Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 I live in Phoenix, AZ. DX with bronch at age 19. Now 52 yo. Live..Love..Laugh! Subject: Bronchiectasis- Please reply if you live in USATo: bronchiectasis Date: Sunday, July 27, 2008, 7:09 AM Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All PeopleNamaste....I honor the place in youin which the entire Universe dwells, I honor the place in youwhich is of Love, of Truth, of Light and of Peace, When you are in that place in you,and I am in that place in me,we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 I was diagnosed two years ago, I'm 69, I live in Atlanta, GA Ruth From: Mach1of8aol (DOT) com <Mach1of8aol (DOT) com>Subject: Bronchiectasis- Please reply if you live in USATo: bronchiectasis@ yahoogroups. comDate: Sunday, July 27, 2008, 7:09 AM Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All PeopleNamaste....I honor the place in youin which the entire Universe dwells, I honor the place in youwhich is of Love, of Truth, of Light and of Peace, When you are in that place in you,and I am in that place in me,we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 To Mark and Nan: I'm in Southern California, USA, too. I was diagnosed with bronchiectasis in October/November 2007. So I'm still kinda new to this. Fortunately, I don't seem to have many, if any, symptoms right now. -- ================== > Please reply to this email if you live in the USA and you have Bronch > > Just trying to get an idea of the number ........there seem to be many in > this group from Australia. > > Just curious how many we have active in USA? > > You can reply that you live in USA and how long you have had Bronch. > > After a week or so, I will have a total number, and I will send it out to > the group so everyone will know. > > Thanks > > Mark > > One God For All People > Namaste.... > > I honor the place in you > in which the entire Universe dwells, > I honor the place in you > which is of Love, of Truth, of Light and of Peace, > When you are in that place in you, > and I am in that place in me, > we are One. > > > > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 I live in the US and have had bronch symptoms since 4 years ago but wasn't diagnosed until last year. Cassie Subject: Bronchiectasis- Please reply if you live in USATo: bronchiectasis Date: Sunday, July 27, 2008, 6:09 AM Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All PeopleNamaste....I honor the place in youin which the entire Universe dwells, I honor the place in youwhich is of Love, of Truth, of Light and of Peace, When you are in that place in you,and I am in that place in me,we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 I was diagnosed with bronchiectasis and ABPA in 2006. I live in USA, Pennsylvania. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 This is Joan in Melbourne Florida, USA. Prob had bronch a long time. Diagnosed 2 years ago. Went thru everything to finally picc-line 2 times a day at infusion center for a month, while using vest 2 times a day, while inhaling TOBI 2 times a day,. It all paid off. Feel very good now and off everything,. But I know it is still there and will act up again, but in the meantime, all is well. From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of Mach1of8@... Sent: Sunday, July 27, 2008 9:10 AM To: bronchiectasis Subject: Bronchiectasis- Please reply if you live in USA Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number .........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All People Namaste.... I honor the place in you in which the entire Universe dwells, I honor the place in you which is of Love, of Truth, of Light and of Peace, When you are in that place in you, and I am in that place in me, we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 what is a pic line-juneK Bronchiectasis- Please reply if you live in USA Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia . Just curious how many we have active in USA ? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All PeopleNamaste....I honor the place in youin which the entire Universe dwells, I honor the place in youwhich is of Love, of Truth, of Light and of Peace, When you are in that place in you,and I am in that place in me,we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 Hi Mark What a great idea . thanks for your time and interest in doing this. I grew up as an asthmatic child in the coal mining valleys of South Wales Uk .,Both my parents smoked and we spent many a winters evening around a kerosene heater.Added to that I followed my passion in Art college in Ceramics= , mold , silica & dust!!!!. I'm 58 I was diagnosed at 26 and had an upper lobe removed at 28 in the UK. that gave me about 10 fairly good years . Was told I would never work full time again . I have since moved to New York in 1983, divorced and am managing a VERY full time teaching job. My brother has just been diagnosed with rare and fatal IPF ( Ideopathic Pulmonary fibrosis) I'm assured by my Pulmo guy that its not hereditary but i've found research that it could be genetic. Cheers > > Please reply to this email if you live in the USA and you have Bronch > > Just trying to get an idea of the number ........there seem to be many in > this group from Australia. > > Just curious how many we have active in USA? > > You can reply