New member

[Guest guest]

Andi,

I am glad you found this group. There is always someone in the group who can help.

About the ERCP- Some people in our group have had problems with pancreatitis after ERCP and now take antibiotics as a precaution. I have had 4 ERCP's and never had a problem. That is how I was diagnosed when I presented with the same symptoms as you described. The doctors finally decided the intermittent pain I was experiencing right below the sternum was an infection and have been treating me accordingly whenever I have those symptoms.

Did you say you are seeing a hepatologist now?

Hope this helps you and don't be afraid to ask any other questions you might have. The people in our group have "been there, done that" and will be able to help.

Blessings,

Barby ---- Happy New Year everyone!

married 21 years, mom of 5 sons- KS

UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994

PSC- dx in 1999

nordgren1@...

[Guest guest]

Andi,

I am glad you found this group. There is always someone in the group who can help.

About the ERCP- Some people in our group have had problems with pancreatitis after ERCP and now take antibiotics as a precaution. I have had 4 ERCP's and never had a problem. That is how I was diagnosed when I presented with the same symptoms as you described. The doctors finally decided the intermittent pain I was experiencing right below the sternum was an infection and have been treating me accordingly whenever I have those symptoms.

Did you say you are seeing a hepatologist now?

Hope this helps you and don't be afraid to ask any other questions you might have. The people in our group have "been there, done that" and will be able to help.

Blessings,

Barby ---- Happy New Year everyone!

married 21 years, mom of 5 sons- KS

UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994

PSC- dx in 1999

nordgren1@...

[Guest guest]

Andi,

I am glad you found this group. There is always someone in the group who can help.

About the ERCP- Some people in our group have had problems with pancreatitis after ERCP and now take antibiotics as a precaution. I have had 4 ERCP's and never had a problem. That is how I was diagnosed when I presented with the same symptoms as you described. The doctors finally decided the intermittent pain I was experiencing right below the sternum was an infection and have been treating me accordingly whenever I have those symptoms.

Did you say you are seeing a hepatologist now?

Hope this helps you and don't be afraid to ask any other questions you might have. The people in our group have "been there, done that" and will be able to help.

Blessings,

Barby ---- Happy New Year everyone!

married 21 years, mom of 5 sons- KS

UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994

PSC- dx in 1999

nordgren1@...

[Guest guest]

Andi,

You do seem to have all the signs of PSC. I hope the ERCP proves different

but it is the only real way to find out. Some people have had an MRCP and

that isn't invasive like an ERCP. You might ask the doctor to put you on

antibiotics (CIPRO) along with the ERCP to help prevent infection. We have

many in the group that have had a lot of ERCP's without any problems and

also some, including my husband, who have been infected it seems that it all

depends on who is doing the ERCP and how carefully they sterilize their

equipment and know what they are doing. Phil's doctor said that they can't

guarantee not getting infected since the tubes go through the mouth, which

they cannot sterilize.

The thing is that I don't know if the doctors will treat you for PSC without

the confirmation by doing the ERCP. Right before Phil was diagnosed he was

having chills on and off some URQ (upper right quadrant) pain and fevers and

then jaundice. He was hospitalized and put on Cipro the 23rd of Dec 1998.

They let him come home with a portable IV pump for Christmas and then he

went in the 28th for his ERCP which confirmed what the doctor suspected PSC.

Unfortunately he got real sick and was in the hospital afterwards and got

several infections (backing up of bile) and had to be hospitalized each

time. After the first time, it was only for 2-3 days so that they could

give him the Cipro by IV (that works much better and faster than the oral).

The good news is that he got on Actigall which has worked remarkably well in

keeping him infection free. He is on a higher dose 1800 ml a day. After

the first 3 months, it was almost a year before another infection and it's

been since March of 2000 and no more infections. He does suffer chronic

fatigue. But his liver functions have been in the normal range for some

time now. Because of the infections he was sent for listing for a

transplant. Because he's been doing so well we fear that he might be taken

off the list. But are so pleased that he's doing so well and hope that a

cure may be found and that he'll never need a transplant.

Many of the group have had some really bad spells and then come back and do

well for a long time. Some don't experience anything but fatigue. Then we

have a few people who have had very successful transplants and are

snowboarding or running marathons.

The thing is it sounds like you do need some action before your symptoms get

worse. We're glad you found us because this group is very informative,

caring and supportive. Welcome.

