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Brittle diabetes? It is like almost impossible to maintain. You are either up or down and for no apparent reason. Also the least little bit of change in exercise or insulin can make you do a huge swing.

Debbie

Whats a brittle diabetic if I may ask.

Kerry

Re: hello

Hi Sharon, It is kind of hard to find someone who is type 1. Just about everyone is type 2. I was19 almost 20 when I found out. The reason you have more problems now is because you did not take good care then and also it has an accumulative effect. I believe it is like after 20 years it is the eyes then a couple years later it is the kidneys. Neuropathy kind of depends. But most stuff kind of sets in later. So keep taking good care and don't let the side effects get to you. I am also termed a brittle diabetic. After so long my doc says you get burned out and just to muddle through and you will get to the light at the other end. I burned out and am finding the light. What kind of problems are you having?

Debbie

Hi Debbie, I am Sharon and I have had Type I for 27 years also. I am having more problems now than when I didn't take such good care of myself. It seems to get harder every day. I am termed a brittle diabetic. I may not converse with the group a lot, but i read everybody's emails that are sent. Welcome and hope we can all help or learn from you. Sincerely, Sharon

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If you are a 1 you should 'always' check your bg before driving. It is so easy for a low to occur and then not only yourself but others on the road are in danger. One of my friends died that way. I always have some form of juice or crackers in my car but as a 1 knows a low can hit out of nowhere with no warning.

Debbie

Hi All I am Type I, diagnosed April 1988 at the age of 43. I don't post, usually someone has already answered any questions, and I am not much for writing letters.However, I also read all the posts, and have learned quite a bit. Especially about it not being a "one size fits all" disease - boy, do I know that ! In fact, what "fit" a few years ago doesn't necessarily fit now.I am very brittle and find just walking around getting dressed can send me into a low, so I have to make sure I'm above normal before I start, and test again if I'm going out, especially driving.a

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Let me see if I can remember the numbers. Of all diabetics 90% are type 2. Of the 10% of type 1s I believe it is 1 of 2 % are brittle. Although alot of brittlness in diabetics is from failure to be honest about their diet and exercise programs.

Also the Center for Disease Control has stated that type 2 is of epidemic proportions. Especially in young children where it was not seen before. They contribute alot of that to couch potato life styles and biggie junk food. I tried to start a group for 1s only but there just aren't that many out there. And most lists are for or the majority are 2s.

DebbieHi a- I too am not much to post, but have learned alot just by reading what others post. You are only the second brittle diabetic I've heard of. Tell me it's not a pain?!!! Can't even be spontaneous because of the bloodsugars. It's not as easy to control the diabetes when you're brittle before it has control over you and your life. Am I right. I just wish there was as much support for Type I's as there seems to be for Type II's. It seems to me that Type I diabetes is the minority of the two. Even though I knew in my heart that there were other "Brits" out there it is nice to hear from one. Keep posting. SHARON R.

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One more thing about brittle diabetics... children are often brittle, particularly when they enter puberty and their body is growing and changing at a rapid rate. It can be very hard to regulate their dosages of insulin.

Meenie

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Hi Joan,

Don't feel badly, we've all sounded that way at one time or another :)

Welcome to the list.

Meenie

Oh rats, I just read my own post and I sounded very sorry for myself and very insensitive to people with Type 2. Please forgive me.joan >^^<

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  • 3 years later...

Hi

Welcome to the group.

Just a brief note here to let you know that many of the members have

worked through this group and achieved the status you desire and

more, much more

.........even to the extent of becomming medication free with the

bonus of vastly improved mental & physical health to boot.

(effexor free for over 22 months)

BTW

Eventually I managed to get off all the co administered drugs or

bolt-ons given me to deal with the side effects of the Effexor

(Venlafaxene)

>

>

> Hi, my name is . I was diagnosed with bipolar/manic

> depression at the age of 20 & I am now 24.

> I have taken medication ever since.

> You name the med I have taken it or am currently taking it. I am

> taking 80mg of Geodon BID & 5mg of Lexapro in the AM & 10mg of

> Ambien at bedtime. Lorazapam up to 3mg a day as needed.

>

> I am interested in learning about how to become less medication

> dependent. Please help

>

>

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Hi ,

Welcome to the group. Take a look at the files and the archives

and you will find a tremendous amount of information about

getting off these drugs and restoring your health.

This is a group for people who want to get off these drugs

completely. As you read the stuff that is posted here, you will

find a compelling argument against ever using drugs of this sort.

