Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Amen! - my favorite saying is " There's ALWAYS someone worse off " - I'm thankful for every single day (but it doesn't mean I'm not envious, sometimes!). Arne 49 - UC 1977 - PSC 2000 Alive and (mostly) well in Minnesota (where it was 40 degrees today!) -----Original Message----- From: tzeiher@... Life is just that, Life. No ones really knows how much time they have, so each of us should make the most of every day and hopefully leave this world a little better for someone. You have PSC, think of the things that you could have that is far worse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Amen! - my favorite saying is " There's ALWAYS someone worse off " - I'm thankful for every single day (but it doesn't mean I'm not envious, sometimes!). Arne 49 - UC 1977 - PSC 2000 Alive and (mostly) well in Minnesota (where it was 40 degrees today!) -----Original Message----- From: tzeiher@... Life is just that, Life. No ones really knows how much time they have, so each of us should make the most of every day and hopefully leave this world a little better for someone. You have PSC, think of the things that you could have that is far worse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 .. A transplant does not cure any Hep B or C, it is in the blood. So my question is - why are they transplanted in the first place if the Hep C will come right back. Doesn't make sense to me. Barby married 21 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 .. A transplant does not cure any Hep B or C, it is in the blood. So my question is - why are they transplanted in the first place if the Hep C will come right back. Doesn't make sense to me. Barby married 21 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 .. A transplant does not cure any Hep B or C, it is in the blood. So my question is - why are they transplanted in the first place if the Hep C will come right back. Doesn't make sense to me. Barby married 21 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Barby, It is a real mortal dilemma for the TX surgeons I have talked to, but they have to work within the UNO rules. If you want to read more about UNO and how they set policy with a lot of input from both the medical field and HHS (Health & Human Services, log on the ALF site. The links to UNO and HHS are listed. Tim - Columbus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Barby, It is a real mortal dilemma for the TX surgeons I have talked to, but they have to work within the UNO rules. If you want to read more about UNO and how they set policy with a lot of input from both the medical field and HHS (Health & Human Services, log on the ALF site. The links to UNO and HHS are listed. Tim - Columbus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Barby, It is a real mortal dilemma for the TX surgeons I have talked to, but they have to work within the UNO rules. If you want to read more about UNO and how they set policy with a lot of input from both the medical field and HHS (Health & Human Services, log on the ALF site. The links to UNO and HHS are listed. Tim - Columbus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Many people whose risky behaviors make them donors are already hep C pos--hep C patients usually receive hep C livers...although those livers are generally MUCH less damaged than their own. It simply buys time until someone can figure out how to treat hep C. My doctor says that hep C livers are not transplanted into people who do not have the infection already. Penny Nordgren1@... wrote: In a message dated 01/06/2001 9:29:01 PM Central Standard Time, tzeiher@... writes: .. A transplant does not cure any Hep B or C, it is in the blood. So my question is - why are they transplanted in the first place if the Hep C will come right back. Doesn't make sense to me. Barby married 21 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Many people whose risky behaviors make them donors are already hep C pos--hep C patients usually receive hep C livers...although those livers are generally MUCH less damaged than their own. It simply buys time until someone can figure out how to treat hep C. My doctor says that hep C livers are not transplanted into people who do not have the infection already. Penny Nordgren1@... wrote: In a message dated 01/06/2001 9:29:01 PM Central Standard Time, tzeiher@... writes: .. A transplant does not cure any Hep B or C, it is in the blood. So my question is - why are they transplanted in the first place if the Hep C will come right back. Doesn't make sense to me. Barby married 21 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Many people whose risky behaviors make them donors are already hep C pos--hep C patients usually receive hep C livers...although those livers are generally MUCH less damaged than their own. It simply buys time until someone can