Hi

[Guest guest]

thanx.. where ya from in canada me,, alberta. north also.... brenda

Lyndi wrote:

Hi

I'm Canadian and am also familiar with the disability parking laws in The Great

White North.

[Guest guest]

brenda s wrote:

> thanx.. where ya from in canada me,, alberta. north also.... brenda

I've lived in Alberta, Saskatchewan, Manitoba, Ontario and Quebec. I was born

in

Nipawin, SK and before I moved to Indiana four years ago, I had spent the last

eleven years living in Saskatoon. That's the longest I have ever lived in one

place, so to me, that's " home. " :-)

I have a nephew that lives in Saskatoon, but no other family living there. My

kids

are grown. One lives in Meadow Lake and the other is in Prince Albert. One of

my

sisters splits her time between Summerland and Wells and High River and the

other

has been in Fort Sask for 30 years. The nephews, nieces and foster kids are all

over the globe - from England to Japan.

We get around. lol

--

Lyndi

un Canadien errant

[Guest guest]

hi.. you sure have lived a very traveling life! me raised in bc.. moved here 4

years ago. to get a way from an abusive ex husband aftr 15 years of marrige..

was a nurse... thats how i hurt my back and hip,, now pain pain pain.. im sure

you know.. i did liv in saskatoon when i was 18-19 . i have a brother there and

4 nephews i have not seen in 15 years plus..... brenda

[Guest guest]

Hi every one, my name is Shereen, I am 27 years old girl from Egypt, working as

a mechanical engineer. I had the AOSD a year ago, began with fever and pain all

over my body, then two weeks later the rash came on, I take sulpiride,

methotrexate, Oscal, Folic acid, plaquenil and Bone one. I am engaged and should

get married within a year, I asked my doctor what will be the best way to

postpone the pregnancy and she said none will work, I really can't have kids in

the beginning of my marriage and don't know what to do. Also I am losing my hair

and I tried many things to get it back but nothing worked with me. I really need

to share this with u because no one around me really understand what I am going

through...

[Guest guest]

Hi Shereen,

Welcome!

I've had Still's a long time and been losing my hair as well a lot lately. Mine

is not from the Still's though or medications. I'm not quite sure why but know

it's hard to deal with as it gets thinner and thinner and it must be so

especially since you're so young. I'm sorry I don't have any suggestions except

to say that over the years it seems to get better at times more than others and

doesn't always stay thin.

Congratulations on your upcoming marriage. I hope it goes well, just try and get

as much rest as you can.

Again welcome. We look forward to knowing you better.

Hi

Hi every one, my name is Shereen, I am 27 years old girl from Egypt, working

as a mechanical engineer.

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[Guest guest]

Dears,

Thank you all very much for your replies, really it's so nice to be with you

here. I will get back to another doctor about the birth control.

I want to know if any one now using plaquenil or used it before, it's really

bad! I have Nausea, vomiting, stomach upset, cramps, loss of appetite and

headache. Is this normal?

Shereen El Morsy

________________________________

To: Stillsdisease

Sent: Fri, December 18, 2009 10:26:36 AM

Subject: Re: Re: Hi

Shereen

Welcome from this redneck also. As Tom said I to lost a lot of my hair but I do

not know if it was my moms genes and man baldness or the MTX but it did start

before I was on MTX so I lean more its moms fault. LOL.. As for help well woman

can get away with wigs and things easier then men but I find hats work really

well and if they have things like Deer on them that even better. all joking

aside I really do not know what to say except for if its in the front tell them

your a thinker if its in the back tell them your a lover and if its front to

back well tell them nothing because they will just think your a lover . Okay

this time no joke but no answer also I do know that for some it can make hair

fall out and others it may not at all and many fall in the middle some wear

also. I look at it this way even thou I joke about it I would love to have my

hair back as I do not have a head for baldness but being its a no go for me I

just say this is me

and who I am like it or not its still better then how things were before when I

had more hair and also a lot more pain and problems health wise. If this is one

of the things I have to give up so be it. yes easer for a man to say I know but

it is also my belief in life that out side looks will fade and change and its

never for the best but the person we are in side never changes and that is who

we really are after all and if some one can not see that then there shallow and

losing out on a lot of life by placing importance on what nature is not kind to

compared to the person who is always inside never changing!

