers with people who really understand what you are going through. Thank you again for writing, Love and hugs, Jude. At 10:15 AM 7/2/1999 -0500, you wrote: >I can't help but I wish I could. > >I have traveling pain now after 15 months on the ap. I find it more >curious than painful. Almost as if my body is trying to find someplace to >hide the disease where me and Mr. Doxycline can't find it. > > > >Donna >Ottawa, Canada >Scleroderma, Raynaud's 4 yrs, AP 15 months >(My Story) www.compmore.net/~donray > >---------- >> From: Judy Knee <judy@...> >> rheumaticonelist >> Subject: rheumatic Ethel or Dr. Chiu >> Date: Sunday, February 07, 1999 12:36 AM >> >> From: Judy Knee <judy@...> >> >> Am in the middle of a flare in the shoulder down the arm and swollen hand >> and fingers at the moment and a little grogghy from panadeine forte. >> >> Just had new x rays done and heres the results: >> >> Both hands and wrists: minor degenerative changes unaltered since the >last >> study. No erosive feature present. >> >> Both feet and ankles: minor degenerative changes and calcaneal spurring. >> No erosive disease of significant joint space reduction. >> >> Both knees: Mild degenerative changes with some medial joint spurring. >No >> significant changes since the previous study. The patello femoral and >> lateral compartments are unremarkable. No erosive change identified. >> >> Conclusion. Only mild degenerative changes identified. No erosive >disease >> or destruction of joint cartilage seen. >> >> My conclusion is that minocycline has held RA at bay as there is no sign >of >> it attacking the bone or joint carilege. >> >> I don't understand, though, how the pain can be so severe when the >disease >> is only described as mild or minor. If I didn't have all this running >> parallel and RF was normal and the pain was manageable, I stilll think I >> might onlyh have OA. Maybe, that's what I have. How can the pain be so >> severe to screaming point (in my case, crying point) when everything else >> seems so mild?????????????? And why does it travel? For two days now >I've >> had it in the right shoulder, unable to write or move the arm out >sideways. >> But next thing, it'll probably come in the left shoulder or in the knees >> or the ankles. Does it happen this way in OA. Do you get the icy cold >in >> the joints which then turns to the burning in OA? >> >> Sory this is so long, but i'm feeling very weepy and groggy at the >moment. >> Just can't understand why all the pain, mind i'm very happy with the >xray. >> The pain was almost uncontrollable - took 2 panadeine forte, 1000mg >> naprosyn, 20mg prednisilone, and now, it's just begining to calm down. >> >> Love and hugs, >> Jude. >> please forgive the typso, i'm rh and typing with teh lf. >> ______________________________________________________________ >> xxxxxx xxxxxx >> x x x x >> x x x >> x Love, Laughter x >> x and Friends x >> x are always x >> x welcome x >> x here x >> x x >> x >> Perth, Western Australia >> mailto:judy@... >> Web site: http://www.iinet.net.au/~judy/jknee2.html >> ICQ no #7500461 >> Rheumatoid Arthritis 13mths AP 13mths >> >> ------------------------------------------------------------------------ >> To unsubscribe from this mailing list, or to change your subscription >> to digest, go to the ONElist web site, at and >> select the User Center link from the menu bar on the left. > > ______________________________________________________________ xxxxxx xxxxxx x x x x x x x x Love, Laughter x x and Friends x x are always x x welcome x x here x x x x Perth, Western Australia mailto:judy@... Web site: http://www.iinet.net.au/~judy/jknee2.html ICQ no #7500461 Rheumatoid Arthritis 13mths AP 13mths Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 1999 Report Share Posted February 9, 1999 Dear Jude, In The New Arthritis Breakthrough Dr. Brown mentions that when osteoarthritis flares like you describe it is generally because there is a rheumatoid arthritis going on at the same time. j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 1999 Report Share Posted February 10, 1999 In a message dated 2/9/99 7:42:40 AM Central Standard Time, judy@... writes: << If a doc had come in and said 'O.K. we'll amputate' I would have said Pleeeeeeeeease:) >> been there...done that..lol Cindi/Iowa Ra 42 yrs Ap 26 months Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.