figure out how to treat hep C. My doctor says that hep C livers are not transplanted into people who do not have the infection already. Penny Nordgren1@... wrote: In a message dated 01/06/2001 9:29:01 PM Central Standard Time, tzeiher@... writes: .. A transplant does not cure any Hep B or C, it is in the blood. So my question is - why are they transplanted in the first place if the Hep C will come right back. Doesn't make sense to me. Barby married 21 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 >DenverD, > >Sorry for the previous email, I thought that you were the angry one at >24. So please disregard and accept my apology. wow, if you wrote something to me that now needs an apology, I'll have to go back and find it.. anyway, it didn't hurt me too much--it sure didn't hurt.. but, thanks for the thought.. that angry is an ok guy--he's been here a few months and its the first time he has " vented " -- he was WAY overdue.. DenverD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 >why are they transplanted I guess so they can live another day, week, month, year... I've been reading the liver-transplantsegroups list too.. over there they have been talking about the different types of HepC.. seems a person with one particular type, which is REAL bad, can get a transplant with another liver with a less bad type of HepC and do quite well for a " long " time because the less bad type will " takeover " and kill off the REAL bad type.. and, no one else would want that otherwise ok liver.. so, its good use of scarse resources.. DenverD " If we are really dying, let us hear the rattle in our throats and feel cold in the extremities; if we are alive, let us go about our business. " So said Ralph Waldo Emerson in _Walden_. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 >why are they transplanted I guess so they can live another day, week, month, year... I've been reading the liver-transplantsegroups list too.. over there they have been talking about the different types of HepC.. seems a person with one particular type, which is REAL bad, can get a transplant with another liver with a less bad type of HepC and do quite well for a " long " time because the less bad type will " takeover " and kill off the REAL bad type.. and, no one else would want that otherwise ok liver.. so, its good use of scarse resources.. DenverD " If we are really dying, let us hear the rattle in our throats and feel cold in the extremities; if we are alive, let us go about our business. " So said Ralph Waldo Emerson in _Walden_. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 >P.S. English is not my native language so sorry for the any mistakes that I >made. Serkan, welcome to the group--sorry you need to be here.. how *did* you find us? there is lots to learn about the disease here and at www..com and www.pscf.org and, do NOT worry about your English..it is PLENTY okay for us.. and, remember the point here is to share and help each other--so, don't think of it as an ongoing English exam.. their r know Englisk polici hear! DenverD: husband of Mette (44), UC '73, dx PSC 6/2000, alive in Denmark Latest on Mette is at http://www.terslose.com/mette/MetteNew.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 >P.S. English is not my native language so sorry for the any mistakes that I >made. Serkan, welcome to the group--sorry you need to be here.. how *did* you find us? there is lots to learn about the disease here and at www..com and www.pscf.org and, do NOT worry about your English..it is PLENTY okay for us.. and, remember the point here is to share and help each other--so, don't think of it as an ongoing English exam.. their r know Englisk polici hear! DenverD: husband of Mette (44), UC '73, dx PSC 6/2000, alive in Denmark Latest on Mette is at http://www.terslose.com/mette/MetteNew.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Welcome Serkan glad you found us. P.S. English is not my native language so sorry for the any mistakes that I made. Your English looks pretty good to me. Where do you live? Peg, wife of Phil (57), UC 30 years, dx PSC 12/98, listed-status 3-UCLA-2/2000, living Los Angeles suburbs, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Welcome Serkan glad you found us. P.S. English is not my native language so sorry for the any mistakes that I made. Your English looks pretty good to me. Where do you live? Peg, wife of Phil (57), UC 30 years, dx PSC 12/98, listed-status 3-UCLA-2/2000, living Los Angeles suburbs, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 somebody will tell you if you should go back on it very soon. this is not my expertise. i will say that if you go back on you will want to come off very slowly. i believe 10 percent at a time. let yourself feel stable before you come off again. there are also a number of things you can do to help yourself with the destruction these drugs