Guest guest Posted February 14, 2012 Report Share Posted February 14, 2012 Subject: Re: New EN sufferer.To: "rebeccastrecker@..." Date: Tuesday, February 14, 2012, 2:04 PMHi Estela,I'm newly diagnosed with EN also,first lump i got i was told was a spider bite by my Dr then loads of other lumps appeared i was backwards and forwards to the surgery and 4 different Dr's 4 different diagnosis very frustrateing as i was in so much pain the 5th dr finally said he thought it was EN and sent me to a specialist dermatologist who told me it was rare gave me steroids but no warning of the side affects.i was diagnosed as diabetic in the same week and have now started meds for that but the steroids are causeing problems there too.its been good to find this site and read of others experiences with EN and maybe we could all help each other by shareing what works for us.Debbie.x Debz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 hi there,have you had a biopsy?im just waiting on the results of my biopsy taken 2 weeks ago,but reading through alot of the posts it seems like the biopsys rarely show much.im on 40mg of prednisolone,sr diclofenic taken with tramadol i find they only take the pain away for 3-4 hours then it comes back stronger.i developed cellulitus in my feet at the same time as EN and then blood tests showed i also had diabetis im finding it very hard to cope with the fevers and tiredness and can only discribe it as feeling im loseing my independance as its almost immpossible to go out the house. its good to read of other sufferers experiences of EN on this site as at least we can connect and know that there are other poeple who understand what we are going through with this horrible condition. i hope your days been a little better today.love Debbie.x EN > > > Subject: Re: New EN sufferer. > To: " rebeccastrecker@... " > Date: Tuesday, February 14, 2012, 2:04 PM > Hi Estela, > I'm newly diagnosed with EN also,first lump i got i was told was a spider bite by my Dr then loads of other lumps appeared i was backwards and forwards to the surgery and 4 different Dr's 4 different diagnosis very frustrateing as i was in so much pain the 5th dr finally said he thought it was EN and sent me to a specialist dermatologist who told me it was rare gave me steroids but no warning of the side affects.i was diagnosed as diabetic in the same week and have now started meds for that but the steroids are causeing problems there too.its been good to find this site and read of others experiences with EN and maybe we could all help each other by shareing what works for us. > Debbie.x > > Debz > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > LeBron's dunk so powerful you can hear it > > The NBA star made some noise against the Bucks with his latest monster throwdown. > > Privacy Policy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Hi, I agree in that the biopsy doesn't really make much differnce. I had it to confirm it was EN but it doesn't help in finding the cause. I am so glad i found this site. It helps to know that there are other people out there who understand what this condition is like. All the best ine EN > > > > From: KELLY MORAN <kellysangelz@> > > Subject: Re: New EN sufferer. > > To: " rebeccastrecker@ " <rebeccastrecker@> > > Date: Tuesday, February 14, 2012, 2:04 PM > > Hi Estela, > > I'm newly diagnosed with EN also,first lump i got i was told was a spider bite by my Dr then loads of other lumps appeared i was backwards and forwards to the surgery and 4 different Dr's 4 different diagnosis very frustrateing as i was in so much pain the 5th dr finally said he thought it was EN and sent me to a specialist dermatologist who told me it was rare gave me steroids but no warning of the side affects.i was diagnosed as diabetic in the same week and have now started meds for that but the steroids are causeing problems there too.its been good to find this site and read of others experiences with EN and maybe we could all help each other by shareing what works for us. > > Debbie.x > > > > Debz > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > LeBron's dunk so powerful you can hear it > > > The NBA star made some noise against the Bucks with his latest monster throwdown. > > > Privacy Policy > > > Quote Link to comment Share on other sites More sharing options...
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