Dr JM-high Hg in RBC mineral test, so worried!

[Guest guest]

Hi Dr JM,

I posted about this a few days ago, and didn't hear back from you or anyone. I

am losing

sleep over my son and this test, and very much value your assessment. I have

re-worded

the post since the other day.

I have gotten a couple of different takes on my unvaccinated son's high Hg from

his RBC test. His level was 24, and the normal range is below 10. We have

retested

him, and are awaiting results from Dr's Data (The first test was from Great

Smokies). My

husband and I also were tested. We had tested the 3 of us as well for serum Hg,

but the

lab screwed up those blood samples (long story!), and I think we're retesting

tomorrow.

I have had varying interpretations of a high Hg level in the RBC test, and would

like your

opinion on whether it reflects current exposure, or if you have ever seen this

when a child

is dumping metals.

We are not chelating, and are on minerals, CLO, a multi, free aminos,

l-taurine, was on l-

carnitine (it seems to make him aggressive), vit. c, magnesium cream. No B12

shots yet.

Folinic Acid seems to make him aggressive too, but I'm going to try again.

There is some concern that the Hg is coming from my breastmilk, though 2 milk

tests (six

months ago) were completely metal free. But then again, so was his RBC metals

test at

that time. Maybe I dump periodically? My amalgams were removed 17 years ago. I

eat no

fish. I had taken a sauna once before my son was tested for his RBC elements.

Wondered what your thoughts are, and if you believe we must await chelation,

until these

blood numbers change (or a current source of exposure is located). I'm confused

and

worried and wondering where the exposure is coming from.

Thanks, Jill

[Guest guest]

Jill: If I don't answer, it is because I don't know and may be trying to

find out if it seems like something that can be learned, or it may be that

when I see the same question posted on several boards and I am so busy I

hope that someone else will take care of it. In this case, with no

vaccinations, no huge fish ingestion, and no evidence in your breast milk I

must say I do not have a clue. The RBC test does indicate current

intracellular metals, and I suspect it was an error. When you do retest,

please let us know the results. In hair, it often means the child is

excreting well unless it is extremely high - it's the kids who have no

excretion that I worry the most about. Also, I also look at the child and

his/her symptoms first, and only do the lab work to corroborate my clinical

suspicions. Does he in fact show signs of mercury poisoning, in other

words, is he clearly autistic? I certainly suppose you have looked into any

areas of exposure around the house, yard where he plays, etc. I hope the

mystery clears up soon! Dr. JM

Dr JM-high Hg in RBC mineral test, so worried!

>

>

> Hi Dr JM,

>

> I posted about this a few days ago, and didn't hear back from you or

anyone. I am losing

> sleep over my son and this test, and very much value your assessment. I

have re-worded

> the post since the other day.

>

> I have gotten a couple of different takes on my unvaccinated son's high Hg

from

> his RBC test. His level was 24, and the normal range is below 10. We have

retested

> him, and are awaiting results from Dr's Data (The first test was from

Great Smokies). My

> husband and I also were tested. We had tested the 3 of us as well for

serum Hg, but the

> lab screwed up those blood samples (long story!), and I think we're

retesting tomorrow.

>

> I have had varying interpretations of a high Hg level in the RBC test, and

would like your

> opinion on whether it reflects current exposure, or if you have ever seen

this when a child

> is dumping metals.

>

> We are not chelating, and are on minerals, CLO, a multi, free aminos,

l-taurine, was on l-

> carnitine (it seems to make him aggressive), vit. c, magnesium cream. No

B12 shots yet.

> Folinic Acid seems to make him aggressive too, but I'm going to try

again.

>

> There is some concern that the Hg is coming from my breastmilk, though 2

milk tests (six

> months ago) were completely metal free. But then again, so was his RBC

metals test at

> that time. Maybe I dump periodically? My amalgams were removed 17 years

ago. I eat no

> fish. I had taken a sauna once before my son was tested for his RBC

elements.

