Re: Kenny's updated ATEC!

[Guest guest]

Way to go !!!! (and Kenny) Though we know if it wasn't for MAMA!!!! Now

just go get rid of that yeast!!!!

Laurie

Mom to Grace 4

> From: " persistentC " <persistentC@...>

> Reply-

> Date: Fri, 18 May 2001 10:25:04 -0400

> < >, " ABMD " <abmd >,

> " DrAmysKids " <DrAmysKids >

> Subject: [ ] Kenny's updated ATEC!

>

> Folks,

>

> Most of you probably are aware of the ATEC (Autism Treatment Evaluation

> Checklist) available at Bernie Rimland's site. www.autism.com/ari

>

> It is suggested that you fill this out before you start any treatment, and

> then reevaluate later.

>

> I just filled out Kenny's ATEC again this morning after 10 months of mercury

> chelation treatment.

>

> Here's what we had last August, and now today: (The lower the score, the

> better)

>

> I. Speech/Language/Communication: 16 ---> 11

>

> II. Sociability: 22 ----> 4

>

> III. Sensory/Cognitive Awareness: 18 ---> 12

>

> IV. Health/Physical: 45 ---> 32

>

> Total ATEC Summary Score: 101 ---> 59

>

> The range on the total score is 0 - 179. Despite all the issues we are having

> medically right now (clostridia, staph aureus, candida) and the unrelenting

> diarrhea, this is a very uplifting result for me. (Makes all those 3 AM

> dosings worth it!!!) Kenny has gone from being near the bottom to moving

> nicely up all of the scales.

>

> The sun is shining brightly in our house today (even thought it's raining

> outside)!! <grin>

>

> (Cary, NC)

> persistentC@...

> http://www.rtphome.org/mariposa/

>

>

>

[Guest guest]

So happy for you. Thanks for letting us know how things are going. Vicky

persistentC wrote:

>

> Folks,

>

> Most of you probably are aware of the ATEC (Autism Treatment

> Evaluation Checklist) available at Bernie Rimland's site.

> www.autism.com/ari

>

> It is suggested that you fill this out before you start any treatment,

> and then reevaluate later.

>

> I just filled out Kenny's ATEC again this morning after 10 months of

> mercury chelation treatment.

>

> Here's what we had last August, and now today: (The lower the score,

> the better)

>

> I. Speech/Language/Communication: 16 ---> 11

>

> II. Sociability: 22 ----> 4

>

> III. Sensory/Cognitive Awareness: 18 ---> 12

>

> IV. Health/Physical: 45 ---> 32

>

> Total ATEC Summary Score: 101 ---> 59

>

> The range on the total score is 0 - 179. Despite all the issues we

> are having medically right now (clostridia, staph aureus, candida) and

> the unrelenting diarrhea, this is a very uplifting result for me.

> (Makes all those 3 AM dosings worth it!!!) Kenny has gone from being

> near the bottom to moving nicely up all of the scales.

>

> The sun is shining brightly in our house today (even thought it's

> raining outside)!! <grin>

>

> (Cary, NC)

> persistentC@...

> http://www.rtphome.org/mariposa/

>

>

[Guest guest]

Hooray for Kenny

:

Kenny was pretty severe if I remember reading correctly... Sounds like

he has come a long way thanks to your interventions... Chelation... It is

so encouraging to hear how his ATEC scores have come down.. Pretty soon

you'll be a zero.. Keep up the great work..

kelly

[Guest guest]

-- this IS great news. You also motivated me to

fill out the ATEC (I know, should have done one last

Feb when we started diet and supplements). I did one

today and then filled it out remembering where she was

a year ago. I'm glad I did it!. Her greatest

improvement is in Sensory/Cognitive Awareness (24 to

17). Overall went from 67 to 55.

I believe that the improvement in the sensory is a

combination of clearing the candida and doing the

detox. Her motor planning began to improve after

doing a few rounds of detox.

Thanks for encouraging me to be more data driven. I

guess it's important to have this record (i'm really

bad about this kind of stuff).

Tali

--- persistentC <persistentC@...> wrote:

> Folks,

>

> Most of you probably are aware of the ATEC (Autism

> Treatment Evaluation Checklist) available at Bernie

> Rimland's site. www.autism.com/ari

>

> It is suggested that you fill this out before you

> start any treatment, and then reevaluate later.