that you live in USA and how long you have had Bronch. > > After a week or so, I will have a total number, and I will send it out to > the group so everyone will know. > > Thanks > > Mark > > One God For All People > Namaste.... > > I honor the place in you > in which the entire Universe dwells, > I honor the place in you > which is of Love, of Truth, of Light and of Peace, > When you are in that place in you, > and I am in that place in me, > we are One. > > > > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 I live in Wisconsin and was diagnosed 10 years ago. Barb Bronchiectasis- Please reply if you live in USA Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All People Namaste.... I honor the place in you in which the entire Universe dwells, I honor the place in you which is of Love, of Truth, of Light and of Peace, When you are in that place in you, and I am in that place in me, we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 I live in Texas and was diagnosed 9 years ago. Rich > > I live in Wisconsin and was diagnosed 10 years ago. > > Barb > > Bronchiectasis- Please reply if you live in > USA > > Please reply to this email if you live in the USA and you have Bronch > > Just trying to get an idea of the number ........there seem to be many > in this group from Australia. > > Just curious how many we have active in USA? > > You can reply that you live in USA and how long you have had Bronch. > > After a week or so, I will have a total number, and I will send it out > to the group so everyone will know. > > Thanks > > Mark > > One God For All People > Namaste.... > I honor the place in you > in which the entire Universe dwells, > I honor the place in you > which is of Love, of Truth, of Light and of Peace, > When you are in that place in you, > and I am in that place in me, > we are One. > > > > _____ > > Get fantasy football with free live scoring. Sign up > <http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020> for > FanHouse Fantasy Football today. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 I live in Texas and was diagnosed with bronchiectasis at age 66 although I think that I had it along with allergies for several years before being diagnosed. I am now 74 as of this month.Mach1of8@... wrote: Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All PeopleNamaste....I honor the place in youin which the entire Universe dwells, I honor the place in youwhich is of Love, of Truth, of Light and of Peace, When you are in that place in you,and I am in that place in me,we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 It is a very skinny, little tube put in your arm thru which abx are injected straight to the heart, then to the lungs. My body became immune to all oral abx, so this was the route. Joy can prob explain it better. From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of June Koppang Sent: Sunday, July 27, 2008 7:56 PM To: bronchiectasis Subject: Re: Bronchiectasis- Please reply if you live in USA what is a pic line-juneK Bronchiectasis- Please reply if you live in USA Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia .. Just curious how many we have active in USA ? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All People Namaste.... I honor the place in you in which the entire Universe dwells, I honor the place in you which is of Love, of Truth, of Light and of Peace, When you are in that place in you, and I am in that place in me, we are One. Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 I live in Virginia, USA Was diagnosed with Bronch 4 years ago but think I've had it since the mid 90's HelenaGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 i live in the U.S. phila pa billGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 i live in the U.S. phila pa bill Hey Bill...how long have you been diagnosed with Bronch? May I ask your age? I will compile all data and send out results in a few days Mark Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 im 42 and have had lung problems since i was 9 y,o, resulting from a bi lateral pnuemonia,, i was hops' for months,, pronounced dead a few times,had several chest tubes, a treach',,,, but came back,, since then ive allways had to bring up mucus daily and prob have maybe half the normal lung capacity, as the years went on i needed inhalers and other meds to deal with it,, but i always fought to live a normal life and went to school and worked full time my whole life instead of letting it control my life billGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 > > Please reply to this email if you live in the USA and you have Bronch > > Just trying to get an idea of the number ........there seem to be many in > this group from Australia. > I live in the US and was just recently diagnosed with Bronch in May of this year. I have a lot to learn from all of you! Amy > Just curious how many we have active in USA? > > You can reply that you live in USA and how long you have had Bronch. > > After a week or so, I will have a total number, and I will send it out to > the group so everyone will know. > > Thanks > > Mark > > One God For All People > Namaste.... > > I honor the place in you > in which the entire Universe dwells, > I honor the place in you > which is of Love, of Truth, of Light and of Peace, > When you are in that place in you, > and