My suggestion to you is to ask if you could have an MRCP instead of the ERCP

and if not ask them to put you on antibiotics because you are concerned

about getting an infection from it and I hope and pray that the procedure

will be uneventful and that your doctors will know what you are dealing

with. I am sure the other members will steer you to our web sites that are

informative and give our stories and pictures.

Peg, wife of Phil (57), UC 30 years, dx PSC 12/98, listed-status

3-UCLA-2/2000, living Los Angeles suburbs, CA

New Member

Hello everyone,

My name is Andi, Iam 40, female, 116lbs, 5'4 " . I have had elevated

LFTs for 5 years. They were found on a routine blood test done at the

Palo Alto Veterans Hospital in California. I was never referred to a

hepatolagist. A few years later I went back in and kept pushing them

for answers and I finally went in for my first ultrasound which came

back normal and later for a liver biopsy which was normal also. I

have no positive antibodies(AMA, ANA, SMA). The only elevations I

have are my ALK/PHOS(197)and my GGT(171)SED(24)and Iam hypothyroid

(5.59). Everything else is normal. My doctor told me after my biopsy

results came back that the only thing left to check for now was PSC.

He said he would have to do a ERCP. I hesitated and told him I needed

to think about it and would get back to him after New Years day. So

Iam ready to go ahead with the ERCP. Is there anything that I should

know before I commit to this proceadure. Is there any chance of

common bile duct or pancreatic duct damage?. I have heard some people

do end up with pancreatitis. Is this something that may become chronic

(pancreatitis), or is it caused by irritation of the pancreatic

duct?. The only symptoms that Iam dealing with now are fatigue, some

epigastric pain below my sternum and a little to the right under my

ribs. The pain is not constant and comes and goes when I have a full

stomach or if I have not eaten for awhile. I can feel the pain

radiating thru me to my back. Sometimes I have dealt with unexplained

chills and body aches. They come for a few days and then just as

rapidly disappear. I dont drink and I have stopped taking all meds

(paxil and NSAIDS). This lowered my ALT and AST and they have never

gone back up. My ALK/PHOS did go down some from the high 200s but has

never really gone into the normal range. I always get my flu shot

every year so I dont think its the flu. I have not had a cold in

ages. Iam so glad I found this group. Iam also a member of

liversupport and the PBC digest. Hope all of you had a terrific New

Years day.

Andi

[Guest guest]

Andi,

You do seem to have all the signs of PSC. I hope the ERCP proves different

but it is the only real way to find out. Some people have had an MRCP and

that isn't invasive like an ERCP. You might ask the doctor to put you on

antibiotics (CIPRO) along with the ERCP to help prevent infection. We have

many in the group that have had a lot of ERCP's without any problems and

also some, including my husband, who have been infected it seems that it all

depends on who is doing the ERCP and how carefully they sterilize their

equipment and know what they are doing. Phil's doctor said that they can't

guarantee not getting infected since the tubes go through the mouth, which

they cannot sterilize.

The thing is that I don't know if the doctors will treat you for PSC without

the confirmation by doing the ERCP. Right before Phil was diagnosed he was

having chills on and off some URQ (upper right quadrant) pain and fevers and

then jaundice. He was hospitalized and put on Cipro the 23rd of Dec 1998.

They let him come home with a portable IV pump for Christmas and then he

went in the 28th for his ERCP which confirmed what the doctor suspected PSC.

Unfortunately he got real sick and was in the hospital afterwards and got

several infections (backing up of bile) and had to be hospitalized each

time. After the first time, it was only for 2-3 days so that they could

give him the Cipro by IV (that works much better and faster than the oral).

The good news is that he got on Actigall which has worked remarkably well in

keeping him infection free. He is on a higher dose 1800 ml a day. After

the first 3 months, it was almost a year before another infection and it's

been since March of 2000 and no more infections. He does suffer chronic

fatigue. But his liver functions have been in the normal range for some

time now. Because of the infections he was sent for listing for a

transplant. Because he's been doing so well we fear that he might be taken

off the list. But are so pleased that he's doing so well and hope that a

cure may be found and that he'll never need a transplant.

Many of the group have had some really bad spells and then come back and do

well for a long time. Some don't experience anything but fatigue. Then we

have a few people who have had very successful transplants and are

snowboarding or running marathons.

The thing is it sounds like you do need some action before your symptoms get

worse. We're glad you found us because this group is very informative,

caring and supportive. Welcome.

