Re: Will getting together help us?

[Guest guest]

Maybe there should be a 4S convention and everybody could get together and commiserate. I'm from Minnesota and have misophonia but not classic 4S. My main triggers are neighbor's bass, as I had a bad experience at one time in my life with bad neighbors who played bass day and night and had a quadraphonic sound machine. Now if I'm at home and I hear even a hint of neighbor's noise I start to panic and can't take it and feel as if I'm in danger. Away from home, I'm usually fine, although I have started to notice that people eating, especially when they eat too much, is starting to bother me and also the smells associated with it. For example, I went out to eat with some friends and one person in the group started chowing down on fried chicken, eating about 4 pieces and commenting on what a good deal it was. He actually looked like a pig eating that

chicken like that and it really bothered me. I had to turn away and not look at him. The next day I was waiting for the bus and another friend started talking to me and had just picked up a big piece of cheese and sausage pizza and was eating it right in my face. Again, I couldn't stand it and had to look away. I couldn't stand the smell,the sound, and the fact that he was eating and chowing down like that. Maybe I'm jealous because I always have to watch my weight and really don't eat very much, although I like my wine. Anyway, is the eating that is now bothering me associated with 4S or is it just that there are rude people around eating in your face? I already am bothered by bass and don't want to add another scenario or sound that I can't tolerate.

Subject: Will getting together help us?To: Soundsensitivity Date: Friday, May 13, 2011, 9:16 PM

I was wondering if our suffering would be reduced if we were in the company of other 4S sufferers. I have noticed that sometimes my triggers don't affect me at all, depending on the context. For example: Once I was in a group therapy session and I told the group that it bothered me when people sucked on their fingers. They all started sucking on their fingers but it did not bother me. Anyhow, If a group of us got together and talked about it while it was happening, maybe it would help. Are any of you in Southern California?

[Guest guest]

This is because the 'emotional' part of your brain has a very good mememory for

unpleasant experiences and becomes over-sensitized to anything resembling past

upsets. The problem is that part of your nervous system sees things in black and

white and fails to discriminate between what is really happening and what might

happen so that your reactions are just the same as when you went through the

original experience. The idea of cognitive behaviour therapy is to question

these 'automatic' reactions by engaging the 'thinking' part of your brain and

trying to discriminate between what is actually happening as opposed to what

might happen.

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[Guest guest]

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[Guest guest]

A convention is an excellent Idea. Who would be willing to go? What city should

we hold it in?

For me, If I control the trigger, it usually does not bother me. For example,

the bass sound of a loud motorcycle bothers me, but If I were to ride a

motorcycle myself, the noise doesn't bother me.

That is why I think that " group cognitive behavior therapy " might be a solution.

For example, we could all chew gum and tell each other how it feels and what

pigs we are. I think that because we understand each others pain and we are in

control of the situation, it would not bother us. If we do it enough, maybe we

will get used to not being bothered by it.

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[Guest guest]

I live in Las Vegas. Lots of things to do. All you can eat buffets!! And good room rates and airfares from everywhere. I could put up a couple of people on a tight budget. MikeTo:

Soundsensitivity Sent: Saturday, May 14, 2011 6:45 AMSubject: Re: Will getting together help us?

A convention is an excellent Idea. Who would be willing to go? What city should we hold it in?

For me, If I control the trigger, it usually does not bother me. For example, the bass sound of a loud motorcycle bothers me, but If I were to ride a motorcycle myself, the noise doesn't bother me.

That is why I think that "group cognitive behavior therapy" might be a solution. For example, we could all chew gum and tell each other how it feels and what pigs we are. I think that because we understand each others pain and we are in control of the situation, it would not bother us. If we do it enough, maybe we will get used to not being bothered by it.

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[Guest guest]

Las Vegas sounds good. It will have all of my triggers and my pleasures lol.

When would be a good time? How much time do we need to plan. Has anyone ever

planned something like this before? Do you think we can get professionals like

Dr. J to attend and hold seminars?

G

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> I was wondering if our suffering would be reduced if we were in the company of

other 4S sufferers. I have noticed that sometimes my triggers don't affect me at

all, depending on the context. For example: Once I was in a group therapy

session and I told the group that it bothered me when people sucked on their

fingers. They all started sucking on their fingers but it did not bother me.

>

> Anyhow, If a group of us got together and talked about it while it was

happening, maybe it would help. Are any of you in Southern California?

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[Guest guest]

I think this would be a first as far as I know. Seminars would be great as would professionals. We need to get together and form a planning committee. I will do what I can. Any other takers out there?MikeTo:

Soundsensitivity Sent: Saturday, May 14, 2011 7:22 AMSubject: Re: Will getting together help us?

Las Vegas sounds good. It will have all of my triggers and my pleasures lol.

