Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Jim - I recently watched a video of one of Dr. Aguilar's presentations at a conference. He stated that FGF2 can and does cross the blood-brain barrier (somebody asked) , and further showed study results of impressive improvements in autistic children after FGF2 treatments, particularly in language, congitive and social skills. So the difficult question, without beating around the bush, is he ripping us off with this stuff? We just made the very expensive trip to Mexico for FGF2, as did many other families we met there. Do you think (and you certainly don't have to answer; I'm not trying to put you on the spot) that Dr. Aguilar is yet another person taking advantage of desperate parents, or has he stumbled onto something? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 It seems like the problem with the parents who are trying FGF2, is that they are doing chelation at the same time. How does anyone know for sure what's working. It could be in your case that the chelation is doing its job and that's why you're son is improving. I can't see spending the money it takes to see Dr. Aguilar when there isn't concrete proof that it works. Is there anyone out there that's doing FGF2 alone? I do know Dr. Holmes also did the FGF too and couldn't say for sure if that or chelation helped her son. I guess the only way to know is to try the FGF2 alone. Jo (South Carolina) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Robin: Do you mind me asking where you went for HBO in Canada? We live in Toronto and I'm curious if it's available here. I haven't really looked into it at this point. Your son's progress sounds wonderful. Joyce Re: [ ] Re: Q for Jim Laidler(FGF2) > > > > Robin - How old was your son when you started FGF? What was his diagnosis > and > > level of function? Do you know how old the child who recovered was when he > > started? My daughter just turned six and I'm so worried that it's kind of > too > > late for any treatment to be really effective. But, she wasn't diagnosed > > until after 3 years (wasn't autistic until 2 1/2) and we've been searching > > for a recovery, or partial recovery since then. > > > > Thanks, > > yvonne > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Jo - Right now we're doing FGF2 alone until November, when we have our appt. with Dr. Holmes. So I guess we can be the test case, at least for 5 months. Dr. Aguilar also put our daughter on Depakote because of a weird " epilepsy-like " abnormal connection he found in her parietal section, even though she's never had any seizures and her EEGs looked normal. I swear we saw improvement day 3 after the first shot, which kind of wore away on day 7. Last night we gave the 2nd shot. We'll keep reporting back! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Robin - How old was your son when you started FGF? What was his diagnosis and level of function? Do you know how old the child who recovered was when he started? My daughter just turned six and I'm so worried that it's kind of too late for any treatment to be really effective. But, she wasn't diagnosed until after 3 years (wasn't autistic until 2 1/2) and we've been searching for a recovery, or partial recovery since then. Thanks, yvonne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 After observing our son (10 yr. old PDD NOS) - we know it is not a rip off. Our son has taken FGF 2 since May 3rd, and we definitely see better/increased language usage after giving the shot. Since the first shot, we heard him using more words/better sentences 2 days after the shot. With the shot on this past 15th, we began to see better language on the 16th. Today, we hope to observe the increase again. We were not expecting this improvement, since Dr. Aguilar said it would be 6 months to 1 year to see any improvement - so we were pleasantly surprised. We also notice that the effect wears off a little with him becoming a little less talkative by the 7th or 8th day. (He gets a shot every 10 days). He also responds well to chelation - with memory, awareness and language being helped....since starting with Chemet and ALA on 11/2000. HIs only set back was from yeast buildup after 3 1/2 months of chelating that made him laugh like a crazy man- we stopped chelating for 1 month and used amphotericin B to stop it. Starting chelation again showed an obvious gain in language and mood. , this is my best attempt at describing at my sons improvements from these 2 therapies done at the same time. Hope it can help in any way. Aly Re: [ ] Re: Q for Jim Laidler(FGF2) > Jim - I recently watched a video of one of Dr. Aguilar's presentations at a > conference. He stated that FGF2 can and does cross the blood-brain barrier > (somebody asked) , and further showed study results of impressive > improvements in autistic children after FGF2 treatments, particularly in > language, congitive and social skills. So the difficult question, without > beating around the bush, is he ripping us off with this stuff? We just made > the very expensive trip to Mexico for FGF2, as did many other families we met > there. Do you think (and you certainly