Re: EN after a workout anyone?

May 5, 2011

Prabhu,you might want to look at your adrenals. My legs used to explode with lumps after a workout. My outbreaks could last for 3 months - 6 months when I was pushing myself hard, However, since I have modified my life with the below list. It doesn't happen anymore.check out www.adrenalfatigue.com.Sounds like you are pushing yourself very hard. When the adrenals get over stressed, over time with hard exercise, kids, jobs, stress, etc it can really run down our immune system, leading to EN.That was the case with me. Gluten foods, dairy, all cause more stress on the adrenals as well. Caffeine, too.Here's what I suggest (IMHO):1. Go Gluten Free - give yourself six months to try it out. You will feel great. Wheat these days is just not meant to be digested as it has been genetically modified to the point that it is impossible to digest. Think gluten free grains.2. don't drink caffeine. If that is hard just move to decaf for a bit. Caffeine is terrible on the immune system.3. Get your adrenals tested: not a blood test but a saliva test which is done four times in one day to test your adrenal cycle. If you can't get them testedcheck out www.adrenalfatgue.com and do the test that they have in his book. I take his supplements for adrenal fatigue and they have made a huge difference. Swollen ankles is a telltale sign of adrenal fatigue. as the body cannot stop inflammation. Make sure you notice when you ankles swell the most. It takes 2 years to heal adrenal fatigue. And it can be done naturally. most doctors know nothing about it because they are only trained for adrenal failure. But fatigue is real and it can be helped.4. take a great probiotic daily.5. get your thyroid checked6.get your vit d levels checked. Most people are severely deficient and vit d effects our immune system.7. for relief of your lumps. I use Bragg's Apple Cider Vinegar (with the mother in it). I pour it on a paper towel and drape it over my lumps and it helps bring them down faster. I don't know why, but it works, magnificently. Only use Bragg's with the mother as it is the most potent. Regular vinegar doesn't work. You can also pour it in a cool bath if your lumps get hot.8. try to eat drink as much green veggies as you can. As the green helps the colon. The colon 70% of our immune system. And will show on our skin with rashes, EN etc. I drink Wheat Grass juice. A great colon healer. I drink organic freshly juiced drinks whenever I can to fill my body with healing foods.If I think of anything else I will let you know.wishing you wellness. ML GemmillEn 1975 Hi everyone,I'm probably the newest person to join this group. My dermatologist has taken a punch biopsy of my skin and the results will be out in a week but he strongly feels this is a case of EN as it pretty much matches all the symptoms.I've been a runner for the past 2 years and I can run at a decent speed for about 20 minutes without tiring. Very safe and picky eater, doesn't like anything remotely fatty or greasy. I've been using the treadmill past few months and just a month ago used the elliptical for about 4 minutes. I did push hard on the elliptical with my calves, then got off. I did feel my calves stiff all evening. Next day I woke up and found swollen red patches all over my calves, they were tender to the touch. The older patches got streaky after a week although there were still some isolated spots spread around. My doctor gave an anti-itch cream although I was under the impression I might have taxed a muscle and these could be blood clots. I was able to walk normal for about 20 more days when the sides of my ankles began to swell up. After another 5 days, the front of my feet began to swell up too. There has been very significant heaviness in my ankles/feet last 7 days and palpable discomfort when I walk. I've tried icing and resting but these are definitely very inadequate as I have a hyperactive toddler and my wife is carrying, so I simply dont get the rest that I need. I just started exploring the resources on this group and will definitely get started by avoiding wheat and glutinous foods. I must say I have been under some stress, lack of rest, eating junk food over the last 2 months so that might have contributed to the outbreak as well.Any other tips/comments are welcome. What is the usual span of your first outbreak? I'll be thankful for any ideas, thoughts from the wise members of this group.kind regards,Prabhu

