1st year with stills DX or not.

[Guest guest]

Hi all

 

Aging I have been reading a lot from people who are some what new to stills and

all the changes to there lives because of it. Well I thought I would touch bases

on a few of them just not on any medications just on how life can and dose

change.

 

 1st you most likely feel scared confused and alone. No one seams to understand

you not even your family. This is normal and so is you going threw stages of

anger hate and acceptance. This is why I have always pushed for the one with

stills along with every one in that house hold to get some concealing as it

changes life for all some more then others but not a one is left untouched by

it. I remember my self going threw denial of how sick I was and forcing my self

to believe a shot or pill would have me back to normal in no time at all. Well

it is now ten years later I am still waiting and it is a good thing I did not

hold my breath.

 

Yes it is not easy at first with stills as it tends to be the hardest part of it

all the start that is and with that I mean the first 6 months to a year. Yet you

are not just fighting stills you’re fighting your self your dreams and what

you have always believed life was going to be. I know I did to a point it almost

coasted me my life after all if I was not going to get better then all I was

doing was wasting good air someone other could use. no one wanted me any more

heck even my wife I had been with for 26 years 19 of them married did not want

me any more because of stills and how it changed our life yes our life’s and

my self personally. Stills helped me drop into a dark hole of depression that I

have never seen before and I pray I never see again yet I still refused to get

concealing as that’s for the weak. well I am here to say I am weak and I

needed it then more then any time in my life before or after as stills changed

all of us down to

even family that was not living in our house. So get counseling it’s a first

step to healing and living with stills. Yes some can do it with out it but are

they really or are they sweeping it under the rug? Are they taking longer or are

they doing more damage like I did to them self have and to loved ones? I know I

climbed in to a shell and would not come out but I did not know it my son

pointed it out to me many years later and he was right I had done that I

mentally left my family in my sadness, worry, fear, and depression! I also now

know it harmed him as he lost his father during that time and yet he needed me

so badly then as he also lost to stills his father as he knew him. He had his

own fears and a mother who would not listen to him as she was buried in her own

fears also.

 

Now I can say there are many things I do miss from life pre stills but there are

many things after stills that I would not give up. Se because of stills I also

learned what is really important in life and who I can trust! I am not what I do

but I am a person and I know who I am for the most part now days. and to be

honest I have a better life now after stills then I had before it in every way

almost but money and goods but then again I have never seen a brinks armed truck

nor a Uhaul ever fallowing a hearse at the end of a person life so that alone

tells you what is important is not what you have it is in who and how you touch

others and what you leave them with as in a part of your self in did you let

them into your life for real or did you only let them act as if they were a part

of your life.

Hugs all

 The Redneck

Marty G.

To learn about Stills Disease http://www.stillsdisease.org/stills_info

Experience: that most brutal of teachers. But you learn, my God do you learn.---

C.S.