My suggestion to you is to ask if you could have an MRCP instead of the ERCP

and if not ask them to put you on antibiotics because you are concerned

about getting an infection from it and I hope and pray that the procedure

will be uneventful and that your doctors will know what you are dealing

with. I am sure the other members will steer you to our web sites that are

informative and give our stories and pictures.

Peg, wife of Phil (57), UC 30 years, dx PSC 12/98, listed-status

3-UCLA-2/2000, living Los Angeles suburbs, CA

New Member

Hello everyone,

My name is Andi, Iam 40, female, 116lbs, 5'4 " . I have had elevated

LFTs for 5 years. They were found on a routine blood test done at the

Palo Alto Veterans Hospital in California. I was never referred to a

hepatolagist. A few years later I went back in and kept pushing them

for answers and I finally went in for my first ultrasound which came

back normal and later for a liver biopsy which was normal also. I

have no positive antibodies(AMA, ANA, SMA). The only elevations I

have are my ALK/PHOS(197)and my GGT(171)SED(24)and Iam hypothyroid

(5.59). Everything else is normal. My doctor told me after my biopsy

results came back that the only thing left to check for now was PSC.

He said he would have to do a ERCP. I hesitated and told him I needed

to think about it and would get back to him after New Years day. So

Iam ready to go ahead with the ERCP. Is there anything that I should

know before I commit to this proceadure. Is there any chance of

common bile duct or pancreatic duct damage?. I have heard some people

do end up with pancreatitis. Is this something that may become chronic

(pancreatitis), or is it caused by irritation of the pancreatic

duct?. The only symptoms that Iam dealing with now are fatigue, some

epigastric pain below my sternum and a little to the right under my

ribs. The pain is not constant and comes and goes when I have a full

stomach or if I have not eaten for awhile. I can feel the pain

radiating thru me to my back. Sometimes I have dealt with unexplained

chills and body aches. They come for a few days and then just as

rapidly disappear. I dont drink and I have stopped taking all meds

(paxil and NSAIDS). This lowered my ALT and AST and they have never

gone back up. My ALK/PHOS did go down some from the high 200s but has

never really gone into the normal range. I always get my flu shot

every year so I dont think its the flu. I have not had a cold in

ages. Iam so glad I found this group. Iam also a member of

liversupport and the PBC digest. Hope all of you had a terrific New

Years day.

Andi

[Guest guest]

Welcome, Andi,

I wanted to add my two cents to your concerns about pancreatitis and

ERCP's. I suffered from PSC from 1985 till June of this past year (2000)

when I received a living donor liver transplant. For many months before

the transplant I had ERCP's done almost monthly to dilate my main bile

duct. Once I suffered from pancreatitis and had to stay overnight on

antibiotics in the hospital. However, most of the time I went in for the

ERCP and returned home the same day. I took two days off from work and

usually tried to have them scheduled on a Thursday so that I also had

Saturday and Sunday to recover. Although they were a bother, they were

not a major problem for me.

I think that the skill of the physician performing the ERCP is really

important. It is a tricky procedure. Mine was especially tricky because

my doc was working with a main bile duct the size of a thread. I was, of

course, in advanced stages of PSC. But I would encourage you to check to

determine how many ERCP's your doc has done. Also ask if your doc will be

performing the procedure or supervising a resident or fellow (if it is a

teaching hospital). The more ERCP's performed at the facility the

better---that's my belief.

Good luck with the procedure. Many of us have had no problems with it.

Some have. But other than determining the competency and skill of the

physician performing the procedure beforehand, I don't think you can

control whether you will have problems. And, from my experience, it was

not much of a problem....

in NH

dx '85, tx 6/9/00 living donor at New England Med Center, Boston, MA

[Guest guest]

Welcome, Andi,

I wanted to add my two cents to your concerns about pancreatitis and

ERCP's. I suffered from PSC from 1985 till June of this past year (2000)

when I received a living donor liver transplant. For many months before

the transplant I had ERCP's done almost monthly to dilate my main bile

duct. Once I suffered from pancreatitis and had to stay overnight on

antibiotics in the hospital. However, most of the time I went in for the

ERCP and returned home the same day. I took two days off from work and

usually tried to have them scheduled on a Thursday so that I also had

Saturday and Sunday to recover. Although they were a bother, they were

not a major problem for me.