May 5, 2011

Hi Prabhu,Welcome to the group!If there is anything I have learned about EN it is that everyone is different. And there are over 100 various triggers. My guess is that those who are being helped by the gluten free diet have latent or maybe not so latent digestive disturbances like Inflammatory bowel disease [often misdiagnosed as IBS] or Celiac-Sprue. So if it works for you, that is wonderful, but if not it still may help

others. Also muddying the waters is that EN goes into spontaneous remission without treatment quite often. I have had EN for over 40 yrs and never took meds for it--yet it would go into remission with rest and leg elevation. No special diet I ever tried had any effect I could see. I don't have digestive problems though. And now that I look at it, I don't consume much if any wheat-so I may be on a low gluten diet without trying. Here is the very best EN info I have ever found on the webhttp://dermatology.cdlib.org/DOJvol8num1/reviews/enodosum/requena.htmlIt includes a list of EN triggers. http://dermatology.cdlib.org/DOJvol8num1/reviews/enodosum/table1.htmlSee if any might apply to you. Perhaps you were exposed to strep infection--a very common EN trigger. My first bout of EN lasted about 3 weeks, but I should have rested longer. For me what has been helping is ice water soaks. I have been doing them twice a day for up to an hour at a time. I also wear support stockings. Today I walked about 1 1/2 miles with no ill effect. Once I reach remission I do not want to be on my feet too long as it has in the past caused me to relapse.I hope your dr. has taken blood and will possibly order a chest x-ray. And I am glad he did a biopsy so you will know for sure if you have EN. Even the best doctor can misdiagnose EN as they seldom see cases of it, and so many other skin disorders look similar EN. In fact, EN can look different on different patients.Some of us have small nodules and others

have golf ball sized nodes.Some have a few and others many. Some have nodes confined to the shins and others get them on their arms and other places. If you can find your trigger that is the key. If not, it is a hit and miss game which can be painful and frustrating. That said, many people only get one bout of EN in their lifetime. Many of us here are not in that fortunate category.And to finally answer your question I have had EN start after workouts--but to my thinking I was on the verge of an outbreak and the workout just tipped the scales so that my body could not contain it any longer.I hope you feel better soon!Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!Subject: EN after a workout anyone?To: erythema_nodosum_Group Date: Thursday, May 5, 2011, 6:04 PMHi everyone,I'm probably the newest person to join this group. My dermatologist has taken a punch biopsy of my skin and the results will be out in a week but he strongly feels this is a case of EN as it pretty much matches all the symptoms.I've been a runner for the past 2 years and I can run at a decent speed for

about 20 minutes without tiring. Very safe and picky eater, doesn't like anything remotely fatty or greasy. I've been using the treadmill past few months and just a month ago used the elliptical for about 4 minutes. I did push hard on the elliptical with my calves, then got off. I did feel my calves stiff all evening. Next day I woke up and found swollen red patches all over my calves, they were tender to the touch. The older patches got streaky after a week although there were still some isolated spots spread around. My doctor gave an anti-itch cream although I was under the impression I might have taxed a muscle and these could be blood clots. I was able to walk normal for about 20 more days when the sides of my ankles began to swell up. After another 5 days, the front of my feet began to swell up too. There has been very significant heaviness in my ankles/feet last 7 days and palpable discomfort when I walk. I've tried icing and resting but

these are definitely very inadequate as I have a hyperactive toddler and my wife is carrying, so I simply dont get the rest that I need. I just started exploring the resources on this group and will definitely get started by avoiding wheat and glutinous foods. I must say I have been under some stress, lack of rest, eating junk food over the last 2 months so that might have contributed to the outbreak as well.Any other tips/comments are welcome. What is the usual span of your first outbreak? I'll be thankful for any ideas, thoughts from the wise members of this group.kind regards,Prabhu------------------------------------You can help Erythema Nodosum Research. Just go to http://www.goodsearch.com/ and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to

EN Research. NOW you can also GoodShop for Erythema Nodosum. All your favorites including Amazon.com will donate when you specify Erythema Nodosum as who you GoodShop for. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum!

May 6, 2011

Thank you so much for your responses, and ! The wealth of

information in this group is simply fantastic.

I've never had irritable bowel syndrome as I generally take lots of raw

vegetables(not in the stressful last 2 months though) and I usually have very

quick bowel movements due to good fiber intake. However of late, I have been

taking lots of decaffeinated coffee and not consuming adequate amounts of water.