can do on your body. taking vitamins is one, look in the files for specific choices. another is not panicking. what's done is done. you will be okay, it may take a long time or maybe a short time. getting worked up will only cause you to make bad decisions and interfering with your healing. if its hard for you not to get worked up, if you can exercise that will be beneficial and/or you could take 15 minutes out of your day and just let it all out: all your worries, anger, pain, etc.... also, this is a great opportunity to change your diet, which will help in the healing process. you already said that you want to lose weight. eating non-processed foods is the key. weight loss is different for everyone, but its not brain surgery. maybe, start by changing one meal a day. instead, of eating fast food make a salad. i can give you some recipes if you like. there are also some in the files. and i gained some weight from these drugs and i learned if your trying to lose weight for vanity reasons its not going to work. and that goes for even if you never took the drugs. you will break back into your normal habits. by slowing growing to like non-processed food and doing it for health reasons you are much more likely to succeed. jason - In Withdrawal_and_Recovery , Kim Sachdeva <airfoil777@y...> wrote: > Hi Everyone, > My name is Kim and I'm a brand new addition to the group and very very scared of the Effexor withdrawl that I'm going through..I have been on many different anti-depressants throughout the last 11 years..I really didn't have many problems with any of the other ones except that after awhile they didn't seem to help anymore, so my doctor would put me on a different one..I had heard that you could lose weight by taking Effexor, so that sounded like the perfect drug for me since I am very desperate to lose weight..I did lose a few pounds the first couple of months, but after that, nothing..I have been on Effexor 3 years at 150mg..I was told it was non-habit forming..I was greatly mislead..I tried to go off of it abrutly about 7 days ago..The lightheadedness, severe dizziness, muscle pain, severe nausea, diarrhea, headaches and chills got the best of me and I called the hospital hoping there was something they could do..I was instructed to take 75mg of the Effexor immediately then start > lowering my doses each week from 112mg a day..I'm really scared that this will not work..I feel as soon as I lower the dose, I will be deathly sick again..Is there any hope???? > Regards, > Kim > > > > > --------------------------------- > Celebrate Yahoo!'s 10th Birthday! > Yahoo! Netrospective: 100 Moments of the Web Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 somebody will tell you if you should go back on it very soon. this is not my expertise. i will say that if you go back on you will want to come off very slowly. i believe 10 percent at a time. let yourself feel stable before you come off again. there are also a number of things you can do to help yourself with the destruction these drugs can do on your body. taking vitamins is one, look in the files for specific choices. another is not panicking. what's done is done. you will be okay, it may take a long time or maybe a short time. getting worked up will only cause you to make bad decisions and interfering with your healing. if its hard for you not to get worked up, if you can exercise that will be beneficial and/or you could take 15 minutes out of your day and just let it all out: all your worries, anger, pain, etc.... also, this is a great opportunity to change your diet, which will help in the healing process. you already said that you want to lose weight. eating non-processed foods is the key. weight loss is different for everyone, but its not brain surgery. maybe, start by changing one meal a day. instead, of eating fast food make a salad. i can give you some recipes if you like. there are also some in the files. and i gained some weight from these drugs and i learned if your trying to lose weight for vanity reasons its not going to work. and that goes for even if you never took the drugs. you will break back into your normal habits. by slowing growing to like non-processed food and doing it for health reasons you are much more likely to succeed. jason - In Withdrawal_and_Recovery , Kim Sachdeva <airfoil777@y...