don't have to answer; I'm not trying > to put you on the spot) that Dr. Aguilar is yet another person taking > advantage of desperate parents, or has he stumbled onto something? > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 In a message dated 6/17/01 12:42:19 PM Eastern Daylight Time, nelsoneyes@... writes: << Jo - Right now we're doing FGF2 alone until November, when we have our appt. with Dr. Holmes. So I guess we can be the test case, at least for 5 months. Dr. Aguilar also put our daughter on Depakote because of a weird " epilepsy-like " abnormal connection he found in her parietal section, even though she's never had any seizures and her EEGs looked normal. I swear we saw improvement day 3 after the first shot, which kind of wore away on day 7. Last night we gave the 2nd shot. We'll keep reporting back! >> , I really hope the FGF2 does indeed work for you. I've heard that Dr. Aguilar is brilliant in his field at reading EEG's so that alone is worth the visit. I can't wait to hear how things go. Here's hoping for big improvements. Jo (South Carolina) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 I had my son on FGF2 for approximately 2 years prior to starting the mercury chelation last October. We saw huge changes with the FGF after 6 months. He was stuck on the beginning phases of his ABA program for over a year and after 6-8 months of fgf his receptive language shot up. He's been moving with the program since. I have not seen much with the chelation. He improves everyday but nothing real noticeable. I heard about FGF through my husband. He was at work talking about his son with autism and a coworker stated his son used to have autism. Jeff was intrigued by this comment since there is no cure. This coworker stated that they took his son to Mexico for FGF with Dr. Aguilar. The child did not receive any other form of therapy, was in special day class, etc. Now, he is fully included. About a month later my husband was doing an inspection at a speech therapy facility and a lady was talking to him. He informed her of our son's disability and she informed him that the best treatment she's done to date (9/97) was the FGF! This was the second person to mention FGF within a month and both families had success stories. I contacted both of them myself. Anyways, I do have to say that FGF has had a very positive affect on my son. I am hopeful that by doing both the chelation and FGF that will benefit greatly. Dr. Amy did write an e-mail to this list or another stating why she felt FGF complimented mercury chelation. Does anyone still have this? Re: [ ] Re: Q for Jim Laidler(FGF2) > Jo - Right now we're doing FGF2 alone until November, when we have our appt. > with Dr. Holmes. So I guess we can be the test case, at least for 5 months. > Dr. Aguilar also put our daughter on Depakote because of a weird > " epilepsy-like " abnormal connection he found in her parietal section, even > though she's never had any seizures and her EEGs looked normal. I swear we > saw improvement day 3 after the first shot, which kind of wore away on day 7. > Last night we gave the 2nd shot. We'll keep reporting back! > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 , started FGF just after his 4th birthday and he is now 7. He has a diagnosis of autism (diagnosed at 2.7 yrs), hypotonia (low muscle tone) and ataxia (uncoordinated movements). He developed normally until 6 months. This is when we started noticing that his sucking was getting weak, had high pitch screams, inconsolable and sitting was his last milestone he attained on his own. He had words prior to 1 y/o but lost it after his last set of vaccines. Also, prior to his last immunizations the neurologist saw him and felt he was developing a little slow but nothing to worry about. He had normal body tone, good eye contact, and was 14-1/2 months old. A few months later after he received his last set of shots, the neurologist diagnosed him as extremely low tone and having autistic features (18 months old). Today after many therapies (ABA, AIT-Tomatis/Berard, SI, NACD, Secretin, HBO), his strongest feature is that he is very social. He wants to be with everyone. This is a huge improvement because previously he ignored his sister (wouldn't even look at her) and just wanted to be by himself. walked independently at age 6 after 40 sessions of HBO in Canada. He has since received an additional 40 and we are scheduled to return to Canada for another 40 this July. At our last appt. with Dr. Aguilar he was amazed at 's EEG/VEP results. He stated that the last 2-1/2 years had made slow steady progress but the new results showed the fgf was now working even better. I contribute this to the HBO since I had not started the mercury chelation therapy. initially showed brain damage in all lobes. According to Dr. Aguilar all areas are within normal range. However, we are still working on symmetry. FGF has not had the same results with my son as it has for the two that were fully included but had more damage than most. I can not remember the exact age of Jeff's coworkers son when he started the treatment but he was 5-1/2 when he finished. The mom told me that