Re: Fw: Re: New EN sufferer.

[Guest guest]

I guess it's good my EN was diagnosed on time. I had couple of MRI's and the only thing that they saw was the inflammation. Lab works were not definite of anything. My orthopedic doctor got the referral to the Rheumatologist who made the diagnosis. What medications are you on.?I'm on my second week of the SSKI and 3rd week of the plaquenil.I beg my PCP to give me a refill of the prednisone as it seems like it's the only thing that work with the pain. I'm also on Tylenol with codeine for the pain and also Ibuprofen. I feel feverish right now and I think I'm missing work again tomorrow.Thank you for your response. I'm so happy to have found this support group to get a better perspective of the disease. I pray that something can be done for more research.Take care,EstelaSent from my iPadEN Subject: Re: New EN sufferer.To: "rebeccastrecker@..." Date: Tuesday, February 14, 2012, 2:04 PMHi Estela,I'm newly diagnosed with EN also,first lump i got i was told was a spider bite by my Dr then loads of other lumps appeared i was backwards and forwards to the surgery and 4 different Dr's 4 different diagnosis very frustrateing as i was in so much pain the 5th dr finally said he thought it was EN and sent me to a specialist

dermatologist who told me it was rare gave me steroids but no warning of the side affects.i was diagnosed as diabetic in the same week and have now started meds for that but the steroids are causeing problems there too.its been good to find this site and read of others experiences with EN and maybe we could all help each other by shareing what works for us.Debbie.x Debz

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[Guest guest]

Hello again, I didn't have the biopsy anymore as the diagnosis seemed to be real EN. My doctor it was unnecessary in as much as the symptoms were typical of the disease. I have another check up tomorrow. We have a pain clinic at my place of work, perhaps they can help me with the pain. I also had low grade fevers in the last week and some pain on my knees. I'm also thinking to ask for a medication for nerve pain and an anti depressant as it is obvious I am depressed. Very thankful for this site. People who don't have this most likely don't have any clue what we are going through. EstelaSent from my iPad

hi there,have you had a biopsy?im just waiting on the results of my biopsy taken 2 weeks ago,but reading through alot of the posts it seems like the biopsys rarely show much.im on 40mg of prednisolone,sr diclofenic taken with tramadol i find they only take the pain away for 3-4 hours then it comes back stronger.i developed cellulitus in my feet at the same time as EN and then blood tests showed i also had diabetis im finding it very hard to cope with the fevers and tiredness and can only discribe it as feeling im loseing my independance as its almost immpossible to go out the house.

its good to read of other sufferers experiences of EN on this site as at least we can connect and know that there are other poeple who understand what we are going through with this horrible condition.

i hope your days been a little better today.love Debbie.x

EN

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> Subject: Re: New EN sufferer.

> To: "rebeccastrecker@..."

> Date: Tuesday, February 14, 2012, 2:04 PM

> Hi Estela,

> I'm newly diagnosed with EN also,first lump i got i was told was a spider bite by my Dr then loads of other lumps appeared i was backwards and forwards to the surgery and 4 different Dr's 4 different diagnosis very frustrateing as i was in so much pain the 5th dr finally said he thought it was EN and sent me to a specialist dermatologist who told me it was rare gave me steroids but no warning of the side affects.i was diagnosed as diabetic in the same week and have now started meds for that but the steroids are causeing problems there too.its been good to find this site and read of others experiences with EN and maybe we could all help each other by shareing what works for us.

> Debbie.x

>

> Debz

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