Guest guest Posted March 3, 1999 Report Share Posted March 3, 1999 Jeanette, I have been on Doxepin for over 5 years. It was originally prescribed for I.C. Sometimes it can help both conditions, I.C. and VV. Unfortunately it has not helped the burning of VV at all, just frequency. Having said that we are all different in what we respond to so I would never discourage anyone from trying Doxepin. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 1999 Report Share Posted March 3, 1999 Jeanette, I have been on Doxepin for over 5 years. It was originally prescribed for I.C. Sometimes it can help both conditions, I.C. and VV. Unfortunately it has not helped the burning of VV at all, just frequency. Having said that we are all different in what we respond to so I would never discourage anyone from trying Doxepin. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 I have one more question ... What ever happened to the chat room ? I would love to be able to speak to more people .. Jeannette the5js wrote: > > > > > > ------------------------------------------------------------------------ > Start a new hobby. Meet a new friend. > http://www.onelist.com > Onelist: The leading provider of free email list services > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Do you mean Doxapin (sp?). If so, yes I tried it, but I couldn't handle the side effects. I felt like a zombie all day long. I slept real good.... that was the only good thing. the5js wrote: > > > Has anyone else ever put on dixopin for pain and did it > work. > Jeannette > > ------------------------------------------------------------------------ > Start a new hobby. Meet a new friend. > http://www.onelist.com > Onelist: The leading provider of free email list services > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Do you mean Doxapin (sp?). If so, yes I tried it, but I couldn't handle the side effects. I felt like a zombie all day long. I slept real good.... that was the only good thing. the5js wrote: > > > Has anyone else ever put on dixopin for pain and did it > work. > Jeannette > > ------------------------------------------------------------------------ > Start a new hobby. Meet a new friend. > http://www.onelist.com > Onelist: The leading provider of free email list services > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Hi Gail, I've been taking 75 mg since summer of 1995. I tapered up to it starting at 25 mg. 75 was where I got pain relief so that's where I've stayed. I had terrible insomnia from the stress of not knowing what I had. The Amitryptiline helped with that too. I hope you find something that gives you relief. It's a shame that we can't find something that will help all of us. Wishing you health and happiness, Sheri n a message dated 3/4/99 7:33:05 PM Eastern Standard Time, ps3v@... writes: << I've heard several people mention amitriptylline for pain. What dose are you taking. My previous doctor had me on 20mg and it really didn't help. She actually put me on it for sleep but alas, it didn't help that either. My sister is taking 150mg of desaril (not sure about the spelling) and she is getting some relief. I am trying a new dr. next week and would appreciate any advise as to what to ask for and how much. I know she has treated vv before, but I don't know with what or how much success. Thanks and healing wishes to all, Gail >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 From Deb at DLitzFletc@... Gail, The doses that people seem to be on for amitripthylene (elavil) vary from 20-125 mg per day. Relief and side effects appear to vary by individual. I started to have bothersome side effects at 75 mg and when I jumped to 100 mg and then 125 mg the side effects were such that I could not tolerate them long term (some people on list have been on it for two to five years). My v v s specialist felt that I a good candidate because me pain seems to be related to be pudendal nerve. I did get complete symptom relief, though I did not try to have sex and the doctor still felt that I was inflamed and sensitive to touch in the vestibule. My side effects included dry/sour mouth, weight gain, exhaustion that did not abate with large amounts of sleep, and irritability. My top dosage was 125 mg per day. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 From Deb at DLitzFletc@... Gail, The doses that people seem to be on for amitripthylene (elavil) vary from 20-125 mg per day. Relief and side effects appear to vary by individual. I started to have bothersome side effects at 75 mg and when I jumped to 100 mg and then 125 mg the side effects were such that I could not tolerate them long term (some people on list have been on it for two to five years). My v v s specialist felt that I a good candidate because me pain seems to be related to be pudendal nerve. I did get complete symptom relief, though I did not try to have sex and the doctor still felt that I was inflamed and sensitive to touch in the vestibule. My side effects included dry/sour mouth, weight gain, exhaustion that did not abate with large amounts of sleep, and irritability. My top dosage was 125 mg per day. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Gail, I would think that the doctor would increase the elavil to at least 50 mil. a night to see any improvement. The antidepressant you mentioned that your sister is taking is in the same class of antidepressant as elavil. I am taking Doxepin which is also similar and I am on 75 mil. at night. Good luck Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 Hi Gail, I took Elavil for years for fibro. It wasn't until I got off it that I got the vulvar pain. You should probably be taking 75 mg. I took that for 15 years without ill effects. Good lucl. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 Dear Gail; All the time I speak about my cure with Amitryptiline I say always something different from all the others, I use the medicine that you call elavil (in Italy has a different name but the active principle is the same) at 2 mg/day. Pratically is just a single drop that i take at bedtime. So low doses of Amitryptiline have as a side effect to make someone very nervous, I do not know why but this is what my doctor told me so, in parallel, I am taking also a sedative but even this one at a low dosage. By now I had positive results I am able to have intercourses with my boyfriend and I am 70% pain free, I remember you all that I have just poc caused by the fibromyalgia. My doctor told me that higher dosage of this medicine will cure the other symptoms of the fibro but will make worse the poc. I started taking this medicine in february and by now is ok, hope you find a cure that is good for you Chiara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 I take 75 mg and truthfully say I have no side effects. I initially had them but they all disappeared. The only one I still have is the weight gain but that's only because it's harder to lose it than it was to gain it. There's no new weight gain; just the old one hanging on. I think on any medicine you need to hang in there if it's helping the pain. At least in my case the side effects were temporary. Health and happiness, Sheri In a message dated 3/5/99 12:43:36 AM Eastern Standard Time, joannepd@... writes: << I took Elavil for years for fibro. It wasn't until I got off it that I got the vulvar pain. You should probably be taking 75 mg. I took that for 15 years without ill effects. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Gail, My doc put me on amitriptyline first and it helped a little at 10mg nightly. Then he switched me to a drug called Limbitrol which has several drugs mixed together and it has REALLY helped. I was up to 150mg daily and now down to 100mg because I was able to tolerate the pain on a lesser dosage. Ask your doc about it. It's good for me and it's inexpensive. Daina (DHC1962@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Gail, My doc put me on amitriptyline first and it helped a little at 10mg nightly. Then he switched me to a drug called Limbitrol which has several drugs mixed together and it has REALLY helped. I was up to 150mg daily and now down to 100mg because I was able to tolerate the pain on a lesser dosage. Ask your doc about it. It's good for me and it's inexpensive. Daina (DHC1962@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Good *luck* Akiba! I hope you find wonderous results with this new path. ) Have you considered the Fish Oil? Hugs, Challis Hey All Y'All, I'm making some radical changes in my care, taking back MY power, getting OFF the 16-or-so perscriptions they had me on and trying a more natural approach. I have been hearing about too many people dying from being on so many pain pills, the latest being a young woman whose stomach kinda expolded...nasty that... I ran out of my Copaxone almost a month ago and have noticed no changes there at all...and in the ensuing time I have run out of every other medication, progressively...and again, no changes. I have started a regime of vitamins, minerals and supplemts, I'll let you all know how it is going, so far so good...the reason I have been running out of meds is the lack of a medical card...I've been approved but the card is not here yet, and in this area it takes about 3 months to get a GP appointment!!!! I got my Neuro appt for Jan 18th, but cannot get a GP until MARCH!!!! Meanting, I am "drying out" of all those chemicals...I'm taking Bilberry, Vit E, Vit C, Calcium w/ Vit D, Flaxseed oil, Omega oils (Yukk) Ginko, Evening Primrose oil, B-12, B complex. It seems alot, and it is, but in the long run I think it will help me alot more then all those meds. I also cook with lots of garlic and only olive oil or real butter (or a mix of the two) I have always eaten healthy, love to cook and I have always thought of food as medicinal...so I am going back to walking my talk and taking the power of MY health away from the drug companies. Feedback from y'all is more then welcome...and I'll keep you up on how it's working. The ONLY "new" symptom is my right hand occasionally goes numb, but I can rub it or shake it and it goes away...I can live with that... SOOOO, Merry Christmas/Happy Hanukkah/Feliz Kwanzaa/ Merry Yule...whatever you celebrate, hope it's a good one!!!! Peace & Blessings~*~Akiba ~*~Pragmatic VisionaryAIM ~ AkybaICQ 59094928MSN ~ akyba@...Yahoo~ AkybaI have the perfect Goddess body.....Venus.....