they were on it for 1-1/2 years so that would place him around 4. I remember the other ladies son was around 5 when she started him on it. I'm not sure how long he was on FGF but when I spoke with her he was 8. There are success stories out there. Wish you the best. Re: [ ] Re: Q for Jim Laidler(FGF2) > Robin - How old was your son when you started FGF? What was his diagnosis and > level of function? Do you know how old the child who recovered was when he > started? My daughter just turned six and I'm so worried that it's kind of too > late for any treatment to be really effective. But, she wasn't diagnosed > until after 3 years (wasn't autistic until 2 1/2) and we've been searching > for a recovery, or partial recovery since then. > > Thanks, > yvonne > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 > Jim - I recently watched a video of one of Dr. Aguilar's presentations at a > conference. He stated that FGF2 can and does cross the blood-brain barrier > (somebody asked) , and further showed study results of impressive > improvements in autistic children after FGF2 treatments, particularly in > language, congitive and social skills. So the difficult question, without > beating around the bush, is he ripping us off with this stuff? I think the MUCH more important question is what basis Jim has for his assertion it does not cross the intact BBB, and how intact an autistic child's BBB is. Asking an essentially mainstream physician whether an " alternative " doc is ripping you off is no different from asking Mc's if Jack in the Box has good, tasty, wholesome food. The most important information is NOT what one physician thinks of another's work, unless physician #2 has treated a bunch of physician #1's patients, but rather what the patients or their parents have to say about the effects of the treatment. They know. Another physician as a rule does not if he hasn't used the therapy. Remember, if you ask most physicians, they will tell you thimerosal in vaccines is perfectly safe, and people (like Jim Laidler) who let you believe it could be a problem and they could treat it are just trying to rip you off. The willingness to proclaim different views as simply rip-off attempts is an unfortunate aspect of the culture of modern mainstream medicine - let's try to stay away from it on list. Andy >We just made > the very expensive trip to Mexico for FGF2, as did many other families we met > there. Do you think (and you certainly don't have to answer; I'm not trying > to put you on the spot) that Dr. Aguilar is yet another person taking > advantage of desperate parents, or has he stumbled onto som Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 This is the kind of real information parents need to make a decision. Time for another poll. Looks like the great theory that FGF 2 doesn't cross the blood-brain barrier has been falsified by experiment - at least for those who practice scientific rather than dogmatic medicine. Andy PS - it may actually be TRUE that FGF-2 doesn't cross the BBB - perhaps it acts in some other manner. But it does act and based on the information I see I have to say the theory that FGF doesn't cross the BBB is scientifically false. Remember, scientific theories change all the time as new data is discovered. There is no such thing as scientific truth in the sense that, for example, the many christians on the list view the bible as containing ultimate, unchanging truth. > After observing our son (10 yr. old PDD NOS) - we know it is not a rip off. > Our son has taken FGF 2 since May 3rd, and we definitely see > better/increased language usage after giving the shot. Since the first > shot, we heard him using more words/better sentences 2 days after the shot. > With the shot on this past 15th, we began to see better language on the > 16th. Today, we hope to observe the increase again. We were not expecting > this improvement, since Dr. Aguilar said it would be 6 months to 1 year to > see any improvement - so we were pleasantly surprised. We also notice that > the effect wears off a little with him becoming a little less talkative by > the 7th or 8th day. (He gets a shot every 10 days). He also responds well > to chelation - with memory, awareness and language being helped....since > starting with Chemet and ALA on 11/2000. HIs only set back was from yeast > buildup after 3 1/2 months of chelating > that made him laugh like a crazy man- we stopped chelating for 1 month and > used > amphotericin B to stop it. Starting chelation again showed an obvious gain > in language and mood. , this is my best attempt at describing at my > sons improvements from these 2 therapies done at the same time. Hope it can > help in any way. > Aly > Re: [ ] Re: Q for Jim Laidler(FGF2) > > > > Jim - I recently watched a video of one of Dr. Aguilar's presentations at > a > > conference. He stated that FGF2 can and does cross the blood-brain barrier > > (somebody asked) , and further showed study results of impressive > > improvements in autistic children after FGF2 treatments, particularly in > > language, congitive and social skills. So the difficult question, without > > beating around the