> wrote: > Hi Everyone, > My name is Kim and I'm a brand new addition to the group and very very scared of the Effexor withdrawl that I'm going through..I have been on many different anti-depressants throughout the last 11 years..I really didn't have many problems with any of the other ones except that after awhile they didn't seem to help anymore, so my doctor would put me on a different one..I had heard that you could lose weight by taking Effexor, so that sounded like the perfect drug for me since I am very desperate to lose weight..I did lose a few pounds the first couple of months, but after that, nothing..I have been on Effexor 3 years at 150mg..I was told it was non-habit forming..I was greatly mislead..I tried to go off of it abrutly about 7 days ago..The lightheadedness, severe dizziness, muscle pain, severe nausea, diarrhea, headaches and chills got the best of me and I called the hospital hoping there was something they could do..I was instructed to take 75mg of the Effexor immediately then start > lowering my doses each week from 112mg a day..I'm really scared that this will not work..I feel as soon as I lower the dose, I will be deathly sick again..Is there any hope???? > Regards, > Kim > > > > > --------------------------------- > Celebrate Yahoo!'s 10th Birthday! > Yahoo! Netrospective: 100 Moments of the Web Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 somebody will tell you if you should go back on it very soon. this is not my expertise. i will say that if you go back on you will want to come off very slowly. i believe 10 percent at a time. let yourself feel stable before you come off again. there are also a number of things you can do to help yourself with the destruction these drugs can do on your body. taking vitamins is one, look in the files for specific choices. another is not panicking. what's done is done. you will be okay, it may take a long time or maybe a short time. getting worked up will only cause you to make bad decisions and interfering with your healing. if its hard for you not to get worked up, if you can exercise that will be beneficial and/or you could take 15 minutes out of your day and just let it all out: all your worries, anger, pain, etc.... also, this is a great opportunity to change your diet, which will help in the healing process. you already said that you want to lose weight. eating non-processed foods is the key. weight loss is different for everyone, but its not brain surgery. maybe, start by changing one meal a day. instead, of eating fast food make a salad. i can give you some recipes if you like. there are also some in the files. and i gained some weight from these drugs and i learned if your trying to lose weight for vanity reasons its not going to work. and that goes for even if you never took the drugs. you will break back into your normal habits. by slowing growing to like non-processed food and doing it for health reasons you are much more likely to succeed. jason - In Withdrawal_and_Recovery , Kim Sachdeva <airfoil777@y...> wrote: > Hi Everyone, > My name is Kim and I'm a brand new addition to the group and very very scared of the Effexor withdrawl that I'm going through..I have been on many different anti-depressants throughout the last 11 years..I really didn't have many problems with any of the other ones except that after awhile they didn't seem to help anymore, so my doctor would put me on a different one..I had heard that you could lose weight by taking Effexor, so that sounded like the perfect drug for me since I am very desperate to lose weight..I did lose a few pounds the first couple of months, but after that, nothing..I have been on Effexor 3 years at 150mg..I was told it was non-habit forming..I was greatly mislead..I tried to go off of it abrutly about 7 days ago..The lightheadedness, severe dizziness, muscle pain, severe nausea, diarrhea, headaches and chills got the best of me and I called the hospital hoping there was something they could do..I was instructed to take 75mg of the Effexor immediately then start > lowering my doses each week from 112mg a day..I'm really scared that this will not work..I feel as soon as I lower the dose, I will be deathly sick again..Is there any hope???? > Regards, > Kim > > > > > --------------------------------- > Celebrate Yahoo!'s 10th Birthday! > Yahoo! Netrospective: 100 Moments of the Web Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 <<<..I was told it was non-habit forming..I was greatly mislead..I tried to go off of it abrutly about 7 days ago..The lightheadedness, severe dizziness, muscle pain, severe nausea, diarrhea, headaches and chills got the best of me and I called the hospital hoping there was something they could do..I was instructed to take 75mg of the Effexor immediately then start > lowering my doses each week from 112mg a day..I'm really scared that this > will not work..I feel as soon as I lower the dose, I will be deathly sick > again..Is there any hope????