Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 Hmm realised I didn't send this out to the group sorry ( changed email address and my phone isn't picking up the addresses correctly) - what's the difference between Misophnia and 4S? Sent: May 12, 2011 10:28 AM Hi Thanks for responding, I found a doctor in Culver city that treats Misophonia and he received training from Dr. Jastreboff. His name is Dr. Sol Marghzar. I made an appointment for Friday. It is very expensive. He says that he has treated 11 people with Misophonia with good results. What is the difference between Misophonia and Selective Sound Sensitivity Syndrome? > > , > > That's too ironic that you would have to listen to blasting rock & roll > music when you called for help to deal with exactly that! (among other > things). I'm in So Cal also, but my son is so self-isolating that we > have not been seeing anyone for his 4S (he created his own coping > mechanism - recording his own voice as a custom white noise), so > unfortunately I can not recommend anyone. My recommendation would be to > contact UCLA Med Center since they tend to do more " leading edge " > research and ask if they have anyone there that might specialize in > something similar (misophonia or hyperacussis, since they would > recognize those, but you would have to make sure they pay attention to > the differences between those and 4S), but sometimes the best solution > is to find a therapist that does not necessarily specialize in this > area, but someone who will take you seriously, even do their own > research, and help you find ways to cope. Until a " cure " is found, it's > like some other disabilities where accomodations and coping mechanisms > are what we have ( & fight for) for now. Which reminds me, there have > been some updates/an addendum added recently to the Americans with > Disabilities Act which should make it easier to request/demand > accomodations for issues that are *similar* to, but necessarily exactly > the same as what most people accept as a disability. I believe this > goes into effect this month and might help in having a little more clout > in requesting a quiet workplace or a quiet place for taking tests in > school, etc. Might Sent from my BlackBerry® smartphone on 3 Quote Link to comment Share on other sites More sharing options...
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