I think that the skill of the physician performing the ERCP is really

important. It is a tricky procedure. Mine was especially tricky because

my doc was working with a main bile duct the size of a thread. I was, of

course, in advanced stages of PSC. But I would encourage you to check to

determine how many ERCP's your doc has done. Also ask if your doc will be

performing the procedure or supervising a resident or fellow (if it is a

teaching hospital). The more ERCP's performed at the facility the

better---that's my belief.

Good luck with the procedure. Many of us have had no problems with it.

Some have. But other than determining the competency and skill of the

physician performing the procedure beforehand, I don't think you can

control whether you will have problems. And, from my experience, it was

not much of a problem....

in NH

dx '85, tx 6/9/00 living donor at New England Med Center, Boston, MA

[Guest guest]

Welcome, Andi,

I wanted to add my two cents to your concerns about pancreatitis and

ERCP's. I suffered from PSC from 1985 till June of this past year (2000)

when I received a living donor liver transplant. For many months before

the transplant I had ERCP's done almost monthly to dilate my main bile

duct. Once I suffered from pancreatitis and had to stay overnight on

antibiotics in the hospital. However, most of the time I went in for the

ERCP and returned home the same day. I took two days off from work and

usually tried to have them scheduled on a Thursday so that I also had

Saturday and Sunday to recover. Although they were a bother, they were

not a major problem for me.

I think that the skill of the physician performing the ERCP is really

important. It is a tricky procedure. Mine was especially tricky because

my doc was working with a main bile duct the size of a thread. I was, of

course, in advanced stages of PSC. But I would encourage you to check to

determine how many ERCP's your doc has done. Also ask if your doc will be

performing the procedure or supervising a resident or fellow (if it is a

teaching hospital). The more ERCP's performed at the facility the

better---that's my belief.

Good luck with the procedure. Many of us have had no problems with it.

Some have. But other than determining the competency and skill of the

physician performing the procedure beforehand, I don't think you can

control whether you will have problems. And, from my experience, it was

not much of a problem....

in NH

dx '85, tx 6/9/00 living donor at New England Med Center, Boston, MA

[Guest guest]

Andi - the only pain I ever had was just below the sternum - it would mostly

happen when I hadn't eaten for a while. Some of us managed to get relief by

drinking large quantities of water (3-4 glasses) when the symptom started. I

was diagnosed via ERCP after a day when the pain wouldn't go away (along

with fever and chills). I did get pancreatitus, which extended my hospital

stay a couple of days. The ERCP is considered to be the gold standard of

diagnosis for this condition.

This is a wonderful group - like Larry, I'm glad (and sad) you found us.

Feel free to ask questions - you'll always get an answer.

Arne

49 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

New Member

Hello everyone,

My name is Andi ... ERCP... I have heard some people do end up with

pancreatitis

Andi

[Guest guest]

Andi - the only pain I ever had was just below the sternum - it would mostly

happen when I hadn't eaten for a while. Some of us managed to get relief by

drinking large quantities of water (3-4 glasses) when the symptom started. I

was diagnosed via ERCP after a day when the pain wouldn't go away (along

with fever and chills). I did get pancreatitus, which extended my hospital

stay a couple of days. The ERCP is considered to be the gold standard of

diagnosis for this condition.

This is a wonderful group - like Larry, I'm glad (and sad) you found us.

Feel free to ask questions - you'll always get an answer.

Arne

49 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

New Member

Hello everyone,

My name is Andi ... ERCP... I have heard some people do end up with

pancreatitis

Andi

[Guest guest]

,

You are given a class by the transplant surgeons based on your liver

evaluation tests and your overall condition. Points are given for blood work,

overall condition and so on. The point system is part of the national

transplant organization with the Federal Health & Human Services Agency (HHS)

that oversees the US transplant distribution.

Organ distribution is on a Regional basis (Ohio is a Region), if there is no

match in the Region for any organ, then it is released to other Region's. At

this time there is 4 classes: Class 1 is in hospital intensive care and

critical, Class 2 is in hospital with failure within 30 to 45 days, Class 2B

is out of hospital but in need of an organ in a short time, Class 3 is out of

hospital and stable with no immediate need of an organ.

When in Class 3, blood tests are done every month. If your blood tests start

to go bad then you gain additional points, if you have enough points at that

time, then you are re-classed as a 2B. If in your Region there are no Class 1

or 2's at that time then the Class 2B's will get the organ, again based on

the point system from HHS.

I was told that the only Class 3's that get transplanted are rare blood types.

At this time 50% of the donated livers go to people with Hep C.

Hope this helps.