>

> Wondered what your thoughts are, and if you believe we must await

chelation, until these

> blood numbers change (or a current source of exposure is located). I'm

confused and

> worried and wondering where the exposure is coming from.

> Thanks, Jill

>

>

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

[Guest guest]

Dr JM,

Thank you so much, and I'm sorry to be a bother! I just thought maybe you

hadn't seen

the post, and certainly should have said that. I did post this question on one

other board,

which is the only other board I post on anymore, the chelatingkids 2. I got a

couple of

guesses, but you're like the " queen, " in my opinion , and I so value your take

on things.

Well, I have for the last year been saying that my son is not autistic, in that

I never received

that diagnosis...the most his teachers will say is sometimes " spectrum-y. " I'm

sure that

someone like San Francisco's Bryna Siegel would however, give him a PDD type

label. I

became concerned when another mom from a list wrote me about her

high-functioning

autistic son, and described a child that sounded just like mine. I don't really

want or need

a diagnosis; I see all our children as poisoned kids.

The only good that has come from the high RBC reading is that it tells me my son

is Hg

toxic. I never had any hard evidence, what with no vaccines. And I wouldn't do

challenge

testing, and his initial hair analysis didn't meet the counting rules. But,

what did concern

me is that none of his testing (other than this most recent) has shown any heavy

metals

being excreted.

I called a company that could test the house and yard for Hg, and they want to

charge me

$2,000! They also said they doubted they'd find anything. I do need to test

our house for

lead, as it was built in 1957, and I know some lead paint was found in a

bathroom, that we

do not use. The people next door have been remodeling for the last 6 months,

and I'm

wondering if some of the construction/de-construction may have released old

metals. Do

you know what kinds of testing I might do on the house?

I have even sent several samples of my son's commonly eaten foods into a lab for

testing.

Someone on another board was saying how in her community, the organic food all

has

arsenic, because of the soil! Kirby ( " Evidence of Harm " ) sent me a

California map,

that indicated lots of historic mercury mines, as well as areas with

Hg-contaminated soil.

This is a huge topic that I'll elaborate on in another post.

So, yes, my son, other then the RBC test, has shown little excretion. But, at

the time of the

testing, he was not regressing, but was in fact doing quite well, speaking in 10

word

sentences. He does still script, and has moments of running back and forth when

he is

happy/excited. He has SID issues. His eye contact can be great or

non-existent; he is

uneven. But he has spontaneous speech, and even writes his own songs.

Thanks to you, and to anyone else for ideas on other Hg exposure sources. I'll

keep you

posted on the outcome of the new tests. BTW, do you think I need to wait to

begin TD-

DMPS? Must those blood Hg levels be lower?

Warmly,

Jill

> Jill: If I don't answer, it is because I don't know and may be trying to

> find out if it seems like something that can be learned, or it may be that

> when I see the same question posted on several boards and I am so busy I

> hope that someone else will take care of it. In this case, with no

> vaccinations, no huge fish ingestion, and no evidence in your breast milk I

> must say I do not have a clue. The RBC test does indicate current

> intracellular metals, and I suspect it was an error. When you do retest,

> please let us know the results. In hair, it often means the child is

> excreting well unless it is extremely high - it's the kids who have no

> excretion that I worry the most about. Also, I also look at the child and

> his/her symptoms first, and only do the lab work to corroborate my clinical

> suspicions. Does he in fact show signs of mercury poisoning, in other

> words, is he clearly autistic? I certainly suppose you have looked into any

> areas of exposure around the house, yard where he plays, etc. I hope the

> mystery clears up soon! Dr. JM

> Dr JM-high Hg in RBC mineral test, so worried!

>

>

> >

> >

> > Hi Dr JM,

> >

> > I posted about this a few days ago, and didn't hear back from you or

> anyone. I am losing

> > sleep over my son and this test, and very much value your assessment. I

> have re-worded

> > the post since the other day.