>> ** Dear Kim, If you take a look in our archives you'll see many references to reducing a drug by 5-10% at a time for successful withdrawal. Wait in between reductions until you feel stable again, then do the next 5-10% reduction. Don't bother going by the calendar, just go by how you feel. You can't expect this to be without difficulty-- you will experience some symptoms but it will not be as severe as those you got when you abruptly discontinued before. Regards, (listowner & moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 ---Dearest Kim Now is a time when you have to have trust and faith in your own body and spirit. took me through my withdrawal from cipromil so slowly and over months, when I came off I had sever sickness for months after, diarohoea ( sorry I cant spell!), my muscle ached so bad I could hardly walk up the garden, my heart palpitated and so many other things. You must dig deep in your soul and come out fighting because I and many others will tell you it is worth being off this crap. I can feel again now, I really can, I don't feel numbe anymore, sure I feel pain, but I can laugh again. I haven't laughed for 8 years. I am still in alot of pain with my muscles and the nerve pain in my feet, but I thank God, and the people on this board for getting me through. I have alot to rebuild in my life and it won't be an easy path, but thanks to everyone here I now can trust again. I have lost all trust in my doctors, but , J, Glitter, Tues and the others have never let me down. keep talking to us and telling us what you feel and let us support you and love you and soon you will be able to love yourself again. Thinking of you and wishing you strength on your journey. In Withdrawal_and_Recovery , " C Creel " <ccreel@r...> wrote: > <<<..I was told it was non-habit forming..I was greatly mislead..I tried to > go off of it abrutly about 7 days ago..The lightheadedness, severe > dizziness, muscle pain, severe nausea, diarrhea, headaches and chills got > the best of me and I called the hospital hoping there was something they > could do..I was instructed to take 75mg of the Effexor immediately then > start > > lowering my doses each week from 112mg a day..I'm really scared that this > > will not work..I feel as soon as I lower the dose, I will be deathly sick > > again..Is there any hope????>> > > > ** Dear Kim, > > > If you take a look in our archives you'll see many references to reducing > a drug by 5-10% at a time for successful withdrawal. Wait in between > reductions until you feel stable again, then do the next 5-10% reduction. > Don't bother going by the calendar, just go by how you feel. > > > You can't expect this to be without difficulty-- you will experience some > symptoms but it will not be as severe as those you got when you abruptly > discontinued before. > > Regards, > > (listowner & moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi , Thank you so much for your encouragement..My doctor is tapering me off of the Effexor XR, but I feel it's too fast..I'm already supposed to be taking one less pill and I don't feel my body is ready to handle a drop so soon..I still haven't adjusted to the dose I'm currently at..I have all the withdrawal symtoms I had when I abruptly stopped the drug, though tapering has alleviated the severity of them..I haven't had a job for over a month and my husband is screaming at me about the bills..This screaming is making me more nervous and depressed..I have a beautiful Russian Blue cat and an energetic Moluccan Cockatoo..If it weren't for these two beautiful blessings from God in my life, I wouldn't want to live anymore..I feel really worthless..I'm 38 and have no career, not even a job..Since being on Effexor XR, I have not been able to hold a job..I keep getting fired..I really want a job, but am scared I won't be able to hold it..And it's really hard to even get out of bed to look for one..I feel so exhausted all the time..Thank you for having a shoulder for me to cry on..Please keep in touch.. God Bless You Always, Kimsjerrom wrote: ---Dearest KimNow is a time when you have to have trust and faith in your own body and spirit. took me through my withdrawal from cipromil so slowly and over months, when I came off I had sever sickness for months after, diarohoea ( sorry I cant spell!), my muscle ached so bad I could hardly walk up the garden, my heart palpitated and so many other things.You must dig deep in your soul and come out fighting because I and many others will tell you it is worth being off this crap.I can feel again now, I really can, I don't feel numbe anymore, sure I feel pain, but I can laugh again. I haven't laughed for 8 years.I am still in alot of pain with my muscles and the nerve pain in my feet, but I thank God, and the people on this board for getting me through.I have alot to rebuild in my life and it won't be an easy path, but thanks to everyone here I now can trust again. I have lost all trust in my doctors, but , J, Glitter, Tues and the others have never let me down.keep talking to us and telling us what you feel and let us support you and love you and soon you will be able to love yourself again.Thinking of you and wishing you strength on your journey.In Withdrawal_and_Recovery , "C Creel" <ccreel@r...