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Re: Ok the article is OUT NYT

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My friend from the City posted it on his Facebook wall for all to see and

mentioned his friend suffers from Misophonia. I thanked him on behalf of my

daughter and then just posted it on my FB wall. People are already commenting.

They had no idea what it is like for my daughter and how it is living with her!

Kudos to the NY Times for this coverage!

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Hi Marsha

This is wonderful. People all over the world read the NY Times. I posted my

comment and printed the article out to show to all people who never really

understood the condition when I tried to explain it.

With sincere appreciation

Elaine

> >

> > Here is the address, good job Joyce!

> >

> > http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1

> >

>

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And Great Thanks to Adah, , Heidi and Donna.Bravo!To: Soundsensitivity Sent: Monday, September 5, 2011 6:01 PMSubject: Re: Ok the article is OUT NYT

Hi Marsha

This is wonderful. People all over the world read the NY Times. I posted my comment and printed the article out to show to all people who never really understood the condition when I tried to explain it.

With sincere appreciation

Elaine

> >

> > Here is the address, good job Joyce!

> >

> > http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1

> >

>

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I posted it on my facebook page and got one response. That friend posted it on her wall and has had 6 people already say they think they have it!  Spreading the word!  Thanks to the NYT and all that had a hand in the article. 

 

And Great Thanks to Adah, , Heidi and Donna.Bravo!

To: Soundsensitivity Sent: Monday, September 5, 2011 6:01 PM

Subject: Re: Ok the article is OUT NYT

 

Hi Marsha

This is wonderful. People all over the world read the NY Times. I posted my comment and printed the article out to show to all people who never really understood the condition when I tried to explain it.

With sincere appreciation

Elaine

> >

> > Here is the address, good job Joyce!

> >

> > http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1

> >

>

-- UK Mobile:  +44.7771.805.732

US Mobile: +1.Skype: +1.

Skype: stacy.c.anderson " To understand the world, you must first understand a place like Mississippi. " ~ Faulkner

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I am not sure but if you were to translate it and reference back to the NYT I believe it should be ok. As long as you don’t change the article that is. Best to get in contact with them, if you would like assistance please let me know and I would be happy to help. Thanks From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Camilo EidSent: Tuesday, 6 September 2011 9:33 AMTo: Soundsensitivity Subject: Re: Re: Ok the article is OUT NYT I would like to do a translation to spanish language, does anyone knows how it has to be done ? ask permission to NYT ? Best regards, Camilo.

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Hi everyone,

A compassionate friend who knows I deal with this just pointed the article out

to me. I haven't been on this board since my contract job wound up in late April

(I literally RAN out of there and have been extremely happy to be rid of my

tormenter), but was so excited I wanted to log on and say Thank You! and WELL

DONE to everyone who participated. How exciting and validating. This will be

hugely helpful to people in so many ways. It's a big step forward!

Jay

>

> Here is the address, good job Joyce!

>

> http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1

>

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Please everyone try to add comment. I would hate to see too many of the comments end up being dismissive or even insulting. When you register for commenting, the NYT assures that your email address will remain confidential. You have to use a user name to submit the comment but the username can be just about any name you come up with or initials. To: Soundsensitivity Sent: Monday, September 5, 2011 5:04 PMSubject: Re: Ok the article is OUT NYT

You all should go over there to the NYT and read it and then COMMENT ON IT IN THE little box, let the world KNOW what you are going thru, here is YOUR Chance.

>

> Here is the address, good job Joyce!

>

> http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1

>

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Just want to THANK YOU for writing this article. I have had Misophonia for 28

years without ever knowing what it was or that it had a name (I always assumed

it was part of PTSD I had-- which I've been cured of, except for the continued

problem with chewing sounds). I sent this article right away to my parents (I

couldn't eat dinner with my dad for years and had so many screaming fights with

him as a teenager) and my husband so they know I'm not just " too sensitive. "

This explains why I have to get up and move to a different table when dining out

if the person sitting at the table nearby is chewing too loudly and why I've had

to move out of a few different apartments due to low-pitched humming noises no

one else can hear. Thank you so much!!

