Re: Ok the article is OUT NYT

[Guest guest]

Registered posters can also recommend posts. Currently, the post with highest number of reader recommendations is :"Living with someone who blows up at you for clearing your throat, breathing, and chewing can be just as anxiety provoking." If you would rather not see that post in first place of reader recommendations, go recommend other posts. To: Soundsensitivity Sent: Tuesday, September 6, 2011 10:56 PMSubject: Re: Ok the article is OUT NYT

Terrific! I found it a bit overwhelming, take it easy, be relaxed if possible haha and be honest of course.

EVERYONE should go comment on tHIS article in NYT, please do it, it will increase the visibility. If ALL of you do this, there will be 1500 plus comments

Dr J

[Guest guest]

Hello everyone! I'm a "new person" - I came across the article in the NYT yesterday and have been reading the website and other articles. It's pretty amazing after 48 plus years to discover there are many others who have this condition. My grown daughter suffers from it as well, as did my father, so I figured there might be a genetic component. But I'd never heard of anyone else. So nice to know we are not alone! (Though not so nice to know others suffer and that there is no cure.)I would comment on the NYT article, but can't figure out how. I tried for a long time last night but couldn't find the comments.Ann

Terrific! I found it a bit overwhelming, take it easy, be relaxed if possible haha and be honest of course.

EVERYONE should go comment on tHIS article in NYT, please do it, it will increase the visibility. If ALL of you do this, there will be 1500 plus comments

Dr J

> >

> > > Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just "too sensitive." This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!

> > >

> > >

> >

>

[Guest guest]

Welcome aboard! There are lots of us like you, who went through decades of

thinking we were the only ones, until finding out about misophonia on the

Internet. It's a great feeling when you suddenly realise you are not alone!

The NYT comments are on the left near the top of the article, where it says

" Well " , just under the yellow picture of someone blowing bubble gum.

> > > >

> > > > > Just want to THANK YOU for writing this article. I have had Misophonia

for 28 years without ever knowing what it was or that it had a name (I always

assumed it was part of PTSD I had-- which I've been cured of, except for the

continued problem with chewing sounds). I sent this article right away to my

parents (I couldn't eat dinner with my dad for years and had so many screaming

fights with him as a teenager) and my husband so they know I'm not just " too

sensitive. " This explains why I have to get up and move to a different table

when dining out if the person sitting at the table nearby is chewing too loudly

and why I've had to move out of a few different apartments due to low-pitched

humming noises no one else can hear. Thank you so much!!

> > > > >

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Wow, Adah! I can’t believe we are finally getting this out to the public in mass quantity! Thank you for all you do—seeing doctors, being a guinea pig, and now going on national television! (Plus I get to see who you are after all these years of being in the group together! Thank you so much! Kathy Howe From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of adah_123Sent: Tuesday, September 06, 2011 11:33 PMTo: Soundsensitivity Subject: Re: Ok the article is OUT NYT That's fantastic! NBC is sending an interviewer to me tomorrow morning and will be showing the taped piece (I guess) while you are live. We are finally getting some good attention and taking this secret from shame to medicine. I'm scared too but it's great for us!!! Thank you all for all your efforts. Joyce Cohen has received my thanks too . . .> > > Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just " too sensitive. " This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!> > > >>

[Guest guest]

BTW, for those who came or are part of the Hyperacusis Network, we are taking

quite a bashing over there. The main moderator is, well, doing his thing. It

would be helpful for me if some of you, if you feel like, might take a moment if

you ARE on the board, and try to help illuminate the place of darkness that just

will not leave that site, so sad about that.

It seems like a kind of personal vendetta.

Sorry to bring this in light of such great news but again, this has been the

long standing case over there.

Ok, any brave souls, thanks in advance.

Dr J

[Guest guest]

I was wondering about him…he must be beside himself that misophonia is getting attention (since he feels we aren’t worthy!) From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Wednesday, September 07, 2011 6:36 PMTo: Soundsensitivity Subject: Re: Ok the article is OUT NYT BTW, for those who came or are part of the Hyperacusis Network, we are taking quite a bashing over there. The main moderator is, well, doing his thing. It would be helpful for me if some of you, if you feel like, might take a moment if you ARE on the board, and try to help illuminate the place of darkness that just will not leave that site, so sad about that. It seems like a kind of personal vendetta.Sorry to bring this in light of such great news but again, this has been the long standing case over there.Ok, any brave souls, thanks in advance.Dr J

[Guest guest]

Good grief. I'll go take a look and see what I can do.

