Re: 5 yr old drowns toddler

[Guest guest]

I never got the impression that you were seeking publicity with this article. Similar articles have been posted on this board in the past, that have resulted in discussions about the pros and cons of perhaps trying to seek publicity with these kind of stories. It's just one of those on-going debates here... It was quite clear that you were just sharing.I wonder if the 5 year old fully comprehended what she was doing. It was about that age, that my brother and I sprinkled moth powder on my baby brother because he was crying, (we thought it was sugar), but thankfully he wasn't harmed.To: Soundsensitivity Sent: Sat, June 11, 2011 8:18:03 PMSubject: 5 yr old drowns toddler

I would also suggest that trying to get publicity for 4S by saying (in effect): "Look! Our condition even drives people to murder" may not be the best way to get a sympathetic hearing from the public. We might have a better result by getting publicity through celebrities who have 4S (or who have children with 4S) as well as appealing to the broad community of health professionals.

I'm so sorry, did I make it sound or say something to make you believe that I am "seeking publicity" for this article???? I only talk to this forum about this syndrome as I have been met with lots of negativity if I even tell anyone I have this problem...I would never open myself up to that...I thought I was safe here to bring this up but even here I am misunderstood and that is why I almost NEVER post even though I suffer just like the rest of you. If I say one thing it seems that someone is always misinterpreting what I am saying, which in this case all I was doing was "wondering" what you all thought...maybe this child simply has a mental problem...been seeing ALOT of that too...who knows...I was simply "sharing"....so sorry that I did that now....I feel very uncomfortable all of the sudden...I really don't want ANYONE to know I am sensitive as it has always been a "weapon" for so many in my life...and I don't cope well with mean people....who

are

very judgmental...Like I said before...so sorry that I brought this up....

[Guest guest]

I am sorry - no I wasn't criticising you for bringing up this article. I was

(incorrectly) commenting on another post. I didn't think you were trying to do

anything about publicity, just telling us here about an article you had read.

Like you, I have kept quiet about this condition for most of my life, and even

now I am careful about telling some people about it.

>

>

> I would also suggest that trying to get publicity for 4S by saying (in

effect): " Look! Our condition even drives people to murder " may not be the best

way to get a sympathetic hearing from the public. We might have a better result

by getting publicity through celebrities who have 4S (or who have children with

4S) as well as appealing to the broad community of health professionals.

>

> I'm so sorry, did I make it sound or say something to make you believe that I

am " seeking publicity " for this article???? I only talk to this forum about

this syndrome as I have been met with lots of negativity if I even tell anyone I

have this problem...I would never open myself up to that...I thought I was safe

here to bring this up but even here I am misunderstood and that is why I almost

NEVER post even though I suffer just like the rest of you. If I say one thing

it seems that someone is always misinterpreting what I am saying, which in this

case all I was doing was " wondering " what you all thought...maybe this child

simply has a mental problem...been seeing ALOT of that too...who knows...I was

simply " sharing " ....so sorry that I did that now....I feel very uncomfortable

all of the sudden...I really don't want ANYONE to know I am sensitive as it has

always been a " weapon " for so many in my life...and I don't cope well with mean

people....who are

> very judgmental...Like I said before...so sorry that I brought this up....

>

[Guest guest]

I'm sorry to hear that you feel that way . Maybe sometimes people here come off as overzealously "knowing it all" about 4s as a result of frustration they have experienced with people "out there" who do not have 4s, but claim to have a better understanding of 4s than those who actually suffer from it. I had thought the monitoring here has been quite just, allowing productive debate without over-censoring those who are inclined to "pounce" as you put it and allowing those who need to stick up for themselves in response to have their say. To: Soundsensitivity Sent: Sun, June 12, 2011 1:38:49 AMSubject: Re: 5 yr old drowns toddler

I have also been attacked for what I say here. I don't feel safe here, so I generally keep my mouth shut for fear that someone will pick apart what I have said and will criticize my every thought. It is a pity that some here feel that they know everything there is to know about misophonia. I feel like they are waiting for me to say something so that they can pounce. I was so hoping that this would be a safe place, with no bullies. Once again, I was wrong.

Sent from my Verizon Wireless Phone

Kathy Cook wrote:

>

>I would also suggest that trying to get publicity for 4S by saying (in effect): "Look! Our condition even drives people to murder" may not be the best way to get a sympathetic hearing from the public. We might have a better result by getting publicity through celebrities who have 4S (or who have children with 4S) as well as appealing to the broad community of health professionals.

>

>I'm so sorry, did I make it sound or say something to make you believe that I am "seeking publicity" for this article???? I only talk to this forum about this syndrome as I have been met with lots of negativity if I even tell anyone I have this problem...I would never open myself up to that...I thought I was safe here to bring this up but even here I am misunderstood and that is why I almost NEVER post even though I suffer just like the rest of you. If I say one thing it seems that someone is always misinterpreting what I am saying, which in this case all I was doing was "wondering" what you all thought...maybe this child simply has a mental problem...been seeing ALOT of that too...who knows...I was simply "sharing"....so sorry that I did that now....I feel very uncomfortable all of the sudden...I really don't want ANYONE to know I am sensitive as it has always been a "weapon" for so many in my life...and I don't cope well with mean people....who

are

> very judgmental...Like I said before...so sorry that I brought this up....