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The Today show is doing a follow up on the story Thursday morning. I'm excited to fly to New York and can't wait to met Dr. in person and thank her for for acknowledging us and working so hard to help us. Admitting my biggest secret to the Nation is a bit daunting but I'm hoping it helps find more sufferers so they aren't alone and interest some medical research in the field.Heidi:)Sent from my iPhone

Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just "too sensitive." This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!

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WOW!  that is great news!  i live in the uk so wont be able to see it - but hopefully i can find it online.  i wish you the very best of luck!  and congratulations! :-)

 

The Today show is doing a follow up on the story Thursday morning. I'm excited to fly to New York and can't wait to met Dr. in person and thank her for for acknowledging us and working so hard to help us. 

Admitting my biggest secret to the Nation is a bit daunting but I'm hoping it helps find more sufferers so they aren't alone and interest some medical research in the field.

Heidi:)Sent from my iPhone

 

Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just " too sensitive. " This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!

-- UK Mobile:  +44.7771.805.732

US Mobile: +1.Skype: +1.

Skype: stacy.c.anderson " To understand the world, you must first understand a place like Mississippi. " ~ Faulkner

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WOW. Heidi this is fantastic. I live in New York City but unfortunately I have

to go to work or else I would love to meet you and Dr after the show to

thank you in person. You are my heroes !

Is there a way for someone to record this part of the broadcast and post it here

or on youtube so we all can see it?

Best regards,

Elaine

>

> > Just want to THANK YOU for writing this article. I have had Misophonia for

28 years without ever knowing what it was or that it had a name (I always

assumed it was part of PTSD I had-- which I've been cured of, except for the

continued problem with chewing sounds). I sent this article right away to my

parents (I couldn't eat dinner with my dad for years and had so many screaming

fights with him as a teenager) and my husband so they know I'm not just " too

sensitive. " This explains why I have to get up and move to a different table

when dining out if the person sitting at the table nearby is chewing too loudly

and why I've had to move out of a few different apartments due to low-pitched

humming noises no one else can hear. Thank you so much!!

> >

> >

>

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Wow!  That’s great Heidi!!  I will be watching.  Thank you so much for going on and talking about it.  This is so exciting! It’s an answer to prayer.  We have come so far over the past 6 years!! THANKS! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Heidi SalernoSent: Tuesday, September 06, 2011 7:07 PMTo: Soundsensitivity Subject: Re: Re: Ok the article is OUT NYT The Today show is doing a follow up on the story Thursday morning. I'm excited to fly to New York and can't wait to met Dr. in person and thank her for for acknowledging us and working so hard to help us. Admitting my biggest secret to the Nation is a bit daunting but I'm hoping it helps find more sufferers so they aren't alone and interest some medical research in the field. Heidi:) Sent from my iPhone Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just " too sensitive. " This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!

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I was thrilled when my son found this article and forwarded it to me!!! Only

about a month ago, I found out that there was a name for how these things annoy

me. It has been a constant source of amusement for my husband and kids that

mouth noises and repetitive noises (the windshield wipers drive me nuts!) annoy

me!

Thank you, thank you, thank you so much!!!!!!!!!!!!!!

>

> Here is the address, good job Joyce!

>

> http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1

>

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Can you discuss the issue of misophonia and school? I have this and aboutcto

drop out or kill myself. I wish for others to be aware of how it impacks ones

life. Thank you! I am so happy I am crying!

>

> > Just want to THANK YOU for writing this article. I have had Misophonia for

28 years without ever knowing what it was or that it had a name (I always

assumed it was part of PTSD I had-- which I've been cured of, except for the

continued problem with chewing sounds). I sent this article right away to my

parents (I couldn't eat dinner with my dad for years and had so many screaming

fights with him as a teenager) and my husband so they know I'm not just " too

sensitive. " This explains why I have to get up and move to a different table

when dining out if the person sitting at the table nearby is chewing too loudly

and why I've had to move out of a few different apartments due to low-pitched

humming noises no one else can hear. Thank you so much!!

> >

> >

>

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That's fantastic! NBC is sending an interviewer to me tomorrow morning and will

be showing the taped piece (I guess) while you are live. We are finally getting

some good attention and taking this secret from shame to medicine. I'm scared

too but it's great for us!!! Thank you all for all your efforts. Joyce Cohen

has received my thanks too . . .

