Re: Inservice LBDA DVD

[Guest guest]

Kat,

This link has for you, is for the first DVD from '06. There is a

second one, '07 and you can get copies of both besides seeing them on the

Youtube.

Hugs

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Inservice LBDA DVD

LBD DVD

" The Many Faces of Lewy Body Dementia "

http://health.groups.yahoo.com/group/LBDcaregivers/message/56554

LBD Speeches on YouTube

" Difficulties in Diagnosing Lewy Body Dementia " , by T.

MD; " Behavioral Changes in LBD " by Tanis Ferman, MD; " New

Trends in Lewy Body Dementia " , by Jay Van Gerpen, MD

http://www.youtube.com/LBDAtv

>

> Donna,

> Where on the site can I find that DVD?

> Thanks,

> Kat in IL

>

>

>

> Re: Inservice

>

> Janet I SO wish I had the knowledge to do something like this at

King's!

> Jim's home is really lucky to have you to help them to understand

him

> because in the end, your dear husband will be the one helped the

most! It

> sounds like you did a really fantastic job, you have inspired me to

try and

> start learning more and more so that maybe I can make a small

difference

> where my mother is also.

>

> This really lifts my heart to read, wish I could have been there

too!

>

> His,

> Sherry

> www.owly.net

> daughter of , (mis?)diagnosed with AD in 2005, descent slowed

by

> Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile

from my

> house. We're learning to live with Lewy...

>

> ----- Original Message -----

> From: " Janet Colello " <janetcolello@ yahoo.com>

> Just to let you all know the inservice I did at Jim's nursing home

on LBD

> was a success. I was very relaxed and got everything in that I had

planned

> and I made it right up to 43 min. with the presentation and I was

given 45

> min. for the presentation, so I had 2 min. to spare. LOL The staff

was very

> interested in the Spectrum of LBD and were lead to believe that

Diffuse Lewy

> Body was the only type of Lewy Body Dementia and they were not

aware that

> PDD, Parkinson's Disease Dementia, was also considered Lewy Body

Dementia

> and they were taking notes on the Spectrum of Lewy Body Disease.

When I was

> talking about all the supporting features of LBD, they all

recognized a

> majority of those features in Jim. Many that sit with Jim during

meal times

> at breakfast and lunch have approached me to let me know that they

have

> noticed that often Jim is self-feeding and at other times, he can't

find the

> food on his plate, so they were very interested to hear about the

> Visuospatial impairments w/depth perception and in

object/orientation. They

> thought Jim was getting more needy in feeding, but they did recall

that he

> can feed himself most of the time and other times he can't and they

thought

> he was just relying more and more on them to feed him and they were

trying

> to initiate for him to feed himself when he really couldn't

determine where

> the food was on his plate, so now they are aware of why this

situation is

> happening and will be there for him when he can not find his food

on the

> plate. They got a laugh out of Capgras Syndrome and of course, they

have

> never heard of such a thing. They know that Jim recognizes me and

knows me

> and they are aware that he recognizes most all of them and they

were amazed,

> because they thought he had Alzheimers. I told them the story about

Jim

> having a " Capgras moment " when he lived at home and asked me at

dinner time

> where I eat and I said, " I eat with you, we eat together at the

> table. " And Jim blushed and said, " Oh no! Not both my wives

together. " That

> told it all about Capgras. LOL Hearing about Lewy Body kept them

all amused

> and they all felt a little closer to Jim when they walked out of

the meeting

> with a new sense of his disease.

> Thank you for all your support and supportive prayers, they really

helped. I

> didn't feel nervous at all and I had a real good feeling after it

was all

> over that they all know about Lewy Body now and they also got print-

outs of

> a lot of information that I passed out, besides the Inservice

Outline that I

> posted to all of you and thank you for critiquing it, so I could

edit it and

> get all the information correct. They all thanked me as they walked

out and

> there were 20 staff members from office admin and nursing together.

> For those of you that know Jim and Helen Whitworth that now work in

the

> volunteer end doing presentations on LBD and travel doing it, they

will be

> in a town very close to where I live in California on Saturday and

I plan on

> visiting with them and seeing their presentation. I may get into

that end of

> volunteering when I have free time in my life. Just a thought, the

nursing

> home is like family to me now, so they were easy to present to. I'm

not sure

> how I would do with an audience full of strangers. I will have to

see how

> the real professionals handle it on Saturday. I think Jim and Helen

live in

> the state of Washington now. I am not 100% sure. They are doing a

> presentation in Oregon this week and then coming down the coast to

> California on Saturday. I have met Jim and Helen a few times

before, so it

> will be fun to see them again. Jim was the very first person I had

ever met

> from this site when he was on this site and then he started working

on the

> LBDA board. He used to live in California not far from where I

live. As

> with Sandie and , Jim and Helen met from this group site

also after

> Jim's and Helen's spouses were deceased. So, we are not only a

support

> group, we are match makers too.. LOL

>

>

[Guest guest]

PS.