I will follow the instructions given by you. Now just for the record, I noticed

that yesterday night I felt my breath just a touch labored even while I was at

rest. I put on my heart beat monitor and noticed the beats were around 95-105.

This was pretty strange since during the time I was a regular runner, I had

brought it slightly down to 65-70, at no point was it above 75. I had been

diagnosed with cardiac arrhythmia 5 years back and further tests showed it was

not threatening, just needed periodic monitoring. When I had pronounced

arrthymia then, there was massive swelling in the ankles, which lasted for a

week. However none of the EN patches anywhere.

As I sit and type, I notice my beats went to the 80-85 mark and more towards

90-95 when I walk. I will be checking in with the doctor for an EKG this

evening.

Any inputs relating to the connection between increased heartbeat and ankle

swelling welcomed.

Kind regards,

Prabhu

May 6, 2011

Hi Prabhu,Make sure that your are checked for sarcoidosis which can affect the heart ---also rheumatic fever I realize you don't fit the age profile, but we have had members

who had rheumatic fever who were much older than 15.A mild case of sacroidosis is Lofgren's syndrome which presents with EN and affects the lungs. It will usually resolve within 2-3 yrs and not return. Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!Subject: Re: EN after a workout anyone?To:

erythema_nodosum_Group Date: Friday, May 6, 2011, 9:28 AMThank you so much for your responses, and ! The wealth of information in this group is simply fantastic.I've never had irritable bowel syndrome as I generally take lots of raw vegetables(not in the stressful last 2 months though) and I usually have very quick bowel movements due to good fiber intake. However of late, I have been taking lots of decaffeinated coffee and not consuming adequate amounts of water.I will follow the instructions given by you. Now just for the record, I noticed that yesterday night I felt my breath just a touch labored even while I was at rest. I put on my heart beat monitor and noticed the beats were around 95-105. This was pretty strange since during the time I was a regular runner, I had brought it slightly down to 65-70, at no point was it above 75. I had been diagnosed with cardiac

arrhythmia 5 years back and further tests showed it was not threatening, just needed periodic monitoring. When I had pronounced arrthymia then, there was massive swelling in the ankles, which lasted for a week. However none of the EN patches anywhere.As I sit and type, I notice my beats went to the 80-85 mark and more towards 90-95 when I walk. I will be checking in with the doctor for an EKG this evening.Any inputs relating to the connection between increased heartbeat and ankle swelling welcomed.Kind regards,Prabhu,------------------------------------You can help Erythema Nodosum Research. Just go to http://www.goodsearch.com/ and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. NOW you can also GoodShop for Erythema Nodosum.

All your favorites including Amazon.com will donate when you specify Erythema Nodosum as who you GoodShop for. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum!