> wrote:> <<<..I was told it was non-habit forming..I was greatly mislead..I tried to > go off of it abrutly about 7 days ago..The lightheadedness, severe > dizziness, muscle pain, severe nausea, diarrhea, headaches and chills got > the best of me and I called the hospital hoping there was something they > could do..I was instructed to take 75mg of the Effexor immediately then > start> > lowering my doses each week from 112mg a day..I'm really scared that this > > will not work..I feel as soon as I lower the dose, I will be deathly sick > > again..Is there any hope????>>> > > ** Dear Kim,> > > If you take a look in our archives you'll see many references to reducing > a drug by 5-10% at a time for successful withdrawal. Wait in between > reductions until you feel stable again, then do the next 5-10% reduction. > Don't bother going by the calendar, just go by how you feel.> > > You can't expect this to be without difficulty-- you will experience some > symptoms but it will not be as severe as those you got when you abruptly > discontinued before.> > Regards,> > (listowner & moderator)To subscribe to the off-topic list go to: http://groups.yahoo.com/group/socialWandR/ Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi , Thank you so much for your encouragement..My doctor is tapering me off of the Effexor XR, but I feel it's too fast..I'm already supposed to be taking one less pill and I don't feel my body is ready to handle a drop so soon..I still haven't adjusted to the dose I'm currently at..I have all the withdrawal symtoms I had when I abruptly stopped the drug, though tapering has alleviated the severity of them..I haven't had a job for over a month and my husband is screaming at me about the bills..This screaming is making me more nervous and depressed..I have a beautiful Russian Blue cat and an energetic Moluccan Cockatoo..If it weren't for these two beautiful blessings from God in my life, I wouldn't want to live anymore..I feel really worthless..I'm 38 and have no career, not even a job..Since being on Effexor XR, I have not been able to hold a job..I keep getting fired..I really want a job, but am scared I won't be able to hold it..And it's really hard to even get out of bed to look for one..I feel so exhausted all the time..Thank you for having a shoulder for me to cry on..Please keep in touch.. God Bless You Always, Kimsjerrom wrote: ---Dearest KimNow is a time when you have to have trust and faith in your own body and spirit. took me through my withdrawal from cipromil so slowly and over months, when I came off I had sever sickness for months after, diarohoea ( sorry I cant spell!), my muscle ached so bad I could hardly walk up the garden, my heart palpitated and so many other things.You must dig deep in your soul and come out fighting because I and many others will tell you it is worth being off this crap.I can feel again now, I really can, I don't feel numbe anymore, sure I feel pain, but I can laugh again. I haven't laughed for 8 years.I am still in alot of pain with my muscles and the nerve pain in my feet, but I thank God, and the people on this board for getting me through.I have alot to rebuild in my life and it won't be an easy path, but thanks to everyone here I now can trust again. I have lost all trust in my doctors, but , J, Glitter, Tues and the others have never let me down.keep talking to us and telling us what you feel and let us support you and love you and soon you will be able to love yourself again.Thinking of you and wishing you strength on your journey.In Withdrawal_and_Recovery , "C Creel" <ccreel@r...> wrote:> <<<..I was told it was non-habit forming..I was greatly mislead..I tried to > go off of it abrutly about 7 days ago..The lightheadedness, severe > dizziness, muscle pain, severe nausea, diarrhea, headaches and chills got > the best of me and I called the hospital hoping there was something they > could do..I was instructed to take 75mg of the Effexor immediately then > start> > lowering my doses each week from 112mg a day..I'm really scared that this > > will not work..I feel as soon as I lower the dose, I will be deathly sick > > again..Is there any hope????>>> > > ** Dear Kim,> > > If you take a look in our archives you'll see many references to reducing > a drug by 5-10% at a time for successful withdrawal. Wait in between > reductions until you feel stable again, then do the next 5-10% reduction. > Don't bother going by the calendar, just go by how you feel.> > > You can't expect this to be without difficulty-- you will experience some > symptoms but it will not be as severe as those you got when you abruptly > discontinued before.> > Regards,> > (listowner & moderator)To subscribe to the off-topic list go to: http://groups.yahoo.com/group/socialWandR/ Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web Quote Link to comment Share on other sites More sharing options...
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