Re: Reset for trigger noise/OCD?

[Guest guest]

HI xoxo

There is something that I do but it feels more like a compulsion than a ritual.

One of my triggers is the sharp " s " sound and sometime the " p " sound. I

alleviate some of the stress I feel by mimicking these sounds in an exaggerated

manner. I do this within a microsecond of hearing the offending sound. For some

weird reason, I feel empowered when I do this. Also, to be honest, I can't stop

myself from doing it. \

Regards

Elaine

>

> Does any one else have a " ritual " that they must do to alleviate the the

stress of the triggers?

> >

>

[Guest guest]

Elaine,This is EXACTLY what I'm talking about! I was originally diagnosed with OCD because of the need I had to mimic the noise right away or my reactions/ tensions would not subside. One way that we worked on this was by trying to deny myself the compulsion, the problem is that only focused on the symptom not the sickness if that makes sense. Does anyone have the misophonia WITHOUT a action associated in reliving the symptoms? Sent from my iPhone

HI xoxo

There is something that I do but it feels more like a compulsion than a ritual. One of my triggers is the sharp "s" sound and sometime the "p" sound. I alleviate some of the stress I feel by mimicking these sounds in an exaggerated manner. I do this within a microsecond of hearing the offending sound. For some weird reason, I feel empowered when I do this. Also, to be honest, I can't stop myself from doing it. \

Regards

Elaine

>

> Does any one else have a "ritual" that they must do to alleviate the the stress of the triggers?

> >

>

[Guest guest]

Here. I don't mimic or have any action I haveto do. Never have. HeidiSent from my iPhone

Elaine,This is EXACTLY what I'm talking about! I was originally diagnosed with OCD because of the need I had to mimic the noise right away or my reactions/ tensions would not subside. One way that we worked on this was by trying to deny myself the compulsion, the problem is that only focused on the symptom not the sickness if that makes sense. Does anyone have the misophonia WITHOUT a action associated in reliving the symptoms? Sent from my iPhone

HI xoxo

There is something that I do but it feels more like a compulsion than a ritual. One of my triggers is the sharp "s" sound and sometime the "p" sound. I alleviate some of the stress I feel by mimicking these sounds in an exaggerated manner. I do this within a microsecond of hearing the offending sound. For some weird reason, I feel empowered when I do this. Also, to be honest, I can't stop myself from doing it. \

Regards

Elaine

>

> Does any one else have a "ritual" that they must do to alleviate the the stress of the triggers?

> >

>

[Guest guest]

I spent every night of my childhood mimicking my brothers chewing with his mouth open. We drove eachother nuts.

I sometime do it with others, at least quietly and to myself and think thoughts like " you disgusting Pig!".

And I am a very easy going person otherwise. Not hateful or vindictive by nature. Just the SOUNDS make me that way.

Like this werewolf that comes out at certain times.

I used to think I was a bad, mean person.

Mike

To: Soundsensitivity Sent: Saturday, September 24, 2011 6:15 AMSubject: Re: Reset for trigger noise/OCD?

HI xoxoThere is something that I do but it feels more like a compulsion than a ritual. One of my triggers is the sharp "s" sound and sometime the "p" sound. I alleviate some of the stress I feel by mimicking these sounds in an exaggerated manner. I do this within a microsecond of hearing the offending sound. For some weird reason, I feel empowered when I do this. Also, to be honest, I can't stop myself from doing it. \RegardsElaine>> Does any one else have a "ritual" that they must do to alleviate the the stress of the triggers?> >>

[Guest guest]

I do not need to mimic to relieve symptoms. Once the trigger is gone, I take a

few deep breaths to unstress, then I feel mostly back to normal. It might take a

little while before I feel completely calm, but the memory of being triggered is

no longer on my mind.

> > >

> > > Does any one else have a " ritual " that they must do to alleviate the the

stress of the triggers?

> > > >

> > >

> >

> >

>

[Guest guest]

I don't mimic because it doesn't do much.

> > > >

> > > > Does any one else have a " ritual " that they must do to alleviate the the

stress of the triggers?

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

To be clear, I do not mimic to relieve the immediate stress response because it

never occurred to me to do so.