bush, is he ripping us off with this stuff? We just > made > > the very expensive trip to Mexico for FGF2, as did many other families we > met > > there. Do you think (and you certainly don't have to answer; I'm not > trying > > to put you on the spot) that Dr. Aguilar is yet another person taking > > advantage of desperate parents, or has he stumbled onto something? > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Joyce, We will be going to Vancouver. The center there has a multi-chamber with hoods for the kids and goes to a depth of 1-3/4 ATA. I have tried both methods (hood & mask) and for my son it was just easier to put a hood on him. When he had the mask he kept removing it-it was a constant battle. We live in Southern CA and have a center here which he went to in December. However, this center had a mono chamber with the mask and only went to a depth of 1-1/2 ATA. I'm actually doing a comparison of the two centers. The cost is about the same after taking into consideration air/lodging, car rental, expenses. Plus, my husband will drive up with our 3 other children (camping along the way). They love this. I believe there are a few in Toronto. Go to www.geocites.com/~kasmom/hbo.html for sites in the U.S., Canada and England. I'm not sure how often it is updated. Hope this helped. Robin Re: [ ] Re: Q for Jim Laidler(FGF2) > > > > > > > Robin - How old was your son when you started FGF? What was his > diagnosis > > and > > > level of function? Do you know how old the child who recovered was when > he > > > started? My daughter just turned six and I'm so worried that it's kind > of > > too > > > late for any treatment to be really effective. But, she wasn't diagnosed > > > until after 3 years (wasn't autistic until 2 1/2) and we've been > searching > > > for a recovery, or partial recovery since then. > > > > > > Thanks, > > > yvonne > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Andy, The " theory " that FGF-2 doesn't cross the intact blood-brain barrier has been demonstrated in numerous studies. While it isn't prudent to simply parrot the " mainstream dogma " , it is equally foolish to insist that something isn't true simply because you wish it so. FGF-2 works in a variety of areas and in numerous tissues; however it has been adequately proven to be unable to cross the intact blood- brain barrier. Now, as to the question of the permeability of the blood-brain barrier in autistic children, there is a lot of speculation (but damn little evidence) that it is more permeable than normal. However, knowing the degree to which it must be disrupted to allow FGF-2 to cross (based on the human studies in stroke and traumatic brain injury), it would be hard to believe that anyone so affected could be conscious. One of the problems with " mainstream " medicine is that people are afraid to question the established " truth " ; the corresponding problem in " alternative " medicine is the reluctance to question what anyone else in the " field " is doing. My purpose is to put the facts as they are known in front of the people who must make the choice. I still feel that, until FGF-2 is demonstrated to be better that placebo (and the placebo effect remains alive and well, despite one widely quoted but rarely read recent article), people would be well advised to consider it anything but a " sure thing " . Jim Laidler > > After observing our son (10 yr. old PDD NOS) - we know it is not a > rip off. > > Our son has taken FGF 2 since May 3rd, and we definitely see > > better/increased language usage after giving the shot. Since the > first > > shot, we heard him using more words/better sentences 2 days after > the shot. > > With the shot on this past 15th, we began to see better language on > the > > 16th. Today, we hope to observe the increase again. We were not > expecting > > this improvement, since Dr. Aguilar said it would be 6 months to 1 > year to > > see any improvement - so we were pleasantly surprised. We also > notice that > > the effect wears off a little with him becoming a little less > talkative by > > the 7th or 8th day. (He gets a shot every 10 days). He also > responds well > > to chelation - with memory, awareness and language being > helped....since > > starting with Chemet and ALA on 11/2000. HIs only set back was from > yeast > > buildup after 3 1/2 months of chelating > > that made him laugh like a crazy man- we stopped chelating for 1 > month and > > used > > amphotericin B to stop it. Starting chelation again showed an > obvious gain > > in language and mood. , this is my best attempt at describing > at my > > sons improvements from these 2 therapies done at the same time. Hope > it can > > help in any way. > > Aly > > Re: [ ] Re: Q for Jim Laidler(FGF2) > > > > > > > Jim - I recently watched a video of one of Dr. Aguilar's > presentations at > > a > > > conference. He stated that FGF2 can and does cross the blood- brain > barrier > > > (somebody asked) , and further showed study results of impressive > > > improvements in autistic children after FGF2 treatments, > particularly in > > > language, congitive and social skills. So the difficult question, > without > > > beating around the bush, is he ripping us off with this stuff? We > just > > made > > > the very expensive trip to Mexico for FGF2, as did many other > families we > > met > > > there. Do you think (and you certainly don't have to answer; I'm > not > > trying > > > to put you on the spot) that Dr. Aguilar is yet another person > taking > > > advantage of desperate parents, or has he stumbled onto something? > > > > > > > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 <<Jim Laidler said, in part:>> >One of the problems with " mainstream " medicine is that people are >afraid to question the established " truth " ; the corresponding problem >in " alternative " medicine is the reluctance to question what anyone >else in the " field " is doing. My purpose is to put the facts as they >are known in front of the people who must make the choice. I still >feel that, until FGF-2 is demonstrated to be better that placebo (and >the placebo effect remains alive and well, despite one widely quoted >but rarely read recent article), people would be well advised to >consider it anything but a " sure thing " . Thanks for your summary -- I agree both attitudes have a downside. While " FGF-2 " may not be " a sure thing " , we also need to consider whether being " a sure thing " is really necessary. I say it depends on what options are available, and what costs/risks are. There may not BE any " sure things " . Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 > > > After observing our son (10 yr. old PDD NOS) - we know it is not > a > > rip off. > > > Our son has taken FGF 2 since May 3rd, and we definitely see > > > better/increased language usage after giving the shot. Since the > > first > > > shot, we heard him using more words/better sentences 2 days after > > the shot. > > > With the shot on this past 15th, we began to see better language > on > > the > > > 16th. Today, we hope to observe the increase again. We were not > > expecting > > > this improvement, since Dr. Aguilar said it would be 6 months to > 1 > > year to > > > see any improvement - so we were pleasantly surprised. We also > > notice that > > > the effect wears off a little with him becoming a little less > > talkative by > > > the 7th or 8th day. (He gets a shot every 10 days). He also > > responds well > > > to chelation - with memory, awareness and language being > > helped....since > > > starting with Chemet and ALA on 11/2000. HIs only set back was > from > > yeast > > > buildup after 3 1/2 months of chelating > > > that made him laugh like a crazy man- we stopped chelating for 1 > > month and > > > used > > > amphotericin B to stop it. Starting chelation again showed an > > obvious gain > > > in language and mood. , this is my best attempt at > describing > > at my > > > sons improvements from these 2 therapies done at the same time. > Hope > > it can > > > help in any way. > > > Aly > > > Re: [ ] Re: Q for Jim Laidler(FGF2) > > > > > > > > > > Jim - I recently watched a video of one of Dr. Aguilar's > > presentations at > > > a > > > > conference. He stated that FGF2 can and does cross the blood- > brain > > barrier > > > > (somebody asked) , and further showed study results of > impressive > > > > improvements in autistic children after FGF2 treatments, > > particularly in > > > > language, congitive and social skills. So the difficult > question, > > without > > > > beating around the bush, is he ripping us off with this stuff? > We > > just > > > made > > > > the very expensive trip to Mexico for FGF2, as did many other > > families we > > > met > > > > there. Do you think (and you certainly don't have to answer; > I'm > > not > > > trying > > > > to put you on the spot) that Dr. Aguilar is yet another person > > taking > > > > advantage of desperate parents, or has he stumbled onto > something? > > > > > > > > > > > > > > > > ======================================================= > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 > While " FGF-2 " may not be " a sure thing " , we also need to consider > whether being " a sure thing " is really necessary. I say it depends > on what options are available, and what costs/risks are. There may > not BE any " sure things " . A statement generally true in this area of medicine. The " mainstream " wants us to wait until they decide it is a sure thing. We are more than willing to take our chances in hopes of getting the best deal we are offered as a " sure thing. " I really don't understand why the doc's try so hard to discourage this behavior, rather than working with us to try to maximize the chances we find what we want. Andy > > M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 I believe it's given by injection. Hard to get over the counter! :-) I'm not even sure US docs can rx this. I always thought this was why Dr. Aguilar practices in Mexico, and there's nobody who uses it here in the US, but I could certainly be wrong. Terri At 01:50 PM 6/18/01 -0400, you wrote: >Do you need to go to Dr. Aguilar or can you just obtain and use the FGF-2 >yourself? > > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Do you need to go to Dr. Aguilar or can you just obtain and use the FGF-2 yourself? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 <<I said:>> >> While " FGF-2 " may not be " a sure thing " , we also need to consider >> whether being " a sure thing " is really necessary. I say it depends >> on what options are available, and what costs/risks are. There may >> not BE any " sure things " . <<then Andy said:> > >A statement generally true in this area of medicine. > >The " mainstream " wants us to wait until they decide it is a sure >thing. > >We are more than willing to take our chances in hopes of getting the >best deal we are offered as a " sure thing. " > >I really don't understand why the doc's try so hard to discourage this >behavior, rather than working with us to try to maximize the chances >we find what we want. Yeah-- especially in cases where they don't have any answer. I think it makes a whole lot more sense to try " everything " rather than " nothing " . Except if " everything " is *dangerous*, in which case it depends. But most body care methods are NOT dangerous. In an argument I got in recently, I used acupunture as an example. I absolutely DO NOT need " proof " that it works in order to decide to do it -- Acupuncture is incredibly benign! This line of reasoning applies usefully to a great many things. It is the medicos who have given people the idea that certain " special " areas of life (medicine, science, body care) require " proof " or some special scientific hocus-pocus in order to take action. Otherwise we are " stupid " and " mislead " to use " unproven " methods. This is a really inhibiting philosophy -- damages people's ability to act. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 - You need to go to see him in Mexico - FGF2 is not available in the U.S. (not FDA approved yet). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Ok I have a theory.... Does this all not tie in with the gut being a " Second Brain " ???? Laurie Mom to Grace 4.2 > > Andy, > As soon as someone comes up with a theory of > how it does what it does without crossing the blood-brain barrier, > that theory can be resurrected. Right now, the simplest (and thus > only scientific) theory is that it does cross the BBB in these kids > Personally I stick to the definition of science when theorizing, and > leave out my desires to prove others right or wrong. > > > > FGF-2 works in a variety of areas and in numerous tissues; however > it > > has been adequately proven to be unable to cross the intact blood- > > brain barrier. Now, as to the question of the permeability of the > > blood-brain barrier in autistic children, there is a lot of > > speculation (but damn little evidence) that it is more permeable > than > > normal. However, knowing the degree to which it must be disrupted to > > allow FGF-2 to cross (based on the human studies in stroke and > > traumatic brain injury), it would be hard to believe that anyone so > > affected could be conscious. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 I would like some clarification on the FGF subject. We have used FGF2 which is a homeopathic version from Biomed Comm. I thought what Dr. Aguilar used was FGF not called FGF2. We were pleased with the results of the homeopathic version in case anyone wants to consider that route. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Terri-Dr. Edelson in Atlanta does (or did) this. I heard that he charges 80K per year for the FGF2. I heard this product comes from Japan. I have not verified any of this, but had seen it come up on a few lists from time to time. > >Do you need to go to Dr. Aguilar or can you just obtain and use the FGF-2 > >yourself? > > > > > >======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Jane thank you I have just today ordered this, could you tell me how many drops you used how often and how long you have been using it? and are you using this in combination with chelating (we will be). Thank you Regards Terri s Re: [ ] Re: Q for Jim Laidler(FGF2) >I would like some clarification on the FGF subject. We have used FGF2 which >is a homeopathic version from Biomed Comm. I thought what Dr. Aguilar used >was FGF not called FGF2. We were pleased with the results of the homeopathic >version in case anyone wants to consider that route. > > Jane > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Hi Terri, We were on a long break from chealation at the time we used the FGF2. The only reason for the break was the horrid rash I have posted about. It was the only new thing we were doing at that time. There will be instructions with the vial when it comes, but we weren't really exact about it. I gave her a full dropper full on her tongue 4 x a day. You are not supposed to give it right before a meal or right after. If your child has trouble sleeping we noticed her sleeping better after several days on the drops. We only used the one bottle a two months supply and we haven't reordered as of yet. We started cranial sacral therapy, and I want to see what that is doing. Hope it works great for you guys! Jane Quote Link to comment Share on other sites More sharing options...
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