Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Louisa Very few of us have been where your dad is but I know from posts of other close relatives that this is common at this stage of the disease. Some of it may be down to the drugs but the alternative is a greater level of pain. So personally I would prefer sleep to the pain. You really are a brick on how you are coping and I hope and pray that you and mum retain this strength through your fight. I hope and pray that dad can live as pain free existence as possible Best wishes -----Original Message-----From: Louisa Daysh Sent: 19 August 2004 21:29To: ProstateCancerSupport Subject: just a query Hi there, Im just wondering something, and thought i would ask you all. As you may already know, i get to hear whats happening through my mum when she rings or emails me the news...which with their frantic routine of having blood tests, dr's visits and visits to get the Bone transfusion injection, as well as the everyday life stuff (getting dad out of the wheelchair into bed...and vice versa..and toilet issues and stuff...)..mum of course gets to tell us when she can... Sooooo anyway yesterday she rang me, and mentioned that dad was VERY fatigued lately. Sleeping, catnapping, dozing every couple of minutes. Going to have sleeps all the time. When i was up there a couple of weeks ago, i noticed one day, where he just napped all day. He would be in his wheelchair, and would just fall asleep while in the middle of going somewhere.. They are getting the Dr to come and visit him to see if its a side affect of medication or whether its part of the road he has to walk in his journey with PC... What im wondering is, if anyone has experience that could shine any light on this situation for me. Is this part of his body winding down?. Is this normal?..what can we expect.We are really open about this, so please be honest with your answers. Thanks so much for any help Louisa(New Zealand - daughter of a PC sufferererer...) Need more speed? Get Xtra JetStream! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 thankyou , as always for your wonderful words of encouragement... I really honour my parents for the way they have been towards each other,and they have taught me how true love really is...it is amazing at what they have had to go through. I have to agree with you on the pain thing too, as apparently the pain is being coped with JUST, at the moment. Its bearable, as mum has said.. I guess, Im not sure how i feel right now. ANd its probably the way i am handling things. But its more getting information, than feeling it close. I know its my dad...and i love him to bits..and i know i feel sad, but i dont feel broken up, as there isnt time to do that right now. I know that afterwards its ok to do that, but for dad...we are just gathering the information, like they are...if that makes sense... One thing that has been really helpful for them both, is the fact that mum and dad have been writing dads memoirs...its a book that the hospice are going to put together, and they ask dad a load of questions (written down in a questionaire form)...and its been really interesting...talking about...childhood memories...favourite toys as a kid...moments he is proud of.., what he remembers of school...work, his first love, his first girlfriend...all sorts of things like that...its been really interesting..!!!...:-) and very theraputic for mum too..as she is doing the writing..and talking to dad about things...so thats cool too.. anyway...waffling away now.. thanks again for your comments .. Big hugsLouisa > >Reply-To: ProstateCancerSupport >To: <ProstateCancerSupport > >Subject: RE: just a query >Date: Thu, 19 Aug 2004 23:19:38 +0100 > >Louisa > >Very few of us have been where your dad is but I know from posts of other >close relatives that this is common at this stage of the disease. Some of >it may be down to the drugs but the alternative is a greater level of pain. >So personally I would prefer sleep to the pain. > >You really are a brick on how you are coping and I hope and pray that you >and mum retain this strength through your fight. >I hope and pray that dad can live as pain free existence as possible > >Best wishes > > > just a query > > > > Hi there, > > Im just wondering something, and thought i would ask you all. As you may >already know, i get to hear whats happening through my mum when she rings or >emails me the news...which with their frantic routine of having blood tests, >dr's visits and visits to get the Bone transfusion injection, as well as the >everyday life stuff (getting dad out of the wheelchair into bed...and vice >versa..and toilet issues and stuff...)..mum of course gets to tell us when >she can... > > Sooooo anyway yesterday she rang me, and mentioned that dad was VERY >fatigued lately. Sleeping, catnapping, dozing every couple of minutes. Going >to have sleeps all the time. When i was up there a couple of weeks ago, i >noticed one day, where he just napped all day. He would be in his >wheelchair, and would just fall asleep while in the middle of going >somewhere.. > > They are getting the Dr to come and visit him to see if its a side affect >of medication or whether its part of the road he has to walk in his journey >with PC... > > What im wondering is, if anyone has experience that could shine any light >on this situation for me. Is this part of his body winding down?. Is this >normal?..what can we expect. > We are really open about this, so please be honest with your answers. > > Thanks so much for any help > > Louisa > (New Zealand - daughter of a PC sufferererer...) > > > > >---------------------------------------------------------------------------- >-- > Need more speed? Get Xtra JetStream! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Louisa I echo 's sentiments here. But if you wished to understand more about what is involved when someone is dying you might like to look at the website written by a nurse called " crossing the creek " . It sounds as though you're getting help from the hospice and I hope it comforts you all On Fri, 20 Aug 2004 11:27:29 +1200 " Louisa Daysh " wrote: thankyou , as always for your wonderful words of encouragement... I really honour my parents for the way they have been towards each other,and they have taught me how true love really is...it is amazing at what they have had to go through. I have to agree with you on the pain thing too, as apparently the pain is being coped with JUST, at the moment. Its bearable, as mum has said.. I guess, Im not sure how i feel right now. ANd its probably the way i am handling things. But its more getting information, than feeling it close. I know its my dad...and i love him to bits..and i know i feel sad, but i dont feel broken up, as there isnt time to do that right now. I know that afterwards its ok to do that, but for dad...we are just gathering the information, like they are...if that makes sense... One thing that has been really helpful for them both, is the fact that mum and dad have been writing dads memoirs...its a book that the hospice are going to put together, and they ask dad a load of questions (written down in a questionaire form)...and its been really interesting...talking about...childhood memories...favourite toys as a kid...moments he is proud of.., what he remembers of school...work, his first love, his first girlfriend...all sorts of things like that...its been really interesting..!!!...:-) and very theraputic for mum too..as she is doing the writing..and talking to dad about things...so thats cool too.. anyway...waffling away now.. thanks again for your comments .. Big hugsLouisa > >Reply-To: ProstateCancerSupport >To: <ProstateCancerSupport > >Subject: RE: just a query >Date: Thu, 19 Aug 2004 23:19:38 +0100 > >Louisa > >Very few of us have been where your dad is but I know from posts of other >close relatives that this is common at this stage of the disease. Some of >it may be down to the drugs but the alternative is a greater level of pain. >So personally I would prefer sleep to the pain. > >You really are a brick on how you are coping and I hope and pray that you >and mum retain this strength through your fight. >I hope and pray that dad can live as pain free existence as possible > >Best wishes > > > just a query > > > > Hi there, > > Im just wondering something, and thought i would ask you all. As you may >already know, i get to hear whats happening through my mum when she rings or >emails me the news...which with their frantic routine of having blood tests, >dr's visits and visits to get the Bone transfusion injection, as well as the >everyday life stuff (getting dad out of the wheelchair into bed...and vice >versa..and toilet issues and stuff...)..mum of course gets to tell us when >she can... > > Sooooo anyway yesterday she rang me, and mentioned that dad was VERY >fatigued lately. Sleeping, catnapping, dozing every couple of minutes. Going >to have sleeps all the time. When i was up there a couple of weeks ago, i >noticed one day, where he just napped all day. He would be in his >wheelchair, and would just fall asleep while in the middle of going >somewhere.. > > They are getting the Dr to come and visit him to see if its a side affect >of medication or whether its part of the road he has to walk in his journey >with PC... > > What im wondering is, if anyone has experience that could shine any light >on this situation for me. Is this part of his body winding down?. Is this >normal?..what can we expect. > We are really open about this, so please be honest with your answers. > > Thanks so much for any help > > Louisa > (New Zealand - daughter of a PC sufferererer...) > > > > >---------------------------------------------------------------------------- >-- > Need more speed? Get Xtra JetStream! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Thanks .. :-) Louisa > >Reply-To: ProstateCancerSupport >To: ProstateCancerSupport >Subject: RE: just a query >Date: Fri, 20 Aug 2004 01:20:08 +0100 > >Louisa > >I echo 's sentiments here. But if you wished to understand more about what is involved when someone is dying you might like to look at the website written by a nurse called "crossing the creek". It sounds as though you're getting help from the hospice and I hope it comforts you all > > > > > > ><< message5.txt >> Watch movie trailers online with the Xtra Broadband Channel ! Quote Link to comment Share on other sites More sharing options...
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