May 6, 2011

Prabhu,when you go to your doctors ask for the heart monitor that you can take home and wear for awhile. That will give a more accurate reading. 2 years ago I started experiencing rapid heart beats. It would hit me around 2 am and sometimes throughout the day. It was scary and sent me to emergency many times. That box helps give an accurate reading of what they can eliminate. Some you can wear for a week. Some you were for a month. The computer chip in that helps deliver a reading to the cardiologist. having one ankle swollen needs to be addressed. If you have good insurance you might want to see about that.Here's the things I had done to remove any concern:I had a scan of my heart. Showed no signs of calcification.I had a ekgI had a scan of all my arteries: there was nothing except in my renal artery they discovered FMD (which is a deformed artery and sometimes can limit the amount of enzymes, hormones that tell the heart to race. But the doctor felt since I never had signs of high blood pressure this was not what was causing my heart palpitations. But it was good to have peace of mind and check everything.Then I went to the gynecologist and she ran a full blood panel and discovered I was low on thyroid and my estrogen was through the roof. Both can cause palpitations. I was an avid drinker of soy and coffee. She asked me to eliminate: soy, caffeine and just take walks and not run or be super aggressive with my athletics.It took about a month and I felt much better. Soy can wreak havoc on the system as can caffeine.also another thing that comes to mind is your levels of Magnesium and Potassium. Also Vitamin D Is it possible to check those? Sometimes too much or too little can cause the heart to beat rapidly. In my case I was taking too much potassium and magnesium and no Vit D. My results from a nutrition lab helped me to taylor my vitamin intake.there is another product that I love. It is called Vitalzym. It helps remove fibrin from the blood and system. It also helps with inflammation. It is a systemic enzyme that we should be getting from live foods but we don't anymore. We stop producing our own enzymes around 27 and after that the fibrin starts to age us. Systemic Enzymes can be great for aches and pains and inflammation as well as fighting illnesses. I take this 3 times a year.also I usually do a full nutritional panel just to make sure I have the adequate supply of nutrition since everyone is different. I usually do this every two years. it can be expensive but it is worth it. Cost about 200. Takes about 2 weeks and it shows everything.Do you mind if I ask how old you are?best,ml ML Gemmill Thank you so much for your responses, and ! The wealth of information in this group is simply fantastic.I've never had irritable bowel syndrome as I generally take lots of raw vegetables(not in the stressful last 2 months though) and I usually have very quick bowel movements due to good fiber intake. However of late, I have been taking lots of decaffeinated coffee and not consuming adequate amounts of water.I will follow the instructions given by you. Now just for the record, I noticed that yesterday night I felt my breath just a touch labored even while I was at rest. I put on my heart beat monitor and noticed the beats were around 95-105. This was pretty strange since during the time I was a regular runner, I had brought it slightly down to 65-70, at no point was it above 75. I had been diagnosed with cardiac arrhythmia 5 years back and further tests showed it was not threatening, just needed periodic monitoring. When I had pronounced arrthymia then, there was massive swelling in the ankles, which lasted for a week. However none of the EN patches anywhere.As I sit and type, I notice my beats went to the 80-85 mark and more towards 90-95 when I walk. I will be checking in with the doctor for an EKG this evening.Any inputs relating to the connection between increased heartbeat and ankle swelling welcomed.Kind regards,Prabhu

May 6, 2011

Yeah stress and lack of rest and junk food do all contribute to the taxing and weakening of the immune system. As you probably already know, EN is part of the set of Autoimmune problems. Do you have any family history or past history of any other autoimmune conditions?

Chantelle

Ps-and yes, others hav eposted about EN outbreaks occuring after a workout, after exercise, after running, etc. , so that is not at all uncommon. My own case occurred similarily.

Hi everyone,

I'm probably the newest person to join this group. My dermatologist has taken a punch biopsy of my skin and the results will be out in a week but he strongly feels this is a case of EN as it pretty much matches all the symptoms.

I've been a runner for the past 2 years and I can run at a decent speed for about 20 minutes without tiring. Very safe and picky eater, doesn't like anything remotely fatty or greasy. I've been using the treadmill past few months and just a month ago used the elliptical for about 4 minutes. I did push hard on the elliptical with my calves, then got off. I did feel my calves stiff all evening. Next day I woke up and found swollen red patches all over my calves, they were tender to the touch. The older patches got streaky after a week although there were still some isolated spots spread around. My doctor gave an anti-itch cream although I was under the impression I might have taxed a muscle and these could be blood clots. I was able to walk normal for about 20 more days when the sides of my ankles began to swell up. After another 5 days, the front of my feet began to swell up too. There has been very significant heaviness in my ankles/feet last 7 days and palpable discomfort when I walk.

I've tried icing and resting but these are definitely very inadequate as I have a hyperactive toddler and my wife is carrying, so I simply dont get the rest that I need.

I just started exploring the resources on this group and will definitely get started by avoiding wheat and glutinous foods. I must say I have been under some stress, lack of rest, eating junk food over the last 2 months so that might have contributed to the outbreak as well.

Any other tips/comments are welcome. What is the usual span of your first outbreak? I'll be thankful for any ideas, thoughts from the wise members of this group.

kind regards,

Prabhu

May 6, 2011

Thank you and . You have given me some more issues to check for and

the feeling that I'm close to identifying the larger issues responsible for the

outbreak.