>

> BTW, for those who came or are part of the Hyperacusis Network, we are taking

quite a bashing over there. The main moderator is, well, doing his thing. It

would be helpful for me if some of you, if you feel like, might take a moment if

you ARE on the board, and try to help illuminate the place of darkness that just

will not leave that site, so sad about that.

>

> It seems like a kind of personal vendetta.

>

> Sorry to bring this in light of such great news but again, this has been the

long standing case over there.

>

> Ok, any brave souls, thanks in advance.

>

> Dr J

>

[Guest guest]

Gird your loins, gizmookie, Rob is really worked up.To: Soundsensitivity Sent: Wednesday, September 7, 2011 5:58 PMSubject: Re: Ok the article is OUT NYT

Good grief. I'll go take a look and see what I can do.

>

> BTW, for those who came or are part of the Hyperacusis Network, we are taking quite a bashing over there. The main moderator is, well, doing his thing. It would be helpful for me if some of you, if you feel like, might take a moment if you ARE on the board, and try to help illuminate the place of darkness that just will not leave that site, so sad about that.

>

> It seems like a kind of personal vendetta.

>

> Sorry to bring this in light of such great news but again, this has been the long standing case over there.

>

> Ok, any brave souls, thanks in advance.

>

> Dr J

>

[Guest guest]

What exactly has this person/these people so upset? I'm not on that board...

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

Gird your loins, gizmookie, Rob is really worked up.

To: Soundsensitivity Sent: Wednesday, September 7, 2011 5:58 PM

Subject: Re: Ok the article is OUT NYT

 

Good grief. I'll go take a look and see what I can do.

>

> BTW, for those who came or are part of the Hyperacusis Network, we are taking quite a bashing over there. The main moderator is, well, doing his thing. It would be helpful for me if some of you, if you feel like, might take a moment if you ARE on the board, and try to help illuminate the place of darkness that just will not leave that site, so sad about that.

>

> It seems like a kind of personal vendetta.

>

> Sorry to bring this in light of such great news but again, this has been the long standing case over there.

>

> Ok, any brave souls, thanks in advance.

>

> Dr J

>

[Guest guest]

I just went and found the board and the thread.And oh my goodness.First reaction was " let me create an account and set this guy straight "

The very next thought was " it won't do any good--he's acting like a child and no amount of discussing or arguing will change his mind " Not worth it to put my energy into it. Someday he will see he is wrong and doesn't know it all.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

What exactly has this person/these people so upset? I'm not on that board...

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

Gird your loins, gizmookie, Rob is really worked up.

To: Soundsensitivity Sent: Wednesday, September 7, 2011 5:58 PM

Subject: Re: Ok the article is OUT NYT

 

Good grief. I'll go take a look and see what I can do.

>

> BTW, for those who came or are part of the Hyperacusis Network, we are taking quite a bashing over there. The main moderator is, well, doing his thing. It would be helpful for me if some of you, if you feel like, might take a moment if you ARE on the board, and try to help illuminate the place of darkness that just will not leave that site, so sad about that.

>

> It seems like a kind of personal vendetta.

>

> Sorry to bring this in light of such great news but again, this has been the long standing case over there.

>

> Ok, any brave souls, thanks in advance.

>

> Dr J

>

[Guest guest]

Wow Heidi,

I'm in a whirlwind, and a bit out of the loop of conversations on this group

as I've just discovered it this morning. I had no idea until the last couple of

days that there were others like me, and have been convinced that I may just be

an awful passive aggressive, control freak.

I hope you have a fabulous trip to NY, and all the confidence of a bonafide

weirdo I've had severe " misophonia " for 16 years. Only in the last couple

of years have I even built up the courage to tell close friends in hopes for

some sensitivity or understanding. I imagine you may have felt this as well,

and suffered from resentment from people who are not happy after a while to be

conscious of their effect on you. I'm not sure what your roll on the show will

be, but I hope you'll enjoy the time to speak out in a no-apologies manner!

