Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 I disagree, some people have good relationships with their Physicians and it may feel like to the patient that you would be hurting the docs feelings. As I had stated in an earlier email, if you have this good relationship with your doc then they will not mind listening to your concerns and discussing them with you, even if you ask for a second opinion the doctor will not get his/her feelings hurt. I know its hard when you have a long standing relationship with your doc, but they will understand, if they don't they do not have your best interests in mind. Phone consultations are not intended to be patient talking to a new doc on the phone, they are intended to be one specialist to another as a courtesy. It does not hurt for you to ask your Physician to make that call for you, mainly to see if the doctor they are consulting with thinks it would benefit you the patient to go and see this other doctor. The other thing that patients need to remember is that Physicians are in the practice of medicine, they do not know everything, and with Still's it is a diagnosis of exclusion, it is hard to diagnosis because it can look like several other autoimmune disorders. I have been on both sides of this fence, Physician now being the patient, it is not easy for me either, lots of frustration not knowing myself alot about Still's what the heck is going on. I worked in the ER for 25 years, I am not a Rheumatologist, that is why we have doctors who have specialize in different areas. This is just my opinion Take care everyone and have a good week ________________________________ To: Stillsdisease Sent: Sun, January 24, 2010 9:18:33 PM Subject: Re: Dr. Cush, phone consultation, 2nd opinions, & hurting your doctor's feelings  I'd like to make a comment about phone consultations. Most doctors will NOT do phone consultations with laymen. It's just too hard for them to be able to assess a situation long-distance. Most will do phone consultations with other doctors out of professional courtesy. Truthfully, a good rheumatologist needs to be able to see and touch patients, palpate the spleen and lymph nodes, look at the nail beds, listen to the pulse in your legs/feet. The second reason most docs dont' do phone evaluations with laymen i because most insurance companies won't compensate a doctor for time spent on the phone with someone who may never become a patient. It's asking for a freebie opinion during time that could be spent with a paying patient. Would you ask for a free office exam? Of course not. And because the patients aren't there and insurance won't cover it, collection of payment is difficult. When I can't see my shrink, I've asked about doing a phone session. What's the difference in that case? It's just talking and the docs know me. But again, insurance won't pay for the session unless the patient shows up. That's HMOs ding you $50 for missing an appointment when you only have a $10 co-pay! I may sound cynical, but remember, I used to work in a doctors' office. I know which calls got returned and which didn't. I'm the one who'd have called you back and said, " Sorry, Dr. X doesn't do phone evaluations. " Anyway, you can try asking for a phone consultation, but you're more likely to get a response if YOUR doctor consults with Dr. Cush about your treatment. I suspect that a lot of patients " diagnosed " with Stills go to see Dr. Cush only to find out that they don't have Stills. In the time I've been on this list, I've seen a couple of people pop up with what I consider to be questionable diagnoses--- like the person who mentioned that he was diagnosed by an ER doc. That's supect right off the bat. Or people whose docs have had " 3 cases in 2 months. " This disease is rare and the odds are just in favor of a mistake. Or the person who had only been sick for a few weeks, way too soon to rule out viral illnesses and come to a Stills diagnosis. Don't get me wrong, I am not questioning that any of the people who come here are not sick, not in pain---I'm sure they are. And maybe it was because I myself was misdiagnosed for TWENTY YEARS that I don't trust doctors to always know what they are doing. It's like that joke: What do you call the medical school student who graduates last in his class? Answer: Doctor. Just having an MD doesn't mean that a doctor doesn't make mistakes. And even the smartest doctor has bad days or just makes errors. All of these things add up to why most docs won't do phone consultations with laymen. Oh, then there are lawsuits. I forgot about the legal implications. In this litigious society, a doctor is just asking to be sued by giving a diagnosis without an examination (but confirming a cohort's diagnosis is a different thing). Lastly, to the husband who won't get a second opinion because he doesn't want to hurt his doctor's feelings? Let me assure all of you, any doctor who gets upset about a second opinion is hiding something: a bad diagnosis, improper medication, whatever. Finding out that the doctor you have is doing the right thing will only make you trust your doctor MORE, afterall, you've had his diagnosis or treatment confirmed by the other doctor. And if there is a better treatment out there that your doctor didn't offer, don't you want to know about it? To know all of your options. A quick story: when I first got married (to the man I'm now divorcing), his first wive told me over the phone that she had been to her GP and he'd told her that she had cervical cancer and would need a hyterectomy. She was still in her early 30s and hoped to get married and have more children. Wanting to make nice, I asked her to fax me her pathology report which I gave to my former boss, a GYN-Oncologist. He told me that unless there's something he's unaware of, she doesn't need a hysterectomy at all. Mind you, the first wife had no insurance (this is a very expensive surgery), worked as a temp and had no sick time. Recovery from a hysterectomy is about 6 weeks and she had no nest egg of money either. She didn't want to get another opinion because HER MOTHER (also a patient of this doc) thought it would hurt the doc's feelings. I finally convinced her to get a 2nd opinion and she goes to---the partner of the doctor!! And he says the same thing. Finally I convinced her to go to an outside doctor. This doctor told her that she didn't need a hysterectomy at all (backing up my former boss). That doctor also wanted to know who had mutilated her cervix so badly. It turned out that the previous procedure done was something that no good doc had done in 20 years!! The first wife went to Emory Hospital which has a real GYN-Onc Department and has been followed there ever since. She went on to remarry and have a baby about 6 years ago. The moral to take out of this: screw feelings! The doctor is not your friend, he works FOR you (though we often forget that). Do you want to be alive or dead and have your doc's feelings intact? It sometimes comes down to that. And you never know. If all goes well, the 2nd opinion will back up the first and you can go happily back to your doctor. But if the opinion doesn't match, you may be receiving incorrect or substandard treatment. Or there may be another option with fewer risks or side effects that your doctor missed. There is never anything wrong with getting a 2nd opinion. Tell your husband not to be an idiot. And tell him about my STBX's first wife. 