The only coping skills I have are to cover my ears and turn away, leave, put in

earplugs, or kindly ask them to stop.

However, when the trigger is no longer present, I can put it out of my mind

rather quickly. It takes my body a little longer to recover though. I can feel

the presence of stress chemicals circulating for a period of time, then slowly

dissipating.

> > > >

> > > > Does any one else have a " ritual " that they must do to alleviate the the

stress of the triggers?

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

Ditto.

> > > > >

> > > > > Does any one else have a " ritual " that they must do to alleviate the

the stress of the triggers?

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

I don't have to mimic or repeat any sounds either.

[Guest guest]

I actually do mimic the sounds that bother me. That piercing 's' sound that some women make when talking. Oh my god, I nearly jump out of my skin.

I don't have to mimic or repeat any sounds either.

[Guest guest]

OMG thank you thank you! I asked if anyone mimicked the S sound and it seemed like I was pretty much the only one that did. It is like fingernails on the chalkboard to me! Thats probably the worse sound for me, and its not every woman talking - only the ones that make it sound like a hiss. But I feel compelled to repeat it and it is disrupting my life. At a restaurant if seated near someone like that I get the fight or flight feeling - I have to run, get away from it. At church same thing. I never watch chick flick movies because most of the girls hiss their S in movies (straightened teeth I think). If I'm out in public I have to move away from the offending noise. If I can't, I start making the sounds or I try to talk to someone and I talk loud and way overly

hiss my S sounds to make myself feel better. Then the people look at me strangely. At home I watch t.v. with the closed captioning on and the t.v. on mute. It has annoyed my family and part of the reason my husband left me and tells everyone he knows I'm crazy. I also have the problem with someone popping their P sounds, gulping a drink or swallowing loud, or the noise when someones lips are together and then they open their mouth. I also have OCD. When you repeat the offending sound or words, they call it echoalia. What do you do about it?

[Guest guest]

I agree. Its the same for me. I can put it out of my mind once the offender leaves, but I have to mimic the sound no matter what. If not immediately, I have to leave and do it, but its stressful to wait. Once I've mimicked the sound I'm ok till I hear the sound again. It takes my body time to recover as well from the stress. Nobody understands how difficult this is. Thank God I found this group!

[Guest guest]

Hi lou

I do the exact same thing with the mimicking and also with watching tv using the

closed captioning because that hissy " s " sound drives me insane. Sometimes, even

with the closed captioning, I can't bear to see these women's mouth moving

because I know that they are " hissing " even though I can't hear it. You are not

alone with this. I'm right there with you.

Regards

Elaine

>

> OMG thank you thank  you!  I asked if anyone mimicked the S sound and it

seemed like I was pretty much the only one that did.  It is like fingernails on

the chalkboard to me!  Thats probably the worse sound for me, and its not every

woman talking - only the ones that make it sound like a hiss.  But I feel

compelled to repeat it and it is disrupting my life.  At a restaurant if seated

near someone like that I get the fight or flight feeling - I have to run, get

away from it.  At church same thing.  I never watch chick flick movies because

most of the girls hiss their S in movies (straightened teeth I think).  If I'm

out in public I have to move away from the offending noise.  If I can't, I start

making the sounds or I try to talk to someone and I talk loud and way overly

hiss my S sounds  to make myself feel better.  Then the people look at me

strangely.  At home I watch t.v. with the closed captioning on and the t.v. on

mute.  It has

> annoyed my family and part of the reason my husband left me and tells

everyone he knows I'm crazy.   

>  

> I also have the problem with someone popping their P sounds, gulping a drink

or swallowing loud, or the noise when someones lips are together and then they

open their mouth.  I also have OCD. 

>  

> When you repeat the offending sound or words, they call it echoalia. 

>  

> What do you do about it? 

>

[Guest guest]

The S sound literally sharply enters my ears and hurts it. Its like fingernails going up my spine. Have to ask - how does everyone's families and especially spouses react to the embarassing problem of having to repeat the sounds? I'll start by saying that my husband was always embarrassed and would walk away if he could. He left me and told everyone I was crazy. My kids have always yelled at me to stop it, and are very embarrassed when their friends are over if I do it. If they are in their room, they will slam their door. If watching t.v., they get nasty and ask me to leave the area.Definitely not a supportive family.

