Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Hi Folks: I have recently, like today been contacted by a reporter from the Colorado University Magazine, who is trying to do an article on the drug Kineret as it pertains to the use on Stills Disease. She would like to talk to some of the people who have been on Kineret and get their views on how it worked for them. She was doing an article on a Doctor Bill Arend who is a researcher and was very involved with the Kineret research and has read some of the info from our web site but would like to talk to someone who has used it? If there are any of you out there who would like to speak to her please contact me at my e-mail address and I will furnish you her phone number? My e-mail address in case you don't know it is oldgoat378@.... Thanks, as it could give us a little more publicity, which we sorely need. Take care now and Love Ya'll! " WE WILL WIN " Love Ya'll! Bob & Carole Dad & Mom " Never Fight Fair " Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Bob I hope you get snowed under with people responding to this as your right I would be a great chance to get our name out there a bit stronger and also to put the spot light on Stills it's self also! there are just to many who still do not know about stills and that is not every day people only but also in the medical field also. so any one that can please do this as it is a great way to help all of us and any one new later by opening he world to the illness we call stills hugs all the redneck Marty G. Anyone who has used KINERET for Stills? Hi Folks: I have recently, like today been contacted by a reporter from the Colorado University Magazine, who is trying to do an article on the drug Kineret as it pertains to the use on Stills Disease. She would like to talk to some of the people who have been on Kineret and get their views on how it worked for them. She was doing an article on a Doctor Bill Arend who is a researcher and was very involved with the Kineret research and has read some of the info from our web site but would like to talk to someone who has used it? If there are any of you out there who would like to speak to her please contact me at my e-mail address and I will furnish you her phone number? My e-mail address in case you don't know it is oldgoat378knology (DOT) net. Thanks, as it could give us a little more publicity, which we sorely need. Take care now and Love Ya'll! " WE WILL WIN " Love Ya'll! Bob & Carole Dad & Mom " Never Fight Fair " Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease. org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hey Pop! I have tried to use Kineret twice. I will be glad to speak with her regarding my experience......my phone is: . Thanks, Bob! God Bless! Larry B. ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 I was on Kineret for a very short period of time until I had multiple site reactions to previous injections all on the same day so had to discontinue, but I totally know it was helping and would go back on it today if my rheumatologist would let me. I would be glad to speak to someone about it. My number is . > > Bob > I hope you get snowed under with people responding to this as your right I would be a great chance to get our name out there a bit stronger and also to put the spot light on Stills it's self also! there are just to many who still do not know about stills and that is not every day people only but also in the medical field also. so any one that can please do this as it is a great way to help all of us and any one new later by opening he world to the illness we call stills > hugs all > > > the redneck > Marty G. > > Anyone who has used KINERET for Stills? > > > Hi Folks: > I have recently, like today been contacted by a reporter from > the Colorado University Magazine, who is trying to do an article on the drug > Kineret as it pertains to the use on Stills Disease. She would like to talk > to some of the people who have been on Kineret and get their views on how it > worked for them. She was doing an article on a Doctor Bill Arend who is a > researcher and was very involved with the Kineret research and has read some > of the info from our web site but would like to talk to someone who has used > it? If there are any of you out there who would like to speak to her please > contact me at my e-mail address and I will furnish you her phone number? My > e-mail address in case you don't know it is oldgoat378knology (DOT) net. Thanks, > as it could give us a little more publicity, which we sorely need. Take care > now and Love Ya'll! > > > > " WE WILL WIN " > Love Ya'll! > Bob & Carole > Dad & Mom > " Never Fight Fair " > Panama City, FL 32404 > Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease. org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 I've been on Kineret for close to 2 years now and would be happy to share my experiences. Kirk > > > Bob > I hope you get snowed under with people responding to this as your right I > would be a great chance to get our name out there a bit stronger and also to > put the spot light on Stills it's self also! there are just to many who > still do not know about stills and that is not every day people only but > also in the medical field also. so any one that can please do this as it is > a great way to help all of us and any one new later by opening he world to > the illness we call stills > hugs all > > > the redneck > Marty G. > > Anyone who has used KINERET for Stills? > > > > Hi Folks: > I have recently, like today been contacted by a reporter from > the Colorado University Magazine, who is trying to do an article on the > drug > Kineret as it pertains to the use on Stills Disease. She would like to talk > to some of the people who have been on Kineret and get their views on how > it > worked for them. She was doing an article on a Doctor Bill Arend who is a > researcher and was very involved with the Kineret research and has read > some > of the info from our web site but would like to talk to someone who has > used > it? If there are any of you out there who would like to speak to her please > contact me at my e-mail address and I will furnish you her phone number? My > e-mail address in case you don't know it is oldgoat378knology (DOT) net. > Thanks, > as it could give us a little more publicity, which we sorely need. Take > care > now and Love Ya'll! > > " WE WILL WIN " > Love Ya'll! > Bob & Carole > Dad & Mom > " Never Fight Fair " > Panama City, FL 32404 > Please visit the International Stills Disease Foundation Inc. Web Site at > www.stillsdisease. org . Please make TAX DEDUCTIBLE Donations to the all > volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel > Ave., Panama City, FL 32404. Thanks! > > Quote Link to comment Share on other sites More sharing options...
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