Re: Re: What is the first step?

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Wow le, it is TOO strange that reading your story is almost exactly like mine to a T. I first found out my "problem" had a name when I was 15 by Googling 'eating noises bother me'. Then I met my boyfriend at 16 and he's always been super understanding. We moved out together at 18 and we eat separately and he knows he's bothering me when I give him that 'look' lol. I just turned 21 on May 19th. I just thought it was super neat how similar those portions of our lives have been! Sent from my U.S. Cellular BlackBerry® smartphoneSender: Soundsensitivity Date: Fri, 27 May 2011 20:18:16 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: What is the first step? Multiple pedatricians, a few counselors, and an audiologist have given me no helpful advice or answers to my problem with 4s. I am 19, and have been suffering from this for my entire life. I thought I was the only person in the world until I found information on hyperacusis online when I was 15 years old, which led me to pinpoint my problem as 4S. Nothing made more sense to me than this self diagnosis. Pediatricians ruled it out as either emotional, or mental issues. Basically the " It's all in her head " answer. Counselors would suggest exercises to reduce stress in trigger situations. " Count backwards from 10 " and " Take 10 deep breaths. " No help. The audiologist confirmed that my hearing was perfect, and suggested custom earplugs. Out of everyone I've ever gone to for help I'd expect the audiologist to have some form of information about hyperacusis/4s/misophonia, but no. Finally at age 16 my pediatrician suggested sensory integration therapy, which seemed like it might address the real problem. The woman I saw did no extensive testing, she just kind of heard me out and suggested white noise therapy. Expensive, but actually seemed appropriate. Because of money I never followed through with that, and have tried to make an appointment with the hyperacusis clinic closest to me (2 hours away), so that I can have some real testing done and talk to people who recognize this as a real thing, but that appointment is $600 which never seems to be in my bank account. I still do not know how to cope with the noises effectively, I simply just deal with it. I can tell you that knowing that other people suffer has been an extreme help with my anxiety ever since that day I googled " eating noises bother me. " Your daughter is not alone, but unfortunately I do not have much faith in the medical world to help us. Good luck, and if you learn any strategies that help her please post!> > > What is the first step? > > > > > > > > > > I'm ready to see some kind of specialist for my daughter, to learn how to cope with her trigger sounds. Who do I see first? Her doctor? An audiologist? A psycologist? I feel extremely saddened that she cannot go outside because of the bird sounds. > > > Any advice in the direction I should take, please let me know. > > > Thank you, > > > >