[Guest guest]

I think your family feels rage toward you the way you feel rage toward the S sound.

The S sound literally sharply enters my ears and hurts it. Its like fingernails going up my spine. Have to ask - how does everyone's families and especially spouses react to the embarassing problem of having to repeat the sounds? I'll start by saying that my husband was always embarrassed and would walk away if he could. He left me and told everyone I was crazy. My kids have always yelled at me to stop it, and are very embarrassed when their friends are over if I do it. If they are in their room, they will slam their door. If watching t.v., they get nasty and ask me to leave the area.Definitely not a supportive family.

[Guest guest]

Your children may also have a touch of misophonia, and your " s " sound may be

triggering them.

When I was growing up, I had a sister that (unconsciously?) used to make a

repetitive sound in her throat, kind of like breathing loud with a closed mouth.

She did it whenever she was sitting still and mostly when we were watching tv.

It drove me crazy.

As for your " s " sounds, you've established that as a coping mechanism. It is not

part of your misophonia though, and I would imagine that with some effort you

can find a way to substitute another coping skill that is less distracting to

others.

I've been able to re-establish life-long habits so I know it's possible. This

may sound funny, but I'll give you an example. My family has always had a habit

of flattening their top lip when smiling, talking, etc. -- 40+ years of my life.

I noticed that it was making my top lip wrinkle funny, and as I got older, the

wrinkles were getting deeper (aaaahhhh!) So I practiced smiling and talking with

a flat top lip in front of a mirror to establish it in my cellular memory. The

next time I visited my family, my sister thought I had lip enhancement surgery

-- ha-ha-ha.

So, if you can find an alternate coping mechanism, such as squeezing your arm,

or pinching your pinky finger with the thumb of the same hand, or taking a

silent deep breath, or whatever, then repeat that new behavior (when you're

alone) over and over to establish it in your cellular memory. Have someone help

you by " politely " triggering you while you try your new coping skill and further

establish it as a replacement to the " s " sound.

Since I do not have the tendency to use the " s " sound, I don't know if this will

work or not, but it may be worth a try. And it may help with your relationships.

Good luck and let us know if it works.

>

> > The S sound literally sharply enters my ears and hurts it. Its like

fingernails going up my spine.

> >

> > Have to ask - how does everyone's families and especially spouses react to

the embarassing problem of having to repeat the sounds? I'll start by saying

that my husband was always embarrassed and would walk away if he could. He left

me and told everyone I was crazy. My kids have always yelled at me to stop it,

and are very embarrassed when their friends are over if I do it. If they are in

their room, they will slam their door. If watching t.v., they get nasty and ask

me to leave the area.

> > Definitely not a supportive family.

> >

> >

> >

> >

>

[Guest guest]

I just reread my previous post and my example doesn't make sense. Let me

clarify:

Before retraining my lips to lay flat against my teeth, when I used to smile,

the top lip would almost disappear upward to reveal my gum line, so it looked

like I had no top lip. Then I practiced keeping my lip relaxed against my upper

teeth.

Boy, this post will certainly sound funny if not read with my previous post.

> >

> > > The S sound literally sharply enters my ears and hurts it. Its like

fingernails going up my spine.

> > >

> > > Have to ask - how does everyone's families and especially spouses react to

the embarassing problem of having to repeat the sounds? I'll start by saying

that my husband was always embarrassed and would walk away if he could. He left

me and told everyone I was crazy. My kids have always yelled at me to stop it,

and are very embarrassed when their friends are over if I do it. If they are in

their room, they will slam their door. If watching t.v., they get nasty and ask

me to leave the area.

> > > Definitely not a supportive family.

