to Aubrey Re: Re: Losing job? - venting long

[Guest guest]

Hey Marty! Thanks..you always have good advice. I did meet with my boss this

a.m. and I did lose my position at the hospital. She did say that she would like

to see me feeling better for at least 6 months before they would rehire me to

make sure I wasn't going to immediately relapse. Who knows if/when that will

happen. She said if I do ever feel better that she will do everything she can to

get me a position at the hospital again and that she thinks I am a great nurse

and they would love to have me back. That at least made me feel better. So I am

losing my health insurance too. I can get COBRA for only $776.00 a month plus

$38.00 for dental! Yeah right! I know there is a federal subsidy you can get to

offset the cost but I don't think that's going to be lasting past Feb. I am

looking into applying for Mainecare....Maine's state health insurance.They have

pretty strict guidelines. I am afraid that my long term disability payments

might be too high for me to be eligible but I have to apply and all that fun

stuff. I am seeing my rheum in 2 weeks and we will see if he has any idea what I

should do next. He is supposedly presenting " my case " to his colleagues at their

weekly conference to see if any of them have any more ideas. One of them is a

pediatric rheum who knows a lot about the genetic fever syndromes. So we will

see I guess. Just gotta keep plugging away I guess. I know some people have

waited a lot longer than I have so far for a diagnosis. He even mentioned maybe

getting me into a study at NIH! That is pretty far from Maine but who knows.

Thanks for the encouragement!!!!!!

Aubrey

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> Aubrey

> I had a RA doctor that well was like what yours wrote the letter not knowing

what if anything more he could offer or do. This was about the time my other

doctors (GP and oncologist / hematologist) we telling me to go see some one at

the Mayo or Stanford. Well that is what I did .I went to Stanford as I had

family (mom) in the area I could stay with. In the end it was the best chouse I

have made to date in my battle with stills. I can say I have had many good bad

and so so doctors along the way now but that trip was were I was DX with stills

after driving all my doctors and the specialist they had sent me to in Boise

Idaho crazy as all they came up with is I do not know. now Boise Idaho is the

major medical center not only for most of Idaho but all of eastern Oregon

northern Nevada south west Washington and even north eastern Calif. yes they

are not just a small town hospital or medical center but a very progressive

medical center with two Major

> competing hospitals that include major cancer life flight and trauma

centers. So I know I was well supplied were I was.  Yet even with my DX my RA

doctor at the time did not want to accept the DX and never really did. I have

had that same problem here now in Califalso with privet RA's and also with

Kaiser medical RA doctors in two major cities. At lest one of them after calling

the DX doctor came around but others never did. The one I have now not only says

still and treats for it but works part time with and for SSI. And is a major

supporter for RA mags and also is a contributor now and then, so what am I

saying well maybe you might want to think about a trip to a RA doctor with all

your records to date and see what they say! May be you could before getting

there have them look over your records first. I know the SSDI RA doctor never

saw me but only my records and he came out so strong for me but in reading his

letter to SSDI I cried as he made it

> should like I was one lucky man to even be able to move or hold any thing ..

yes all on my records and stronger them my own RA treating doctor who refused to

say I had stills and would only treat me as if I had fibro at first then later

as gout and RA after the SSDI Ra’s letter and SSDI ruling for my okay on

disability.

> sorry this got longer then I thought it would but I wanted to really say even

with you being in the medical field maybe it is time to try some thing new and

some other place to get the help you need

>  So tell good luck and hugs

>  

> the redneck

> Marty G.

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