I am in that place in me, > we are One. > > > > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 I live in the US with bronch. Cook, 41 Re: Bronchiectasis- Please reply if you live in USA > > Please reply to this email if you live in the USA and you have Bronch > > Just trying to get an idea of the number ........there seem to be many in > this group from Australia. > I live in the US and was just recently diagnosed with Bronch in May of this year. I have a lot to learn from all of you! Amy > Just curious how many we have active in USA? > > You can reply that you live in USA and how long you have had Bronch. > > After a week or so, I will have a total number, and I will send it out to > the group so everyone will know. > > Thanks > > Mark > > One God For All People > Namaste.... > > I honor the place in you > in which the entire Universe dwells, > I honor the place in you > which is of Love, of Truth, of Light and of Peace, > When you are in that place in you, > and I am in that place in me, > we are One. > > > > > ************ **Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 I live in the US and have had Bronch for the past 4 years. Eileen-FL Subject: Re: Re: Bronchiectasis- Please reply if you live in USATo: bronchiectasis Date: Monday, July 28, 2008, 1:11 PM I live in the US with bronch. Cook, 41 Re: Bronchiectasis- Please reply if you live in USA >> Please reply to this email if you live in the USA and you have Bronch> > Just trying to get an idea of the number ........there seem to be many in > this group from Australia.> I live in the US and was just recently diagnosed with Bronch in May of this year. I have a lot to learn from all of you!Amy> Just curious how many we have active in USA?> > You can reply that you live in USA and how long you have had Bronch. > > After a week or so, I will have a total number, and I will send it out to > the group so everyone will know.> > Thanks> > Mark > > One God For All People> Namaste....> > I honor the place in you> in which the entire Universe dwells, > I honor the place in you> which is of Love, of Truth, of Light and of Peace, > When you are in that place in you,> and I am in that place in me,> we are One.> > > > > ************ **Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Bill, I can relate, had bi-lat pneumonia as an infant, lung collapse, again about 20yrs old, and again about 20yo – a different form that time. However, I was often unwell and had <20 surgeries by age 20....more impact on lungs, so can’t say I could ignore it much, but I guess at 42 I was doing by best to do so. I wish I’d had better management then, even a decade ago, maybe I’d be a bit healthier 56yo instead of feeling such loss of ability now.... Keep your docs on their toes, ask questions, I hope you have better luck.... joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 I am replying for my mother who has Bronchiectasis. Lives in the Pittsburgh, PA area and is 72. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 June, Your experience sounds much like mine. Whooping cough as a child, treated for asthma for 20 years because of hacking cough and many sinus and bronchial infections. Finally diagnosed with bronch at age 69. Since my Co2 levels were always high, the doctor just said "mild asthma", but the cough and infections were really terrible. MarilynGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 June, Your experience sounds much like mine. Whooping cough as a child, treated for asthma for 20 years because of hacking cough and many sinus and bronchial infections. Finally diagnosed with bronch at age 69. Since my Co2 levels were always high, the doctor just said "mild asthma", but the cough and infections were really terrible. MarilynGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 I've had bronchx for 4-5 years In the hospital twice and still on Ox whenever I do anything at allRon Clearwater FlSubject: Bronchiectasis- Please reply if you live in USATo: bronchiectasis Date: Sunday, July 27, 2008, 9:09 AM Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All PeopleNamaste....I honor the place in youin which the entire Universe dwells, I honor the place in youwhich is of Love, of Truth, of Light and of Peace, When you are in that place in you,and I am in that place in me,we are One.Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 I've had bronchx for 4-5 years In the hospital twice and still on Ox whenever I do anything at allRon Clearwater FlSubject: Bronchiectasis- Please reply if you live in USATo: bronchiectasis Date: Sunday, July 27, 2008, 9:09 AM Please reply to this email if you live in the USA and you have Bronch Just trying to get an idea of the number ........there seem to be many in this group from Australia. Just curious how many we have active in USA? You can reply that you live in USA and how long you have had Bronch. After a week or so, I will have a total number, and I will send it out to the group so everyone will know. Thanks Mark One God For All PeopleNamaste....I honor the place in youin which the entire Universe dwells, I honor the place in youwhich is of Love, of Truth, of Light and of Peace, When you are in that place in you,and I am in that place in me,we are One.Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
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