> >

> > I have gotten a couple of different takes on my unvaccinated son's high Hg

> from

> > his RBC test. His level was 24, and the normal range is below 10. We have

> retested

> > him, and are awaiting results from Dr's Data (The first test was from

> Great Smokies). My

> > husband and I also were tested. We had tested the 3 of us as well for

> serum Hg, but the

> > lab screwed up those blood samples (long story!), and I think we're

> retesting tomorrow.

> >

> > I have had varying interpretations of a high Hg level in the RBC test, and

> would like your

> > opinion on whether it reflects current exposure, or if you have ever seen

> this when a child

> > is dumping metals.

> >

> > We are not chelating, and are on minerals, CLO, a multi, free aminos,

> l-taurine, was on l-

> > carnitine (it seems to make him aggressive), vit. c, magnesium cream. No

> B12 shots yet.

> > Folinic Acid seems to make him aggressive too, but I'm going to try

> again.

> >

> > There is some concern that the Hg is coming from my breastmilk, though 2

> milk tests (six

> > months ago) were completely metal free. But then again, so was his RBC

> metals test at

> > that time. Maybe I dump periodically? My amalgams were removed 17 years

> ago. I eat no

> > fish. I had taken a sauna once before my son was tested for his RBC

> elements.

> >

> > Wondered what your thoughts are, and if you believe we must await

> chelation, until these

> > blood numbers change (or a current source of exposure is located). I'm

> confused and

> > worried and wondering where the exposure is coming from.

> > Thanks, Jill

> >

> >

> >

> >

> >

> >

> >

> > Many frequently asked questions and answers can be found at

> <http://forums.autism-rxguidebook.com/default.aspx>

> >

> >

[Guest guest]

Hi Jill,

I posted about this somewhere recently...I think it might have been

on this list. We have a very similar story. Before beginning TD

DMPS, my son's RBC (Great Smokies)for mercury was even higher than

yours, at 29.8! My son is almost 9, and hasn't had any shots since

he was 4. He doesn't eat fish, although he does take Nordic

Naturals fish oil (ProEPA and ProEFA), which supposedly is third

party tested for mercury. We DO live within 20 miles of a coal

burning/hydroelectric power plant (it uses both sources), so that

might be part of his problem.

My son does not have an autism diagnosis either. He's ADD, with

hypotonia, sensory issues, speech articulation problems, gut issues,

etc. He is showing some signs of improving...not regressing..so I'm

gueesing that he couldn't be taking in THAT MUCH new Hg (for a

reading of 29.8!) and not be showing more signs of it.

I'm suspecting that if it's not a lab error, than it must be due to

us recently starting Mb12 shots + oral folinic, along with Lipo Glut.

His hair test from when he was four failed to pass the counting

rules, but after chelation with DMSA and ALA, his last two hair

tests have passed the counting rules. One of them was done only a

few months before this RBC minerals test.

By the way, since the time of the RBC lab, we have begun TD DMPS

chelation. If you start with TD DMPS yourself, why not start slow,

with just a drop or two, and watch for reactions? I think we started

my 45 lbs son on 5 at first, and have now moved up to 11 drops.

(Full dosage is 30 for us.)

Janiece

[Guest guest]

For a child you're not sure is autistic, I would repeat that test before

starting chelation, and while you're at it if you can get the Immunosciences

Metallothionein Cellular Test and a hair test, that would give you enough

information to make the right decision about chelating. Dr. JM

Dr JM-high Hg in RBC mineral test, so worried!

> >

> >

> > >

> > >

> > > Hi Dr JM,

> > >

> > > I posted about this a few days ago, and didn't hear back from you or

> > anyone. I am losing

> > > sleep over my son and this test, and very much value your assessment.

I

> > have re-worded

> > > the post since the other day.

> > >

> > > I have gotten a couple of different takes on my unvaccinated son's

high Hg

> > from

> > > his RBC test. His level was 24, and the normal range is below 10. We

have

> > retested

> > > him, and are awaiting results from Dr's Data (The first test was from

> > Great Smokies). My

> > > husband and I also were tested. We had tested the 3 of us as well for

> > serum Hg, but the

> > > lab screwed up those blood samples (long story!), and I think we're

> > retesting tomorrow.

