Not sure if this is where I belong?

[Guest guest]

Hi

I have always been extremely sensitive to high pitch, low pitch, and certain bass sounds. I remember running crying from dog whistles, vomiting at being forced to be in a room with a bad air conditioner. I can not handle vacuum cleaners at all (my mother put down sheets for a very long time because of this).

However, I can hear conversations from across our football field size cubicle city. The lowest volume on most radios is too loud for me. I never go to movies, concerts, restaurants with more than 6 customers, etc. Still, there is just so much you can do!

Noise has always translated into pain for me. Since birth. Rap music is like someone taking a nail gun and beating it into my head. When a car with that drumming noise pulls up behind me at a red light, it is like being beaten with a sock of quarters over my eyes. I carry liquid pain meds and take them immediately with these pains. But that just takes the edge off and allows me to function at all.

I also have MHE, a very rare and painful disease which involves benign bone tumors, so I am used to living with pain. I basically function under amounts of pain that would have most people screaming in fear and running to the emergency room. I have had over 20 kidney stones, and that excruciating pain is pretty much just my everyday bad day pain.

I have had my hearing tested, and I used to have hearing well above and below normal ranges. But now I am aging, and instead of hearing the noise (and trying to do something or just gritting my teeth and baring it) I only recognize the noise now when I get the pain--MUCH too late to do anything about it. I am looking for solutions--but it sounds like this 4S is different than "hyperacute hearing above and below normal hearing ranges that translates directly to pain"?

Thanks!

Deena

Deena Larsenhttp://www.deenalarsen.net

[Guest guest]

I also have other medical conditions (about 15 of them) and deal with more pain daily than some deal with in a lifetime. I am bedridden and get no relief from medications or anything else at this point (for the pain).

When this FIRST started with me, every sound that bothered me sent my feet (which is where my greatest pain is--due to peripheral neuropathy) into muscle spasms and it was very very painful. I'd hear a noise and feel pain. My feet would also visibly spasm--my toes looked like they were going through withdrawals from a powerful drug!

I've only had problems with sounds for a little over a year--it started when the neuropathy and POTS started. A lot of noises now just bother me--they irritate me and I hate hearing them.However, there are still a few select noises that still make me hurt. Hearing someone rub their hands or feet together (or any skin to skin contact) makes the pain in my feet flare up.

I don't understand how that is even possible... but I have experienced it.---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

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Hi

 

I have always been extremely sensitive to high pitch, low pitch, and certain bass sounds.  I remember running crying from dog whistles, vomiting at being forced to be in a room with a bad air conditioner.  I can not handle vacuum cleaners at all (my mother put down sheets for a very long time because of this). 

 

However, I can hear conversations from across our football field size cubicle city.  The lowest volume on most radios is too loud for me.  I never go to  movies, concerts, restaurants with more than 6 customers, etc.  Still, there is just so much you can do!

 

Noise has always translated into pain for me.  Since birth.  Rap music is like someone taking a nail gun and beating it into my head. When a car with that drumming noise pulls up behind me at a red light, it is like being beaten with a sock of quarters over my eyes.   I carry liquid pain meds and take them immediately with these pains.  But that just takes the edge off and allows me to function at all.

 

I also have MHE, a very rare and painful disease which involves benign bone tumors, so I am used to living with pain. I basically function under amounts of pain that would have most people screaming in fear and running to the emergency room.  I have had over 20 kidney stones, and that excruciating pain is pretty much just my everyday bad day pain.

I have had my hearing tested, and I used to have hearing well above and below normal ranges.  But now I am aging, and instead of hearing the noise (and trying to do something or just gritting my teeth and baring it) I only recognize the noise now when I get the pain--MUCH too late to do anything about it.

I am looking for solutions--but it sounds like this 4S is different than " hyperacute hearing above and below normal hearing ranges that translates directly to pain " ?

 

Thanks!

Deena

Deena Larsenhttp://www.deenalarsen.net