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Re: Medications for 4S

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Hi, --I have a psychiatrist in San Francisco (are you in the area? I could refer you to him if you are) who is very intrigued by my 4S as well, and has been working with me for several years now. We've tried a bunch of things, including Paxil (which I had a bad reaction to). Can't remember offhand whether we tried lorazepam or not. If so, it didn't work.

What *has* worked, and what I've been on for about 4 years now, is a combination of the following:

divalproic sodium (generic for Depakote) - 250 mg, 2x day (a.m./p.m.)

buproprion SR (generic for Wellbutrin) - 150 mg, 1x day (a.m.)

fluoxetine (generic for Prozac) - 20 mg, 1x day (p.m.)

Caveat: I do have clinical depression (what a surprise!), so some of these help with that, too.

I was a little freaked when he first prescribed the Depakote, since I know it's a seizure medication. But he assured me that it wasn't harmful, and wouldn't cause seizures in someone who doesn't have them. His thought was that it would slow down the electrical waves in my brain just enough to give me some relief from the hair-trigger responses.

What has happened with this is interesting. During all the previous years with 4S, I'd had a mix of rage and squirmy discomfort (in which the sound hit me in the gut and felt like an invasion). Now, on this mix of meds (which I've been taking for about 4 years now), I still have the squirmy discomfort, but the rage is largely gone. I still experience my trigger sounds as an "invasion," but the urge to kick through walls has been toned down about 90%. I don't know why I still have the one without the other, but I'll take what I can get!

Another caveat: I've also "come out of the closet" publicly about my 4S, so now I do things like wear earplugs and/or noise-cancellation headphones all day at work, when out shopping, etc. If I weren't doing this, I don't know if the rage aspect would be so low now.

Still, I'm sharing all this in the hopes that some of you might benefit. If anyone else tries any of these meds, I'd be curious to know how it goes for you!

-Mayuri

>Hi All,>I recently was seen by a psychiatrist for my misophonia/4S problems. The guys seemed

>genuinely interested, even intrigued, by my story. Of course he had never heard of it, but

>absolutely believed me and is on board for trying to help me out. He actually said he is

>occasionally annoyed by people chewing to the point of having to leave the room, but it

>sounds like 1000x worse for me. So he seems to understand and wants to help. His >initial recommendation was Paxil on an ongoing basis to try to help with the

>anxiety/irritation and Lorazepam for episodes where I was being triggered and couldn't

>escape the situation, like long car rides, dinners with friends, etc. For the record he said

>I was pretty normal otherwise, and seemed to have a good attitude and positive outlook

>So I was wondering if anybody had tried these particular treatments and what kind of

>success they have had with them. I guess Paxil takes awhile to kick in so I'm not sure if

>that is helping yet or not, but I did already take one Lorazepam and it did seem to dull the

>triggers quite a bit, at least until it knocked me out. Just having something I can take in

>emergencies makes me feel much better, even before I take it.>Thanks for any feedback.>

Selective Sound Sensitivity

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Thanks for the feedback! I will pass the med info on to my psychiatrist. I tend to only be triggered by my wife and daughters, which in a way is good and in a way very bad. The lorazepam is for situational use and I have used it twice so far, and both times had the reaction that you describe below - the triggers still bother me, but there is no anger, and I seem to be able to focus my attention away from the trigger, where normally I can't focus on anything else if a trigger is present. I really hope to get it under control. I haven't been on the paxil long enough to know if it is doing anything or not. I will keep the group posted.To: Soundsensitivity Sent: Friday, August 26, 2011 9:18 AMSubject: Re: Medications for 4S

Hi, --I have a psychiatrist in San Francisco (are you in the area? I could refer you to him if you are) who is very intrigued by my 4S as well, and has been working with me for several years now. We've tried a bunch of things, including Paxil (which I had a bad reaction to). Can't remember offhand whether we tried lorazepam or not. If so, it didn't work.

What *has* worked, and what I've been on for about 4 years now, is a combination of the following:

divalproic sodium (generic for Depakote) - 250 mg, 2x day (a.m./p.m.)

buproprion SR (generic for Wellbutrin) - 150 mg, 1x day (a.m.)

fluoxetine (generic for Prozac) - 20 mg, 1x day (p.m.)

Caveat: I do have clinical depression (what a surprise!), so some of these help with that, too.

I was a little freaked when he first prescribed the Depakote, since I know it's a seizure medication. But he assured me that it wasn't harmful, and wouldn't cause seizures in someone who doesn't have them. His thought was that it would slow down the electrical waves in my brain just enough to give me some relief from the hair-trigger responses.

What has happened with this is interesting. During all the previous years with 4S, I'd had a mix of rage and squirmy discomfort (in which the sound hit me in the gut and felt like an invasion). Now, on this mix of meds (which I've been taking for about 4 years now), I still have the squirmy discomfort, but the rage is largely gone. I still experience my trigger sounds as an "invasion," but the urge to kick through walls has been toned down about 90%. I don't know why I still have the one without the other, but I'll take what I can get!

Another caveat: I've also "come out of the closet" publicly about my 4S, so now I do things like wear earplugs and/or noise-cancellation headphones all day at work, when out shopping, etc. If I weren't doing this, I don't know if the rage aspect would be so low now.

Still, I'm sharing all this in the hopes that some of you might benefit. If anyone else tries any of these meds, I'd be curious to know how it goes for you!

-Mayuri

>Hi All,>I recently was seen by a psychiatrist for my misophonia/4S problems. The guys seemed

>genuinely interested, even intrigued, by my story. Of course he had never heard of it, but

>absolutely believed me and is on board for trying to help me out. He actually said he is

>occasionally annoyed by people chewing to the point of having to leave the room, but it

>sounds like 1000x worse for me. So he seems to understand and wants to help. His >initial recommendation was Paxil on an ongoing basis to try to help with the

>anxiety/irritation and Lorazepam for episodes where I was being triggered and couldn't

>escape the situation, like long car rides, dinners with friends, etc. For the record he said

>I was pretty normal otherwise, and seemed to have a good attitude and positive outlook

>So I was wondering if anybody had tried these particular treatments and what kind of

>success they have had with them. I guess Paxil takes awhile to kick in so I'm not sure if

>that is helping yet or not, but I did already take one Lorazepam and it did seem to dull the

>triggers quite a bit, at least until it knocked me out. Just having something I can take in

>emergencies makes me feel much better, even before I take it.>Thanks for any feedback.>

Selective Sound Sensitivity

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