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[Guest guest]

Hi trudi and all, I totally understand the pain and ordeal of making yourself put that first weight on my feet in the morning and your toilet trip, I lie and jig , then sit on the side of the bed and jig, trying to get my ankle to bend up and down so as can even try to weight bear. then its the dreaded toilet trip down the hall. I call it dreaded as the pain is excruitiating and as you said , really have to force myself up out of desperation to go to the toilet. (sadly often dont make it so is totally dreaded ) after the trip can walk slightly better not much though and next stop is meds for pain and coffee, rwst while that takes effect and then make myself get organised and move ( slightly frees up but if stay sitting will lock all including hips, tailbone, knees and ankles) So spend day alternating positions some up some down) Very tired as dont get

night sleep due to hip pain as we said earlier and also fatigued. Fall asleep at a drop of a hat in chair during the day though, wake up from stiffness hurting needing to move then nodd off again,. ( many coffees spilt by nodding holding them, lol) .Do you get pain in and around your tail/tailbone area too? esp when shifting weight, or grtting upfrom sitting?

I asked about the appendix as had mine out at about 8 yrs of age too, funny co incidence. They say the appendix has no use but was curious as thought that perhaps it did if we all didnt have one anymore, clutching at straws probably though.

I have swollen up heaps tonight and the itch is driving me crazy, can feel new tight bumps adding to the old ones, had a funny throat the other day so seems like a fresh outbreak on top again, feel really flat and overheating.The skin on my legs feels so tight it feels like it wants to burst.With little piggy toes out at the bottom... uuuggghhh,

Wish I could get them to give me some pred, I really need a break from this even if only for a short time. Even just long enough to get on top of some of the mess at home as it adds up when swelling and stiffness makes it too painful to walk, cant even fit my super sized crocs on tonight.

Hope you get some relief soon, all the best Jan (over in western australia)