I'm 34 and two years ago, I spent a season studying a series of books such as

Eat,Drink and be Healthy(Walter Willet), Readers Digest book on 150 healthiest

foods, Live at Eighty like you are fifty, etc and patterned my food habits based

on these books. I was fit and active and according to the Omron Fat Monitor

(http://www.amazon.com/Omron-HBF-306C-Loss-Monitor-Black/dp/B000FYZMYK/ref=sr_1_\

1?ie=UTF8 & qid=1304712130 & sr=8-1 ) my body fat ratio was around 13-16%. The

winter of 2009, I never used the heater at home and never felt run down as I

consumed oranges aplenty each day to boost the immunity. I also depended on

bananas for Potassium/Magnesium as I tried to get my nutrients from natural

foods as opposed to tablets.

(By the way, Omron makes some really great products, I also have their HeartBeat

Monitor Watch

(http://www.amazon.com/Omron-HR-100C-Heart-Rate-Monitor/dp/B000A5CEUO/ref=sr_1_1\

?ie=UTF8 & s=hpc & qid=1304712208 & sr=1-1 ) ). This was the one that had me at 100+

bpm yesterday so I got my wife to try it and it fell back to the 70s.

But all that is water under the bridge as the last 5-6 months I was not sleeping

as much as I ought to, and not consuming vegetables and fruits as I used to.

Especially in winter, I ended up drinking several cups of coffee. So to

summarise, a very inconsistent diet lacking balance.

I'm now swinging round to the theory that my recent exercise-triggered

inflammations might also include a blood clot affecting circulation. So while

I'm checking that, it would make sense to have a much more thorough checkup that

includes the adrenals too.

Thanks again everyone and good health to all!

Prabhu

May 8, 2011

Thanks chantelle. I went to urgent care Friday evening and had a chest x-ray, an

ultrasound of the leg and a blood test. The ultrasound confirmed there was no

blood clot and the overall conclusion is it is a case of EN.

The doctor(not a dermatologist) has recommended Advil or Aleve for the pain. I

will be checking back with my dermatologist. The results for the punch biopsy on

my leg has not yet arrived.

I have just started applying apple cider vinegar to the swollen parts. I will be

focussing on a veggies/fruits based diet this week.

My mother has been having psoriasis on and off for the past 9 years, that is the

only example of autoimmune conditions in the family.

Thank you all for your support.

Prabhu

>

> >

> > Hi everyone,

> >

> > I'm probably the newest person to join this group. My dermatologist has

taken

> > a punch biopsy of my skin and the results will be out in a week but he

> > strongly feels this is a case of EN as it pretty much matches all the

> > symptoms.

> >

> > I've been a runner for the past 2 years and I can run at a decent speed for

> > about 20 minutes without tiring. Very safe and picky eater, doesn't like

> > anything remotely fatty or greasy. I've been using the treadmill past few

> > months and just a month ago used the elliptical for about 4 minutes. I did

> > push hard on the elliptical with my calves, then got off. I did feel my

calves

> > stiff all evening. Next day I woke up and found swollen red patches all over

> > my calves, they were tender to the touch. The older patches got streaky

after

> > a week although there were still some isolated spots spread around. My

doctor

> > gave an anti-itch cream although I was under the impression I might have

taxed

> > a muscle and these could be blood clots. I was able to walk normal for about

> > 20 more days when the sides of my ankles began to swell up. After another 5

> > days, the front of my feet began to swell up too. There has been very

> > significant heaviness in my ankles/feet last 7 days and palpable discomfort

> > when I walk.

> >

> > I've tried icing and resting but these are definitely very inadequate as I

> > have a hyperactive toddler and my wife is carrying, so I simply dont get the

> > rest that I need.

> >

> > I just started exploring the resources on this group and will definitely get

> > started by avoiding wheat and glutinous foods. I must say I have been under

> > some stress, lack of rest, eating junk food over the last 2 months so that

> > might have contributed to the outbreak as well.

> >

> > Any other tips/comments are welcome. What is the usual span of your first

> > outbreak? I'll be thankful for any ideas, thoughts from the wise members of

> > this group.

> >

> > kind regards,

> > Prabhu

> >

>

May 9, 2011

Hi Prabhu!

I am in your same situation.

I have been a runner for 20+ years, (minus the 6 years I basically only ran a handful of times throught the year because of a knee injury).