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

In my opinion, we don't really know that echolalia (automatic repetition of vocalizations made by another person) is "not" part of the misophonia. It could be involuntary for some. I have the urge to repeat but can stop myself. Not everybody has it, but not everybody has visual triggers or eating sounds as triggers. either. From Wikipedia:

Echolalia can be present in autism[3] and other developmental disabilities, Tourette syndrome, aphasia, Rubinstein-Taybi syndrome, schizophrenia, Asperger syndrome, Alzheimer's Disease and, occasionally, other forms of psychopathology

including Catatonic subtype in Schizophrenia. It is also frequently

found in blind or visually impaired children, although most will

outgrow this behavior. When done involuntarily, echolalia may be

considered a tic. It has been observed after cerebral infarction (stroke).[4]

As for your "s" sounds, you've established that as a coping mechanism. It is not part of your misophonia though, and I would imagine that with some effort you can find a way to substitute another coping skill that is less distracting to others.

.

[Guest guest]

You could be right...since I don't have this compulsion, I guess I don't have

any first hand experience to base it on.

However, even though I could be wrong, my intuition still says this is a learned

coping mechanism. I guess it's up to the individual to see if my suggestions are

something that might work, or not.

My craniosacral therapy teacher had a severe, repetitive facial tic that seems

to involve his shoulders and torso. He had this since he was young and for the

years I trained with him. At that point he was about 48. I hadn't seen him for

about 5 years, until recently. He has almost completely lost his tic. I need to

ask him what he did.

Kathy

>

> In my opinion, we don't really know that echolalia (automatic repetition of

vocalizations made by another person) is " not " part of the misophonia. It could

be involuntary for some. I have the urge to repeat but can stop myself. Not

everybody has it, but not everybody has visual triggers or eating sounds as

triggers. either.

>

>

> From Wikipedia:

>

> Echolalia can be present in autism[3] and other developmental disabilities,

Tourette syndrome, aphasia, Rubinstein-Taybi syndrome, schizophrenia, Asperger

syndrome, Alzheimer's Disease and, occasionally, other forms of psychopathology

including Catatonic subtype in Schizophrenia. It is also frequently

> found in blind or visually impaired children, although most will

> outgrow this behavior. When done involuntarily, echolalia may be

> considered a tic. It has been observed after cerebral infarction (stroke).[4]

>

>

> ________________________________

>

>

>

> As for your " s " sounds, you've established that as a coping mechanism. It is

not part of your misophonia though, and I would imagine that with some effort

you can find a way to substitute another coping skill that is less distracting

to others.

>

>

>

> .

>

[Guest guest]

All I meant to say really is that we "don't know" or I should say "they" don't know, maybe Dr. Aage R. Moller has some theories. Our type of misophonia is medical mystery right now, but Dr. J's collection of clinical data is a great start to learning more about it. The misphonia that can result from Hyperacusis and/or Tinnitus is fairly well understood, from what I have gathered, and can be easier to treat from a psychological approach, at least that is the impression I got.Just my .02 cents.To: Soundsensitivity Sent: Sunday, October 2, 2011 1:02 PMSubject: Re: Reset for trigger noise/OCD?

You could be right...since I don't have this compulsion, I guess I don't have any first hand experience to base it on.

However, even though I could be wrong, my intuition still says this is a learned coping mechanism. I guess it's up to the individual to see if my suggestions are something that might work, or not.

My craniosacral therapy teacher had a severe, repetitive facial tic that seems to involve his shoulders and torso. He had this since he was young and for the years I trained with him. At that point he was about 48. I hadn't seen him for about 5 years, until recently. He has almost completely lost his tic. I need to ask him what he did.

Kathy

>

> In my opinion, we don't really know that echolalia (automatic repetition of vocalizations made by another person) is "not" part of the misophonia. It could be involuntary for some. I have the urge to repeat but can stop myself. Not everybody has it, but not everybody has visual triggers or eating sounds as triggers. either.

>

>

> From Wikipedia:

>

> Echolalia can be present in autism[3] and other developmental disabilities, Tourette syndrome, aphasia, Rubinstein-Taybi syndrome, schizophrenia, Asperger syndrome, Alzheimer's Disease and, occasionally, other forms of psychopathology including Catatonic subtype in Schizophrenia. It is also frequently

> found in blind or visually impaired children, although most will

> outgrow this behavior. When done involuntarily, echolalia may be

> considered a tic. It has been observed after cerebral infarction (stroke).[4]

>

>

> ________________________________

>

>

>

> As for your "s" sounds, you've established that as a coping mechanism. It is not part of your misophonia though, and I would imagine that with some effort you can find a way to substitute another coping skill that is less distracting to others.