When would be a good time? How much time do we need to plan. Has anyone ever planned something like this before? Do you think we can get professionals like Dr. J to attend and hold seminars?

G

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> I was wondering if our suffering would be reduced if we were in the company of other 4S sufferers. I have noticed that sometimes my triggers don't affect me at all, depending on the context. For example: Once I was in a group therapy session and I told the group that it bothered me when people sucked on their fingers. They all started sucking on their fingers but it did not bother me.

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> Anyhow, If a group of us got together and talked about it while it was happening, maybe it would help. Are any of you in Southern California?

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[Guest guest]

First we need a " sign up list " . We need to know approximately how many people

are willing to travel to Las Vegas for a convention. We will probably need 6

months to one year to publicize and plan this.

Anyone who is interested in attending a Las Vegas 4S convention during the next

year, please let me know.

G.

>

> I was wondering if our suffering would be reduced if we were in the company of

other 4S sufferers. I have noticed that sometimes my triggers don't affect me at

all, depending on the context. For example: Once I was in a group therapy

session and I told the group that it bothered me when people sucked on their

fingers. They all started sucking on their fingers but it did not bother me.

>

> Anyhow, If a group of us got together and talked about it while it was

happening, maybe it would help. Are any of you in Southern California?

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[Guest guest]

I've been reading your posts. Are you a psychologist or social worker?

Sent from my Verizon Wireless Phone

R wrote:

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>This is because the 'emotional' part of your brain has a very good mememory for

unpleasant experiences and becomes over-sensitized to anything resembling past

upsets. The problem is that part of your nervous system sees things in black and

white and fails to discriminate between what is really happening and what might

happen so that your reactions are just the same as when you went through the

original experience. The idea of cognitive behaviour therapy is to question

these 'automatic' reactions by engaging the 'thinking' part of your brain and

trying to discriminate between what is actually happening as opposed to what

might happen.

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[Guest guest]

A convention may work for some who like to be around others. I like to be

alone. Sorry, I would not come.

Sent from my Verizon Wireless Phone

gegleicher wrote:

>A convention is an excellent Idea. Who would be willing to go? What city should

we hold it in?

>

>For me, If I control the trigger, it usually does not bother me. For example,

the bass sound of a loud motorcycle bothers me, but If I were to ride a

motorcycle myself, the noise doesn't bother me.

>

>That is why I think that " group cognitive behavior therapy " might be a

solution. For example, we could all chew gum and tell each other how it feels

and what pigs we are. I think that because we understand each others pain and we

are in control of the situation, it would not bother us. If we do it enough,

maybe we will get used to not being bothered by it.

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[Guest guest]

, I like to be alone too. I dread being around " normal " people. I spend

most of my time alone in my room with headphones on. However, I am excited about

meeting fellow 4S sufferers who will understand exactly what I am going through.

I feel a special kinship for this newfound group. Also, I think that we can

alleviate each-others suffering by being together. I'd like to try it.

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[Guest guest]

I have Adrenal exhaustion. I cannot be around anyone for very long. Maybe when

my adrenals are repaired I can be around others. Of course, I believe that my

adrenals cause or contribute to my Misophonia.

Sent from my Verizon Wireless Phone

gegleicher wrote:

>, I like to be alone too. I dread being around " normal " people. I spend

most of my time alone in my room with headphones on. However, I am excited about

meeting fellow 4S sufferers who will understand exactly what I am going through.

I feel a special kinship for this newfound group. Also, I think that we can

alleviate each-others suffering by being together. I'd like to try it.

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[Guest guest]

, What is Adrenal exhaustion? I have always suffered from exhaustion too.

Some days are better than others. How did thy diagnose your adrenal exhaustion?

How would I know if I have that too?

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[Guest guest]

I won't be coming unless you guys all come to boring old South Dakota. I'm bedridden and unfortunately, I don't have the privileged of going out and having a somewhat normal life... I'm pretty much just stuck in my bed day after day. No Las Vegas for me.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

, What is Adrenal exhaustion? I have always suffered from exhaustion too. Some days are better than others. How did thy diagnose your adrenal exhaustion? How would I know if I have that too?

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[Guest guest]

While I agree with this. I just can't wrap my head around why it's the same for all of us, chewing. I know many of us have other common and uncommon noises but chewing seems to be the main one. It's just so bizarre to me. Sent from my iPhone

This is because the 'emotional' part of your brain has a very good mememory for unpleasant experiences and becomes over-sensitized to anything resembling past upsets. The problem is that part of your nervous system sees things in black and white and fails to discriminate between what is really happening and what might happen so that your reactions are just the same as when you went through the original experience. The idea of cognitive behaviour therapy is to question these 'automatic' reactions by engaging the 'thinking' part of your brain and trying to discriminate between what is actually happening as opposed to what might happen.