We do not refer to them as medication because medication is

something that is intended to heal. These drugs cause only harm.

There are a few articles in the Files that are most important for

you to read right now. This link will take you to the main page

of the Files:

http://health.groups.yahoo.com/group/Withdrawal_and_Recovery/files/.

From there, click on Nutrition. Then click on 'Poor Nutrition

and " Mental Illness " '. When you're done with that one, go back

to the Files main page and click on " Members' Stories " . Click on

" Kim's story " (that's me). I think you will find some

similarities. These two stories may begin to explain to you why

you've been on every drug under the sun without improvement.

If you decide to begin getting off the drugs, read the Basic

Healing Protocol (on the main page of the Files). You can

support your body in the withdrawal and Recovery process if you

follow all the recommendations in the article. Also read " Eating

for Recovery " . A healthy diet and proper supplementation are key

to a good recovery.

When reducing the drugs, it is important to do it one at a time

and S L O W L Y. Cut by no more than 10% of the dose at a time,

and give your body a chance to stabilize in between each cut.

Throw your calendar out the window--there is no way of knowing

how long the process will take. The more slowly and cautiously

you reduce your dose, the better your chance of a successful

recovery.

Feel free to ask questions and share more about yourself. Please

note that this is a busy group with many members--sometimes it

takes a few days for questions to get answered. If you've gone

48 hours without a response, please post your question(s) again.

Blessings,

Kim

(Co-moderator)

<<Hi, my name is . I was diagnosed with bipolar/manic

depression at the age of 20 & I am now 24.

I have taken medication ever since.

You name the med I have taken it or am currently taking it. I am

taking 80mg of Geodon BID & 5mg of Lexapro in the AM & 10mg of

Ambien at bedtime. Lorazapam up to 3mg a day as needed.

I am interested in learning about how to become less medication

dependent. Please help >>

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Welcome to the group , my name is Bette, I was just diagnosed in Nov, 2004. I also have a brain mass that is quite a screw in the works.

I'm an international flight attendant, mostly flying to Rome, London, Amsterdam, and London, occasionally Manchester. I am off work now on medical and it drives me bonkers.I hate to wake up in the same place all the time..LOL.

I look forward to hearing from you and again welcome to the group.

Bette

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Hi ,

It's nice to meet you. :o)

I lived over in and around Watertown for a few years and was able to travel a little. Not a lot. lol There are some breathtaking areas in upstate NY. :o)

I used to get such a kick out of friends from AZ not believing I had a squirrel in my front yard and a skunk in the back. It isn't all concrete. LOL I also had new friends in NY who were certain we had no trees, grass or flowers in Arizona. LOL One still acts surprised when she sees photos of snow in our pines. LOL

Challis

~~ Seeking my dx;Daughter of a wise MSer;Mother of four, Mothering a fifth;Married to a wonderful man. "The more I know the more I know I need to know"~~~~~~~~

Hello everyone, my name is and I have rrms, dx Jan.2002. I have been married for 16 years and have three kids. I live in upstate NY. I am happy to hear from anyone. Thanks for listening.

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Hi ,

A maker of messes. I have a couple of those myself! LOL

I keep at home with my five, Homeschooling and whatnot. Josh is 18 and is actually my ½-brother, is nearing 18 too fast lol, is 14½, Jenna is 4½ and Maya is almost 17 months now. :o)

Challis

Hi Ro, Glad to meet you too. It was warm here about 45 degrees but last night it snowed a couple of inches I think. We're used to it, living in NY. Where do you live? My son is 13 and my daughters are 10 and 6. My son is a great helper of lots of things and my older daughter is too. My little one just has to do most things herself! dressing and making lunches and things like that. She also likes to make big messes! Do you work outside of your home? what do you do? hope to hear from you again,

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Oh, I had to look it up. Not too far from Buffalo. I spent a good bit of time around there... in ville, Tonawanda, etc. Never did see the Falls at night though. lol

Challis

Ha! we have deer in out back yard and raccoons in our front yard! We live at the south end of Conesus Lake and it is very pretty here. Trees? how many do they want? We also share a hunting camp with family, 96 acres, all trees in the town of Naples. Glad to know you, talk to you soon,

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ohmygoodness, I know all those places. Lived in Lockport off and on for about 6 yrs until about a yr ago. Hubby and stepson are from there. we go back to visit atleast once a year. beautiful country just no work there. economically we had to leave.

