Re: Dr JM- Poor motility, dysbiosis, inflammation gut problems

[Guest guest]

hello - I am in Australia and acknowledge Dr MacCandless as a world

authority - just as a suggestion there is

another gastrointestinal paediatric doc attached to Pfeiffer who has

enormous success with gut bugs - his name is Dr Allan - he has an ASD

son himself - a second opinion may be worth while if Jaquelyn has no

success - blessings -

janbrenton

Dr JM- Poor motility, dysbiosis, inflammation gut

problems

>

>

> Dear Dr. McCandless:

>

> We need help as our Atanta-area DAN doctor told us yesterday that

> our child has the worst gut of all the children she treats, and we

> feel that she and ourselves are at a loss as to what to try next to

> help our child.

>

> Our 2 year old son, Ben, has been receiving DAN treatment since age

> 8 months. Ben has been constipated since birth and suffers chronic

> gut dysbiosis. He was scoped by Dr. Arthur Krigsman at 9 months who

> found ileum lymphoid hyperplasia, proctitis, and esophagitis (mild

> unspecified inflammation). Dr. Krigsman coordinates with our local

> DAN doctor on treatment strategies. Although they have

> fundamentally opposing theories, (gut bugs vs gut inflammation),

> their approaches used conjointly seem to have the best results for

> our child. But it never lasts!

>

> Ben was the best on Sulfasalazine, Sporenox, and Flagyl. He was

> literally a neuro-typical child with a first-time flat belly for

> about 2 weeks in December. While on these meds, his liver enzymes

> went up, he had low grade fevers with occ spikes, and his belly got

> bloated. We stopped using Flagyl, Sulfasalzine and Sporenox due to

> liver enymes. Then his autistic behaviors really flared up. Fecal

> stool test showed several bad bacteria +4 and Candida +2. We were

> allowed to do 12 days of Cefuroxime and Nystatin, to address fecal

> test bugs. This eliminated a lot of autistic behavior, but his

> belly was bloated and liver enzymes dropping but not normal. A KUB

> showed feces buildup all along the colon, and we started enemas

> which helped.

>

> Ben had no meds for a 9 days period when a liver panel showed his

> liver enzymes dropped back to normal. We just started Colozal

> (Balsalazide) in place of Sulfasalazine, and have 2-4 wks to assess

> effectiveness. In the meanwhile, we still do enemas, and our son is

> clearly relieved and better for a shortwhile afterwards. But

> overall, we are seeing the downhill trend into autistic behaviors

> that related to gut bugs. We clearly don't want to run back to

> antifungal/antibiotic use, but it is the only thing we have found

> that eliminates the dysbiosis.

>

> Our plan is to see if Colozal with natural supplements will work.

> We are using RNA bowel support, Biocidin, TD-glut, methylB12 shots,

> Threelac, along with various vitamins and minerals. We just removed

> Reconcastat (oral glut), and added Arabinex, Transfer Factor, and

> Metachel. For 15 months we have been GF/SF/CF/corn and potato

> free/fruit-free (except pear) and very little sugar.

>

> Got any other supplement suggestions? We have been told to hold off

> on TD-DMPS until Ben's gut is in good shape, but I wonder if metals

> are keeping his gut's immune system from working and that chelation

> may be the key to getting Ben's gut better. (We did TTFD at 11

> months old--excreted 5xs normal mercury). Have you seen any guts

> improve after chelation?

>

> Thanks for your interest and advice, and sorry so longwinded!

>

> Long

>

>

>

>

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

[Guest guest]

Hi, I'm certainly not Dr. McCandless, but your post made me think of a product

I saw advertized recently. We haven't used it yet, but I'm seriously thinking

of trying it for myself and both of my children. It's called OxyPowder.

www.oxypowder.com Maybe it would help your child.

Peg P

Mit and Janie's Mom

Mississippi

prsandmel wrote:

Dear Dr. McCandless:

We need help as our Atanta-area DAN doctor told us yesterday that

our child has the worst gut of all the children she treats, and we

feel that she and ourselves are at a loss as to what to try next to

help our child.

Our 2 year old son, Ben, has been receiving DAN treatment since age

8 months. Ben has been constipated since birth and suffers chronic

gut dysbiosis. He was scoped by Dr. Arthur Krigsman at 9 months who

found ileum lymphoid hyperplasia, proctitis, and esophagitis (mild

unspecified inflammation). Dr. Krigsman coordinates with our local

DAN doctor on treatment strategies. Although they have

fundamentally opposing theories, (gut bugs vs gut inflammation),

their approaches used conjointly seem to have the best results for

our child. But it never lasts!

Ben was the best on Sulfasalazine, Sporenox, and Flagyl. He was

literally a neuro-typical child with a first-time flat belly for

about 2 weeks in December. While on these meds, his liver enzymes

went up, he had low grade fevers with occ spikes, and his belly got

bloated. We stopped using Flagyl, Sulfasalzine and Sporenox due to

liver enymes. Then his autistic behaviors really flared up. Fecal

stool test showed several bad bacteria +4 and Candida +2. We were

allowed to do 12 days of Cefuroxime and Nystatin, to address fecal

test bugs. This eliminated a lot of autistic behavior, but his

belly was bloated and liver enzymes dropping but not normal. A KUB

showed feces buildup all along the colon, and we started enemas

which helped.

Ben had no meds for a 9 days period when a liver panel showed his

liver enzymes dropped back to normal. We just started Colozal

(Balsalazide) in place of Sulfasalazine, and have 2-4 wks to assess

effectiveness. In the meanwhile, we still do enemas, and our son is

clearly relieved and better for a shortwhile afterwards. But

overall, we are seeing the downhill trend into autistic behaviors

that related to gut bugs. We clearly don't want to run back to

antifungal/antibiotic use, but it is the only thing we have found

that eliminates the dysbiosis.

Our plan is to see if Colozal with natural supplements will work.

We are using RNA bowel support, Biocidin, TD-glut, methylB12 shots,

Threelac, along with various vitamins and minerals. We just removed

Reconcastat (oral glut), and added Arabinex, Transfer Factor, and

Metachel. For 15 months we have been GF/SF/CF/corn and potato

free/fruit-free (except pear) and very little sugar.

Got any other supplement suggestions? We have been told to hold off

on TD-DMPS until Ben's gut is in good shape, but I wonder if metals

are keeping his gut's immune system from working and that chelation

may be the key to getting Ben's gut better. (We did TTFD at 11

months old--excreted 5xs normal mercury). Have you seen any guts

improve after chelation?

Thanks for your interest and advice, and sorry so longwinded!

Long

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>