Kat,

You can send an email with the subject line being " DVD '06/'07 " and your

address. Or you can call and they will send a packet of info including the

brochure or a packet of brochures if you want more. You just need to ask for

them.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Inservice LBDA DVD

Donna,

Where on the site can I find that DVD?

Thanks,

Kat in IL

Re: Inservice

Janet I SO wish I had the knowledge to do something like this at King's!

Jim's home is really lucky to have you to help them to understand him

because in the end, your dear husband will be the one helped the most! It

sounds like you did a really fantastic job, you have inspired me to try and

start learning more and more so that maybe I can make a small difference

where my mother is also.

This really lifts my heart to read, wish I could have been there too!

His,

Sherry

www.owly.net

daughter of , (mis?)diagnosed with AD in 2005, descent slowed by

Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my

house. We're learning to live with Lewy...

----- Original Message -----

From: " Janet Colello " <janetcolello@ yahoo.com>

Just to let you all know the inservice I did at Jim's nursing home on LBD

was a success. I was very relaxed and got everything in that I had planned

and I made it right up to 43 min. with the presentation and I was given 45

min. for the presentation, so I had 2 min. to spare. LOL The staff was very

interested in the Spectrum of LBD and were lead to believe that Diffuse Lewy

Body was the only type of Lewy Body Dementia and they were not aware that

PDD, Parkinson's Disease Dementia, was also considered Lewy Body Dementia

and they were taking notes on the Spectrum of Lewy Body Disease. When I was

talking about all the supporting features of LBD, they all recognized a

majority of those features in Jim. Many that sit with Jim during meal times

at breakfast and lunch have approached me to let me know that they have

noticed that often Jim is self-feeding and at other times, he can't find the

food on his plate, so they were very interested to hear about the

Visuospatial impairments w/depth perception and in object/orientation. They

thought Jim was getting more needy in feeding, but they did recall that he

can feed himself most of the time and other times he can't and they thought

he was just relying more and more on them to feed him and they were trying

to initiate for him to feed himself when he really couldn't determine where

the food was on his plate, so now they are aware of why this situation is

happening and will be there for him when he can not find his food on the

plate. They got a laugh out of Capgras Syndrome and of course, they have

never heard of such a thing. They know that Jim recognizes me and knows me

and they are aware that he recognizes most all of them and they were amazed,

because they thought he had Alzheimers. I told them the story about Jim

having a " Capgras moment " when he lived at home and asked me at dinner time

where I eat and I said, " I eat with you, we eat together at the

table. " And Jim blushed and said, " Oh no! Not both my wives together. " That

told it all about Capgras. LOL Hearing about Lewy Body kept them all amused

and they all felt a little closer to Jim when they walked out of the meeting

with a new sense of his disease.

Thank you for all your support and supportive prayers, they really helped. I

didn't feel nervous at all and I had a real good feeling after it was all

over that they all know about Lewy Body now and they also got print-outs of

a lot of information that I passed out, besides the Inservice Outline that I

posted to all of you and thank you for critiquing it, so I could edit it and

get all the information correct. They all thanked me as they walked out and

there were 20 staff members from office admin and nursing together.

For those of you that know Jim and Helen Whitworth that now work in the

volunteer end doing presentations on LBD and travel doing it, they will be

in a town very close to where I live in California on Saturday and I plan on

visiting with them and seeing their presentation. I may get into that end of

volunteering when I have free time in my life. Just a thought, the nursing

home is like family to me now, so they were easy to present to. I'm not sure

how I would do with an audience full of strangers. I will have to see how

the real professionals handle it on Saturday. I think Jim and Helen live in

the state of Washington now. I am not 100% sure. They are doing a

presentation in Oregon this week and then coming down the coast to

California on Saturday. I have met Jim and Helen a few times before, so it

will be fun to see them again. Jim was the very first person I had ever met

from this site when he was on this site and then he started working on the

LBDA board. He used to live in California not far from where I live. As

with Sandie and , Jim and Helen met from this group site also after

Jim's and Helen's spouses were deceased. So, we are not only a support

group, we are match makers too.. LOL