Brief History:

Ran most of my life since I was about 12, on an off through sports seasons and the summer/weather.

I was marathon training the summer of 2004 and wrecked my knee- unrelated to EN.

In the late spring of 2005 I was diagnosed with idiopathic EN, even though I know the cause was stress and nutrition (I had, just a week or 2 previous, tried a cleansing fast) and lack of sleep . I had a full-blown immune breakdown- fever, swollen ankles, knees, hips amongst other general body tissue swelling. Lumps on legs. Even a cold-sore like breakout over my left eye that lasted over 6 weeks. Took over 10 weeks to shake it. Never had a full-blown case of EN since, but have had the stress-related.

HOWEVER, just last July I began running consistently agian, training for a half marathon and then marathon training since December. Things were fine all through the summer and into the fall.Then this January as I continued my training I began to have "heavy" legs. It started with what felt like tendonitis in my right ankle, but I kept trying to keep up with my mileage plan. By the beginning of Feb, running about 30 mi/week, my calves began swelling and seizing up, and I was sucking air like I had asthma or emphysema. It wasn't like a muscle cramp, but just an expansion/seizure that cut off circulation to my foot so it felt numb and weird to run on. It would kick in within the first mile or so and remain that way for most all of the remainder of the run up to 7 miles or so, and even into the next day regardless of stretching, soaking in an Epsom salt bath, etc. I really felt that my breathing was also hindering my running; when my

body actually felt ready to go, I couldn't get enough air in and I've developed this disturbing habit of stopping A LOT- I never ever would stop before, but this feels like something I just can't push through. I was huffing really hard and just felt unnecessarily exhausted even on short runs or long slow runs. My times plummeted when they should have been improving, I'm even slower now than when I started.

I sought help from a sports medicine clinic who had me speak with a chiropractor that favors physical therapy and doesn't really intend on looking into what's physiologically going on. I lost 3 weeks of training time/sanity (I keep my sanity by running, I'm sure you understand) and he suggested another 3 weeks off to just bike to see if it's muscular or vascular. I promptly went home an laced up my shoes for a 3.5 mi jaunt. He also paid no heed to my concerns about breathing.

So, after that not-so-brief history, here's my thoughts and what I've done so far:

Yes, this could be immune/EN related, even without lumps.

I am beginning to go back to watching my "bad food" intake, although I have also been a notorously healthy eater. When I was feeling better last summer, I was also following my naturopath's suggestion of the blood type diet - a kind of side-step beyond gluten free. I have gotten off from it but am slowly returnig to some of the aspects of it because it generally guides you to healthier eating. I'm not a fan/strict believer in it, but by making you think about food choices, it helps.

Sleep is very very very important. Your muscles/body need the rest to recover; I have really discovered the difference of feeling well/running light or the exact opposite based on sleeping patterns. You may notice that there's a two-day delay; if you sleep poorly on Thursday night, your Saturday run might not go so well.

Be sure to supplement your diet with the proper amount of calories you're burning while running, about an extra 100-150 cal/mile of running.

Thorough thorough stretching of the 5 major leg areas will also help: quads, gastrocs, soleus, hamstrings and hips. Here's a great site for stretching.

I wish I knew more about the breathing. It still bothers me from time to time, too. I am going to poll my local running and physical therapist and physician assistant friends to see what's going on, but I assume the underlying cause is something EN or autoimmune realted. I am also under lots of stress, have a bit of anxiety and am not sleeping well so I figure until I get that under control, either via natural meds or perscription meds, and get back into a better state of mind, it'll be something I have to deal with. I will let you know what my contacts say, and if I do end up seeing another doc I'm going to strongly suggest bloodwork and look into EN or something related again. But it also makes sense that if your muscles are stiff/swollen, oxygen is not getting into them sufficiently; so CO2 is not getting out of them efficiently either- and that would certainly cause labored breathing during exercise and

some increase in heart rate. I have been looking it up extensively on my own since the chiropractor wasn't helping, and can forward that along to you as well if you'd like. My heart rate and blood pressure have also risen due to stress/mild anxiety, as they should be much lower since I've been consistently up to 25-30mi/week. And with stress and EN directly related, that also makes sense.