Just out of curiousity....is that part of the US one of the MS pockets they talk about?

May God bless you and keep you until we meet again!

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Lockport. I've been there, too. lol My ex-husband came from the area and his stepmother was from Lockport. If I remember correctly, this is where I stopped at a roadside stand for curly fries and vinegar. First I'd had curly fries with vinegar. They were so good. lol

Challis

ohmygoodness, I know all those places. Lived in Lockport off and on for about 6 yrs until about a yr ago. Hubby and stepson are from there. we go back to visit atleast once a year. beautiful country just no work there. economically we had to leave.

Just out of curiousity....is that part of the US one of the MS pockets they talk about?

May God bless you and keep you until we meet again!

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Never had the chance to go in the winter either. I know I went several times, how did I miss so much? LOL The Canadian side is definitely the better view. :o) My eldest had his picture taken, at a bit over a year and a half, "going over the Falls in a barrel". Cute pic. lol

Challis

Ya Buffalo is a big city, but I grew up in Rochester. The falls are pretty at night, they used to shine pretty lights on it. They might still do it, I haven't been there in a few years. I always went to the Canadian side. The falls are very pretty in the winter too with the snow and ice. It's amazing that the water never stops coming! WeavinnRaftin@... wrote:

Oh, I had to look it up. Not too far from Buffalo. I spent a good bit of time around there... in ville, Tonawanda, etc. Never did see the Falls at night though. lol

Challis

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LOL I don't believe I had a milkshake. Maybe I should have. :o)

Challis

oh my, that had to be Reids you stopped at. I still crave their milkshakes. lol!

May God bless you and keep you until we meet again!

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If you ever make it out to the Grand Canyon, let me know and I'll wave as you pass by. LOL :o)

and I dream of someday just traveling. Seeing many states. Dreams are nice. <gg>

Challis

Someday, I'd like to head west and see the grand canyon, Mt. Rushmore. Beautiful things like that. Someday, WeavinnRaftin@... wrote:

Never had the chance to go in the winter either. I know I went several times, how did I miss so much? LOL The Canadian side is definitely the better view. :o) My eldest had his picture taken, at a bit over a year and a half, "going over the Falls in a barrel". Cute pic. lol

Challis

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  • 4 months later...
Guest guest

i have had a pretty severe case of withdrawl and my zaps ended within 2 months.

it was the first thing to subside with me. everybody is different though, but i

havent seen a lot of people that have continued zaps years in the future.

jason

- In Withdrawal_and_Recovery , " " <jarydian@v...>

wrote:

> Hello,

> I just joined this group today as I was looking for help and support on the

internet. I just stopped taking effexor 4 days ago.. I slowly weened my self

off but am plagued by extreme electric shocks (which I refer to as the devil)

amoung flu like symptoms... i.e. hot and cold flashes, sweats, dizziness, etc.

I have 2 children and I am moving out of state in the end of th month... I am a

very positive person, my depression is over... Why is it so hard to end this

chapter in my life and start over? How long will these " zaps " happen? Does

anyone know anything that can help subside them, so I may function??

>

> Thanks so much

>

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Guest guest

---Hi

Welcome to the group. What you are experiencing is withdrawal

effects from the drug. How slowly did you reduce? I think everyone

is different so noone can really say how long the effects will last

for you, it depends how slowly you came off among lots of other

factors.

I am sure will know what supplements to advise you to take

that will help.

You just have to hang on in there I'm afraid. I have been off

cipromil now for 9 months, when I first came off I was vomiting,

diarrhoea, heart palpitations, odema, flu like symtoms and fevers,

you name it i got it......now all that is left is the nerve pain in

my hands and feet

Hang in there.

With Love

In Withdrawal_and_Recovery , " "

<jarydian@v...> wrote:

> Hello,

> I just joined this group today as I was looking for help and

support on the internet. I just stopped taking effexor 4 days

ago.. I slowly weened my self off but am plagued by extreme

electric shocks (which I refer to as the devil) amoung flu like

symptoms... i.e. hot and cold flashes, sweats, dizziness, etc. I

have 2 children and I am moving out of state in the end of th

month... I am a very positive person, my depression is over... Why

is it so hard to end this chapter in my life and start over? How

long will these " zaps " happen? Does anyone know anything that can

help subside them, so I may function??