> > >

> > > I have had varying interpretations of a high Hg level in the RBC test,

and

> > would like your

> > > opinion on whether it reflects current exposure, or if you have ever

seen

> > this when a child

> > > is dumping metals.

> > >

> > > We are not chelating, and are on minerals, CLO, a multi, free

aminos,

> > l-taurine, was on l-

> > > carnitine (it seems to make him aggressive), vit. c, magnesium cream.

No

> > B12 shots yet.

> > > Folinic Acid seems to make him aggressive too, but I'm going to try

> > again.

> > >

> > > There is some concern that the Hg is coming from my breastmilk, though

2

> > milk tests (six

> > > months ago) were completely metal free. But then again, so was his

RBC

> > metals test at

> > > that time. Maybe I dump periodically? My amalgams were removed 17

years

> > ago. I eat no

> > > fish. I had taken a sauna once before my son was tested for his RBC

> > elements.

> > >

> > > Wondered what your thoughts are, and if you believe we must await

> > chelation, until these

> > > blood numbers change (or a current source of exposure is located). I'm

> > confused and

> > > worried and wondering where the exposure is coming from.

> > > Thanks, Jill

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Many frequently asked questions and answers can be found at

> > <http://forums.autism-rxguidebook.com/default.aspx>

> > >

> > >

[Guest guest]

Hi there Dr JM,

My son would not qualify for a full-on DSM-IV label, and I think I have resisted

the label,

but I know he is " spectrum-y, " just very high-functioning. He has eye contact

issues, gut

stuff (leaky gut, food allergies), low muscle tone, oral and finger/toe

sensitivities, etc...I've

heard Bryna Siegel is the Wicked Witch too! Totally anti-biomed.

Anyway, as for testing...Is the Immunosciences Metallothionein Cellular Test the

same as

the test on the autism panel? My son's Metallothionein Medium score was 18

(20-40 Ref

Range). His MT + Mercury was 42 (50-100 Ref Range) His metals/medium con.

ratio was

in range.

We've been waiting for our RBC elements test from Doctor's Data for two weeks.

Their

equipment is broken and they're awaiting a part that is held up in customs!!! I

hope these

results are going to be accurate!

We did hair testing and my son's was very low/no metals, no Hg (which is

suspicious, I

guess) and Andy C. said it didn't meet the counting rules, but did not look

normal either.

The question is: If his RBC Hg is still high, is it okay to chelate?

Thanks so much, Jill

> For a child you're not sure is autistic, I would repeat that test before

> starting chelation, and while you're at it if you can get the Immunosciences

> Metallothionein Cellular Test and a hair test, that would give you enough

> information to make the right decision about chelating. Dr. JM

>

[Guest guest]

His metallothionein is slightly lower than we like, and the challenge test

with mercury did not get it up to the level we quite like as a response to

the metal. However, the scores are certainly not horrendous, but do indicate

that his detox system is not quite normal. No mercury on the hair test is

certainly suspicious too, as we do see NT kids putting out mercury just from

normal living. If the RBC is high, I would chelate, and I would also

entertain the possibility of mitochondrial disorder with the low muscle

tone. Have you given him carnitine to try to help that, and lots of CoQ10?

Dr. JM

Re: Dr JM-high Hg in RBC mineral test, so worried!

>

>

> Hi there Dr JM,

> My son would not qualify for a full-on DSM-IV label, and I think I have

resisted the label,

> but I know he is " spectrum-y, " just very high-functioning. He has eye

contact issues, gut

> stuff (leaky gut, food allergies), low muscle tone, oral and finger/toe

sensitivities, etc...I've

> heard Bryna Siegel is the Wicked Witch too! Totally anti-biomed.

>

> Anyway, as for testing...Is the Immunosciences Metallothionein Cellular

Test the same as

> the test on the autism panel? My son's Metallothionein Medium score was 18

(20-40 Ref

> Range). His MT + Mercury was 42 (50-100 Ref Range) His metals/medium

con. ratio was

> in range.