>

>

>

> .

>

[Guest guest]

Is there any way I can dedicate my time and myself to research?

> >

> > In my opinion, we don't really know that echolalia (automatic repetition of

vocalizations made by another person) is " not " part of the misophonia. It could

be involuntary for some. I have the urge to repeat but can stop myself. Not

everybody has it, but not everybody has visual triggers or eating sounds as

triggers. either.

> >

> >

> > From Wikipedia:

> >

> > Echolalia can be present in autism[3] and other developmental disabilities,

Tourette syndrome, aphasia, Rubinstein-Taybi syndrome, schizophrenia, Asperger

syndrome, Alzheimer's Disease and, occasionally, other forms of psychopathology

including Catatonic subtype in Schizophrenia. It is also frequently

> > found in blind or visually impaired children, although most will

> > outgrow this behavior. When done involuntarily, echolalia may be

> > considered a tic. It has been observed after cerebral infarction

(stroke).[4]

> >

> >

> > ________________________________

> >

> >

> >

> > As for your " s " sounds, you've established that as a coping mechanism. It is

not part of your misophonia though, and I would imagine that with some effort

you can find a way to substitute another coping skill that is less distracting

to others.

> >

> >

> >

> > .

> >

>

[Guest guest]

You mentioned something I haven't heard before. Would you clarify about

misophonia that can result from hyperacusis? I've always been sensitive to loud

sounds, probably even before I developed misophonia as a child. Is there

research that says there's a connection? If so, where can I find it? Thanks.

> >

> > In my opinion, we don't really know that echolalia (automatic repetition of

vocalizations made by another person) is " not " part of the misophonia. It could

be involuntary for some. I have the urge to repeat but can stop myself. Not

everybody has it, but not everybody has visual triggers or eating sounds as

triggers. either.

> >

> >

> > From Wikipedia:

> >

> > Echolalia can be present in autism[3] and other developmental disabilities,

Tourette syndrome, aphasia, Rubinstein-Taybi syndrome, schizophrenia, Asperger

syndrome, Alzheimer's Disease and, occasionally, other forms of psychopathology

including Catatonic subtype in Schizophrenia. It is also frequently

> > found in blind or visually impaired children, although most will

> > outgrow this behavior. When done involuntarily, echolalia may be

> > considered a tic. It has been observed after cerebral infarction

(stroke).[4]

> >

> >

> > ________________________________

> >

> >

> >

> > As for your " s " sounds, you've established that as a coping mechanism. It is

not part of your misophonia though, and I would imagine that with some effort

you can find a way to substitute another coping skill that is less distracting

to others.

> >

> >

> >

> > .

> >

>

[Guest guest]

Here is one that mentions both:

http://www.audiologyonline.com/articles/article_detail.asp?article_id=291

See especially the quote: " Most frequently, significantly decreased sound

tolerance results from a combination of hyperacusis and misophonia/phonophobia. "

Other writings from Dr Jastreboff also discuss various combinations of

misophonia, hyperacusis, and tinnitus. Dr Jastreboff was the person who named

misophonia, although Dr who set up this forum had been investigating it

independently of his research.

> > >

> > > In my opinion, we don't really know that echolalia (automatic repetition

of vocalizations made by another person) is " not " part of the misophonia. It

could be involuntary for some. I have the urge to repeat but can stop myself.

Not everybody has it, but not everybody has visual triggers or eating sounds as

triggers. either.

> > >

> > >

> > > From Wikipedia:

> > >

> > > Echolalia can be present in autism[3] and other developmental

disabilities, Tourette syndrome, aphasia, Rubinstein-Taybi syndrome,

schizophrenia, Asperger syndrome, Alzheimer's Disease and, occasionally, other

forms of psychopathology including Catatonic subtype in Schizophrenia. It is

also frequently

> > > found in blind or visually impaired children, although most will

> > > outgrow this behavior. When done involuntarily, echolalia may be

> > > considered a tic. It has been observed after cerebral infarction

(stroke).[4]

> > >

> > >

> > > ________________________________

> > >

> > >

> > >

> > > As for your " s " sounds, you've established that as a coping mechanism. It

is not part of your misophonia though, and I would imagine that with some effort

you can find a way to substitute another coping skill that is less distracting

to others.

