Re: New member with questions....

[Guest guest]

Thank you for your quick response. I will try the leg elevation and

compresses now that he is on Christmas break. He has been off ALL medication

for 4 wks except for the prednisone that was given 2 1/2 wks ago. As he was

tapering down he had a HUGE flare again 2 days ago and they have since slightly

resolved. In your experience with EN, How often are children affected? Why are

more women affected than men?

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> > Hi I am a mother of a 17 y/o son who has just recently been diagnosed with

EN. It started about 8wks ago with joint and muscle aches that we thought were

due to medication for his acne. He was taking Soladyn with high doses of Vit A.

We went to dermatologist and he switched his medication to Amoxicillin 500 mg

3x/day. Within a week my son started getting the red nodules. I was not

informed of them until he had had them for 3-4 wks. He just thought they were

bruises that would go away. I got him into our PCP who put him on Bactrim for

any type of infection and he was still erupting with the nodules. He sent us

back to the dermatologist who did a punch biopsy to confirm diagnosis and put on

prednisone for 15 days. He said he can say he does not think it is due to a

reaction to his medicine. He is on his last day of prednisone and it still has

not stopped it in its tracks. They did do blood work and his CBC's were within

normal limits. His ensinophils (sp) were elevated which the dr. did not seem to

concerned. I am really starting to panic. The more I read about it the more I

realize it is rare and even more rare for boys. We saw our PCP again today, I

was hoping he would be a little more aggressive in trying to rule out a cause

but as of right now we are playing the waiting game for 2 more weeks. Does

anyone have any suggestions or tips? Should I be concerned about the

possibility of malignancy and make the doctors take a closer look.

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> > Thanks

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