Newcomer Symptoms

[Guest guest]

Hi Everyone,

My name is Kim. I have had joint pain for many years. Late last year I began

running a temperature of around 101 degrees for approximately a week. I thought

I had the flu only to realize a week later my symptoms were not getting better

but worse. The pain was so severe that I rolled over in bed one night and

thought I had broken my ribs. I broke out in a rash all over that was raised red

bumps. They did not itch but were painful.My temperature reached 103 and the

pain was so severe I couldnt walk. My husband rushed me to the Doctor. I was

sent immediately to a Rheumotologist. My white cell count was high however

Rheumatoid factor and Lupus were ruled out from the blood results. He place me

on prednisone and within 3 days I was feeling much better however the rash

stayed with me for apprx 3 weeks before completely vanishing. I still continued

with a low grade fever so my Rheumotologist sent me to an infectious disease

doctor. More and more blood test performed. The only thing that I tested high

for was the Epstein Bar Virus. The infectious disease doctor did not believe

this was the problem. All doctors were convinced I had Lupus however wasnt

showing up in blood work. As of last year I have had rfemission periods lasting

for about 3 months. This is now the 3rd time in one year I have relapsed with

the pain and fever, however no rash. Stills disease has been discussed with my

doctor however have not been diagnosed nor am I being treated. I have had so

much blood work done in the last 12 months however they cannot even find any

inflammation. I test negative for arthritis, however whatever this is has taken

a toll on my joints and now have some deformities. Does any of this sound

familiar???? I am desperate...please let me know.

Thanks and God Bless!

Kim