[Guest guest]

,

You are given a class by the transplant surgeons based on your liver

evaluation tests and your overall condition. Points are given for blood work,

overall condition and so on. The point system is part of the national

transplant organization with the Federal Health & Human Services Agency (HHS)

that oversees the US transplant distribution.

Organ distribution is on a Regional basis (Ohio is a Region), if there is no

match in the Region for any organ, then it is released to other Region's. At

this time there is 4 classes: Class 1 is in hospital intensive care and

critical, Class 2 is in hospital with failure within 30 to 45 days, Class 2B

is out of hospital but in need of an organ in a short time, Class 3 is out of

hospital and stable with no immediate need of an organ.

When in Class 3, blood tests are done every month. If your blood tests start

to go bad then you gain additional points, if you have enough points at that

time, then you are re-classed as a 2B. If in your Region there are no Class 1

or 2's at that time then the Class 2B's will get the organ, again based on

the point system from HHS.

I was told that the only Class 3's that get transplanted are rare blood types.

At this time 50% of the donated livers go to people with Hep C.

Hope this helps.

[Guest guest]

,

You are given a class by the transplant surgeons based on your liver

evaluation tests and your overall condition. Points are given for blood work,

overall condition and so on. The point system is part of the national

transplant organization with the Federal Health & Human Services Agency (HHS)

that oversees the US transplant distribution.

Organ distribution is on a Regional basis (Ohio is a Region), if there is no

match in the Region for any organ, then it is released to other Region's. At

this time there is 4 classes: Class 1 is in hospital intensive care and

critical, Class 2 is in hospital with failure within 30 to 45 days, Class 2B

is out of hospital but in need of an organ in a short time, Class 3 is out of

hospital and stable with no immediate need of an organ.

When in Class 3, blood tests are done every month. If your blood tests start

to go bad then you gain additional points, if you have enough points at that

time, then you are re-classed as a 2B. If in your Region there are no Class 1

or 2's at that time then the Class 2B's will get the organ, again based on

the point system from HHS.

I was told that the only Class 3's that get transplanted are rare blood types.

At this time 50% of the donated livers go to people with Hep C.

Hope this helps.

[Guest guest]

wrote:

>

> What's up with these 'STAGES'? How are they classified? What did

> you have to get done to be given a number... I want a number.

There are official definitions for the stages, but I don't know what

they are. I asked my doctor about it and he wouldn't give me a number.

He said that in his opinion PSC is too variable a disease to really be

classified like that, and a number would mainly be misleading.

Anyone else have the official stage definitions at their fingertips?

athan

[Guest guest]

wrote:

>

> What's up with these 'STAGES'? How are they classified? What did

> you have to get done to be given a number... I want a number.

There are official definitions for the stages, but I don't know what

they are. I asked my doctor about it and he wouldn't give me a number.

He said that in his opinion PSC is too variable a disease to really be

classified like that, and a number would mainly be misleading.

Anyone else have the official stage definitions at their fingertips?

athan

[Guest guest]

wrote:

>

> What's up with these 'STAGES'? How are they classified? What did

> you have to get done to be given a number... I want a number.

There are official definitions for the stages, but I don't know what

they are. I asked my doctor about it and he wouldn't give me a number.

He said that in his opinion PSC is too variable a disease to really be

classified like that, and a number would mainly be misleading.

Anyone else have the official stage definitions at their fingertips?

athan

[Guest guest]

> You are given a class by the transplant surgeons based on your

liver

> evaluation tests and your overall condition. Points are given for

blood work,

> overall condition and so on. The point system is part of the

national

> transplant organization with the Federal Health & Human Services

Agency (HHS)

> that oversees the US transplant distribution.

> Hope this helps.

Yeah, it does help... Thanks. It'll be a while before I'm in kahoots

with a 'transplant' surgeon though... I was hoping there was a

number scheme for the early stages... Did you get your info from

UNOS?

[Guest guest]

No, world wide the reported cases of Hep C is low compared to he estimated

number of people affected without even knowing it. There is no cure for Hep

C, cancer of the liver or elsewhere affects a large number of these people.

Most TX centers will transplant a Hep C case once, but not a second time. A

transplant does not cure any Hep B or C, it is in the blood.

Some TX centers will not transplant a Hep C is there is liver cancer. No TX

center will not do any TX if you have cancer outside of the liver no matter

if you have Hep C or B, PSC, PBC or whatever.