>

> We've been waiting for our RBC elements test from Doctor's Data for two

weeks. Their

> equipment is broken and they're awaiting a part that is held up in

customs!!! I hope these

> results are going to be accurate!

>

> We did hair testing and my son's was very low/no metals, no Hg (which is

suspicious, I

> guess) and Andy C. said it didn't meet the counting rules, but did not

look normal either.

>

> The question is: If his RBC Hg is still high, is it okay to chelate?

> Thanks so much, Jill

>

>

> > For a child you're not sure is autistic, I would repeat that test before

> > starting chelation, and while you're at it if you can get the

Immunosciences

> > Metallothionein Cellular Test and a hair test, that would give you

enough

> > information to make the right decision about chelating. Dr. JM

> >

>

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

[Guest guest]

Hi Dr. JM!

We just got back our Doctor's Data RBC elements test, and it shows no Hg!

Whereas the

Great Smokies test showed " the highest level " my Dr had ever seen. Neither my

husband

nor myself show Hg in blood either.

My son's zinc level is still a little low at 7.1 (Ref Range: 8-14.5), and we

give him about 50

mg of zinc a day. He weighs 32 pounds. I guess that points to Hg toxicity as

well.

I don't give my son lots of CoQ10. Sometimes the 50 mg that is in the Ultra

Pure Fish Oil,

but I don't use it that often. I had him on l-carnitine for a long time, but it

seemed to

make him a little aggressive or unable to go to sleep. Do you recommend

l-carnitine or

acetyl l-carnitine? How much? How much CoQ10 and in which form? I own the

Idebenone

too. I put all his supps in pear sauce, so I'd need a liquid or powder CoQ10.

Are there tests that idicate a mitochondrial disorder?

Thanks for all your help!

Jill

> > > For a child you're not sure is autistic, I would repeat that test before

> > > starting chelation, and while you're at it if you can get the

> Immunosciences

> > > Metallothionein Cellular Test and a hair test, that would give you

> enough

> > > information to make the right decision about chelating. Dr. JM

> > >

> >

> >

> >

> >

> >

> >

> > Many frequently asked questions and answers can be found at

> <http://forums.autism-rxguidebook.com/default.aspx>

> >

> >

[Guest guest]

See http://www.umdf.org/mitodisease/testing.html. Owens know a lot

about this testing, and also a parent named Plant. I usually treat

with L-Carnitine (Thorne 330mg twice to three times daily) and 100mg of

CoQ10 twice or more daily. Dr. JM

Re: Dr JM-high Hg in RBC mineral test, so worried!

>

>

> Hi Dr. JM!

> We just got back our Doctor's Data RBC elements test, and it shows no Hg!

Whereas the

> Great Smokies test showed " the highest level " my Dr had ever seen.

Neither my husband

> nor myself show Hg in blood either.

>

> My son's zinc level is still a little low at 7.1 (Ref Range: 8-14.5), and

we give him about 50

> mg of zinc a day. He weighs 32 pounds. I guess that points to Hg

toxicity as well.

>

> I don't give my son lots of CoQ10. Sometimes the 50 mg that is in the

Ultra Pure Fish Oil,

> but I don't use it that often. I had him on l-carnitine for a long time,

but it seemed to

> make him a little aggressive or unable to go to sleep. Do you recommend

l-carnitine or

> acetyl l-carnitine? How much? How much CoQ10 and in which form? I own

the Idebenone

> too. I put all his supps in pear sauce, so I'd need a liquid or powder

CoQ10.

>

> Are there tests that idicate a mitochondrial disorder?

> Thanks for all your help!

> Jill

>

>

>

> > > > For a child you're not sure is autistic, I would repeat that test

before

> > > > starting chelation, and while you're at it if you can get the

> > Immunosciences

> > > > Metallothionein Cellular Test and a hair test, that would give you

> > enough

> > > > information to make the right decision about chelating. Dr. JM

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Many frequently asked questions and answers can be found at

> > <http://forums.autism-rxguidebook.com/default.aspx>

> > >

> > >