>

> > Just want to THANK YOU for writing this article. I have had Misophonia for

28 years without ever knowing what it was or that it had a name (I always

assumed it was part of PTSD I had-- which I've been cured of, except for the

continued problem with chewing sounds). I sent this article right away to my

parents (I couldn't eat dinner with my dad for years and had so many screaming

fights with him as a teenager) and my husband so they know I'm not just " too

sensitive. " This explains why I have to get up and move to a different table

when dining out if the person sitting at the table nearby is chewing too loudly

and why I've had to move out of a few different apartments due to low-pitched

humming noises no one else can hear. Thank you so much!!

> >

> >

>

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Terrific! I found it a bit overwhelming, take it easy, be relaxed if possible

haha and be honest of course.

EVERYONE should go comment on tHIS article in NYT, please do it, it will

increase the visibility. If ALL of you do this, there will be 1500 plus

comments

Dr J

> >

> > > Just want to THANK YOU for writing this article. I have had Misophonia for

28 years without ever knowing what it was or that it had a name (I always

assumed it was part of PTSD I had-- which I've been cured of, except for the

continued problem with chewing sounds). I sent this article right away to my

parents (I couldn't eat dinner with my dad for years and had so many screaming

fights with him as a teenager) and my husband so they know I'm not just " too

sensitive. " This explains why I have to get up and move to a different table

when dining out if the person sitting at the table nearby is chewing too loudly

and why I've had to move out of a few different apartments due to low-pitched

humming noises no one else can hear. Thank you so much!!

> > >

> > >

> >

>

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Hang in there na, With this awareness there is hope that research will come through, and with research hopefully a cure.  I know things are rough for you right now, I remember what it was like back in high school, but search deep within yourself for the strength to carry through, I know you have it in you I have been following your posts in the past. I believe you can make it through this very tough time and will be rewarded hopefully in the near future with a cure.

I hope this for all of us. R

 

Can you discuss the issue of misophonia and school? I have this and aboutcto drop out or kill myself. I wish for others to be aware of how it impacks ones life. Thank you! I am so happy I am crying!

>

> > Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just " too sensitive. " This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!

> >

> >

>

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I hope so too. I have always hoped that things will stop coming one after

another. I have a foot deformity problem,asthma,hearing loss, constant sickness,

and more. I am so greatful for my loving and somewhat understanding family snd

friends. I explain and tell everyone. I want awareness, which is why I am so

happy.

> > >

> > > > Just want to THANK YOU for writing this article. I have had Misophonia

> > for 28 years without ever knowing what it was or that it had a name (I

> > always assumed it was part of PTSD I had-- which I've been cured of, except

> > for the continued problem with chewing sounds). I sent this article right

> > away to my parents (I couldn't eat dinner with my dad for years and had so

> > many screaming fights with him as a teenager) and my husband so they know

> > I'm not just " too sensitive. " This explains why I have to get up and move to

> > a different table when dining out if the person sitting at the table nearby

> > is chewing too loudly and why I've had to move out of a few different

> > apartments due to low-pitched humming noises no one else can hear. Thank you

> > so much!!

> > > >

> > > >

> > >

> >

> >

> >

>

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Registered posters can also recommend posts. Currently, the post with highest number of reader recommendations is :"Living with someone who blows up at you for clearing your throat, breathing, and chewing can be just as anxiety provoking." If you would rather not see that post in first place of reader recommendations, go recommend other posts. To: Soundsensitivity Sent: Tuesday, September 6, 2011 10:56 PMSubject: Re: Ok the article is OUT NYT

Terrific! I found it a bit overwhelming, take it easy, be relaxed if possible haha and be honest of course.

EVERYONE should go comment on tHIS article in NYT, please do it, it will increase the visibility. If ALL of you do this, there will be 1500 plus comments

Dr J

> >

> > > Just want to THANK YOU for writing this article. I have had Misophonia for 28 years without ever knowing what it was or that it had a name (I always assumed it was part of PTSD I had-- which I've been cured of, except for the continued problem with chewing sounds). I sent this article right away to my parents (I couldn't eat dinner with my dad for years and had so many screaming fights with him as a teenager) and my husband so they know I'm not just "too sensitive." This explains why I have to get up and move to a different table when dining out if the person sitting at the table nearby is chewing too loudly and why I've had to move out of a few different apartments due to low-pitched humming noises no one else can hear. Thank you so much!!

> > >

> > >

> >

>

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