Forwarded Message: Re: Happy New Year and Best Wishes

[Guest guest]

Thanks Debbie!

We really do have to call it as we see it, and you are right that the vast

majority of EN Group members have chosen to ignore our pleas to fund our own

research to find effective treatments and cures for EN. Without this research we

are just holding each others hands--which is good, but we are missing the

opportunity to join forces and accomplish what has not ever been done for those

with EN--get REAL RESEARCH and REAL ANSWERS that will do more than rehash what

we knew a hundred yrs ago.

So for those with a few extra dollars here are the many ways you may contribute

to EN Research:

http://poems2order.wordpress.com/donate-to-erythema-nodosum-research/

I am doing my year end financial summary to see how we are doing. Hubby and I

and our 3 cats live in expensive Southern Calif. and managed to get by on a

total of $22,000 this year--no handout or unemployment benefits--just belt

tightening and making due with what we have. About a forth of that went to

paying for my own private health insurance. I still managed to make a

contribution to our EN research fund--so Yes, Debbie, I do feel that where there

is a will there is a way. It is just a matter of priorities. In my case we only

ate out once this year at The Soup Plantation [with a coupon ;-) ]and we never

went to movies. I didn't even buy a new pair of shoes this year. Today Steve and

I figured out how to repair our old kitchen faucet and now we don't need to get

a new one or call the plumber. Hard times makes people tough, and it teaches you

the value of a dollar. I know that dollars spent of research funded through NORD

will go further than my fleeting pleasure of a couple restaurant meals or

movies. But, if the Group is not behind us on this, we have to respect their

decision. I had EN for 41 yrs and now it has been in remission for over 2 solid

yrs. I am very grateful for that. I hope everyone who has EN goes into long term

remission without the research like I did.

Happy 2011, Everyone!

Love,

>

> Re: Happy New Year and Best Wishes for 2011!

> Friday, December 31, 2010 8:59 AM

>

> To: erythema_nodosum_Group@... too, .

> Let's hope '11 will get us the funding to find the cause and cure for

> EN and PG. BUT, it is up to us. Unfortunately, I think this ship is

> going to stay in port, or more like dry dock. As bad as the economy is,

> not many people are putting money into worthy causes. The few of us who

> have constantly gave, can't keep giving to make up for those who have

> not. I have 26 weeks of EDD left, and jobs are hard to come by. I wish

> I could give more, but, unless others reach into their pockets, my

> contributions are done. I really thought people cared about what they

> have, enough to give a small donation here and there. The one thing I

> am happy to see, is that after all the years you have had EN, you are

> finally in a L-O-N-G remission. May 2011 continue to be EN free for

> you. For me, I have had my share. Thank you so much for your tireless

> fight on behalf of us, and yourself.

> Give that understanding husband of yours a big hug from me. God Bless!

> Debbie

>