> > >

> > >

> > >

> > > .

> > >

> >

>

[Guest guest]

I have misophonia/phonophobia and tinnitus. I got tinnitus from loud music. It

doesn't bother me. It just sounds like white noise, but higher pitched. Is there

any way I can dedicate my time and myself for research? I would love to help her

collect data and maybe find some kind of cure or helpful treatment like

medication or something

> > > >

> > > > In my opinion, we don't really know that echolalia (automatic repetition

of vocalizations made by another person) is " not " part of the misophonia. It

could be involuntary for some. I have the urge to repeat but can stop myself.

Not everybody has it, but not everybody has visual triggers or eating sounds as

triggers. either.

> > > >

> > > >

> > > > From Wikipedia:

> > > >

> > > > Echolalia can be present in autism[3] and other developmental

disabilities, Tourette syndrome, aphasia, Rubinstein-Taybi syndrome,

schizophrenia, Asperger syndrome, Alzheimer's Disease and, occasionally, other

forms of psychopathology including Catatonic subtype in Schizophrenia. It is

also frequently

> > > > found in blind or visually impaired children, although most will

> > > > outgrow this behavior. When done involuntarily, echolalia may be

> > > > considered a tic. It has been observed after cerebral infarction

(stroke).[4]

> > > >

> > > >

> > > > ________________________________

> > > >

> > > >

> > > >

> > > > As for your " s " sounds, you've established that as a coping mechanism.

It is not part of your misophonia though, and I would imagine that with some

effort you can find a way to substitute another coping skill that is less

distracting to others.

> > > >

> > > >

> > > >

> > > > .

> > > >

> > >

> >

>

[Guest guest]

This article Ian refers to was written by the Dr's Jastreboffs whose recommendations for treating misophonia is touched upon in this quote from the article:"Misophonic/phonophobic components cannot be removed by desensitization

and a separate approach needs to be implemented [7]. Our approach

involves systematic exposure to sounds, associated with a pleasant

situation, with gradually increasing sound levels."But from what I have gathered, other physicians in the field, do believe that desensitization through Cognitive Behavioral Therapy is a more effective way to treat misophonia than what the Jastreboffs recommend. I could be wrong about this, but that is the impression I got.To: Soundsensitivity Sent: Monday, October 3, 2011 6:17 AMSubject: Re: Reset for trigger noise/OCD?

Here is one that mentions both:

http://www.audiologyonline.com/articles/article_detail.asp?article_id=291

See especially the quote: "Most frequently, significantly decreased sound tolerance results from a combination of hyperacusis and misophonia/phonophobia."

Other writings from Dr Jastreboff also discuss various combinations of misophonia, hyperacusis, and tinnitus. Dr Jastreboff was the person who named misophonia, although Dr who set up this forum had been investigating it independently of his research.

> > >

> > > In my opinion, we don't really know that echolalia (automatic repetition of vocalizations made by another person) is "not" part of the misophonia. It could be involuntary for some. I have the urge to repeat but can stop myself. Not everybody has it, but not everybody has visual triggers or eating sounds as triggers. either.

> > >

> > >

> > > From Wikipedia:

> > >

> > > Echolalia can be present in autism[3] and other developmental disabilities, Tourette syndrome, aphasia, Rubinstein-Taybi syndrome, schizophrenia, Asperger syndrome, Alzheimer's Disease and, occasionally, other forms of psychopathology including Catatonic subtype in Schizophrenia. It is also frequently

> > > found in blind or visually impaired children, although most will

> > > outgrow this behavior. When done involuntarily, echolalia may be

> > > considered a tic. It has been observed after cerebral infarction (stroke).[4]

> > >

> > >

> > > ________________________________

> > >

> > >

> > >

> > > As for your "s" sounds, you've established that as a coping mechanism. It is not part of your misophonia though, and I would imagine that with some effort you can find a way to substitute another coping skill that is less distracting to others.

> > >

> > >

> > >

> > > .

> > >

> >

>