>

> Thanks so much

>

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Guest guest

i have had a pretty severe case of withdrawl and my zaps ended within 2 months.

it was the first thing to subside with me. everybody is different though, but i

havent seen a lot of people that have continued zaps years in the future.

jason

- In Withdrawal_and_Recovery , " " <jarydian@v...>

wrote:

> Hello,

> I just joined this group today as I was looking for help and support on the

internet. I just stopped taking effexor 4 days ago.. I slowly weened my self

off but am plagued by extreme electric shocks (which I refer to as the devil)

amoung flu like symptoms... i.e. hot and cold flashes, sweats, dizziness, etc.

I have 2 children and I am moving out of state in the end of th month... I am a

very positive person, my depression is over... Why is it so hard to end this

chapter in my life and start over? How long will these " zaps " happen? Does

anyone know anything that can help subside them, so I may function??

>

> Thanks so much

>

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Guest guest

How long did you take Effexor?

What dosage?

How long did you taper off of it?

If you read in the files under healing protocals it outlines what you

can take to help with withdrawal symptoms.

I was on Effexor 300 mg for 8 years and it took me 4 months to taper off

completely.

I took the Supralife Total Toddy 2 ounces a day

300 mg of Magnesium

10 grams of Carlson's liquid fish oils

............mypinkbow

wrote:

> /Hello,/

> I just joined this group today as I was looking for help and support

> on the internet. I just stopped taking effexor 4 days ago.. I slowly

> weened my self off but am plagued by extreme electric shocks (which I

> refer to as the devil) amoung flu like symptoms... i.e. hot and cold

> flashes, sweats, dizziness, etc. I have 2 children and I am moving

> out of state in the end of th month... I am a very positive person,

> my depression is over... Why is it so hard to end this chapter in my

> life and start over? How long will these " zaps " happen? Does anyone

> know anything that can help subside them, so I may function??

>

> Thanks so much

>

>

>

> To subscribe to the off-topic list go to:

>

> http://groups.yahoo.com/group/socialWandR/

>

>

>

>

> ------------------------------------------------------------------------

> *

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Guest guest

Also, if you can afford it, have a personal consultation with CAtherine

the list owner............this made all the difference in the world to

my success. I, like you was no long depressed but getting off the

Effexor was hell................

I resorted to also taking dramamine to help with the motion sickness aka

dizziness, nasuea, sweats, flu symptoms.........

aka mypinkbow

wrote:

> /Hello,/

> I just joined this group today as I was looking for help and support

> on the internet. I just stopped taking effexor 4 days ago.. I slowly

> weened my self off but am plagued by extreme electric shocks (which I

> refer to as the devil) amoung flu like symptoms... i.e. hot and cold

> flashes, sweats, dizziness, etc. I have 2 children and I am moving

> out of state in the end of th month... I am a very positive person,

> my depression is over... Why is it so hard to end this chapter in my

> life and start over? How long will these " zaps " happen? Does anyone

> know anything that can help subside them, so I may function??

>

> Thanks so much

>

>

>

> To subscribe to the off-topic list go to:

>

> http://groups.yahoo.com/group/socialWandR/

>

>

>

>

> ------------------------------------------------------------------------

> *

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  • 5 years later...
Guest guest

Hi Everyone,

I am new to this site and still don't know how to read the posts in some kind of

orderly fashion. I read about Bee's diet but can't seem to find I link to it,

also the apple cider vinegar.

I have been suffering with FM, CFS, Hypothyroid, Premature Menopause,

Osteopenia, Disc Herniation, Bursitis and the kitchen sink for a number of

years. I gave up smoking and drinking alcohol back in 2003 so food has been my

only vice, until 1 week ago. I began eating only natural foods that are gluten,

meat and dairy free and I think I am feeling better already. I really never

thought diet could be part of the reason I am so ill, but I think I am changing

my mind on that. Actually, I didn't wan't to have to give up any foods.

I discovered Almond-Milk to replace cow's milk and it's delicious. I haven't

found a replacement for cheese, which is my only craving. I eat alot of

mixed-greens, nuts and fruits, especially frozen blueberries for snack. My

problem is not knowing how to prepare certain foods, like eggplant for instance.

There are alot of choices at Whole Foods, but it's very expensive and

overwhelming to check all the labels.

I would really like to take a look at the diet you have been talking about

(Bee's) and try the apple cider. Can someone give me that info? Thank you for

your help, Sincerely, a

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Guest guest

Thank you all for answering my questions. I am going to give your suggestions a

try along with the

other things I am doing to try and get better.

Have a painless day!

a

===

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