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All my saliva tests except cortisol were off, so blood except for circadian rhythm is what you want. Quest lab is fine, but they are the one that doesn't do a real free t3.

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  • 5 years later...

Hi all,

This is to let everyone know I will be having my 5th and last

detethering on Sept. 8. Both my NSG and I are uncomfortable about

doing this surgery but we can't figure out why my symptoms are so

unstable ( Some days I can walk, other days I am stuck in a

wheelchair) and on all days I am stuck using a boatload of pain

medication. The last surgery I ended up worse than when I started and

I have been falling so much we had to cover all of my floors with ugly

ruberized black runners to keep me from breaking any more bones.

From one fall, I have even managed to flip my bladder stimulator so

that the leads are completely pulled out on one side and stretched to

the max on the other. LOL, I have asked several doctors about this

and was told it was 'normal' for it to be sticking out. According to

Medtronics, NO, it is not. <sigh>. It took me several urologists to

find one who would listen to me when I told them the stim was

irritating my bowels and not helping my bladder at all. It took

several x-rays to see what was going on there. The rehab hospital I

was at wanted to give me antidepressents since they thought it was all

in my head. (great).

Yes, I am terrified about having this done and I do not have any

unreasonable expectations that I will be able to jump up run to the

bathroom and never use a catheter again. But, I do hope I will get

some stability and best case would be that my left leg would be back

to what it was (undamaged, before last Sept's operation). I will try

to get my husband to post some kind of carepages if it is possible.

Wish me luck!

M.

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Prayers coming your way :) Please let us know how it goes,

Subject: Upcoming Surgery

To: tetheredspinalcord

Date: Tuesday, September 1, 2009, 2:11 PM

 

Hi all,

This is to let everyone know I will be having my 5th and last

detethering on Sept. 8. Both my NSG and I are uncomfortable about

doing this surgery but we can't figure out why my symptoms are so

unstable ( Some days I can walk, other days I am stuck in a

wheelchair) and on all days I am stuck using a boatload of pain

medication. The last surgery I ended up worse than when I started and

I have been falling so much we had to cover all of my floors with ugly

ruberized black runners to keep me from breaking any more bones.

From one fall, I have even managed to flip my bladder stimulator so

that the leads are completely pulled out on one side and stretched to

the max on the other. LOL, I have asked several doctors about this

and was told it was 'normal' for it to be sticking out. According to

Medtronics, NO, it is not. <sigh>. It took me several urologists to

find one who would listen to me when I told them the stim was

irritating my bowels and not helping my bladder at all. It took

several x-rays to see what was going on there. The rehab hospital I

was at wanted to give me antidepressents since they thought it was all

in my head. (great).

Yes, I am terrified about having this done and I do not have any

unreasonable expectations that I will be able to jump up run to the

bathroom and never use a catheter again. But, I do hope I will get

some stability and best case would be that my left leg would be back

to what it was (undamaged, before last Sept's operation). I will try

to get my husband to post some kind of carepages if it is possible.

Wish me luck!

M.

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,

I will be praying for you that this surgery is successful.  The best of luck to

you.

________________________________

To: tetheredspinalcord

Sent: Tuesday, September 1, 2009 3:11:05 PM

Subject: Upcoming Surgery

 

Hi all,

This is to let everyone know I will be having my 5th and last

detethering on Sept. 8. Both my NSG and I are uncomfortable about

doing this surgery but we can't figure out why my symptoms are so

unstable ( Some days I can walk, other days I am stuck in a

wheelchair) and on all days I am stuck using a boatload of pain

medication. The last surgery I ended up worse than when I started and

I have been falling so much we had to cover all of my floors with ugly

ruberized black runners to keep me from breaking any more bones.

From one fall, I have even managed to flip my bladder stimulator so

that the leads are completely pulled out on one side and stretched to

the max on the other. LOL, I have asked several doctors about this

and was told it was 'normal' for it to be sticking out. According to

Medtronics, NO, it is not. <sigh>. It took me several urologists to

find one who would listen to me when I told them the stim was

irritating my bowels and not helping my bladder at all. It took

several x-rays to see what was going on there. The rehab hospital I

was at wanted to give me antidepressents since they thought it was all

in my head. (great).

Yes, I am terrified about having this done and I do not have any

unreasonable expectations that I will be able to jump up run to the

bathroom and never use a catheter again. But, I do hope I will get

some stability and best case would be that my left leg would be back

to what it was (undamaged, before last Sept's operation). I will try

to get my husband to post some kind of carepages if it is possible.

Wish me luck!

M.

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