Hope that helps- I'm open to discussing anything else that i may have forgotten here...

Good luck

K

Subject: Re: EN after a workout anyone?To: erythema_nodosum_Group Date: Friday, May 6, 2011, 12:28 PM

Thank you so much for your responses, and ! The wealth of information in this group is simply fantastic.I've never had irritable bowel syndrome as I generally take lots of raw vegetables(not in the stressful last 2 months though) and I usually have very quick bowel movements due to good fiber intake. However of late, I have been taking lots of decaffeinated coffee and not consuming adequate amounts of water.I will follow the instructions given by you. Now just for the record, I noticed that yesterday night I felt my breath just a touch labored even while I was at rest. I put on my heart beat monitor and noticed the beats were around 95-105. This was pretty strange since during the time I was a regular runner, I had brought it slightly down to 65-70, at no point was it above 75. I had been diagnosed with cardiac arrhythmia 5 years back and further tests showed it was not threatening, just needed periodic monitoring. When I

had pronounced arrthymia then, there was massive swelling in the ankles, which lasted for a week. However none of the EN patches anywhere.As I sit and type, I notice my beats went to the 80-85 mark and more towards 90-95 when I walk. I will be checking in with the doctor for an EKG this evening.Any inputs relating to the connection between increased heartbeat and ankle swelling welcomed.Kind regards,Prabhu

May 9, 2011

Hi Everyone,EN along with shortness of breath can be a sign of sarcoidosis. A pulmonary specialist can do tests to rule this out. But even without sarc. one may have impaired breathing with EN. When I have a bad flare I notice that my breathing is not "normal". I think this is due to nodes forming in the lungs. I read that a very long time ago in an old medical book...in the days before the internet. Once the EN subsides, my breathing returns to normal. Part of the EN syndrome is "malaise" which is flu like symptoms. So less breathing capacity may be part of what they call "malaise". I don't think anyone tries to run when they have the flu and I can't imagine running when my breathing is impaired

from EN.We unfortunately have more questions than answers with EN.Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!

May 10, 2011

Hi ,

My doctor had ruled out Sarcoidosis after the ultrasound and chest x-rays.

The update from me is that Elevation helped a lot!!! I slept with the back on

the floor and my feet on the couch and when I woke up the swelling had

CONSIDERABLY gone down.

Will be doing more elevation today. My doctor(GP) had prescribed Aleve for the

inflammation but no significant change since I started taking it.

thanks,

Prabhu

>

> Hi Everyone,

> EN along with shortness of breath can be a sign of sarcoidosis. A pulmonary

specialist can do tests to rule this out. But even without sarc. one may have

impaired breathing with EN. When I have a bad flare I notice that my breathing

is not " normal " . I think this is due to nodes forming in the lungs. I read that

a very long time ago in an old medical book...in the days before the internet.

Once the EN subsides, my breathing returns to normal. Part of the EN syndrome is

" malaise " which is flu like symptoms. So less breathing capacity may be part of

what they call " malaise " . I don't think anyone tries to run when they have the

flu and I can't imagine running when my breathing is impaired from EN.

>

> We unfortunately have more questions than answers with EN.

>

> Love,

>

> http://poems2order.wordpress.com/

>

> Please enter

> Erythema Nodosum.........Thanks!

>

May 10, 2011

Hi Prabhu,Leg elevation is a treatment that is over 100 years old. Not much has been researched on EN, so we are treating ourselves like people did a century ago ;-)I found leg elevation and support stockings and ice water soaks are the only thing I need to get over a bout of EN. But I have what is considered a milder case than most.Glad you are feeling better!Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!Subject: Re: EN after a workout anyone?To: erythema_nodosum_Group Date: Tuesday, May 10, 2011, 11:38 AMHi ,My doctor had ruled out Sarcoidosis after the ultrasound and chest x-rays. The update from me is that Elevation helped a lot!!! I slept with the back on the floor and my feet on the couch and when I woke up the swelling had