(of Willendorf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Yeah, that's the Omega stuff...also I am starting up having a can of sardines every day (I like 'em with hot salsa and saltines...) Peace & Blessings~*~Akiba ~*~Pragmatic VisionaryAIM ~ AkybaICQ 59094928MSN ~ akyba@...Yahoo~ AkybaI have the perfect Goddess body.....Venus.....(of Willendorf) Re: meds Good *luck* Akiba! I hope you find wonderous results with this new path. ) Have you considered the Fish Oil? Hugs, Challis Hey All Y'All, I'm making some radical changes in my care, taking back MY power, getting OFF the 16-or-so perscriptions they had me on and trying a more natural approach. I have been hearing about too many people dying from being on so many pain pills, the latest being a young woman whose stomach kinda expolded...nasty that... I ran out of my Copaxone almost a month ago and have noticed no changes there at all...and in the ensuing time I have run out of every other medication, progressively...and again, no changes. I have started a regime of vitamins, minerals and supplemts, I'll let you all know how it is going, so far so good...the reason I have been running out of meds is the lack of a medical card...I've been approved but the card is not here yet, and in this area it takes about 3 months to get a GP appointment!!!! I got my Neuro appt for Jan 18th, but cannot get a GP until MARCH!!!! Meanting, I am "drying out" of all those chemicals...I'm taking Bilberry, Vit E, Vit C, Calcium w/ Vit D, Flaxseed oil, Omega oils (Yukk) Ginko, Evening Primrose oil, B-12, B complex. It seems alot, and it is, but in the long run I think it will help me alot more then all those meds. I also cook with lots of garlic and only olive oil or real butter (or a mix of the two) I have always eaten healthy, love to cook and I have aways thought of food as medicinal...so I am going back to walking my talk and taking the power of MY health away from the drug companies. Feedback from y'all is more then welcome...and I'll keep you up on how it's working. The ONLY "new" symptom is my right hand occasionally goes numb, but I can rub it or shake it and it goes away...I can live with that... SOOOO, Merry Christmas/Happy Hanukkah/Feliz Kwanzaa/ Merry Yule...whatever you celebrate, hope it's a good one!!!! Peace & Blessings~*~Akiba ~*~Pragmatic VisionaryAIM ~ AkybaICQ 59094928MSN ~ akyba@...Yahoo~ AkybaI have the perfect Goddess body.....Venus.....(of Willendorf) No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.296 / Virus Database: 265.6.0 - Release Date: 12/17/2004 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.296 / Virus Database: 265.6.0 - Release Date: 12/17/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 I figure when I finally get to see the neuro I will probably go back on the shots but not all the rest of the stuff...I know he's going to insist on them and that's ok, but it will also be telling if I go two months without an exascerbation, or shots...I'm going to ask about LDN, see where that road might go.... Peace & Blessings~*~Akiba ~*~Pragmatic VisionaryAIM ~ AkybaICQ 59094928MSN ~ akyba@...Yahoo~ AkybaI have the perfect Goddess body.....Venus.....(of Willendorf) Re: meds I agree totally with taking less oral meds but your M.S. WORKS IN THE DARK KILLING NERVE CELLS and the copaxone prevents anymore damage. Please at least take that I to miss shots occasionally and I am not too worried but once a cell is gone and destroyed they can't repair it becareful please. God Bless You. WWW.PAMPEREDCHEF.BIZ/MONEYORDER ONLINE THROUGH DECEMBER 22ND AND RECIEVE ORDER BY CHRISTMAS!!! 1 IN 5 PEOPLE WILL RECIEVE ALL THE HOST BENIFITS OF A CATALOG SHOW!!! GOOD LUCK! No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.296 / Virus Database: 265.6.0 - Release Date: 12/17/2004 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.296 / Virus Database: 265.6.0 - Release Date: 12/17/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 Hot sauce goes with everything! LOL Challis Yeah, that's the Omega stuff...also I am starting up having a can of sardines every day (I like 'em with hot salsa and saltines...) Peace & Blessings~*~Akiba ~*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Akiba, good luck with the changes. I hope it works for you. Happy Holidays to you too. Thanks, ShirleyAkiba wrote: Hey All Y'All, I'm making some radical changes in my care, taking back MY power, getting OFF the 16-or-so perscriptions they had me on and trying a more natural approach. I have been hearing about too many people dying from being on so many pain pills, the latest being a young woman whose stomach kinda expolded...nasty that... I ran out of my Copaxone almost a month ago and have noticed no changes there at all...and in the ensuing time I have run out of every other medication, progressively...and again, no changes. I have started a regime of vitamins, minerals and