Hugs and good luck finding your answer as ya never know like all things just

because it did not work for me dose not mean it will not work for you or the

other way around also.

the redneck

Marty G.

____________ _________ _________ __

From: drwooly2006

Sent: Thu, December 17, 2009 6:04:44 PM

Subject: Re: Hi

Hi Shereen.

As far as your hair, I wish there was something that could offset it. Some who

have been on methotrexate have experienced hair loss and many others have not. I

had lost most of my hair before going on methotrexate but did not seem to lose

more while on it. Maybe someone in the group may have come across something that

may help. I do know that making sure that you supplement your folic acid at the

right time around the methotrexate dosing may help but it looks like you have

that covered.

Again, welcome.

Tom from PA (USA)

[Guest guest]

Shereen, I have been taking Plaquenil for over a year and have no side

effects.  Unfortunately, one of the biggest problems with this disease is we

all have different reactions to different drugs, so what works for one does not

work for another.  Hope you find something that works for you. 

Sue

Subject: Re: Re: Hi

To: Stillsdisease

Date: Wednesday, December 23, 2009, 2:25 AM

 

Dears,

Thank you all very much for your replies, really it's so nice to be with you

here. I will get back to another doctor about the birth control.

I want to know if any one now using plaquenil or used it before, it's really

bad! I have Nausea, vomiting, stomach upset, cramps, loss of appetite and

headache. Is this normal?

Shereen El Morsy

____________ _________ _________ __

From: Marty <stills_stinks@ yahoo.com>

To: Stillsdisease@ yahoogroups. com

Sent: Fri, December 18, 2009 10:26:36 AM

Subject: Re: Re: Hi

Shereen

Welcome from this redneck also. As Tom said I to lost a lot of my hair but I do

not know if it was my moms genes and man baldness or the MTX but it did start

before I was on MTX so I lean more its moms fault. LOL.. As for help well woman

can get away with wigs and things easier then men but I find hats work really

well and if they have things like Deer on them that even better. all joking

aside I really do not know what to say except for if its in the front tell them

your a thinker if its in the back tell them your a lover and if its front to

back well tell them nothing because they will just think your a lover . Okay

this time no joke but no answer also I do know that for some it can make hair

fall out and others it may not at all and many fall in the middle some wear

also. I look at it this way even thou I joke about it I would love to have my

hair back as I do not have a head for baldness but being its a no go for me I

just say this is me

and who I am like it or not its still better then how things were before when I

had more hair and also a lot more pain and problems health wise. If this is one

of the things I have to give up so be it. yes easer for a man to say I know but

it is also my belief in life that out side looks will fade and change and its

never for the best but the person we are in side never changes and that is who

we really are after all and if some one can not see that then there shallow and

losing out on a lot of life by placing importance on what nature is not kind to

compared to the person who is always inside never changing!

Hugs and good luck finding your answer as ya never know like all things just

because it did not work for me dose not mean it will not work for you or the

other way around also.

the redneck

Marty G.

____________ _________ _________ __

From: drwooly2006

Sent: Thu, December 17, 2009 6:04:44 PM

Subject: Re: Hi

Hi Shereen.

As far as your hair, I wish there was something that could offset it. Some who

have been on methotrexate have experienced hair loss and many others have not. I

had lost most of my hair before going on methotrexate but did not seem to lose

more while on it. Maybe someone in the group may have come across something that

may help. I do know that making sure that you supplement your folic acid at the

right time around the methotrexate dosing may help but it looks like you have

that covered.

Again, welcome.

Tom from PA (USA)