Re: hello everyone

[Guest guest]

Hi

My name is , I'm 35 and from Washington state.

I think this is a good place to vent and ramble. Everyone here can understand

pain and how it can affect one's life! I hear you though, I rarely talk about my

problems for fear I'll be accused of complaining. I have ME, fibromyalgia, and

herniated discs in my lower back. I take Vicodin for the pain. Sometimes it

makes me feel like a " stoner " but without it I could barely move! I had to go to

the ER recently and the doc that treated me was surprised I hadn't had surgery

yet. Yikes...the dreaded " S " word!

Have you ever considered acupuncture treatments? I take those and it is amazing

how it helps. It also helps my chronic nausea too. I feel lucky that my

insurance covers the treatments. It doesn't help the big time pain but it takes

away my achiness and malaise.

Just a thought!

Well I hope you have a happy New Year!!!

Makepeace wrote:

Hello everyone. My name is , I'm 28 and live in London...but

I'm originally from the U.S.

[Guest guest]

Welcome to the group .

Unfortunately, Dicloflex, like other anti inflammatory meds, is really hard of

the body. It's a shame because so many of them do a good job of knocking back

the pain. I can no longer take any anti inflammatories (other than the

occasional coated aspirin) because they wreak too much havoc on my digestive

system.

I trust your physician is running regular tests to make sure your liver function

is okay. Please watch out for tummy problems too. Most of the anti

inflammatories can cause serious ulcers as well.

Ah the joys of side effects -- there's nothing like 'em! :-)

--

Lyndi

Makepeace wrote: <snipped>

> Thankfully my rheumatoid test came back normal, but at the same time

> she told me that I couldn't take my meds long term.

>

> I was taking 150mg of Dicloflex. I cut down to 100mg and I've been

> taking Ibuprofin w/Codeine...but I'm still in pain. The pain isn't as

> bad as it was without the meds altogether...but its bad and wears on

> me. It doesn't help I live on a second floor flat with only stairs

> and my knees make crunching sounds....ick!

[Guest guest]

Hi Lyndi and thanks :-)

I really don't know much about arthritis....if you can't take these

anti-inflamatories long-term..then what do people do? I can't imagine going back

to the pain I was in. My husband and I are thinking that when we move next Fall

we are going to have to get a place with no stairs.

Being in pain all the time does a number on my mood and energy level. Sometimes

I feel so guilty....I have a 6 year old daughter...and she see's me suffer.

Are there other treatments for the pain that don't mess up your body like the

anti-inflamatories?

[Guest guest]

Hi Kathleen,

I've only been diagnosed with Chrondromalacia...but my doctor was concerned that

it might be more because I suffer from pain in many joints...not just my knees.

She ran some tests a few weeks ago...I know one was for rheumatoid

arthritis...but it came back normal. From what I can see it looks like I have

osteo-arthritis. I have an appointment with her next week to discuss things

further.

She had me cut back on my anti-inflamatories and now I'm not doing so well. I

guess everyone here knows what its like to be in pain constantly. I'm doing my

best to deal with it...and I do admit the pain is 100 times worse without any

anti-inflamatories...so that gives me some perspective.

As for London...well I got married this past July :-) My husband is British and

we decided to live here. Its a beautiful city and I already feel at home here.

Nice to meet you :-) I can already tell this is a great group.

[Guest guest]

Hello ,

Sorry you are in such pain. Welcome to the group. Maybe you should go to some

type of specialist that can help you figure out why you are in so much pain? Do

you have insurance or anything?

I know how you feel not talking about your pain much at home. Everyone flinches

if I bring up mine so I pretty much keep it to myself. Thats what this group is

good for!

Take care,

Caitlin

Makepeace wrote:

I've been dealing with chronic joint pain for a few years

now...having a dislike for doctors I didn't get myself checked out

till recently.

[Guest guest]

MOderator's Note: Please clean up your posts before sending them in, it is

harder ro read them for the digest members.They may be rejected and sent back to

you for you to clean it up and resubmit your post. With all the excess garbble

at the end of the original post, makes it harder to read for the ones that get

the digest. I have cleaned up this post so you know how they should look, Thanks

for your help keeping everything tidy! :-)

Hi Caitlin :-) Yes I love having this group. I don't like talking about my pain

at home...I feel like I'm just complaining too much...but the truth is I'm in

pain most days.

I'm in the UK now...so I don't have to worry about health insurance. Not having

in the US was one reason I never got checked out before now. I think my doctor

is going to refer me to a physiotherapist. I see her at the end of this week.

I'm hoping too she might have some better answers for me. My mother has

osteoarthritis/fibromyalgia....but she is 53....I'm 28 and even she admits my

condition is far worse than her's. Its very frustrating...especially having a 6

yr old daughter who wants to run, jump, and have fun...and I can't do those

things with her :-(

I was in so much pain the past few days that I took 3 of my anti-inflamatories

yesterday...and today I'm doing a lot better. I've been trying to think of other

things I can do to relieve the pain. I guess its going to take some research. I

know that one thing that does help is putting ice packs on my joints...which

ever one is acting up most. Sometimes I wish I had icepacks to just wear on my

knees LOL.

Take care,

Caitlin Kennedy wrote:

>Hello ,

>Sorry you are in such pain. Welcome to the group. Maybe you should go to some

type of specialist that can help you figure out why you are in so much pain?