Take care,

audrey

>

> > Just want to THANK YOU for writing this article. I have had Misophonia for

28 years without ever knowing what it was or that it had a name (I always

assumed it was part of PTSD I had-- which I've been cured of, except for the

continued problem with chewing sounds). I sent this article right away to my

parents (I couldn't eat dinner with my dad for years and had so many screaming

fights with him as a teenager) and my husband so they know I'm not just " too

sensitive. " This explains why I have to get up and move to a different table

when dining out if the person sitting at the table nearby is chewing too loudly

and why I've had to move out of a few different apartments due to low-pitched

humming noises no one else can hear. Thank you so much!!

> >

> >

>

[Guest guest]

I posted comments to the article. Some of the comments were downright rude. If people only knew what we are going through. Right now my oldest just started college, and she is already having issues with her roommate's noises. This should be a happy time for her, and it's not, and I don't know how to help her. Worse, since I have it too, I feel like it's my fault she has this awful cursed condition! It's maddening.

[Guest guest]

Haahahahahaha! When is he not worked up? I'm convinced he wouldn't ever like

any article unless he wrote it himself!

> >

> > BTW, for those who came or are part of the Hyperacusis Network, we are

taking quite a bashing over there. The main moderator is, well, doing his

thing. It would be helpful for me if some of you, if you feel like, might take

a moment if you ARE on the board, and try to help illuminate the place of

darkness that just will not leave that site, so sad about that.

> >

> > It seems like a kind of personal vendetta.

> >

> > Sorry to bring this in light of such great news but again, this has been the

long standing case over there.

> >

> > Ok, any brave souls, thanks in advance.

> >

> > Dr J

> >

>

[Guest guest]

sarah, the battle over on the HN has been going for YEARS. The board there is

really for those with hyperacusis/tinnitus, but some with misophonia were there

in the beginning... until most were chased away by the constant arguing. Long

story short, a certain person there seems to believe he knows everything there

is to know about Misophonia and refuses to see the good in this article, but

rather points out all the " dead wrong " things.

He has a right to his opinion, but whenever Dr. J posts anything there, he jumps

on the personal war bandwagon with her and it's really quite irritating. Like

Dr. J said, it really seems like a personal vendetta he has with her. I believe

he wants to help those with misophonia, he just doesn't approach it in the right

way. He's very knowledgeable but he's not a doctor. He did help me a great

deal personally to learn CBT when I was one of the few remaining misophonics

left on that site so I am grateful to him for that. However, I wish he would

stop being so judgmental towards Dr. J and now the author of this article.

Unless you enjoy confrontation, arguing, constantly being grilled, and having

your own words edited, I'd avoid that website! Ha ha.

> > >

> > > BTW, for those who came or are part of the Hyperacusis Network, we are

> > taking quite a bashing over there. The main moderator is, well, doing his

> > thing. It would be helpful for me if some of you, if you feel like, might

> > take a moment if you ARE on the board, and try to help illuminate the place

> > of darkness that just will not leave that site, so sad about that.

> > >

> > > It seems like a kind of personal vendetta.

> > >

> > > Sorry to bring this in light of such great news but again, this has been

> > the long standing case over there.

> > >

> > > Ok, any brave souls, thanks in advance.

> > >

> > > Dr J

> > >

> >

> >

> >

> >

> >

>

[Guest guest]

Welcome Ann,

My mother had this problem and so does my 33 year old daughter.

Could go back much further but I will never know.

Mike

To: Soundsensitivity Sent: Wednesday, September 7, 2011 5:12 AMSubject: Re: Re: Ok the article is OUT NYT

Hello everyone! I'm a "new person" - I came across the article in the NYT yesterday and have been reading the website and other articles. It's pretty amazing after 48 plus years to discover there are many others who have this condition. My grown daughter suffers from it as well, as did my father, so I figured there might be a genetic component. But I'd never heard of anyone else. So nice to know we are not alone! (Though not so nice to know others suffer and that there is no cure.)

I would comment on the NYT article, but can't figure out how. I tried for a long time last night but couldn't find the comments.

Ann

Terrific! I found it a bit overwhelming, take it easy, be relaxed if possible haha and be honest of course. EVERYONE should go comment on tHIS article in NYT, please do it, it will increase the visibility. If ALL of you do this, there will be 1500 plus commentsDr J> > > > > Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I

had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just "too sensitive." This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!> > > > > >> >>