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[Guest guest]

Germs/infection?

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[Guest guest]

Chewing is not my biggest trigger. I have only one friend that chews gum. She

is very discreet. Not because I asked her to be, but because she is. No one

other than my husband really knows how many sounds irritate me. I have only

asked my husband to chew his food more quietly once and we've been married 10

years. My mom chewing popcorn when I lived at home bothered me. People eating

are not a real problem for me. If they talk loud in a restaurant, that's a

problem. I think I don't notice the sounds that people make as much because I

am concentrating on not being irritating to others. You see, I just assume

that everyone is like me.

Sent from my Verizon Wireless Phone

Heidi Salerno wrote:

>While I agree with this. I just can't wrap my head around why it's the same for

all of us, chewing. I know many of us have other common and uncommon noises but

chewing seems to be the main one. It's just so bizarre to me.

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>Sent from my iPhone

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>> This is because the 'emotional' part of your brain has a very good mememory

for unpleasant experiences and becomes over-sensitized to anything resembling

past upsets. The problem is that part of your nervous system sees things in

black and white and fails to discriminate between what is really happening and

what might happen so that your reactions are just the same as when you went

through the original experience. The idea of cognitive behaviour therapy is to

question these 'automatic' reactions by engaging the 'thinking' part of your

brain and trying to discriminate between what is actually happening as opposed

to what might happen.

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[Guest guest]

I read a good book on Adrenal Fatigue called Adrenal Fatigue The 21st Century Stress Syndrome, by L. . Ph.DIt is usually caused by of all things "Stress" , something that I am sure all 4S suffers have a large dose of. Also poor diet, lack of exercise etc. The usual stuff. It is treatable. Symptoms are similar to those of depression. Worth looking into. MikeTo: Soundsensitivity Sent: Saturday, May 14, 2011 10:41 AMSubject: Re: Will getting together help us?

, What is Adrenal exhaustion? I have always suffered from exhaustion too. Some days are better than others. How did thy diagnose your adrenal exhaustion? How would I know if I have that too?

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[Guest guest]

I will bring my 12 year old son who has suffered from this since age 5. He has

never met anyone else with it. He would love the opportunity to meet others so

he won't feel so alone. If other kids/teens are there, possibly they could

meet up together for a breakout session to discuss tactics for dealing with

school.

> >

> > I was wondering if our suffering would be reduced if we were in the company

of other 4S sufferers. I have noticed that sometimes my triggers don't affect me

at all, depending on the context. For example: Once I was in a group therapy

session and I told the group that it bothered me when people sucked on their

fingers. They all started sucking on their fingers but it did not bother me.

> >

> > Anyhow, If a group of us got together and talked about it while it was

happening, maybe it would help. Are any of you in Southern California?

> >

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[Guest guest]

I've been thinking about this for some time too however the problem is 1. we all

live in different parts of the world (I'm UK for instance). Also, I don't know

about everyone else, but I would be nervous being in a seminar about 4S as our

trigger sounds may occur (my main one is sniffing so you can imagine how likely

that is to occur). If a UK meet up was organised I would go though, depending on

the situation of course :]

[Guest guest]

Any UK members, please keep in mind that I would be happy to meet up (I am in Berkshire) to work with coping skills etc. - free of charge.....................

Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk

To: Soundsensitivity From: accachia@...Date: Sun, 15 May 2011 13:34:46 +0000Subject: Re: Will getting together help us?

I've been thinking about this for some time too however the problem is 1. we all live in different parts of the world (I'm UK for instance). Also, I don't know about everyone else, but I would be nervous being in a seminar about 4S as our trigger sounds may occur (my main one is sniffing so you can imagine how likely that is to occur). If a UK meet up was organised I would go though, depending on the situation of course :]

[Guest guest]

I also can't stand bass sounds. I have suffered from 4S all my life, but the

problem with bass started about 5 years ago.

I had been working as a mechanic at a Ford dealer for several years when they

hired a new mechanic. They put him in the bay next to me. He brought in a giant

boom box. At first, I didn't think anything of it. There were several radios

that had been blaring music in the shop for years. However, I would soon learn

that this radio was different. It had giant speakers and " mega bass " . I started

to become sensitive to the the " thump, thump, thump of the bass. Even when it

was set to a low volume, the bass drove me nuts. Soon, I became sensitive to all

of the radios in the shop. I was running around the shop and turning everyone's

radio down.

Within 6 months I was a nervous wreck. I told the manager that I wanted to quit

because of the radios. He tried to make some accommodation for me, but it didn't

work.

I quit my job 4 years ago and haven't worked since because I can't stand radios

or music in any shape or form. I also developed a sensitivity to loud modified

exhaust from motorcycles and cars. I spent a year traveling from motel to motel

looking for a quiet town. Only to find that there is no such place. I also

developed a sensitivity to the doors slamming in the adjacent motel rooms,

because that is also a bass sound. Car doors slamming also drives me nuts.