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Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010  I could not agree more fully or wrote it better then did. Her being on both side of the fence also gives a nice light to it also.  I do know I had a RA doctor who was against any 2nd opinions flat out but that was his ego more then any thing as he was a writer, teacher and lecture of Ra matters. Now the rest of my Doctors at the time it was them telling me to go get a second opinion to help them and me understand what was going on as they did not know. Well I did as they suggested ended up being DX with stills and they all but the one worked together to help me . the problems I have had both in medication mixes and in them dam near killing me were all from the one doctor not listening to Me or the other doctors helping in my care. I have had the same thing show it ugly head a few times as I have moved or needed to find new doctors but I will say it is not an normal but a few Doctors for what ever reason get upset and like has been said it is them few that really did not have your best in mind any way. Now the doctors I have to day not only send me to specialist but will even tell me that kind of care is over them or things along that line. They are also willing to listen to me what I suggest and if it’s a bad Idea they explain why. When I have gone for a second opinion they always ask if I would please make sue them also get a copy of the other doctor’s report so they can learn or confirm what there thinking about my illness and care. but one thing I DO NOT DO is DELIBRETLY get aggressive with them if I have to do that then I should not be seeing them in the first place . now that is my opinion base on one side of the fence but from years of good and bad Doctors and how I have gotten better care as I go down my Stills path. Hugs all  the redneck Marty G. ________________________________  From:   Dr. Cush, phone consultation, 2nd opinions, & hurting your doctor's feelings I disagree, some people have good relationships with their Physicians and it may feel like to the patient that you would be hurting the docs feelings. As I had stated in an earlier email, if you have this good relationship with your doc then they will not mind listening to your concerns and discussing them with you, even if you ask for a second opinion the doctor will not get his/her feelings hurt. I know its hard when you have a long standing relationship with your doc, but they will understand, if they don't they do not have your best interests in mind. Phone consultations are not intended to be patient talking to a new doc on the phone, they are intended to be one specialist to another as a courtesy. It does not hurt for you to ask your Physician to make that call for you, mainly to see if the doctor they are consulting with thinks it would benefit you the patient to go and see this other doctor. The other thing that patients need to remember is that Physicians are in the practice of medicine, they do not know everything, and with Still's it is a diagnosis of exclusion, it is hard to diagnosis because it can look like several other autoimmune disorders. I have been on both sides of this fence, Physician now being the patient, it is not easy for me either, lots of frustration not knowing myself alot about Still's what the heck is going on. I worked in the ER for 25 years, I am not a Rheumatologist, that is why we have doctors who have specialize in different areas. This is just my opinion Take care everyone and have a good week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Marty, I need to enlist you as a good source of information from a patient side, you would make a great patient advocate. No need to get angry at any medical staff personnel, if they are not willing to help you, you need to find someone who will, even if it means finding yourself another doctor. Marty it is getting scary, we think to much alike, but I am in great company with you around!!! Take care, ________________________________   Messages in this topic (27) Recent Activity: * New Members 2 Visit Your Group Start a New Topic Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. MARKETPLACE Going Green: Your Yahoo! Groups resource for green living Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Permission granted. well that is tell I get P.O. and want to reach out and choke someone! then maybe I would not be good in doing that. would be a time of do as I say not as I do. LMAO! Hugs  the redneck Marty G. ________________________________ From:   Re: Dr. Cush, phone consultation, 2nd opinions, & hurting your doctor's feelings Marty, I need to enlist you as a good source of information from a patient side, you would make a great patient advocate. No need to get angry at any medical staff personnel, if they are not willing to help you, you need to find someone who will, even if it means finding yourself another doctor. Marty it is getting scary, we think to much alike, but I am in great company with you around!!! Take care, ____________ _________ _________ __   Messages in this topic (27) Recent Activity: * New Members 2 Visit Your Group Start a New Topic Visit the Still's Disease Message Board http://disc. server.com/ Indices/148599. html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. MARKETPLACE Going Green: Your Yahoo! Groups resource for green living Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
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