supplemts, I'll let you all know how it is going, so far so good...the reason I have been running out of meds is the lack of a medical card...I've been approved but the card is not here yet, and in this area it takes about 3 months to get a GP appointment!!!! I got my Neuro appt for Jan 18th, but cannot get a GP until MARCH!!!! Meanting, I am "drying out" of all those chemicals...I'm taking Bilberry, Vit E, Vit C, Calcium w/ Vit D, Flaxseed oil, Omega oils (Yukk) Ginko, Evening Primrose oil, B-12, B complex. It seems alot, and it is, but in the long run I think it will help me alot more then all those meds. I also cook with lots of garlic and only olive oil or real butter (or a mix of the two) I have always eaten healthy, love to cook and I have always thought of food as medicinal...so I am going back to walking my talk and taking the power of MY health away from the drug companies. Feedback from y'all is more then welcome...and I'll keep you up on how it's working. The ONLY "new" symptom is my right hand occasionally goes numb, but I can rub it or shake it and it goes away...I can live with that... SOOOO, Merry Christmas/Happy Hanukkah/Feliz Kwanzaa/ Merry Yule...whatever you celebrate, hope it's a good one!!!! Peace & Blessings~*~Akiba ~*~Pragmatic VisionaryAIM ~ AkybaICQ 59094928MSN ~ akyba@...Yahoo~ AkybaI have the perfect Goddess body.....Venus.....(of Willendorf) No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.296 / Virus Database: 265.6.0 - Release Date: 12/17/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004  RE: meds Well THAT's comforting, I was hoping my research was correct...BTW there IS a bit of a silver lining to getting off the meds...I was on an anti-depressant, fairly strong dose (lexapro 20, the usual is 10) and with clearing it out of my system my libido has re-awakened (I know Too Much Info) but it is a very happy side-effect :-) I was also on Celebrex, 200 2x a day, exactly the dose they said would really iincrease the stroke/heart attack possibility...and yes, I was feeling tightness aroung the heart...I stopped the celebrex the day before this whole thing hit te news...timing huh? I didn't stop because I was out, either, I just had the feeling to stop so I did... Merry Yulechanukkaholidays... Akiba! Everything that you are taking is EXACTLY what my Healing and Wellness doctor told me to take, including lots of garlic and olive oil, and real butter. I have never in my life taken medications, and now I’m on about 16, too. I am starting rebif Friday. I am planning to cut down on all the medications and I am keeping a journal of daily life. Thank you for sharing this, and keep us up to date. Prayers to you… ~ cyd Ӫ Akiba, good luck with the changes. I hope it works for you. Happy Holidays to you too. Thanks, ShirleyAkiba wrote: Hey All Y'All, I'm making some radical changes in my care, taking back MY power, getting OFF the 16-or-so perscriptions they had me on and trying a more natural approach. I have been hearing about too many people dying from being on so many pain pills, the latest being a young woman whose stomach kinda expolded...nasty that... I ran out of my Copaxone almost a month ago and have noticed no changes there at all...and in the ensuing time I have run out of every other medication, progressively...and again, no changes. I have started a regime of vitamins, minerals and supplemts, I'll let you all know how it is going, so far so good...the reason I have been running out of meds is the lack of a medical card...I've been approved but the card is not here yet, and in this area it takes about 3 months to get a GP appointment!!!! I got my Neuro appt for Jan 18th, but cannot get a GP until MARCH!!!! Meanting, I am "drying out" of all those chemicals...I'm taking Bilberry, Vit E, Vit C, Calcium w/ Vit D, Flaxseed oil, Omega oils (Yukk) Ginko, Evening Primrose oil, B-12, B complex. It seems alot, and it is, but in the long run I think it will help me alot more then all those meds. I also cook with lots of garlic and only olive oil or real butter (or a mix of the two) I have always eaten healthy, love to cook and I have always thought of food as medicinal...so I am going back to walking my talk and taking the power of MY health away from the drug companies. Feedback from y'all is more then welcome...and I'll keep you up on how it's working. The ONLY "new" symptom is my right hand occasionally goes numb, but I can rub it or shake it and it goes away...I can live with that... SOOOO, Merry Christmas/Happy Hanukkah/Feliz Kwanzaa/ Merry Yule...whatever you celebrate, hope it's a good one!!!! Peace & Blessings~*~Akiba ~*~Pragmatic VisionaryAIM ~ AkybaICQ 59094928MSN ~ akyba@...Yahoo~ AkybaI have the perfect Goddess body.....Venus.....(of Willendorf) No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.298 / Virus Database: 265.6.4 - Release Date: 12/22/2004 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.298 / Virus Database: 265.6.4 - Release Date: 12/22/2004 Quote Link to comment Share on other sites More sharing options...
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