>

> I just filled out Kenny's ATEC again this morning

> after 10 months of mercury chelation treatment.

>

> Here's what we had last August, and now today: (The

> lower the score, the better)

>

> I. Speech/Language/Communication: 16 ---> 11

>

> II. Sociability: 22 ----> 4

>

> III. Sensory/Cognitive Awareness: 18 ---> 12

>

> IV. Health/Physical: 45 ---> 32

>

> Total ATEC Summary Score: 101 ---> 59

>

> The range on the total score is 0 - 179. Despite

> all the issues we are having medically right now

> (clostridia, staph aureus, candida) and the

> unrelenting diarrhea, this is a very uplifting

> result for me. (Makes all those 3 AM dosings worth

> it!!!) Kenny has gone from being near the bottom to

> moving nicely up all of the scales.

>

> The sun is shining brightly in our house today (even

> thought it's raining outside)!! <grin>

>

> (Cary, NC)

> persistentC@...

> http://www.rtphome.org/mariposa/

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

,

May I ask if you are doing any other interventions? Also, what is your

child's weight and dosage? Our Dr is recommending 100 - 200 mg chemet (as

tolerated) every 8 hours and 50 mg alpha lipoic acid with 2 of the doses.

Also, how long have you been chelating. Do you see regression with

chelation?

I am getting ready to start chelating my 35 lb, 5 yr old son (he was born at

28 wks and had 5 or 6 vaccinations before he should have even been born). He

has gone from 89 to 0 on the ATEC with diet, vitamins and AIT. He had his

1st round of AIT 1 year ago and second round 1 month ago. He started the

diet last July. Austin's only issue now is a mild auditory processing

concern.

We did one round of chelation a few months ago. We pulled out some arsenic,

antimony and tin -- not a lot. They found the bacteria klebziella in his

stool so we cleared that up and his diarreha is finally gone.

Also, congratulations on your success! Taking Sociability from 22 to 4 !!!

That's is so wonderful!!

Mom to Austin (recovered from pdd) and (nt)

5 yr old twins

In a message dated 5/18/01 7:29:56 AM Pacific Daylight Time,

persistentC@... writes:

> Subj:[ ] Kenny's updated ATEC!

> Date:5/18/01 7:29:56 AM Pacific Daylight Time

> From: persistentC@... (persistentC)

> Reply-to: <A

HREF= " mailto: " > </A>

> , abmd (ABMD),

> DrAmysKids (DrAmysKids)

>

>

>

>

> Folks,

>

> Most of you probably are aware of the ATEC (Autism Treatment Evaluation

> Checklist) available at Bernie Rimland's site. www.autism.com/ari

>

> It is suggested that you fill this out before you start any treatment, and

> then reevaluate later.

>

> I just filled out Kenny's ATEC again this morning after 10 months of

> mercury chelation treatment.

>

> Here's what we had last August, and now today: (The lower the score, the

> better)

>

> I. Speech/Language/Communication: 16 ---> 11

>

> II. Sociability: 22 ----> 4

>

> III. Sensory/Cognitive Awareness: 18 ---> 12

>

> IV. Health/Physical: 45 ---> 32

>

> Total ATEC Summary Score: 101 ---> 59

>

> The range on the total score is 0 - 179. Despite all the issues we are

> having medically right now (clostridia, staph aureus, candida) and the

> unrelenting diarrhea, this is a very uplifting result for me. (Makes all

> those 3 AM dosings worth it!!!) Kenny has gone from being near the bottom

> to moving nicely up all of the scales.

>

> The sun is shining brightly in our house today (even thought it's raining

> outside)!! <grin>

>

> (Cary, NC)

> persistentC@...

> http://www.rtphome.org/mariposa/

>

>

>

[Guest guest]

CINDY

Can't believe she broke your foot playing ring around the rosie.. I thought

that was a pretty safe game.. Now you will have to chase kenny with a broken

foot. I've been through that period of chasing and thankfully he is much more

aware of danger.. Also answers me when I call him.. It wasn't like this before

because he wandered off all alone and I had to call 911. Frightening, but it

also made me realize that I could no longer ignore what was going on .. I had

him evaluated and he was at that time severely affected..

My son is also scoring lower and lower. He too is on diet and have done 4

rounds .. I hope your writing that book.. We all have so many stories to

tell.. kelly

[Guest guest]

Hooray for Kenny

:

Kenny was pretty severe if I remember reading correctly...

