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Hi All!

I haven't been on line since Saturday, and it looks like I missed a lot!

It's going to be hard to add my two cents in about everything, but I'll try

(LOL).

I think that the use of wheelchairs and/or scooters is necessary for some,

but I think that whenever possible, we need to try and avoid them. There are

some of us who do not have a choice in the matter, and must use them at all

times. I'm the kind of person who fought pain management for a couple of

years figuring if I managed it, I had to have pain. I didn't want pain at

all, so management was not an option. Silly me. I'm sure I'll fight the use

of scooters/wheelchairs until it's absolutely necessary. That's me, but I

have much respect for those of us who need them now. We all know what our

limitations are, and must live with them.

I'm not sure why, but like a lot of you, my pain level has been very high for

the past few days. For those of you who want them, my prayers are with you.

We'll get through this somehow. Please, also, remember in your

thoughts. She is overwhelmed and needs them. I'm very concerned about her,

and I'm trying to stay in touch. I'll let you know how she is when I hear

from her. She's asked to be removed from the list for a short time, it's

just too much for her to deal with right now.

Tracey, I hope you got my post about your wedding dress, I'm sure the only

way to make it any more beautiful is to put you in it! I'm hoping you are

coping, I know how difficult it's been for you recently. We're here!

Anita, I'm glad that you came to us when you needed help. You can be sure

that I'm remembering you in my thoughts and prayers.

DJ- I know how difficult it must be for you. Having to go back to worse days

must be disheartening. But, remember, you did have better days and there are

more to follow. It sounds as if you have a wonderful son, and what more

could a Mom ask for? I'm glad he keeps you grounded!

Hi Ralph! I kinda know how you feel about the too low to get things from a

wheelchair. I don't use one, but I'm short, so I'm forever having to ask for

help or climb the shelves! I just saw somewhere a " grabber " that I'm going

to order for myself. It telescopes out and you can grab things that are out

of reach. May look silly, but it's probably less silly than me falling off a

shelf reaching for Malomars!!

Felice, I hope that your pain has eased. I'm not sure I'm aware of the

latest status of a surgeon for you. I hope that you've made some headway

with that. I know how frustrating it is to want to alleviate some of the

pain and not be able to.

I'm sure I've forgotten things I want to say to others, please forgive me (ha

ha Deb, I didn't say the S word). I'm at work and my time is limited and I

can't reread all of the posts right now.

Hope to see you all at chat!

Hugs!

Jo

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  • 7 months later...

Hi ,

Welcome back. My hubby is the one with PSC and never drinks. His

Doc told him it's not a good idea since the liver is having a hard

enough time battling the disease without having something else to

fight. However, others may feel differently. He never was a big

drinker...just a beer here or there.

Gracie

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Hi ,

Welcome back. My hubby is the one with PSC and never drinks. His

Doc told him it's not a good idea since the liver is having a hard

enough time battling the disease without having something else to

fight. However, others may feel differently. He never was a big

drinker...just a beer here or there.

Gracie

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Hi ,

Welcome back. My hubby is the one with PSC and never drinks. His

Doc told him it's not a good idea since the liver is having a hard

enough time battling the disease without having something else to

fight. However, others may feel differently. He never was a big

drinker...just a beer here or there.

Gracie

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Dear Gracie & Ed:

Thanks for your input!

Gerber

Re: Hi all!

Hi ,Welcome back. My hubby is the one with PSC and never drinks. His Doc told him it's not a good idea since the liver is having a hard enough time battling the disease without having something else to fight. However, others may feel differently. He never was a big drinker...just a beer here or there. Gracie

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Dear Gracie & Ed:

Thanks for your input!

Gerber

Re: Hi all!

Hi ,Welcome back. My hubby is the one with PSC and never drinks. His Doc told him it's not a good idea since the liver is having a hard enough time battling the disease without having something else to fight. However, others may feel differently. He never was a big drinker...just a beer here or there. Gracie

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Dear Gracie & Ed:

Thanks for your input!

Gerber

Re: Hi all!

Hi ,Welcome back. My hubby is the one with PSC and never drinks. His Doc told him it's not a good idea since the liver is having a hard enough time battling the disease without having something else to fight. However, others may feel differently. He never was a big drinker...just a beer here or there. Gracie

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Hi ,

My Hep told me that I should cut out any alcohol. He said if I want to, have

a sip of champagne on New Year's Eve every year, but that is about all he

feels is acceptable. Hope that helps.

Colleen

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Hi ,

My Hep told me that I should cut out any alcohol. He said if I want to, have

a sip of champagne on New Year's Eve every year, but that is about all he

feels is acceptable. Hope that helps.

Colleen

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Hi ,

My Hep told me that I should cut out any alcohol. He said if I want to, have

a sip of champagne on New Year's Eve every year, but that is about all he

feels is acceptable. Hope that helps.

Colleen

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Thanks Colleen!

- Gerber

RE: Re: Hi all!

Hi ,My Hep told me that I should cut out any alcohol. He said if I want to, havea sip of champagne on New Year's Eve every year, but that is about all hefeels is acceptable. Hope that helps.Colleen

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Thanks Colleen!

- Gerber

RE: Re: Hi all!

Hi ,My Hep told me that I should cut out any alcohol. He said if I want to, havea sip of champagne on New Year's Eve every year, but that is about all hefeels is acceptable. Hope that helps.Colleen

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Thanks Colleen!

- Gerber

RE: Re: Hi all!

Hi ,My Hep told me that I should cut out any alcohol. He said if I want to, havea sip of champagne on New Year's Eve every year, but that is about all hefeels is acceptable. Hope that helps.Colleen

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  • 8 years later...

I love this group! It's so positive and inspiring! I am a columnist for a new

site launching by a retired podiatrist with some pretty amazing new approaches

to the treatment of fibromyalgia. I'm here to learn from all of you! I want to

help!

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