CONSIDERABLY gone down.Will be doing more elevation today. My doctor(GP) had prescribed Aleve for the inflammation but no significant change since I started taking it.thanks,Prabhu>> Hi Everyone,> EN along with shortness of breath can be a sign of sarcoidosis. A pulmonary specialist can do tests to rule this out. But even without sarc. one may have impaired breathing with EN. When I have a bad flare I notice that my breathing is not "normal". I think this is due to nodes forming in the lungs. I read that a very long time ago in an old medical book...in the days before the internet. Once the EN subsides, my breathing returns to normal. Part of the EN syndrome is "malaise" which is flu

like symptoms. So less breathing capacity may be part of what they call "malaise". I don't think anyone tries to run when they have the flu and I can't imagine running when my breathing is impaired from EN.> > We unfortunately have more questions than answers with EN.> > Love,> > http://poems2order.wordpress.com/> > > > > Please enter > Erythema Nodosum.........Thanks!>------------------------------------You can help Erythema Nodosum Research. Just go to http://www.goodsearch.com/ and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. NOW you can also GoodShop for Erythema Nodosum. All your

favorites including Amazon.com will donate when you specify Erythema Nodosum as who you GoodShop for. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum!

May 11, 2011

That's the same as me. My mom has psoriasis. It's all connected genetically so there is your link Sent from my iPhone

Thanks chantelle. I went to urgent care Friday evening and had a chest x-ray, an ultrasound of the leg and a blood test. The ultrasound confirmed there was no blood clot and the overall conclusion is it is a case of EN.

The doctor(not a dermatologist) has recommended Advil or Aleve for the pain. I will be checking back with my dermatologist. The results for the punch biopsy on my leg has not yet arrived.

I have just started applying apple cider vinegar to the swollen parts. I will be focussing on a veggies/fruits based diet this week.

My mother has been having psoriasis on and off for the past 9 years, that is the only example of autoimmune conditions in the family.

Thank you all for your support.

Prabhu

>

> >

> > Hi everyone,

> >

> > I'm probably the newest person to join this group. My dermatologist has taken

> > a punch biopsy of my skin and the results will be out in a week but he

> > strongly feels this is a case of EN as it pretty much matches all the

> > symptoms.

> >

> > I've been a runner for the past 2 years and I can run at a decent speed for

> > about 20 minutes without tiring. Very safe and picky eater, doesn't like

> > anything remotely fatty or greasy. I've been using the treadmill past few

> > months and just a month ago used the elliptical for about 4 minutes. I did

> > push hard on the elliptical with my calves, then got off. I did feel my calves

> > stiff all evening. Next day I woke up and found swollen red patches all over

> > my calves, they were tender to the touch. The older patches got streaky after

> > a week although there were still some isolated spots spread around. My doctor

> > gave an anti-itch cream although I was under the impression I might have taxed

> > a muscle and these could be blood clots. I was able to walk normal for about

> > 20 more days when the sides of my ankles began to swell up. After another 5

> > days, the front of my feet began to swell up too. There has been very

> > significant heaviness in my ankles/feet last 7 days and palpable discomfort

> > when I walk.

> >

> > I've tried icing and resting but these are definitely very inadequate as I

> > have a hyperactive toddler and my wife is carrying, so I simply dont get the

> > rest that I need.

> >

> > I just started exploring the resources on this group and will definitely get

> > started by avoiding wheat and glutinous foods. I must say I have been under

> > some stress, lack of rest, eating junk food over the last 2 months so that

> > might have contributed to the outbreak as well.

> >

> > Any other tips/comments are welcome. What is the usual span of your first

> > outbreak? I'll be thankful for any ideas, thoughts from the wise members of

> > this group.

> >

> > kind regards,

> > Prabhu

> >

>

May 11, 2011

Hi ,

I'm now finding that the ankle swelling goes down in the morning when I've slept

with my feet elevated, but it swells right back up by the evening. At my desk

job, about knee height is the maximum level to which I can buttress my feet.

Is there any way I could minimise the puffiness that inevitably happens during

the day time?

Thanks,

Prabhu

> >

> > Hi Everyone,

> > EN along with shortness of breath can be a sign of sarcoidosis. A pulmonary