Everything drives me nuts. I wear earbuds and tune my radio to static to block

it out now.

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> > From: gegleicher <gegleicher@>

> > Subject: Will getting together help us?

> > To: Soundsensitivity

> > Date: Friday, May 13, 2011, 9:16 PM

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> > I was wondering if our suffering would be reduced if we were in the company

of other 4S sufferers. I have noticed that sometimes my triggers don't affect me

at all, depending on the context. For example: Once I was in a group therapy

session and I told the group that it bothered me when people sucked on their

fingers. They all started sucking on their fingers but it did not bother me.

> >

> > Anyhow, If a group of us got together and talked about it while it was

happening, maybe it would help. Are any of you in Southern California?

> >

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[Guest guest]

I wish I had some tips on how to overcome bearing fearful of bass sounds. I moved to a better, more sound-proof condo, and certainly don't want to share a common wall with 2 living rooms, which is what I had before. My doctor said that it is conditioned behavior, that my brain is conditioned to respond that way and probably wouldn't change. My condition is mostly just confined to being in my apartment. When I'm outside and hear bass, for example, from a loud car, I can tell my myself that it's temporary and it will go away, and it does.

I guess we have to protect ourselves the best way we know how. Luckily, I'm just fine outside and at work. It's no way to live, though, being confined to your room and not being able to work (unless you're independently wealthy and don't want to work). I would think at least anti-anxiety agents would help, such as Xanax, and therapy. Good luck.

Subject: Re: Will getting together help us?To: Soundsensitivity Date: Monday, May 16, 2011, 9:19 AM

I also can't stand bass sounds. I have suffered from 4S all my life, but the problem with bass started about 5 years ago. I had been working as a mechanic at a Ford dealer for several years when they hired a new mechanic. They put him in the bay next to me. He brought in a giant boom box. At first, I didn't think anything of it. There were several radios that had been blaring music in the shop for years. However, I would soon learn that this radio was different. It had giant speakers and "mega bass". I started to become sensitive to the the "thump, thump, thump of the bass. Even when it was set to a low volume, the bass drove me nuts. Soon, I became sensitive to all of the radios in the shop. I was running around the shop and turning everyone's radio down. Within 6 months I was a nervous wreck. I told the manager that I wanted to quit because of the radios. He tried to make some accommodation for me, but it didn't work. I

quit my job 4 years ago and haven't worked since because I can't stand radios or music in any shape or form. I also developed a sensitivity to loud modified exhaust from motorcycles and cars. I spent a year traveling from motel to motel looking for a quiet town. Only to find that there is no such place. I also developed a sensitivity to the doors slamming in the adjacent motel rooms, because that is also a bass sound. Car doors slamming also drives me nuts. Everything drives me nuts. I wear earbuds and tune my radio to static to block it out now. > > > > > > From: gegleicher <gegleicher@>> > Subject: Will getting together help us?> > To: Soundsensitivity > > Date: Friday, May 13, 2011, 9:16 PM> > > > > > Â > > > > > > > > I was wondering if our suffering would be reduced if we were in the company

of other 4S sufferers. I have noticed that sometimes my triggers don't affect me at all, depending on the context. For example: Once I was in a group therapy session and I told the group that it bothered me when people sucked on their fingers. They all started sucking on their fingers but it did not bother me. > > > > Anyhow, If a group of us got together and talked about it while it was happening, maybe it would help. Are any of you in Southern California?> > > > > >>

[Guest guest]

, I'm not sure if your talking to me but I am not a social worker nor

psychologist. I am just a victim of 4S. Since there is very little work being

done in this field, I am trying to find some answers on my own and with the help

of this group.

G

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[Guest guest]

Hi !! I hope you are well. I would come with my daughter. I would love to meet everyone in the group! Thanks for organizing it! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of BainbridgeSent: Sunday, May 15, 2011 9:14 AMTo: Soundsensitivity Subject: Re: Will getting together help us? I will bring my 12 year old son who has suffered from this since age 5. He has never met anyone else with it. He would love the opportunity to meet others so he won't feel so alone. If other kids/teens are there, possibly they could meet up together for a breakout session to discuss tactics for dealing with school. > >> > I was wondering if our suffering would be reduced if we were in the company of other 4S sufferers. I have noticed that sometimes my triggers don't affect me at all, depending on the context. For example: Once I was in a group therapy session and I told the group that it bothered me when people sucked on their fingers. They all started sucking on their fingers but it did not bother me. > > > > Anyhow, If a group of us got together and talked about it while it was happening, maybe it would help. Are any of you in Southern California?> > > > > >>