There is a real moral dilemma going on by the TX doctors on even TXing a Hep

C case or a bad liver caused by drinking or drugs. While the rest of us wait

and wait the cases of Hep C grows and the available livers are going to them

because Hep C kills the liver a lot faster then PSC or PBC.

But do not believe the stats you read on people waiting for a liver and die

because of no available livers. Most of those people could not have been

saved, anyway as in life who knows. You could get the " CALL " and either not

make it off the table or suffer anti rejection.

Life is just that, Life. No ones really knows how much time they have, so

each of us should make the most of every day and hopefully leave this world a

little better for someone.

You have PSC, think of the things that you could have that is far worse. If

you want to be humbled, go to a children's hospital and see a 6 year old with

cancer and a bald hear from the drugs to fight it. Most of them are very,

very brave.

Tim - Columbus

[Guest guest]

No, world wide the reported cases of Hep C is low compared to he estimated

number of people affected without even knowing it. There is no cure for Hep

C, cancer of the liver or elsewhere affects a large number of these people.

Most TX centers will transplant a Hep C case once, but not a second time. A

transplant does not cure any Hep B or C, it is in the blood.

Some TX centers will not transplant a Hep C is there is liver cancer. No TX

center will not do any TX if you have cancer outside of the liver no matter

if you have Hep C or B, PSC, PBC or whatever.

There is a real moral dilemma going on by the TX doctors on even TXing a Hep

C case or a bad liver caused by drinking or drugs. While the rest of us wait

and wait the cases of Hep C grows and the available livers are going to them

because Hep C kills the liver a lot faster then PSC or PBC.

But do not believe the stats you read on people waiting for a liver and die

because of no available livers. Most of those people could not have been

saved, anyway as in life who knows. You could get the " CALL " and either not

make it off the table or suffer anti rejection.

Life is just that, Life. No ones really knows how much time they have, so

each of us should make the most of every day and hopefully leave this world a

little better for someone.

You have PSC, think of the things that you could have that is far worse. If

you want to be humbled, go to a children's hospital and see a 6 year old with

cancer and a bald hear from the drugs to fight it. Most of them are very,

very brave.

Tim - Columbus

[Guest guest]

No, world wide the reported cases of Hep C is low compared to he estimated

number of people affected without even knowing it. There is no cure for Hep

C, cancer of the liver or elsewhere affects a large number of these people.

Most TX centers will transplant a Hep C case once, but not a second time. A

transplant does not cure any Hep B or C, it is in the blood.

Some TX centers will not transplant a Hep C is there is liver cancer. No TX

center will not do any TX if you have cancer outside of the liver no matter

if you have Hep C or B, PSC, PBC or whatever.

There is a real moral dilemma going on by the TX doctors on even TXing a Hep

C case or a bad liver caused by drinking or drugs. While the rest of us wait

and wait the cases of Hep C grows and the available livers are going to them

because Hep C kills the liver a lot faster then PSC or PBC.

But do not believe the stats you read on people waiting for a liver and die

because of no available livers. Most of those people could not have been

saved, anyway as in life who knows. You could get the " CALL " and either not

make it off the table or suffer anti rejection.

Life is just that, Life. No ones really knows how much time they have, so

each of us should make the most of every day and hopefully leave this world a

little better for someone.

You have PSC, think of the things that you could have that is far worse. If

you want to be humbled, go to a children's hospital and see a 6 year old with

cancer and a bald hear from the drugs to fight it. Most of them are very,

very brave.

Tim - Columbus

[Guest guest]

DenverD,

Sorry for the previous email, I thought that you were the angry one at

24. So please disregard and accept my apology.

Tim - Columbus

[Guest guest]

DenverD,

Sorry for the previous email, I thought that you were the angry one at

24. So please disregard and accept my apology.

Tim - Columbus

[Guest guest]

DenverD,

Sorry for the previous email, I thought that you were the angry one at

24. So please disregard and accept my apology.

Tim - Columbus

[Guest guest]

>At this time 50% of the donated livers go to people with Hep C.

why is that?

the sheer number of Hep C affected, maybe?

DenverD

[Guest guest]

Amen! - my favorite saying is " There's ALWAYS someone worse off " - I'm

thankful for every single day (but it doesn't mean I'm not envious,

sometimes!).

Arne

49 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

(where it was 40 degrees today!)

-----Original Message-----

From: tzeiher@...

Life is just that, Life. No ones really knows how much time they have, so

each of us should make the most of every day and hopefully leave this world

a

little better for someone.

You have PSC, think of the things that you could have that is far worse.