*****

YES, he was very severely affected! We still have a long way to go,

but this is extremely encouraging. It's easy to forget how much

progress has occurred, especially as you begin to deal with new

challenges.

Right now, we are experiencing " running behaviors " for the first time

ever. (And boy is he fast!) Unfortunately, he still doesn't

understand the concept of DANGER! I have been pretty stressed the

past week as he has run out into busy parking lots twice! The first

time caught me completely by surprise. He walked out of the building

after occupational therapy and usually he walks right to my van which

is parked not 5 feet from the door and stands there waiting for me to

let him in. This time he just took off without any warning. The

following day I took him into a store to pick up something. I thought

I was being smart and was not letting go of him, except that the

moment I went to take my wallet out, he shot out the door.

This is a kid who was SO TOTALLY compliant. He's been doing ABA since

he was a little over two, and right from the start we did not tolerate

any type of behaviors. Now, all of a sudden he realizes he's an

independent little being.

So, just a word of warning to others that you need to be watching out

for this sort of thing.

I'm not sure how I'm going to handle this now either, because on top

of everything, I just found out that I apparently broke my foot

yesterday! (One of Kenny's ABA therapists accidentally knocked me

over and sat down hard on my foot when we were playing " ring around

the rosie " !)

Yet another chapter for my book .... !

I wonder if anybody would even believe what we go through for these

kids!

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[Guest guest]

,

May I ask if you are doing any other interventions?

*********

We've been doing ABA since he was two. (He'll be 8 on May 26.)

Last March I switched his home program from " traditional ABA " to

" Verbal Behavior " . (Kind of " ABA-- the next generation " . If you want

to know more about this, go to the website for our new school:

www.rtphome.org/mariposa )

(We began chelation at the beginning of August, 2000.)

We also do the GFCF diet, Feingold Diet and phenol-free diet.

He was one of the original kids to get Secretin from Dr. Horvath.

After 10 infusions, he lost ALL of his speech. It has taken a long

time to get it back! We switched to transdermal gaspretin instead of

secretin infusions which seems to be beneficial.

We've been doing vitamin supplementation for years.

***********************

Also, what is your child's weight and dosage?

***************

Kenny now weighs 58 lbs. On phase one, he got 100mg of DMSA-SR every

8 hours. (That's the slow release.)

On phase two we had finally settled on 50mg DMSA with 15mg ALA every 4

hours.

Because of the problems with clostridia, staph aureus and candida

albicans, we stopped the ALA while we have been trying to clear up the

gut bugs. So we've gone back to the DMSA-SR dosing.

*******************

Our Dr is recommending 100 - 200 mg chemet (as

tolerated) every 8 hours and 50 mg alpha lipoic acid with 2 of the

doses.

Also, how long have you been chelating. Do you see regression with

chelation?

*******************

When we first started chelating he was a little more stimmy during the

ON cycles. When we got to the third cycle, he seemed better and

calmer on than off.

We had seen regression in Phase II, but this is being attributed to

the gut bugs.

*****************

<snip>

Also, congratulations on your success! Taking Sociability from 22 to

4 !!!

That's is so wonderful!!

****************

Thanks!

I had felt that our biggest gains WERE in the area of sociability, but

the numbers really made it quite clear.

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[Guest guest]

CINDY

Can't believe she broke your foot playing ring around the rosie.. I thought

that was a pretty safe game..

*****

Never a dull moment around here! She was trying to make the game more

" exciting " .

*****

Now you will have to chase kenny with a broken foot.

*****

Since I already know I can't even catch him with two good feet, this will be

lots of fun!

*****

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[Guest guest]

Dear EJPickwick@...,

You might also want to read 's collected posts about Kenny.

It is posted in the FILES section. It will tell you more detail

about the question you asked about regression, for example.

It covers 6 months.

Moria

At 07:13 PM 5/18/2001 EDT, you wrote:

>,

>

>May I ask if you are doing any other interventions? Also, what is your

>child's weight and dosage? Our Dr is recommending 100 - 200 mg chemet (as

>tolerated) every 8 hours and 50 mg alpha lipoic acid with 2 of the doses.

>Also, how long have you been chelating. Do you see regression with

>chelation?

<snip>